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where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
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State Disability, Social Security, Social Security Disability
Just thought I would pass this info on to anyone who might find it helpful. I may have mentioned some of this before. My last day of work was 2/26/2010. I was ill but didn't know the horrible truth yet. After literally begging my doctor for more tests I was given the CT scan which forever changed my life. I applied for…
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NHL Large B-cell--I want feedback on bone marrow transplants!
The scoop: Diagnosed with Diffuse large B-cell aggressive NHL with bulky tumor in lung in May. Received 6 treatments of CHOP-R. Lymphoma responded very well at first. Now the follow up PET scan on Oct. 22 showed greatly increased cancer activity in part of original tumor. Had that area biopsied on Oct. 25 to verify that…
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Lhermitte's Symptom or Sign
Hi All, We have discovered a common symptom among a few of us here (D'Ware Jim, Skiffin John & I) called 'Lhermitte's Symptom'. Please read below to see if you think you get this sensation and can anyone who has, please post a brief note re: when it started, where you get it and if you have had any medical opinion etc.…
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question about diet
so I just had an old friend of mine who got his first PSA test at 61 and he got bad news. psa was 13 gleason score 9 4+5 good news still contained prostate so he elected to have surgery and of course, the first PSA test was above the minimum so they did radiation and now he's on hormone treatments, but he has a question…
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11 month post RARP
Just had what is considered my one year visit post surgery by my Dr. PSA still undetectable at 0.014 which is where it has been since my surgery a year ago. We are now moving to six months appointments vs 3 months and if still undetectable in a year will go to annual PSA testing and visit. Still slightly incontinent. Had…
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Hearing loss/ side effects of R-chop or methotrexate?
Hello everyone, I had 2 cycles of R-Chop ( but instead of doxorubiciin I get epirubicin), 2 cycles of intrathecal methotrexate and I am experiencing increased tinnitus ( buzzing in ears) and mild pain. I have had tinnitus for years but I believe the chemo regime is increasing it. Or I may have an ear infection. I need to…
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I am new here
I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family and friends have been praying for me which I appreciate, I just don’t know what to say. I am primary care provider and work…
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Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…
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Treatment Center Options - High Rish Aggressive Prostate Cancer
Hello - my BIL (61) had his first PSA done a couple of months ago with a 7.1 result. MRI and biopsies showed Gleason 9 with PNI and swollen pelvic lymph node. PSMA CT scheduled for next week. Urologic oncologist said very bad cancer. Can anyone recommend a treatment center that may be better than your standard local…
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Abraxane and herceptin perjeta
hi everyone , my mother has stage 4 breast cancer that has spread to the bones and liver. The doctor started abraxane (weekly) with herceptin/perjeta (every three weeks) treatment. Any advice regarding this? How to tolerate the side effects? She's been on 1 dose now but she's been having stomach issues (diarrhea,…
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Bladder cancer treatment
My friend diagnosed with stage 2 bladder cancer, doctor say that they need to remove bladder in order to treat cancer. but, my friend worred about bladder removal, is any other effective way to treat stage 2 bladder cancer.
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Motivation in remission
Hello, my name is Judith. Couple months ago I've survived stage 2 Hodgkin's Lymphoma. I feel almost like new person in terms of being able to do things like I used to before I went through chemo, but I'm having a bit of trouble with going back to normal life routine. I feel very alone these days and lost - many people that…
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Surgery or continue with chemo with follow up radiation
Diagnosed with endometrial cancer, I had a full robotic hysterectomy with no positive lymph nodes. About four months later the cancer metastasized on my abdominal wall. I just finished six sessions of chemo and four with Keytruda (had to stop Keytruda due to my high levels of TSH).. Recent PET SCAN results: Soft tissue…
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My Battle with Ewing’s Sarcoma
I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery,…
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A Particularly Painful Loss
If this has happened to you, you know how severe an emotional jolt it can be. We learn that cancer has taken the life of a friend or a family member. Perhaps we didn’t even know this person had cancer. The death of this person is especially difficult. It is as if we once again lose something of ourselves. Memories of the…
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2nd Lupron shot
I’m 6 months out from last radiation treatment and in 6th month of first lupron shot Still Getting 6-12 hot flashes daily and a few chills a week. Lost at least 10% of my muscle mass and my joints and tendons are always sore I see my urologist in 2 days. Have had 3 blood draws since April. All PSA’s less than detectable…
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Decision on moving forward
Hi! I am a 60yr old gentleman with Prostate Cancer and I have questions on how to move forward with my treatments. Initially I was diagnosed with prostate cancer PSA at 79.7 back in Jan 2024 and have done a biopsy as well as a petscan and they also found out that I had a kidney stone a size of 3mm, which has since been…
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Late stage 3 colon cancer
HI, Very new to this. In March of this year I was diagnosed with late stage 3 colon cancer that has metastised in the liver with three tumors at tge very top periphery of the liver. I have had 8 chemo treatments so far with my 9th tomorrow. They have been using oxyplatin, folfox4 and cetruximab. Oncologist says the tumours…
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How much did your doctors get you ready for post-surgery life
Hi All, I'm an 8-year post esophagectomy squamous cell survivor. I am very grateful for being a survivor but also very frustrated by what doctors did NOT tell me life would be like after surgery. So I am wondering if this was just my experience or if others have had similar experiences and what they did not tell you about.…
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Bladder Cancer T1G3. (TURBT+Chemo) or (Cystectomy)?
I am 51 year old male and was recently diagnosed with Bladder Cancer. After TURBT, pathologyindicates Superficially invasive urothelial carcinoma with extensive background high-grade papillaryurothelial carcinoma. Tumor superficially invades lamina propria. Muscularis propria is present without tumor involvement in sampled…
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Sometimes good news is as hard to process as bad news
So I met with the new surgeon yesterday to discuss my APR. It's been a month since I finished six weeks of chemoradiation. I feel great with no lasting side effects I am having almost perfect bowel movements and my blood counts are stabalizing for the first time in nine months. The surgeon did a physical exam of the area…
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7 year remission from Undifferentiated pleomorphic sarcoma
I had a tumor in just below my waist line, very aggressive. Had chemo six 21 day cycles 7 days in hospital for infusion. Then radiation and finally surgery at MD Anderson, Houston. I thank a praise God for the doctors and medical staff.
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Peritoneal Carcinoma - Ovarian cancer Stage IV .. How to tackle symptoms of disease after Chemo
I have been diagnosed with Peritoneal Carcinoma - Stage IV Ovarian Cancer. The diagnosis followed a hysterectomy in May 2024, and investigations in November 2024 confirmed the condition. I started my first cycle of chemotherapy (FOLFOX) in January 2025. Afterward, I experienced partial bowel obstruction, which led to an…
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Hard
Hello, I will try writing on here again... I try holding everything in. But I still have not heard some one got cancer in there feet or leg now they talking lungs. How do keep being strong when you keep going threw something I'm only 43 and it's hard.
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Any 'older' neuroblastoma survivors out there?
Hi all-- I'm a 51 year old survivor from neuroblastoma, discovered when I was 8 weeks old in 1958. Is there anyone else out there who has survived a neuroblastoma from the '50s or 60's? I'm wondering if anyone has had problem with ganglioneuromas? Anyway, I'd be interested in talking with others who have survived this…
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Wills tumor 38yr old surviving
My name is Christy Light I am 43 years as a child at three months old developed a Wilm tumor. It was on my left kidney. Well I went to UK University of Kentucky for all of my care and in 1982 they removed my left kidney and said the size of the tumor was about equivalent to the size of a grapefruit, so that’s pretty big on…
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PSA Results
Well, just got my PSA results. .05ng/ml. I am 7.5 years post RALP. Generally speaking, I guess that means I am disease free and still in remission. Early birthday present as far as I am concerned. Smile, I am.
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Prostate Cancer after Biopsy-want to do HoLep
Hi. So last year I got diagnosed with Prostate Cancer 11 cores negative, 1 with 5%. My PSA has held steady at 4.9 for several months. My new urologist is suggesting a HoLep to shrink prostate so I can pee easier. However, I had an MRI and he'd like to do an MRI first. If the cancer as grown, his idea is to remove it and…