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21 months post salvage surgery update
just got my 21 month PSA test … cancer undetectable below .003. I feel very blessed I’ve come to the conclusion that I will have some incontinence. I go through one pad a day to me. It’s not a big deal. That’s a little sacrifice hopefully I’ll stay this way. Don’t think salvage Surgery is not an option. I’m living proof…
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Carcinosarcoma
I am a 66 yr old that found pink discharge on 5/14/2025. PCM referred me to women’s center on 5/22/2025. They preformed a pap which came back clear and scheduled an ultrasound. Had ultrasound on 7/1/2025 and when Doc saw results she preformed a biopsy immediately. 7/10/2025 biopsy confirmed I have Carcinosarcoma. Referral…
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Seeking help
my wife was diagnosed with an aggressive form of ovarian cancer on June 21st 2025. She had a 20 cm mass removed, full hysterectomy and bowel resection done on July 20th. Her first round of chemo was this past Wednesday and needless to say this weekend was awful. What I really need is caregiver support. I’m looking for an…
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Stage IV (4) Ovarian Carcinosarcoma - MMMT
Hi all, I'm brand new to this message board. I'm currently 44 and I've been fighting ovarian cancer since August of 2023. I had surgery to re move a ~20cm tumor, then immediately started paclitaxil/carboplatin (+bevacizumab starting cycle two) every 3 weeks for a total of 6 rounds. Continued the avastin for a few more…
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Esthesioneuroblastoma
Anybody out there know of or have information on survivors of olfactory (esthesioneuroblastoma). I am a 2 year survivor and would like to communicate with anybody that has info. Thanks!
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New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
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Beginning therapy and scared
About 11 weeks ago my spouse noticed a lump on his neck and we went to the dr and were prescribed antibiotic treatment for an "angry lymph node" .... fast forward 3 weeks when we went to the emergency room when it did not reduce in size. He has stage 3 HNSCC as well as laryngeal cancer and esophageal cancer. We just did…
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Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
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HAS ANYONE TRIED POLY MVA
Has anyone tried poly mva?
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hernia post RALP
I understand inguinal hernias are a common side effect of RALP. Anybody have experience with this? I found a couple of threads >5 years old, but looking for personal experiences. Looks like I have that problem, totally unexpectedly, 18 months post surgery.
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Salt & Soda Solution for Secretions
I came across the "recipe" I was given for salt and soda solution to help control secretions. Thought it may be helpful to share. :) Into 1 quart water add: 1/2 teaspoon table salt 1/2 teaspoon baking soda Shake or stir solution. Store at room temperature. Use every 1-3 hours - especially after eating, taking oral…
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Feeling deflated and resentful
I am 18 mos post breast cancer treatment for Stage 2B invasive ductal Cancer. Surgery chemo radiation all I attended mostly alone. My spouse in WC family there for first appts and surgery but then work and family took over. I am feeling very deflated and alone right now as my family treats me as if I never had cancer. No…
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NRI 1940-1970 benign surgery practices back then and compensation RECA
I hope all of patients who had this cruel practice of using non standardized ionizing radiation on children will email Physicians Social Responsibility website that is website of physicians advocating for patient exposure to radiation! They helped many pts get RECA compensation for radiation exposure from ground like in…
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Esophageal cancer — day-by-day journal during neoadjuvant chemo (FLOT + immunotherapy)
Hi all - I’m currently being treated for distal esophageal cancer and am in the middle of neoadjuvant chemo-immunotherapy ahead of planned surgery. I’m keeping a detailed, chronological journal throughout treatment — symptoms, energy levels, appetite, exercise, side effects, and the ups and downs that don’t always show up…
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Joint pain
I’m receiving Keytruda infusions every 3 weeks. My knees and hips are hurting. I’ve read Keytruda can cause joint pain. I’m using cold / heat packs on my right knee which is swollen and difficult to bend. Any suggestions on how to reduce the joint pain?
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Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
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Fissure after biopsy
Hi! New to this site, please bare w me... I got diagnosed 2022 w squamous cell approx 2" in the anal canal. Finished treatment 12/22. Had port taken out along w final 6 mon biopsy. 2 weeks later, in debilitating pain, had to go back out on disability. I go to all my docs. They went to go back in for botox. They do a…
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Recent diagnosis
Hello everyone, I was diagnosed with Stage III anal squamous carcinoma cell cancer in November after suffering from an anal unhealing lesion/ulcer for some time. It was discovered through biopsy during an operation to curette the ulcer. The cancer is extremely small and does not even appear on MRI, with only a small blip…
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52 year old Male, Diagnosed 11/23/2022 with HPV+ p16 p40 cancer
I’m in the club no-one wants to be in as a newly diagnosed cancer patient. I’m a former smoker who quit daily 1/2 pack a day habit 19 years ago but still smoked socially up until diagnosis about 4-5 packs a year. Otherwise healthy and on no medications. My details are a mildly painful mass in my left neck just under…
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For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
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What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
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Stage IV metastatic breast cancer
This is my first post. I have been following this site for a couple of months now, but don't seem to find many metastatic survivors out there. I'm trying so hard to find some encouragement and hope. It's been a year and a half since my diagnosis and I just want to reach out to someone who is going through this also. Your…
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struggling with survivorship
Diagnosed fall 2024. Had sucessful surgery. Started what was supposed to be 12 rounds of cleanup chemo in November 2024. Unfortunately two adverse reactions and a very conservative oncologist =treatment halt. Struggling with the emotional side of survivorship ever since. In therapy.
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Cytoreductive surgery
Hi! Anyone here had succesful cytoreductive surgery, with or without HIPEC (hyperthermic intraperitoneal chemotherapy) for peritoneal carcinomatosis? Stage 4... If in Canada, what hospital? Thanks!
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Osteoradionecrosis treatment with pentoxyphiline, clodronate, prednisolone and Vitamin E treatmene,
Hi all, I wonder if anyone tried above meds for in combination for Orn treatment? If so what was their condition before and after the treatment. I have ORN since 2018, following head and neck RT for tonsils cancer. Chris
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Tumor down 75% in 5 chemo treatments, 3 left to go!
Who hoo! Great news from ultrasound and MRI. My main tumor is down 75%, my additional tumors are no longer detectable on imaging, and my lymph nodes are down 75% too! Yay for kicking a grade 3 highly aggressive type's butt. Happy Saturday everyone!
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PSA Anxiety
After ADT, and pelvic IMRT earlier this year another PSA test is coming up at the end of the week. Last two were .04 which is great but I've been really stressing these last few weeks about this upcoming test. I guess the worry of recurrence just goes with the territory. Does this worrying diminish somewhat for those of…
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Help
Please i ask for help guidance since i have written here i recieve no answer to guidance or opionion. I am just terified next step need guidance how to cope. I will start treatment next week with all 4 medication listed below and i e been told shot before theapy which will make my bones hurt what can i do to reduce the…
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Afraid of changing from AC to taxol
I just finished my fourth dose of AC and I feel like I know how to handle it. I have my little system down. Next week, just in time for New years, I switch to taxol and I'm scared. I don't like AC, but it's a devil I know. Taxol is a new thing to figure out. How different were people experiences between AC and taxol?
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My Mom Passed Away from Stage IV Liver Cancer
My name is Joanne (23) and I lost my mom to stage 4 hepatocellular carcinoma on December 13 at 2:58 a.m. this year. Right now, I'm just writing because after her funeral service and burial, I'm lost. I'm an only child currently living with my dad and I'm scared for him. He doesn't see the point in living a fun life now…