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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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secondary peritoneal cancer
Hi, just sending new so far on my husband Ian, he had his last of 8 cycles of chemo today, for colon mets in peritoneum. Next step is ct on 13th and then results on 19th. He has done so well so far, the ascites has not returned while on the chemo, we are hoping that this will be it, and chemo finished for good!! Oh well…
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Peritoneal and colon cancer
My husband was diagnosed in late september 2024 with Stage IV colorectal and peritoneal cancer (lining of stomach). He was very sick and had lost a good deal of weight and had a tumor obstructing the bowel (partially). He was in pain and felt bad or very bad almost every single day. After 6 rounds of chemo (48 hours each…
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CAPEOX v. FOLFOXIRI - comparisons?
I was diagnosed with T4bN1bG2M1 colon cancer with perineural involvement in 2023. RO colon surgery followed by 8 cycles of CAPEOX. Lung met that had remained stable during chemo but started growing again was removed this March because it appeared to be solitary, followed by a swift recovery. We are only 3 months later and…
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Therapist Help
Hello. My husband was diagnosed last November with Stage IV breast cancer. Last Monday, the oncologist told us the tumors are resisting his current medication (Truqap) and he would need to go to a clinical trial or chemo. He's struggling with this news, and I think it would be beneficial for him to talk to a therapist…
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Alcohol
I am a rum drinker. Nothing from February thru May. But had some beginning of this month Next few days were rough. That’s a new thing for me. Any others experience same Hate to have to stop doing the one thing that gives me a little pleasure. Love having an aged rum on ice. I’m a neat sipper of anything over $100 Thoughts…
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Daily vitamins after radiation
I have just recently finished radiation and wondered when it is "safe" to start taking daily vitamins, D3 and calcium, again? I have an appointment with my onco in a couple of weeks and I know I could call but there are so many of you that are finished with radiation, I was hoping you could answer. Thanks.
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Burning & Stinging when Eating
Hi, I'm Lisa. I am 1 month out from treatment for tonsil cancer. I had a PEG tube put in at the 3rd week of treatment due to horrendous mouth sores/Mucusosis. At one point, I could not even drink water. Since finishing treatment ( 7 wks Radiation, 6 chemo) I have been trying hard to introduce foods and drinks by mouth to…
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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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For those of you with Leukemia
I just wanted to survey and find out how old you all were at diagnosis and what were your labs like? WBC? neutrophils? anything else abnormal? I don't really have any symptoms but I am seeing a hematologist/oncologist at the moment and recently had some elveated labs which is unusual for me as I never get sick, not even a…
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Childhood Cancer Survivor 60 yr /D at age 3 (starting new)
Hello my fellow survivor, I'm trying to start something new- SCCC Senior Citzens of childhood Cancer.
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Seeking long term Survivors of Stage IV Wilms
I have read a lot of success stories about Wilms Tumor where the tumor was diagnosed at early staging (I or II), but what about successs stories of Stage IV Wilms? I've met some Stage V survivors, but have learned that each tumor is staged separately in Wilms V and oncologists consider Stage IV to have worse outcomes. My 4…
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Squamous Cell Rectal Cancer
Starting new topic because existing threads are well over ten years old, and I know this still exists because it is what I have. It is treated like a anal cancer but located in rectum so not the same. My current issue is follow-up care. Diagnosed June 2024, Negro protocol started September 2024, completed treatment October…
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Myxofibrosarcoma
Hello I'm new here. Sitting at home recovering from surgery to remove a lump from my hip. It came back to be high grade myxofibrosarcoma. I'm 41 and worried, not going to lie. Anyone else know what my family and I have ahead of us or going through it?
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disclosure
thanks in advance… I'm about to put my house on the market - planned before my diagnosis. but… I wonder if I should disclose it to my realtor. I don't know any legal requirement, but?
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Is it possible to be told you don’t have cancer without a biopsy?
The gynecologist oncologist that I saw today told me that I do not have cancer. My regular gyno could not get a good sample with an EMB so he had referred me to this GO, thinking he could do a frozen section D&C. But instead, he told me flat out that I do not have cancer and that bleeding is most of the time not cancer.…
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Rare cancers
I’m searching for someone with a similar experience and looking for outcomes or impact on children due to any genetic components. Has anyone had two DIFFERENT primary breast cancers at the same time? I’m 37, diagnosed with invasive mucinous adenocarcinoma in my right breast and invasive ductal carcinoma with micrometastic…
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Later onset incontinence after initial continence
Has anyone experienced sudden onset urine leakage (completely unprovoked—no lifting, straining, coughing, etc) after being completely dry after surgery? Prostatectomy was nearly 3 months ago. There was a single episode of incontinence overnight around 2 weeks after surgery. Then completely dry even with exertion until two…
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Cancer center experiences
Anyone else experiencing micro aggression at your cancer center? Informing our cancer team about Trauma informed radiation was a hurdle to jump over in the beginning. Experiencing homophobia 5 days a week for another 5 weeks seems to be just another part of the treatment. We plan to address this issue with the hospital as…
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Looking for others with NSCL BRAF mutation
Hello, I was just wondering if anyone is on Braftovi and Mektovi and how is your experience with these medications. I have been on them for 1 month now and have had quite an improvement in my symptoms. I do have fatigue and some muscle pain in the evenings, but not enough to stop my day. Just wanted to connect with people…
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Suggestions for sleep positions after lumpectomy
I'll be having a lumpectomy in 2 weeks, left side. I usually sleep on my stomach or left side. That's not going to work! Will I need to sleep on my back? Maybe sleep on a recliner? Any suggestions?
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L-Glutamine for Neuropathy
Hello again ladies, Can anyone tell me how many milligrams to take of L-Glutamine and B-6 to help neuropathy?? I tried Lyrica, and it didn't help. Thank you; and God Bless all of you!! ~Susan xoxo
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Anxiety/Stress Post Treatment
Hello all, I am a 39 year old man who was diagnosed with Stage IIIb colon cancer in August 2024 (at the age of 38). I had surgery to remove a portion of my colon and then six months of chemo (oxaliplatin and capecitabine) that finished at the end of February this year. Post a late March CT scan and I was told there was no…
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Caregiver for husband
My husband has Myelodysplastic Syndrome which is a blood cancer. We have been married 47 years. He has turned into a totally different person. I cannot carry on a conversation with him. He never laughs. He talks to me like I am a dog. He cannot say anything nice to me. He has been given 1-3 years. I am dealing with his…
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Jaw issues
My jaw started popping about 10 days ago. Only when I chew Is this a lupron side effect??
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Cervical cancer diagnosed now renal cancer- can I have two surgeries at once?
hi - I was diagnosed with cervical cancer in April after getting an IUD. I’ve recently undergone a LEEP procedure and am just recovering. After my follow up I was sent to get a CT scan to check for any other possible complications before getting a partial hysterectomy, leaving only my ovaries . They have found a mass on my…
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Stage IVB endometrial adenocarcinoma.
I was diagnosed with Stage 4B metastatic endocervical adenocarcinoma in January of this year, surgery/hysterectomy not an option. I have done 2 rounds (6) infusions of chemo. 25 external radiation treatments, and 3 HDR brachytherapy treatments. I'm 43 with 3 grown children and 2 grandchildren. I have hit the stage of post…
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Diet topic
so I had salvage surgery done little over a year ago going on 14 months. Cancer was still contained tomthe prostate ..pathology report came back good except for one I thing perineural invasion present. Surgeon said nothing to worry about probably 80% of all surgeries come back with that being said in my head the cancer is…
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Chemo meds
Hi, I'm new here. I just started chemo for metastasized (to peritoneal lymph nodes) cervical cancer. I had my first series of chemo radiation and brachytherapy treatments Oct-Nov 2024. The drugs I'm getting are Carboplatin, Paclitaxel, and Keytruda. Bevacizumab was originally in the plan, but I decided to decline it due to…
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high risk (4+4) diagnosis with moderate PSA (4.2)
hey y'all, I'm a month in to this journey (since biopsy), and just found this forum while searching for info on a particular patented treatment (that's not pertinent to my question) … so, what is typical treatment for a high risk (4+4) grade group 4 diagnosis with moderate PSA (4.2) I'm just past getting a good PSMA-PET…