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Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1
Hi everyone, I was just diagnosed with Endometrial Adenocarcinoma - Endometrioid type - FIGO grade 1 P16 and P53 wild type stains) on 2/28. Have appointment with Oncologist on March 10th. Seems like years away after cancer diagnosis. I have had very heavy period since November 29th. Nobody should have to have a period this…
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Peritoneal Carcinoma - Ovarian cancer Stage IV .. How to tackle symptoms of disease after Chemo
I have been diagnosed with Peritoneal Carcinoma - Stage IV Ovarian Cancer. The diagnosis followed a hysterectomy in May 2024, and investigations in November 2024 confirmed the condition. I started my first cycle of chemotherapy (FOLFOX) in January 2025. Afterward, I experienced partial bowel obstruction, which led to an…
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secondary peritoneal cancer
Hi, just sending new so far on my husband Ian, he had his last of 8 cycles of chemo today, for colon mets in peritoneum. Next step is ct on 13th and then results on 19th. He has done so well so far, the ascites has not returned while on the chemo, we are hoping that this will be it, and chemo finished for good!! Oh well…
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Mastastic Melanoma stage IIC
HI, i was diagnosed on the 6th of June 2023. Had the "mole" removed, then they extended the margins for which they had cut it out. Now I have a 7 inch scar across my left shoulder blade. I've done all the tests, I think, PET scan came back with something in a lymph node. Have had the sentinel lymph node biopsy done the…
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RCHOP side affects with ileostomy
This week, I completed my 1st RCHOP treatment of 6. I have an ileostomy and catheter to divert stool and urine. Going into treatment, I had good ostomy output (volume & consistency). Since treatment, ostomy output is high@ >2000ml and loose. All my eating tricks don’t seem to work. I take 4x 2mg loperamide. Has anyone else…
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Abdominal cramps after chemo
my husband gets chemo and immunotherapy every three weeks. The days after his treatment he has constipation and cramps. I give him preparation h with lidocaine for the external but can anyone please recommend something to help with the pain from the cramping. It occurs quite often
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Extremely Scared - Husband Diagnosed with Throat Cancer
My husband was just diagnosed with squamous cell carcinoma in his throat at the base of his tongue. His ENT sent him for a CT with contrast this morning and the results are a spot 1.5cm in the largest section, no additional areas involved such as bone or muscles around and one lymph node on the same side. No midline…
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CA125 high after 13 years of being fine.
Been cancer free for 13 years and even when I had cancer my CA125 never went over 10. Just had a lab test done and now it is 41 and I am scared. Had complete hysterectomy in 2009.Waiting on dr to get with me to find out if he wants any scans done. Have been extra tired lately and now my brain is racing trying to examine…
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Keytruda side effects
My mom is in 10th cycle of keytruda for ovarian cancer recurrence. Last month her PET scan showed initial all lesions in brain and inguinal lymph nodes resolved. Doc said to continue treatment for six more cycles. However she is extremely fragile, lost 20 kilos, could take only fluids via tube and nervous all the time. Has…
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Uterine papillary serous carcinoma
I was diagnosed with USPC in August 2024. Had total hysterectomy (stage 1b, no metastasis or lymph node involvement). I have had 3 rounds of taxol/carboplatin and should be starting external radiation after first of year. Other than neuropathy and some short term muscle pains, I handled the first three rounds of chemo ok.…
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post radical nephrectomy developed a flank bulge
My husband had a radical nephrectomy from Stage 1 kidney cancer this past August. He almost immediately started developing a huge bulge - NOT a hernia. After a CT scan in October it was determined he has a denervation, flank bulge due to the nerves not regenerating from the flank incision. The muscle wall has thinned out…
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Biopsy without any bleeding
I'm not complaining, just curious. Had transrectal targeted biopsy (5 sites) with no blood in urine or semen. After all I've read about blood lasting for weeks, has anyone not experienced much bleeding? A pre-cancerous HG_PIN neoplasia was found. So cancer free for now!
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Depressed
I've went through chemo and radiation for breast cancer, and doing fine. It has been 7 months since the last treatment, which I'm so glad, but now I just so down and thats reaaly not at all me. I ended up with lymphodema and have gotten cellulitis in my arm twice. I wear a sleeve and do what they tell me, but does not seem…
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cbd topical cream
Has anyone tried cbd cream to help manage nerve pain, and did it work?
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Nerve pain
I had segmendectomy 3 weeks ago. I started to have side pain on my right side that I had the surgery. The surgeon said this is due to intercostal nerve being affected. He said to give it another month and if it persists he would start me on gabapentin, which I don’t want to start. Anyone out there have a similar situation…
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Does anyone have Interstitial Cystitis?
Hi, I'm a 49 yo male and I have been over at the Kidney cancer board. I'm about to begin my fight with kidney cancer. However, I have had Interstitial Cystitis for over 22 years and I've heard that very chronic inflammation of the bladder can cause cancer. Of course pretty much every symptom of bladder cancer is the same…
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Ejaculate color after Prostate biopsy
Does anyone have intermittent red/rust/pink color in their ejaculate, aka (****)? My urologist says it is OK. Sometimes mine is white and sometimes red/rust/pink in color. I am 3 years out from my biopsy. What do you and other men with a previous prostate biopsy think? Does this "color" ever happen to you? Thanks!
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SRT after RALP - Centering CTscan execution
Good morning, I just had a centering CT scan because I have to undergo SRT (I had a robotic radical prostatectomy in 2019, and the PSA slowly rose to values around 0.200-0.250). The preparation for the centering CT scan included a full bladder and an empty rectum. Everything was OK for the rectum, but, probably having…
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Recurrence
Hi, Well wishes to all of you. I started chemo yesterday for a recurrence of gastroespohogeal cancer (at and near GE Junction) . First time was caught very early (stage 1) while checking for a minor swallowing probem and was treated with chemo, radiation and immunotherapy (not a candidate for surgery because of other…
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Life after prostate cancer radiation treatment
My life has changed, then maybe not, just extended? Do you feel the same? My close male friends have asked "how are you doing? Then we just go on. However, I am not the same as in so many recent changes of my past consistent body and expected functions. I will share what happened to those that want to listen. It has…
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Changes from testicular cancer
I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical urge. I’m a survivor of testicular cancer for six years. I’ve had my testosterone checked and my level is fine but I don’t physically attracted. Is this normal?
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Serous Endometrial Carcinoma ("high-grade"), now metastasized to lungs
Hello - Introducing myself here. The topic title summarizes it. I was diagnosed in December 2022 and January 2023, had to wait 6 weeks for a 'radical' hysterectomy while in pain and bleeding profusely (because of health insurance!), then spent 2023 in chemotherapy and radiation, and recovering from their side effects. Last…
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Chat GPT
Many will have heard the name, but know little about this great learning resource. I was diagnosed with a stage 1b adenocarcenoma over 2 years ago and declined the default treatment of esophagectomy, opting instead for 3 then 6 month follow up endoscopy visits. I was declared cancer free at one point but then another…
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OFSET Study
New here. Anyone decided to do the OFSET Study? Diagnosed 1/14/2025. Had DMX. Found lymph involvement, I of 2. Oncotype 16. Her2-. I'm simply terrified of chemo, Ac-T. My gut is to run far away from it. With that said, the Study offers possibility of another option- hormone therapy only. Anyone decided to do the Study,…
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Metformin
I've seen Metformin mentioned here as an important tool to strengthening our bodies' fight against cancer. I looked up the studies, and the research is so promising, I'm surprised we haven't heard more about it! I am on the verge of getting lung biopsies for what appears to be metastasis of serous endometrial cancer. I…
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Suggestions for sleep positions after lumpectomy
I'll be having a lumpectomy in 2 weeks, left side. I usually sleep on my stomach or left side. That's not going to work! Will I need to sleep on my back? Maybe sleep on a recliner? Any suggestions?
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Do I have to take steroids after doxil
S teroids
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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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Scar tissue 6 years NED
Yes, It hurts and is scary. My colon Doctor put me on Metamuscil in the morning and Miralax in the evening. It has helped me stay soft enough to pass normal size stool then goes to shoestring size. However, the scar tissue in on my sphincter and that's where to stool passes through. It gets inflamed and hurts now and then.…