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Long term swallowing issues
Hi, Before I begin, I just want to offer some encouragement and hope to anyone recently diagnosed. It was my second cancer, the first being unrelated colorectal cancer. I began my NPC journey in 2011. I underwent both radiation and chemotherapy at MSKCC (highly recommended). But have been NED since. Recently, I have…
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Chemo meds
Hi, I'm new here. I just started chemo for metastasized (to peritoneal lymph nodes) cervical cancer. I had my first series of chemo radiation and brachytherapy treatments Oct-Nov 2024. The drugs I'm getting are Carboplatin, Paclitaxel, and Keytruda. Bevacizumab was originally in the plan, but I decided to decline it due to…
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8-year-old Chinese boy diagnosed with rare brain cancer, parents seek treatment experience
Hello everyone, I am the father of an 8-year-old boy from China. My son suffered an epileptic seizure in August this year and was diagnosed with a brain tumor. Puncture biopsy and craniotomy were performed, and the pathological diagnosis was polymorphic xanthoastrocytoma grade 2-3 (APXA), which is a high-grade glioma.…
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radiation......later
Has anyone here been treated with 59.4 gy of radiation to the brain??
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What does long term survivorship of childhood MB look like?
Hi, I'm new here. I did some searches and found old threads with a similar question to mine, but nothing recent, so I'd thought this could be an update. In 1980 my sister had a medulla blastoma. She had surgery and full brain and spine radiation. I've been her guardian since our mother died. She is now 46, lives with…
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UPDATE to "Surgery & Radiation Now" versus "Mammograms every 6 Months"
A month ago I was trying to decide whether to proceed with the recommended lumpectomy and radiation treatment or let it ride and see what the status was after six months. Thank you for your responses and suggestions. I did do the surgery. In the end, I thought that if I waited there was a good possibility that the cancer…
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DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
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Ned after 5 years.
5 years ago a kidney stone blessing came into my life. It found kidney cancer in my left kidney. Since then I have been well and continue to be Ned after successful surgery! Wanted to let u all know. Keep fighting and staying positive.
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Total Gastrectomy - Excess Bile Pain Issues and solutions
I would like to share my experience and see if anyone has advice regarding, post stomach cancer Total Gastrectomy w/ Roux-In-Y reconnection, excess bile acid/salts release into the duodenum (gut). I have been living with the somewhat random triggering of excess bile and the acid burning pain, now for almost 12 years ago.…
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Just had surgery for kidney cancer
Hi i had part of my kidney taken out I thought I had stage one come to find out I have stage 3 I'm worried sick about it my tumor was 4.1 centimeter I read something it don't sound good I'm being scan every three month it seams like forever I just need to talk to someone thanks
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Cars for Cancer patients
I am looking for a free or low cost vehicle to purchase. I am currently homeless and seeking permanent housing as well. Having a vehicle would help me in my housing search as well as being able to get to medical appointments. Would anyone have any information on where I might be able to find this particular resource?…
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A Early New Survivor of IDC Breast Cancer
I had gotten diagnosed with IDC from high grade dcis 3 in September and then I had a lumpectomy surgery in October didn't have clear margins so 7 weeks ago from tomorrow I had to go through a bilateral masectomy. Due to that I got free from cancer and at my last appointment with the surgeon she was like with a slip on the…
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Recovery time for bilateral mastectomy?
I'm starting to get a little scared because next week I'm having a bilateral mastectomy with no reconstruction. I just finished chemo (4 rounds of A/C and 4 rounds of Taxotere). I'm wondering if anyone out here has gone through this and could tell me what to expect after the surgery?I'm scheduled to be in the hospital for…
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20 YR SURVIVOR
This Sunday marks my 20 yr survivor anniversary. I was 38 yo when diagnosed with Triple Negative, Stage 2, Grade 3 breast cancer. I will not regret my aggressive treatment choices, as I wouldn't probably be here otherwise. For all you newly diagnosed, please keep hope in your heart as you can also kick cancer's butt! I do…
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Who went Flat with no reconstruction
Hello all, I am a newbie, yes thank you, thank you..lol…So I just recently had a BM surgery on 11/4/25 and though I am still recovering, I would like to connect with the peeps who decided to go flat. Its a very big decision and I have mixed feelings about it and kinda need to talk to the people who have chosen this route.…
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Coping With Stress of Cancer
Hi. I just turned 82 (1/28/44). I was diagnosed in Oct 2020. Early on I attended a support group for a couple of weeks. There was another man in the group, and he shared that he wrote poems and shared one with the group (only 4-5 ppl). I thought to myself that I could probably do that. As my kids were growing up we had…
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Surgery considerations
I posted this initially right after my surgery, but I know many new members come on and don’t see an older post. This post is currently for all the viewers on the site recently diagnosed and considering Surgery as an option but have not yet had one or two consultation’s with Surgeons. Here is what I gave learned are some…
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Recovering from treatments
I was diagnosed with Stage 4 lung cancer with the EGFR mutation in July of 2025, the same month I turned 57. I had mets to my back, liver, lymph nodes, and brain. I take Tagrisso daily. I had four rounds of chemo with Alimta and Carboplatin, then another two with just Alimta. I had 10 radiation sessions on my back and,…
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Do Chemo treatments get worse each time?
Just wondering........i have been told by people that with each treatment you will have more side effects and try to take one day at a time but can't help but worry, can anyone help?
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question about diet
so I just had an old friend of mine who got his first PSA test at 61 and he got bad news. psa was 13 gleason score 9 4+5 good news still contained prostate so he elected to have surgery and of course, the first PSA test was above the minimum so they did radiation and now he's on hormone treatments, but he has a question…
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Cortisone shot ahead of surgery
I am scheduled for prostatectomy at Mass Gen Brigham on 3/31. My question is about cortisone shots. I have torn meniscus and almost bone on bone in right knee. I have had success with cortisone helping with pain and last shot was about a year ago, and knee is starting to act up again. I know I need to walk a lot after…
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Stage 3b Colon Cancer with FOLFOX Treatment 12 vs. 6
I have completed 3 FOLFOX treatments with most of the expected side effects. Mouth sores, nose sores and bleeding, rash on neck and arms, diarrhea, and overall tired and weakness. My goal at this time is to make it through 6 treatments and then discuss with doctor about quitting chemotherapy. Has anyone discussed this with…
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Stage IV rectal cancer
I was diagnosed officially in Aug 2024. But my PCP felt the mass during a digital exam she preformed and due to pain 4 days after my 50th birthday. I have had 12 rounds of chemo and 28 rounds of radiation. I also had surgery in Nov 2025 due to pain and other unpleasant symptoms. It’s daunting having stage iv. The tumor was…
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Second round of Chemo and I already have neurpathy
I didn't know about icing during my first round of chemo (including Oxaliplatin) during 2023. And I did develop neuropathy. I'm getting ready to start a second round of chem. I was wondering if trying icing this time will help at all? Maybe keeping the neuropathy from getting worse?
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Survivorship After Resection: Learning What Works?
Hello everyone 🤍 I’m really grateful to be here. I’m a 51-year-old mom of two (one in middle school, one in high school), and a colorectal cancer survivor. I was diagnosed with stage IIIA rectal cancer in late 2020. After four rounds of FOLFOX and 30 rounds of radiation, I was declared NED and chose a watch-and-wait…
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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How to cope the 1st day quimo, what to think about how to control fear?
Hello i am 48 yrs old recently i have been diangnosed right breat cancer type HER-2 positive 3, stage 3. Also my MRI detected a 1cm nodule under my armpit which biopsy can back positivo. Now doctors says requiere quimo 6 seccion every 21 days in 5month cirgury to remove the breast and nodule armpit. Doctors say these are…
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LHRH agonists versus LHRH ANTAGONISTS
prostate cancer hormone therapy drugs
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Hello & welcome to the club
Hi all - I’ve been lurking here for a few days, finally joined yesterday, and I just wanted to say hello and give some details. Let’s see…presented with >4.0 PSA in 2021, had first biopsy and MRI then, done locally. Everything came back good and it just looked like enlarged prostate. Monitoring every several (then every…
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Need Advice - RCC Stage 3 - Adjuvant therapy - Clinical Trial - Pazopanib v/s Active Monitoring - An
Diagnosed 11/2011 - Open Partial 01/2012 - Pt3a - 2.5 cm clear cell, Fuhrman grade 2, renal vein invasion, am a high risk - with prognosis of 40% recurrence probability - Early 40's, with generally OK health (some back pain from a disc herniation - well managed, asthma - well managed) Options being given to me are (1)…