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NLPHL Diagnosis-Just wanted to say HI
Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time I feel great, other times I get down in the dumps for a few minutes, then bounce back, LOL
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Joint pain
I’m receiving Keytruda infusions every 3 weeks. My knees and hips are hurting. I’ve read Keytruda can cause joint pain. I’m using cold / heat packs on my right knee which is swollen and difficult to bend. Any suggestions on how to reduce the joint pain?
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Stage 4b cancer
Hi. Anyone else diagnosed with stage 4b cancer? Last December had an 8 hour surgery to remove lady parts and the visible uterine cancer that spread and was wrapped around my bladder and other parts. 6 rounds Chemo ended in April. now in immunotherapy infusions for years. Having all kinds of side effects. Hoping others have…
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Breast cancer
hello, I was recently diagnosed with breast cancer back in August. I’ve went through all the tests biopsies MRIs ultrasounds. I wound up having a 2.2 nodule in my left breast that was malignant. We spoke but being I have a history of cancer in my I opted immediately to have a double mastectomy. Fast-forward to November 5…
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Esthesioneuroblastoma; Olfsctory Neuroblaatoma
Hello everyone. I saw that it has a long time that no one post about Esthesioneuroblastoma; Olfsctory Neuroblaatoma here. Does anyone have more experience to share? I was diagnosed in may 2024. Had endoscopic surgery (not clear about clear margins) + 30 RT sessions. Kadish B Hyamis 3 no metastasis. Waiting for 1st MRI next…
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Fatigue
I complete my 6 cycles of Carbo/Taxol on 15 May '02 and have been experiencing alot of body aches, weakness and this overwhelming fatigue. I can just be sitting at the computer at work, and all of a sudden I feel like I've been ran over by a Mack truck! While having my treatments I did have weakness and fatigue that would…
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were do i go for finacial help?
I have been waiting for my oral chemo medication (Xeloda)and called the place today and they said that are just waiting for my part of the copay before i can receive the medication but the problem is that they want almost $900 from me which i do not have. I have been trying to find some websites or finacial aid that can…
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SCC of the tongue.Almost finished with radiation.
Hello. This is my first time reaching out. I am 54 and was diagnosed with SCC of the tongue in mid August of this year. On September 9th, I had the pleasure of enduring a 12 hour surgery to remove about half of the left side of my tongue, removal of 34 lymph nodes, and reconstruction with a flap twice (first did not have…
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
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Complex Renal Cyst
Hello All, I found this board a couple months ago when my dad was suddenly diagnosed with a mass on his kidney the size of a baseball. He had a nephrectomy and has been doing well since (pathology was RCC). I have been working to take care of my own body to ensure that if he ever needed a kidney, I would have one to spare.…
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Looking for LMS Stage IV long term survivors
Please share your story. What has worked best for you? Have you tried alternative treatment methods? I am hearing about things from Ivermectin & Fenben, certain vitamins and teas. What has worked best for metastatic in lungs? I personally don’t know anything about them and have not tried any of them. I’m told that I cannot…
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Looking for survivor stories for recurrent De-differentiated retroperitoneal liposarcoma
Hi there, I’m 29 and had several liposarcoma masses removed earlier this year. They were de-differentiated (though some were well-differentiated), and were surgically removed before we knew it was cancer. At my 6 month scan, I just found out I have a recurrence. I am heading towards chemo or radiation before another…
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Uterine Carcinosarcoma, any survivors out there?
Hi everyone, My mom was diagnosed with carcinosarcoma in Dec '08, she had a total hysterectomy and removal of pelvic lymph nodes (cancer was found there). Since then has done chemo and radiation, finishing in the summer of '09. She's doing ok now, but I was just wondering if there was anyone out there with a similar…
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Proton beam therapy for anal cancer
Does anyone have experience with proton beam therapy instead of conventional radiation treatment for anal margin squamous cell cancer? I have just been diagnosed and am very afraid of long term effects of conventional radiation.
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Oligodendroglioma Grade2 any 5years plus durvivors?
Hello Newly diagnosed grade 2Oligodendroglioma. Idh 1. Wait and watch approach. Idh1 mutation. Anyone on here that has had no progression for 5+ years?
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Prostate cancer with metastasis to nodes
Im 54 and recently diagnosed with prostate cancer and my PSMA shows 2 mesorectal lymph node involvement. I got next Wednesday for my first appointment with the medical oncologist. I've read a lot on treatments and very confusing. Some say I can't have a prostatectomy others say maybe with radiation. I'm just so confused…
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Triple +
Hi! I’m Trish and newly diagnosed with triple positive BC. The oncologist wants me to start with Docetaxel, Carboplatn, Trastuzumab and Pertuzumab all at once for 6 txs every 3 weeks. Has anyone had this regimen and what was it like? I also have been told this regimen often causes weight gain. Has that been your…
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Keytruda
keytruda and renal cancer, has anyone started on kektruda after surgery and if so how are you reacting to it?
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Is esophageal cancer genetic?
My mother's mom died of esophageal cancer, and now my mother also has esophageal cancer. Is esophageal cancer genetic? What do you think? Do you have relative also has EC?
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My Mom had lung cancer for over a year…
Hi! My Mom had lung cancer (it metastasized to her brain) for over a year. She did so well with chemo & immunotherapy when she was 1st diagnosed. She also had radiation on her entire brain. The chemo/immunotherapy stopped working (the mass grew a tad) then we tried a clinical trial (waste of time) & while being on the…
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Squamous cell Carcinoma Recurrency Nasal cancer
I would like to meet p[eople having recurrence of SCC
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Basal cell carcinoma on face
So I 3 weeks ago did biopsy and last Saturday I had emergency surgery to remove the cancer I had a Mhos done . It was nerve wrecking . What precautions do I need do for prevention
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Basal cell carcinoma newly diagnosed
Hi I've recently been diagnosed with basal on my nose close to eye. My mohs surgeon asked for biopsy but I couldn't at the time "to scared" wanted to take half of it but i need time. Anyway he said it was fine as he was sure it was a Basal. He then went on to tell me after he does the mohs I will need flap from either my…
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Ketagenic diet
My oncologist was talking to me yesterday about a "ketogenic" diet -- which (as I understand it) is high fat/protein, low carbs. It's a very old idea for fighting cancer -- and similar to Atkins or South Beach for weight loss, I believe. But apparently there is some new research coming out now, especially from some German…
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Update from France after esophagectomy July 8
I did reach out for support here after a cancer was detected in my lower esophagus in January. Time for an update. Eating became so difficult a J-tube was fitted in my stomach to keep my weight up. I underwent 5 weeks of Radiation and chemotherapy during April/May, which shank the tumour so much I was almost eating normal…
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No diagnosis yet--
It is a long story but 10 months ago I had a chest ct scan, it showed enlarged mediastinal and hilar nodes 1.5cm on the short axis. I was not able to do the post f/u due to an injury and surgery that had me non weight bearing, my PC received the results but never followed up until I had my check up in Oct and I mentioned…
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Abnormal path report-skin biopsy
hello I am wondering if anyone has any insight… my son had a skin biopsy from his arm (non itchy bumpy area under skin). Initial report says “ebv positive with t/nk cell proliferation”. They are sending it for further testing. He has no other symptoms but I’m just very very worried about this. Thank you
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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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NavDX positive test
Hello, I have HPV related head and neck cancer. I've had three surgeries....a biopsy, radical tonsillectomy and a full neck dissection. I'm currently undergoing radiation treatments. I was told after removing the tumor from my tonsil that the margins were good and the cancer was removed. I recently had a NavDX test done…