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2 yr update
So you don’t have to read every entry 😂 12/8/23 - Prostate removed at 70 yrs old. In following months, PSA doubled every 3 months. .1, .22, .41, .84 😳 2/15/25 - 2 months of radiation treatment to prostate bed and surrounding lymph nodes (3 dozen treatments) 😩 6/2/25 to 3/1/26 - Last 4 PSA’s negligible 🎉🎉🎉 Personal status:…
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Need Suggestions for Neuropathy Relief
I have had 14 rounds of taxol, 4 rounds of Taxotere and 18 rounds of Carbo over the last 8 years and I am finally feeling the effects of neuropathy. It is suttle and comes and goes. Mostly in my hands, but sometimes in my feet too. Cold weather definitely makes it worse. What are you taking to prevent the further effects…
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Chyle Leak Complication
my MIL went in on the 17th to have her Thyroid n some lymph nodes removed due to Cancer. During the surgery you Thoradic Duct got damaged and caused a Chyle Leak. They tried to go in and fix it and thought they did but it still was leaking. The just did a Third procedure that took 8 hrs and still did not fix it. Has…
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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7 mm Indeterminate lesion on liver
My wife, age 56, slipped on ice 6 weeks ago and broke her back. She’s doing fine with it now. A CT scan of her back showed a 7mm hypodense lesion on her liver. She had uterine cancer 4.5 years ago and has been cancer free with regular checkups. Today she had an ultrasound and the lesion couldn’t be seen. From the final…
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Stage IV (4) Ovarian Carcinosarcoma - MMMT
Hi all, I'm brand new to this message board. I'm currently 44 and I've been fighting ovarian cancer since August of 2023. I had surgery to re move a ~20cm tumor, then immediately started paclitaxil/carboplatin (+bevacizumab starting cycle two) every 3 weeks for a total of 6 rounds. Continued the avastin for a few more…
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Chest Pain with chemo
Yesterday, I recrived chemo and after carboplatin and paclitaxil, I started experiencing chest pain. BP went up to 155/85 (I am normally around 112/55). They took me to ER for chest x-ray, bloodwork, and evaluation. Was discharged. Has anyone else experienced chest pains with chemo? This is my second round of chemo (6…
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Avastin and Avastin/Doxil Side Effects
Hi Everyone, I am contemplating either Avastin alone or Avastin/Doxil as my next step along this journey. The published side effect look awful. I am looking for first hand information from you ladies that you might be willing to share on how well tolerated these drugs are......thanks.
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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I would greatly appreciate your opinion.
I am 70 years old with good health. My prostate biopsy indicates Gleason 3+3 well-defined in 5/12 (40%, 50%, 20%, 60%, 15%) all on the left side. In 2/12 perineural permeation present. Rectal examination indicated hard movable parts and the biopsy showed well-defined edges. Diagnosed since 2020 with BPH Grade II by annual…
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Greenish fluid oozing after APR and it has been now six months
Ca Rectum cT3N1M0, MDAC MSS CEA-6.49 CA19.9-12.86 Recieved SCRT has completed 4 folfox Recd HDR brachy Completed 5# MORE FOLFOX Then after 6 months in september 2025, there was reoccurrence and went for APR in september and since then the problem is that there has been greenish fluid continuously coming from the perianal…
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Caring for my husband 💕
Hello, Everyone. I am new to the site and I am hoping to find other people who are on a similar road as I am. My husband is 53, as am I, and was diagnosed with stage 2-b pancreatic cancer on October 20, 2025. He immediately began chemotherapy, 3 types of chemo as well as an external, portable chemo pump that was infused…
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56 Year old post Neck Dissection Surgery
I am 8 weeks post surgery to remove the 5cm tumor from my throat. I have in the last 3 days been able to swallow water with little aspiration. But nothing else works yet. My neck and tracheotomy site are a source of endless pain. I eat and drink through a tube mostly. I also can not speak very good yet. I was a…
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free flap reconstruction of gums
Just wondering if anyone else has had free flap reconstruction in mouth. It doesn't seem to be too common and I really would love to discuss with someone who has been through this.
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Carcinosarcoma
I am a 66 yr old that found pink discharge on 5/14/2025. PCM referred me to women’s center on 5/22/2025. They preformed a pap which came back clear and scheduled an ultrasound. Had ultrasound on 7/1/2025 and when Doc saw results she preformed a biopsy immediately. 7/10/2025 biopsy confirmed I have Carcinosarcoma. Referral…
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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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How much did your doctors get you ready for post-surgery life
Hi All, I'm an 8-year post esophagectomy squamous cell survivor. I am very grateful for being a survivor but also very frustrated by what doctors did NOT tell me life would be like after surgery. So I am wondering if this was just my experience or if others have had similar experiences and what they did not tell you about.…
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Brain stem glioblastoma
Good day everyone, I am writing here to get help in treating brain stem glioblastoma for my partner (26). My boyfriend of 26 years has been diagnosed with brain stem glioblastoma and this is a brief summary about him: Diagnosis: brain stem glioblastoma diagnosed towards the end of 2024. Current treatment: includes temodar…
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Glioblastoma Stage IV Brain Cancer
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Brain stem glioblastoma in young adults
My partner (26 M) has been diagnosed with brain stem glioblastoma and I am searching about how everyone are dealing with it and navigating through it. Any pointers would be of great help.
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Brainstem Glioma
My 26 yr old son was just told he has a brainstem glioma. Not commom for his age and we are serching for treatment and getting many different opinions, Anyone been there?
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Elevated CEA can it be Cysts in Pancreas?
in August 2025 my gastroenterologist discovered cysts in my pancreas. I have had elevated Liver Enzymes for over 4 years with no explanations. Then over 2 years ago I had to start taking Creon because my bloodwork showed the pancreas was not doing its job. Okay, finding the cysts sounds like the problem. The Pancreas…
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Are there any other MMMT survivors out there?
I am a 34 yr old woman who was diagnosed with stage 4B uterine MMMT. Mine had metastasized to my omentum, colon, appendix and most of my pelvic and abdominal lymph nodes. I am 3.5 years in remission. I would love to hear from other survivors. I know this is a very uncommon cancer in relation to most uterine cancers. I've…
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Rituxan Hycela: Rituximab via injection
Hi - I have never posted before, but thought my recent experience might be of interest to anyone receiving Rituxan therapy. I was diagnosed July 2016 with SMZL - splenic marginal zone lymphoma. My bone marrow, spleen and blood are all involved and my blood numbers were such that my cancer was categorized as stage four…
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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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MALE CAREGIVER GROUP FOR HUSBANDS CARING FOR WIVES WITH BREAST CANCER
I am looking for a caregiver group of males only, who are husbands with wives with breast cancer, to talk openly about issues with loss of intimacy, loss of female self-image, constant pain, etc. I have been looking for such a group for years and have not been able to find one. Does anyone know of such a group, please?
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Stage lllB T4pn1
Hello! I was diagnosed with Stage 3b CC- 1 lymph node affected, 1.9 cm tumor removed with all clean margins. I have completed 6 cycles of Folfox and I can no longer deal w/the side effects. Up until yesterday docs have reduced dosage and removed 3 medications leaving me with only 5 FU. To me this doesn’t make a bit of…
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My 35-year-old husband has cancer, and I don't look at him the same way anymore
My 35-year-old husband of 10 years was diagnosed with leukemia five months ago. We have been together since we were teenagers and have had a borderline perfect marriage up until his diagnosis. I have always loved him deeply, and he is a great man. The first few months were extremely traumatic for me, and I had to bear the…