-
What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
-
Childhood Medullablastoma
I have a 2 year old nephew that has just been diagnosed with Medullablastoma. I have been desperately trying to find an adult survivor from this cancer that was diagnosed at a very young age (under 3) and have had no luck. I am hoping that someone has some information on dealing with this cancer from this early age. Can…
-
Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
-
Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
-
Changes from testicular cancer
I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical urge. I’m a survivor of testicular cancer for six years. I’ve had my testosterone checked and my level is fine but I don’t physically attracted. Is this normal?
-
After Whipple
I had the Whipple in May and they cut my artery so the surgery lasted 15 hrs instead of 8. I was doing ok until chemo I was taking IV once a week and taking 18 pills a day . The pills made me coma kinda sick So I stopped. I still get IV. The Dr said chemo is protocol after having the surgery and is upset I won't take the…
-
SCC of the tongue.Almost finished with radiation.
Hello. This is my first time reaching out. I am 54 and was diagnosed with SCC of the tongue in mid August of this year. On September 9th, I had the pleasure of enduring a 12 hour surgery to remove about half of the left side of my tongue, removal of 34 lymph nodes, and reconstruction with a flap twice (first did not have…
-
Granulosa Cell Tumor
Hello is there anyone who has been successful with treatment on this rare cancer?
-
After Lenalidomide Resistance
Anyone have any experience with treatments after becoming resistant to lenalidomide? What does the treatment course look like?
-
R-EPOCH
Looking for anyone who has been through R-EPOCH chemo. My fiancé was just diagnosed. He will have six cycles of this chemo. He completed his first round a few weeks ago. Starts his second round on Friday. He will go 5 days in a row. Looking for personal experiences with this type of treatment - side effects, tips/tricks,…
-
My wife is diagnosed with Peritoneal Cancer Stage III - we are scared
Hi all, My wife, age 49, was diagnosed with Peritoneal Cancer Stage III three weeks ago. She had bloating and swelled abdomen, went to family physician for checkup. Physician sends her to ER and after CT scan news was revealed to us. We have four girls and younger is 12 years old. Then she went for surgery for remove her…
-
Peritoneal cancer
Hi. My husband was diagnosed end of may 2023 with stage 4 peritoneal cancer. After tests and immunotherapy he kept getting weaker. Not eating and throwing up. His sodium kept dropping. He passed away on July 2023. I am heartbroken. Today is his birthday. He would of been 71. Thank you for letting me tell his story
-
Newly dignosed Peritoneal Cancer
Hello,I was just dignosed few days ago.I have had Cancer several times.Three nodoes in stomach was biopsied.All three are Cancer.Waiting to talk to Cancer dr.Any advise on questions I should ask dr would be appriatted.Or someone who has been through this kind of Cancer.That could give me advice.Thank you.
-
Just Diagnosed with Melanoma - I have had it for 2-3 Years at least.
I showed my general practitioner during an office visit this large black area behind my left ear. He said, "don't worry about it." This was 2-3 years ago and I had pointed it out three other times with the same response. The result of a biopsy was that it was melanoma and that I needed to have a surgery very soon, but I…
-
Scared-Need Help Stage 1 Lung Cancer diagnosis possible
Recently had a low dose CT screening. 8MM nodule in right upper lobe with Mat Lymphs enlarged, largest 7mm. Going for a C Pet Scan next week. I am scared to death of the disease. I am wondering if I am diagnosed and surgery is an option. What is can I expect? What was the surgery like, the recovery, the setbacks, the…
-
New diagnosis of melanoma
I just got a diagnosis of melanoma and am up to my neck in tests and appointments with oncology surgeon and oncologist. I have had the mole removed and the lab report, which took 11 weeks, is very upsetting. It seems I have an aggressive cancer with a very poor survival rate of 8 to 13 months. I am still in denial at the…
-
Lymphocele
Just got diagnosed with lymphocele today 3 months after surgery. Anyone else dealt with this? If so, please share your experience so I'll know what to expect. Thanks, David
-
POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
-
Reduced chemo radiation clinical trial for early detected anal cancer
I am wondering if anyone has been offered this option for treatment. This is a 2 arm study, randomized selection of standard treatment or trial group. Qualifications; T1 or T2, no lymph node or Mets detected. The purpose of this study is to determine if reduction of treatment in early stage anal cancer provides similar…
-
Some of my more recent numbers
Data table Date Value Normal Range Dec 12, 2024 0.53ng/mL 0 - 4 ng/mL Jul 18, 2024 0.51ng/mL 0 - 4 ng/mL Apr 22, 2024 0.5ng/mL 0 - 4 ng/mL Jan 2, 2024 0.6ng/mL 0 - 4 ng/mL Sep 12, 2023 0.4ng/mL 0 - 4 ng/mL Previous1 - 5 (of 10)Next I'm trying to figure out if this is good, bad or okay. Hitting a dead end with my…
-
Cribriform Pattern 4
I've recently been diagnosed with Stage 2 Prostate cancer (Gleason 3+4= 7) with evidence of Cribriform pattern 4 (5% & 10%) in 5 areas of my prostate. I had twenty core samples taken in my biopsy and there is no evidence of intraductal carcinoma. My urologist strongly recommends radiation treatment and feels confident that…
-
Would you?
I am 81 years old. I tested positive for slight blood in my stools. I hate having a colonoscopy because of the prep. I know that the efficiency of screening declines at the age of 75 and is not even recommended at the age of 85. I will not get radiation, nor chemo therapy. Is there even a need to pursue it?
-
Questions about rise in PSA
I had chemo, radiation and hormone treatment for prostate cancer in 2019 and 2020. Until today my psa had been at 0.01. Today was the 6 month mark from the last time it was checked and it was at 0.24. Is the cause for alarm? Thanks for any input and/or suggestions
-
Ultrasound and PetScan
I am feeling defeated today. Friday I had a pelvic ultrasound and the radiologist reported the wrong information on my report. I had a pelvic ultrasound and they reported about my breast. Now, I have asked my oncologist to do another order to an outside company to do another ultrasound and he will not do it. He wants me to…
-
Marijuana for pain?
Has anyone had success with marijuana, gummies probably, for pain? Luckily I live in a state where it’s legal. I’ve read that if it’s HPV related then a 3:1 ratio THC:CBD.
-
Undifferentiated Pleomorphic Sarcoma
Hello All! My name is Alyssa. I am 30 years old. I am new here, and honestly wish I had known about this website earlier. It would have been a great extra support system. I am currently struggling emotionally and physically as a recent cancer survivor of Stage III Undifferentiated Pleomorphic Sarcoma. The large tumor that…
-
CA-125 rose to 82
my wife (54 y.o.) was diagnosed with high grade stage 4 OC 09/2023, went thru 3 cycles of chemos (carbo/taxol) , had debulking surgery 12/2023, then another 3 cycles with last cycle in 02/24. She's been on maintenance since 02/2024 (Avastin every 3 weeks and daily pills of Lynparza.) Her CA-125 has been rising every month,…
-
any dentist for after care?
Hello - I am looking for some guidance / direction / help ! My wife had throat cancer and the radiation has taken a toll on her teeth, lots of breaking etc- who do i need to know that can help assist in after cancer dental procedures - she is going to need the full mouth - possible veneers and caps and extractions any help…
-
JOINT PAIN AFTER CHEMO
I went through 6 rounds of carboplatin and taxol chemo treatments this past year. I finished in April and a few weeks later I began to feel extreme joint pain. My Doctor said it was probably because I had not been active during my chemo, but as I was reading on here, there are many people who have gone through similar…
-
Transrectal vs Transperineal Biopsy
Is it worth waiting 6 weeks for a TP biopsy in the hospital, if a TR can be done sooner, in the office? (MRI Pirads 4, PSA 3.3, 71 yo). Is Pirads 3 upgraded to 4 because of positive DCE the same risk as a regular Pirads 4?