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Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
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My Story
Hi All, I've been occationally looking at this forum for the past two years, and I thought it was time to share my story for the benefit of others. I'll be succinct. I'm male, 55yrs, and have been physically active all my life. So, for the record: * 2012: Pee'd blood, kidney pain. Went to clinic, thought to be kidney…
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IBC after lumpectomy?
Hello, I’m new to this - was diagnosed with infiltrating ductal carcinoma in August. Had a lumpectomy 4 weeks ago with clear margins and no lymph node involvement. Everything seemed to be healing well until Thursday of this week (exactly 4 weeks after surgery). I woke up with red/swollen breast that was suddenly tender and…
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Newly diagnosed. What to do??
I’m a 65 yr old active male in reasonably good shape who has just been diagnosed with HPV related cancer. Long story short, I was sent to an ENT due to a right side tonsillar mass which was surgically removed. Biopsy result was a bit vague regarding whether or not the removed tissue had clear margins, only stating HPV+ and…
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VIN 3 - Partial Vulvectomy
I read these message boards before my surgery and I'm here for a little support. VIN3 doesn't seem to have much resources so like many women I thought this may be a good place for support. I'm early 40s, no HVP, never abnormal PAP, same partner for 20 years. VIN 3 was removed by partial vulvectomy. Home the same day.…
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3 years remission and on zepbound for weight loss
Well my ldh has been hovering around 174 for 3 years, and after an ER visit due to side affects (extreme lightheadness)from zepbound my ldh was 294. I asked for the test because they were running all kinds of blood tests for my heart. Including 2 images of my heart and lungs, All came back normal. Now I'm scared because my…
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Pathology Report
Got a call from my surgeon today. He said it was chromophobe RCC. I looked that up and it's apparently a rare form of RCC, diagnosed in only 5% of cases. What's strange is that it seems to be hereditary, but neither of my parents, nor any of my four grandparents had (to my knowledge) kidney cancer. Of course, since the…
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New to this platform
Hi All my name is Anthony of 48 years old. I was diagnosed with stage 3 clear cell carcinoma in December 2024. I had a radical nephrectomy in January 2025 and am currently under Immunotherapy treatment every 6 weeks (9 treatments in total). I also have a suspicious nodule in my right thyroid and other "benign" nodules in…
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Has anyone had a chromophobic kidney tumor?
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caregiver
My husband was diagnosed in December, 2009 with stage three lung cancer which metasisized to the brain and is now stage 4 in both lungs. He has never been in a hospital, was in great health and is not a good patient at all. He has received chemo and radiation and was put on steroids which caused diabetes and a lot of other…
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Anyone with hemagiopericytoma?
My mom has hemangiopericytoma. She has it in her heart (they think-can't do an MRI to tell for sure). She has two mets in her lungs and a few in her liver. She's tried Gemcitabine & Docetoxal, Doxil and now is starting temador & avastin. I've joined a hemagiopericytoma group on Yahoo groups but am curious if there are…
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Base of tongue cancer
They discovered I had cancer in Tonsil, base of tongue, lymph node, same side Last Treatment was Chemo and radiation finished Jan 27 2025 CT in 6 weeks post treatment MRI at 3 months post treatment Everything looked the same Then Last MRI a week ago showed a 5 mm increase at Base of tongue Now 1.6 cm Was 1.1 cm 3 months…
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Web chat on HPV/Head and neck cancer
Hello everyone, Saw this on cancerquest. It will be on January 24th at 12:00 p.m. A Dr. Mark El-Derry of the Emery Winship Cancer Institute will be having an online web chat about HPV and H/N cancer. Sounds like there will be a chance for asking questions and getting them answered. The link is below…
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Mother in Law with extensive colon scarring and poor quality of life
hello all I've come to this forum as we are at our wits end as a family. I'm trying to find some advice/guidance on what i can do to help my mother in law who is suffering more and more from the effects of colon scarring due to radiotherapy. She has extensive nerve and muscle damage meaning she can't really keep anything…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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Ampullary cancer
I was diagnosed with ampullary cancer in July 2024, had a whipple procedure August 2024 and then 12 rounds of chemo. Are there others out there with a similar treatment plan?
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Bone Marrow Transplant
Hello I'm new to this community, I have finish 3 rounds Chemo (chop) for T cell Lymphoma i have 3 more to go i just had a Pet scan done and i am being told i am in remission but i am being told after the next 3 treatments I will need the bone marrow transplant because of the aggressive t cell Cancer I am am told i will…
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Looking for comments about Jemperli/dostarlimab
I am a 73-year-old female, diagnosed with an aggressive form of endometrial cancer (EC), type IIIC1 dMMR. I had a complete hysterectomy last fall with no obvious signs of spread to nearby organs but did have one lymph node show microsized cancer cells. I've since received 7 infusions of Jemperli (6 infusions with paxitaxil…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Chemo Teaching
Had my chemo teaching today…and of course one of the most important things is to eat… Any suggestions that worked well for y’all? I’m extremely overwhelmed!! How about mouth sores? Anyone prescribed Letrozole? This was something that my doctor may want to add to my plan.
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Malignant plural effusion from lung met colorectal cancer origin
My husband's scan today revealed a plural effusion highly suspect for malignancy from colorectal cancer lung met. Has anyone had experience with this? Trying to figure out what to expect. Thanks so much.
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Squamous Cell, Stage 4- Surgery / Radiation?
Hi, hoping to connect with Squamous folks stage 4 that were not eligible for surgery. I did the chemo and now on immunotherapy. Was told initially they might consider radiation but now that I have had a good pet scan (lymph nodes are now not active) oncologist is stating that I am never eligible due to original cancer…
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Newly Diagnosis Endometrial Adenocarcinoma
I am 61 y/o and a mother of 3 wonderful grown children. I had been having some postmenopausal bleeding, and my ultrasound showed an endometrial stripe of 19 mm. My primary doctor referred me to a GYN doctor who completed an endometrial biopsy. Yesterday, I received a call from the GYN doctor stating the biopsy was positive…
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2nd Lupron shot
So, I got my 2nd 6 month lupron shot and am already feeling the effects My knees are now an issue. I got out of bed last night and almost fell over when left one wanted to give out. Also, my right hamstring is sore Just another thing to know and try to work around Any suggestions on what I can take OTC to counter these…
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11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
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Survivor's Anxiety
I am "cancer-free" now, but mentally I feel worse than during all the treatments! Has anyone else experienced this? I have tremendous anxiety over any possible situation and I wake up every morning in a panic attack. I am looking into therapy but does anyone else have any ideas for me? Thank you.
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HPV throat cancer - website for treatment and recovery. "My Throat Cancer Story - 2015"
Hello Everyone, I just finished my HPV throat cancer treatment 8 months ago and recently created a website that discusses all the things that I did to help with treatment and recovery. "My Throat Cancer Story - 2015". DryMouthThroat.com I will be adding more to this website over the next few months. Robert
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Advice/experience for a friend
My dear friend had a total collecting and rectal pouch created as a result of ulcerative colitis when she was young. She received news earlier this year that she had developed adenocarcinoma of her rectal pouch. She was initially told the plan was for radiation chemo then surgery that would leave her with a permanent…