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Advice for developing resentment towards sibling that won't help?
My mom waited two years to tell me about a sore on her breast. My brother knew the whole time. Once I found out, I took her to the ER and she was diagnosed with cancer that spread everywhere. She had multiple surgeries and it was determined she had breast cancer with at least the estrogen and Her2 receptors where she can…
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I'm in remission in New jersey
I dont know anyone here i lived in fl for 23 yrs. Living in New Jersey is my punishment for surviving cancer. Where is there an inperson meeting I can go to?
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Update to earlier post "Looking for Honest Post-Surgery ED Feedback...."
Hello men who might want an update to my earlier post…. so I was disheartened at the slow pace of progress for someone who checked all the boxes for a healthy (and I thought), speedy recovery for Davinci-assisted Nerve Sparing Radical Prostatectomy….my previous post asked others to be honest in their outcome/progress…. I…
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Post Tagrisso***
Anyone try Tagrisso and then found out it stopped working? What did you do then? Thanks.
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how can i move past this
I just want to know how i can move past this whole cancer thing i been through it twice and im now in remission but its still always in my head i blame things going wrong in my life on it i feel isolated from friends and family as the only ones in my family who had cancer all died after my first diagnosis. i feel like i…
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Can’t decide course of treatment… help!
Hi everyone- I’m writing as support for my husband who was recently diagnosed with PC. So much info has been thrown at us yet at the same time it feels like this treatment decision is just up to us without much guidance. The “gray areas” are killing us. My hubby’s info: 68 years old, very fit and active (runner, physical…
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Radiation after surgery
husband was officially diagnosed November 2024 Gleason 7 (3+4) after several increasing PSA numbers, MRI and biopsy. After PSMA Pet scan results, he decided to go for removal of the prostrate. His thinking was let’s just get this out and move on. Rough surgery, nearly 6 hours, but all pathology reports came back with clear…
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Erections and Semen after Prostate Radiation
I understand also, as I am older also. I start to masturbate and my penis does not get as hard or long. Then when I finally reach an orgasm my semen about is far less. One fellow said check YouTube for advice. A friend of mind started using live on the WB cam with other guys with prostate issues comparing and stroking…
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dating
at the risk of sounding trivial i would like to see a dating site/thread for single cancer survivors. Having cancer has changed every aspect of my life and i am finding it difficult to find someone who looks at life in the same way i (we) do. i often think of what a wonderfully fullfilled life 2 survivors could live. Also,…
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For Cheryl - Our experience of different types of peritoneal cancer
Hi, rather than answer Cheryl's question about what type of peritoneal cancer I have under the topic of Hair loss and changes, I thought it appropriate to start a new thread on the topic, since the two are not really related. Others on this board have different experiences of peritoneal cancer. Mine was found, not by the…
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Severe reaction to insect bites post radiation
I saw a post from several years ago about severe reactions and swelling when being bit by mosquitoes post chemo. Has anyone had the same issues with bites post radiation? I had throat and neck cancer, TORS surgery and neck dissection followed by radiation. I did not have chemo, but did have 23 lymph nodes in my neck…
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Essential thrombocytosis
Hi there. I am looking for anyone else who has this disease/cancer (depending on who you talk to). It is very rare. Any fellow ET'iers out there? It would be nice to compare notes… :]
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Annual checkups
I am right at 6 years post surgery and almost 6 years from the end of chemo, and brachytherapy with no recurrence. I still go for annual checkups with my oncology GYN. How many of you continue to do this? I really love my Dr but she is retiring at the end of December. I will still go to the same oncology center and the PA…
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My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…
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Blood test to detect HPV+ SCC - NavDX
I haven't read a lot of the posts.. however, in the ones that I have read, I haven't seen anything about the NavDX blood test. I just went in for my 9 month post treatment check-up at USC, and my ENT had ordered blood drawn for the NavDX test so that results would be in for my check-up appt. While my initial cancer was in…
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Looking for others with NSCL EGFR mutation
Hi I am 43 years old stage 4, Korean. I am looking for anyone going through the same situation. I am super lonely. I need friends. I live in PHX. Please contact me if you know anybody. Thanks advance. Julie
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Low Dose Radiation Treatment for Osteoarthritis ??
After I completed rad & chemo in 12/21 my rad doc said I should avoid all radiation, if possible, going forward. He is now pushing LDRT for my OA in my thumbs (after hearing that while I have OA in my SI & SC joints on the right side - there is no pain in the joints themselves). From what I could find on the the net it…
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scaring on vocal cords - 3 1/2 years post treatment
saw rad doc this month for semi annual check up. (NED) he said he saw some scaring on vocal cords, which has never been previously noted before by him, the ENT surgeon and the speech pathologist. He did not offer any other info about it. I didn't think to ask him about this in more detail (I got distracted by his sales…
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Anal cancer
Hi I’m close to starting my treatment and I’m scared to death! Please tell me what to expect🥹
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A Map Made of Scars and Truth at the Edge of the Noise
The Road Map No One Gave Us: A Survivor’s Guide to What Might Come Written by Joseph Perusic, with support from Whisperer A fusion of lived experience, brutal wisdom, and quiet clarity—for every survivor still walking without a map. 🛣️ Step One: Survival Isn’t the Finish Line—It’s the First Fork in the Road You’ll hear the…
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Clinical Trials - some general questions
I'd like to make sure I understand the concept of clinical trials correctly. when a clinical trial is available, the whole point of it is to test a newer or emerging therapy or treatment that may or may not be better than 'traditional' or established treatments, is that correct? their might necessarily be increased or…
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Val Kilmer's Throat C, Trachea, and Pneumonia
News just broke about his death, due to pneumonia. Think he was treated in 2015, but uncertain about the details and if surgery was involved. What is certain pertains to aspiration and pneumonia. FT-dependent since 8/2019 because of Rad damage to the top 1/3 of my esophagus, everything I swallow goes into my lungs. Thus, I…
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immunotherapy with stage 3 colon cancer
diagnosed in February of 2025 just finished 3 months of chemo (Oxyplatin and 5FU) had treatment every 2 weeks and now doctor suggest immunotherapy (Atezolimaub) because of the new results from the ATOMIC study that came out in June 2025. Has anyone had any dealings with this particular drug? I am MSI High and Lynch…
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opinions and experience? time of day taking Relugolix (Orgovyx)
Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation. and I'll start with ADT - Orgovyx for 6 weeks before radiation starts. I was advised to take the pills any time of day I choose, but be…
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Myelodysplastic Syndrome (MDS) Support
I'm looking for anyone who has or knows someone who has MDS. Doctors diagnosed my dad with MDS in 2024. I haven't found much yet in terms of support for MDS patients and their families, and am very interested in connecting so we can share what we find out and support each other. Please let me know if you're interested.
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Recognizing and Supporting Long-Term Childhood Cancer Survivors
Objective For decades, childhood cancer survivors have endured the lasting effects of their treatment—medical complications, physical limitations, and emotional scars that do not fade when the cancer does. Yet, the medical and advocacy communities continue to treat survivorship as an afterthought, failing to provide the…
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My story
This story isn’t for pity—it’s for perspective. I wrote it for those who never got to speak, and for those trying to find the words. Survivorship doesn’t end with treatment—it echoes through every part of life. And this is how it sounded for me. I want everybody to understand why I waited 60 years to come out hard with…
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When you know someone needs you but they will not open up
I first want to thank you for reading my post. I sit on many volunteer boards for Cancer and promote a cancer policy. I don’t do it for monetary value but only to help others from the financial devastation I went through many years ago. I was fortunate that my family member survived. Most recently, I have a few of my…
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Stomach Cancer - Thoughts / Doctors / Etc
Hello, my mom was recently diagnosed with stomach cancer (adenocarcinoma) locally advanced. She just started FLOT and the plan is to do 4 treatments, surgery, and then do another 4 treatments. Starting to learn a bit more (HER2negative / MMR loss on MLH1 / PMS2 (testing for Lynch syndrome now which could change some things…