-
Pain..So much pain
I would like to know if anyone else is suffering from aches all over their body. My hips hurt when I try to walk..the feel like they are in a vice grip. My knees hurt all the time. When I wake in the morning my hands are stiff and hurt. I never had this before I went through cancer treatment. I am currently…
-
Stage 4 metastatic breast cancer
My mom (48) was diagnosed with stage III breast cancer two years ago. She finished chemo and radiation treatment 6 months ago and just got results back that it’s now in her brain, lungs, spine and esophagus. She isn’t doing well mentally and every time we talk ( I live 6 hours away) all she does is cry. I’m worried about…
-
Herbs and Supplements
Does anybody use herbs and supplements? if so what and how much?
-
Stage 2 T3B questions.
Diagnosed with stage 2 T3B last week and has not entered my lymphs. Will start the chemo pill with radiation in a week for 33 sessions then full chemo only every 2 weeks for 8 weeks. The Cancer Center said the outlook is very good for shrinking and killing the 5cm tumor near my rectum. Received a call from a surgeon the…
-
porocarcinoma survivor story... please
I was first diagnosed with Squamous cell, but when the labs came back it was worse, porocarcinoma which is apparently much nastier and easily spreads, I think. Did a CT which came back normal. (yeah!!) I have a great doctor with a postitive attitude, but they all talk about the best case scenario. I have a small wonderful…
-
Anxiety?
How do you deal with the anxiety? I am feeling so out of control. I am normally able to face critical issues and deal with it, including my own past medical issues, my husband's critical health issues, and even unexpected deaths in my immediate family. But this time, I am a wreck… I shake constantly. I get angry at the…
-
Caregiver Trama
I am a caregiver of 2 people with cancer. My mother (age 81) who has a rare form of rectal mucosal melanoma, and my partner of 5 years who is age 71 who was recently diagnosed with Squamous Cell cancer of the lung, stage 3. 12 years ago, my late husband of 29 years, was diagnosed with pancreatic cancer. He lived 2.5 years…
-
Dealing with forced Menopause
Hi Everyone, I am getting ready to have surgery to get my ovaries taken out. I had a hysterectomy in November and in the pathology they discovered endometrial cancer. Since this was discovered after the surgery, we kept my ovaries in. Fast forward 9 months and I have a large complex septate cyst and enlarged ovary. My…
-
Melanoma Clothing
Has anyone tried products from sun protection clothing? I'm curious about your experience with their sun-protective clothing as they say they are approved in the UK. Are they effective in guarding against UV rays and reducing melanoma risks? im looking at there jackets.
-
Survivor Statement: “Too Loud? Or Just Finally Heard?
Survivor Statement: “Too Loud? Or Just Finally Heard? I’ve been told I’m too critical. Too intense. That my words hurt feelings. That I should soften my tone, make it easier to digest. But let me ask you this: Has anyone apologized for what happened to us? Not just to me—but to every survivor who was misdiagnosed,…
-
It's time to stand up and be heard!
They are starting to see us and understand the point we are trying to make, but we are a long way off. You’re still blaming me for everything going wrong and coming out and saying Sometimes, don’t take this as weakness. I have been doing it all my life with no prevail, begging for mercy. Trying to find the happy medium, no…
-
New Prostate biopsy results
I’m a couple of months from 65th birthday. Just received results from biopsy: Gleason 3+3=6, Category 1 cancer - most common, low risk. It shows perineural invasion, which may slightly raise the concern for spread, but the overall Gleason 6 cancer is usually considered low risk. MRI showed PiRads 4 lesion contained…
-
Chemotherapy Ineffective 97% of The Time
I'm not a doctor and I'm not giving medical advice. I found this article interesting: http://www.collective-evolution.com/2013/04/11/study-shows-chemotherapy-does-not-work-97-of-the-time/ "A study published in August 2003 revealed that of adult cancer in the USA and Australia, the use of chemotherapy, when looking at…
-
Breast Conserving Surgery vs full Mastectomy
I was diagnosed with triple negative breast cancer that was caught early. 2 tumors less than 5cm in my right breast and 1 lymph node that is cancerous. I have completed 3 of 8 cycles of chemotherapy and immunotherapy treatment. I have a life changing decision to make about my options for surgery. Can someone please share…
-
Maling porocarcinoma
Anyone out there who have any experience with this rare diagnose? My dad got his diagnosis 7 month ago. It has now spread all over and there is nothing more they can do for him. But no one can tell me what to expect because no one knows anything about this type of cancer in Denmark, where i'm from. So if you know anything,…
-
7 year follow up
Last week I went up to Cleveland Clinic for my 7 year follow up. I met with 2 different NPs (3, if you count the one that was shadowing). It was pretty routine - lots of questions, say ahhh, scope through my nose and down to the original BOT site, say other syllables, etc. Everything looked good and I once again proved to…
-
Mercy Isn’t Weakness: A Survivor’s Final Demand for Recognition and Rest
Mercy Isn’t Weakness: A Survivor’s Final Demand for Recognition and Rest Hello CSN community, My name is Joseph Perusic. I’m a 60-year survivor of Wilms Tumor, and I’ve spent decades living with the long-term consequences of treatments that were never meant to be tracked this far. I’ve endured strokes, vascular…
-
Hello
I just read my blood test results and my thyroid is through the roof at 9.30. I was diagnosed in 2021 with brain,spine and lung cancer. September of 2022 I ended up in the hospital for 30 days with pneumonia. I wasn't supposed to make it out. I was told to prepare for end of life. Well, I did make it out. But,…
-
Any one had a rare side effect called Triple M overlap syndrome (TMOS
I’m looking for any one who’s has had a rare side effect from immunotherapy called Triple M overlap syndrome (TMOS) Patient is stage 4 NSCLC with metastasis to bone.
-
Newly diagnosed. What to do??
I’m a 65 yr old active male in reasonably good shape who has just been diagnosed with HPV related cancer. Long story short, I was sent to an ENT due to a right side tonsillar mass which was surgically removed. Biopsy result was a bit vague regarding whether or not the removed tissue had clear margins, only stating HPV+ and…
-
Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…
-
Lung biopsy
-
Choosing NOT to treat
I decided decades ago, after watching several generations of women die of cancer, that I would not be treated when (not if) I developed cancer. That decision has never wavered; what I've seen since has made me more determined and content with my choice. So here I am. But it turns out that doctors don't particularly…
-
Question on endometrial cancer stage 1A Figo grade 2 nuclear grade2 endometrioid adenocarcinoma
I just had a hysterectomy on 11/11 with large fibroids. I was unexpectedly diagnosed with endometrial cancer stage 1A FIGO grade 2 nuclear grade 2 endometrioid adenocarcinoma. I met with my gynecology oncologist today, and he said he wants the radiology oncologist to determine if radiation is needed. Since this was not an…
-
SHOW OUT
The Endurer I’ve endured what life has thrown at me. As one of the longest-living, self-recognized survivors of childhood cancer, I want to reclaim the word “survivor.” I’m not just a survivor—I’m an Endurer. I’ve lived through 60 years of survivorship—better known as my own personal hell. I’ve survived. I’ve stumbled.…
-
Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
-
Caregiver for husband who is a totally different person now.
My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really…
-
My mothers Permit hair loss
Hello too all C.S.N , THIS IS A POST ABOUT MY MOTHER OF 74 A HEART, BREAST,AND STROKE CANCER SERVIVAL THAT WAS A VICTIM OF PERMANENT HAIR LOSS DO TO A DRUG GIVING TO HER UNDER THIS COMPANY TAXOTERE-14 YEARS SHE HAS BEEN DEALING WITH THIS ISSUE AND NOW SHE IS DEVASTATED OVER THE FACT THAT SHE WAS CORSE IN A MDL CASE AGAINST…
-
Newcomer here
I have been diagnosed with cancer of the tonsil that has spread to the lymph node. I am faced with the decision to go with just radiation or radiation with chemotherapy. I am 78 years old so I am leaning toward just radiation. If anyone would share their experiences with me it would be very helpful.
-
Scar Tissue on Lungs
Hello all, Got my CT results on Monday. Everything was good except for a couple small spots on lungs. These were very small, about 2 mm. The onc. says he is not worried but ordered a CT scan in three months to see if anything changes. I have read it is not uncommon for people to have scar tissue on the lungs for any number…