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Vulvar Cancer
Are there others in this community who are living with vulvar cancer?
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Intrahepatic Cholangio, Stage 1 but with R1 positive margin
Hello, I’m looking to connect with anyone who had Stage I intrahepatic cholangiocarcinoma and surgery that resulted in a positive (R1) margin. What treatment did you do after surgery (chemo, radiation, surveillance, etc.)? How have your outcomes and follow-up been? Any advice you’d share with someone in this situation?…
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Sharing...good...or bad?
Hello, Have you encountered any family member(s) who grill you about your condition, your treatments, etc. or the person you're caring for, in such a way that after the conversation, you feel…worse? I am wondering how to shut down such discussions, w/o being rude. Any tips? Can you relate? Thanks…
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Gallbladder Cancer 2023 (All Stages)
(I've started this topic because the most recent annual forum I could find was for 2018.) I have gallbladder cancer, discovered during what was anticipated to be a routine laparoscopic removal of my gallbladder, based on the presence of gallstones. As is the case in "Western" countries, gallbladder cancer is most…
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MISSING MOMMY DEAR....
Hi guys, thnaks for reading. So...my mom lost her battle to breast cancer this October 11th. She's been fighting since May of 2016 and had initally went into remission for 2 years. In May of 2018, she was diagnosed with metastatic breast cancer and it had spread to her brain and other parts of her body. The doctors were…
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Gallbladder Cancer Survivors - Roll Call
Hello! I am a GBC survivor looking for others. I was diagnosed in March of 2021. My gallbladder was removed due to stones, then pathology found it full of adenocarcinoma, stage II-b. I underwent treatment with a liver resection followed by 6 months on Xeloda. After 5 months, a lesion was found in my liver and cryoablated.…
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Any more gallbladder cancer patients?
It is wonderful to connect with gbc patients, but there aren't many of us!
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Ketogenic Diet for cancer
Is there anyone that uses a ketogenic diet for cancer treatment along with chemotherapy to lessen the side effects? I'm 66, was diagnosed with stage III serous ovavian cancer. I surgery to remove the cysts, ovaries and fallopian tubes removed. I had already had a hysterectomy. I had a port for chemotherapy installed…
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On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
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Nano knife recovery
I was diagnosed with prostate cancer in March 2025 and had a Gleason score of 4+3. Luckily I was able to undergo the nano knife procedure which was straightforward and without complications. Now I’m 3 months post op and wondering if and when I will see improvements in erectile function and semen volume. Medications aren’t…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Friendly Doctor, But doesn't give prognosis or seem to see how serious the condition is. Please Help
My younger brother has Stage 4 Colon Cancer. He was diagnosed almost one year ago. They did surgery to remove the tumor in his colon. He underwent Chemo right away. The PET scans have shown the cancer getting worse each time. It metastasized to his liver on the first PET Scan. The last PET scan showed it moved to the…
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Stage IV journey begins...
My cancer is back. I had a PSA done in January of this year…. 8.1…it had been a 0.34 six months before. Doctors could not believe that the result was that high after such a short time. It is an aggressive monster that eventually went to 9.4 in July. PET scan showed 8 bone lesions with 1 large one on my spine. No organ or…
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Another lymphoma diagnosis
Well the other day I got a biopsy result from a lump on my neck that indicates Large B-cell lymphoma, germinal center type. Don't know much else yet. Scheduling an appointment with an oncologist ASAP to hopefully learn more soon. Also have a full body scan scheduled for next week. Originally went to a ENT doc for the lump…
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Always feel love in all way 💕 never wait for someone to tell you
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Never give up
Sometimes it feels like the world is so over with you.but I know that nothing is impossible with out God He will come for own rescue 🛟 in time of help Amen
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Really long term effects of cobalt radiation?
Following the surgical removal of a medulla blastoma (base of brain), I received cobalt radiation treatment to kill any remaining errant cells. This happened 40 years ago. Since then, life for me has been fairly "unremarkable". During the past half dozen years however, I have slowly lost control over the coordination of my…
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I am a Christian "but"...... how do some of you do it??
I am a firm believer in GOD, don't get me wrong and know we all have trials in life like in the book of Job, BUT how do you not get so angry with GOD and how can such a rightous GOD give people so much pain? Guess, I am in this depressing and anger state right now. Just like no one wants to see a child suffer, it is SO…
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ER+, HER2+ breast cancer. New here, Nervous, have questions
was diagnosed with Stage 1, grade 2 er+, her2+ breast cancer. No lymph node involvement. Very small. Lumpectomy, 16 rounds of radiation, currently doing immunotherapy (session 9 of 18)and on Letrozole. My reason for being nervous…..although protocol called for me to do chemo, my oncologist felt I would be a good candidate…
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Anxiety?
How do you deal with the anxiety? I am feeling so out of control. I am normally able to face critical issues and deal with it, including my own past medical issues, my husband's critical health issues, and even unexpected deaths in my immediate family. But this time, I am a wreck… I shake constantly. I get angry at the…
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ROBOTIC CHOLECYSTECTOMY Recovery
I have a couple of questions for those who have had this surgery. I will be having ROBOTIC CHOLECYSTECTOMY surgery in a couple of weeks. How long did the surgery take? How long was your hospital stay? How long did recovery take befor you were basically back to your normal self? What advice do you have for others about to…
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It's back!
Diagnosed 6 years ago, many samples Gleason 8 or 9, seminal vesicle involvement. Classified as high risk of course. Was told by several docs that even if I had surgery I would still need the full barrage of radiation treatments also. I chose IMRT and 2 years of ADT and skipped the surgery. Now 6 years later, PSA slowly…
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POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
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Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
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Muscular pain along incision
I had a partial nifferectomy in May 2024 and the remaining part of my kidney atrophied. I have a 10 inch incision along my left side and I have quite consistent pain along the site. It is most noticeable when I sleep and does wake me up. For example I'm in Australia and it is 445 in the morning and I have been awake for an…
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Brother diagnosed with stage 4 colorectal cancer
My brother was diagnosed with colorectal cancer 2 years ago and had his colon removed. Then 4 or 5 months ago, he was again diagnosed, this time with stage 4 cancer. It has spread to the kidneys and lymph nodes and was given a year to live. He is wasting away so quickly going from 160lbs. to only 114lbs. He hardly eats…
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Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…
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Can your ca19-9 level go up even though tumors are shrinking?
My husbands, who has metastatic pancreatic cancer (spread to his liver) latest Ct scan showed that his tumors have slightly shrunk. The tumor on the pancreas from 3.7cm to 3.0cm and the liver tumors have also shrunk some. However his CA19-9 level has gone up. He has had 4 rounds of chemo so far. Does that mean his…
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My Mom Passed Away from Stage IV Liver Cancer
My name is Joanne (23) and I lost my mom to stage 4 hepatocellular carcinoma on December 13 at 2:58 a.m. this year. Right now, I'm just writing because after her funeral service and burial, I'm lost. I'm an only child currently living with my dad and I'm scared for him. He doesn't see the point in living a fun life now…
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I'm doing a Natural approach instead of Radiation and Chemo... is anyone else doing this too?
I said NO to radiation and NO to Chemo and am doing a Natural approach... has anyone or is anyone doing this too? I had a lumpectomy this past April and had three lymph nodes taken out. The lymph nodes were fine. The cancerous lump was around 1" in size and was a triple positive. After a bunch of research and a divine…