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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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Just Diagnosed with Melanoma - I have had it for 2-3 Years at least.
I showed my general practitioner during an office visit this large black area behind my left ear. He said, "don't worry about it." This was 2-3 years ago and I had pointed it out three other times with the same response. The result of a biopsy was that it was melanoma and that I needed to have a surgery very soon, but I…
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What to do?
Had prostate removed 4/24. 1 of 20 nodes showed evidence. PSA has gradually increased from .02 to .39 over the ensuing 18 months ( .02, .05, .10, .10, .20, .39). Had PET several weeks ago and found 1 small area in prostrate bed. Recommendation was that I go the Oncology route - MRI and CT scans to set up targeting….then 25…
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Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Carotid body tumors need help finding specialist!
My husband is 40 years old and doctors just found 2 carotid body tumors on a ct scan, one on right side of neck and one on the left. Surgeon that requested ct scan told us today to do our research and get him to a specialist in these tumors as he is not and doesn’t know anyone around here that is. We are south of Buffalo…
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Rectal Cancer, 80% chance live on Colostomy bag for life
I just got diagnosed with rectal cancer less than 2 weeks ago. I am a 59 Year old male. The cancer starts 3.2cm inside my rectum, is 3.2cm thick and 6.2cm long. That is just the live cancer itself. There is further damage the cancer has caused, and it has spread to my liver. According to my doctors it has been growing for…
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What specialist is in charge?
Hello all, I am a migrant from the Uterine Cancer board. Following a screening colonoscopy I was found to have an invasive moderately differentiated adenocarcinoma in my ascending colon. It is a new primary cancer, not a metastatis of UC. I will be having further diagnostic imaging done soon, and I know that surgery is…
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The Affordable Care Act (Related to Health Insurance)
Today a friend sent me an e-mail regarding the The Affordable Care Act. I cut and pasted what I thought you would find informative and beneficial. The Affordable Care Act, signed into law earlier this year, makes breast cancer screening and coverage for treatment available and accessible by requiring health plans to cover…
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Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Surgery scheduled at MD Anderson… cancer suspected
5 years ago my local GYN found a 4cmx4cm tumor on ovary. I’ve already had Non Hodgkins and Breast cancer so she did CA 125 and ultrasounds every 6 months. Grew to 7.1cmx6.8cm. CA 125 raised but still normal. She refused to do surgery to remove. Went to MD Anderson and had tests The radiologist and the surgeon agrees,…
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Journey
Started out with a stroke and a year later an ablation…8 months later Endometrial Ca dx…what a road! I'm closing in on 69… Love playing Pickleball and I seem more concerned with the thought of not being able to play than the up coming chemo!
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Christmas Blessings To Our Group In The CSN H&N Section 2025
I Am Wishing Everyone A Blessed And Joyous Christmas And Great Hope ForTomorrowPlease feel free to add your Christmas greetings and Well Wishes, everyone. It is once again Christmas and time for family gatherings, food, gifting others, and extending goodwill to all. This is certainly a wonderful time of the year that can…
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Hormone treatment for prostate cancer over 60 with radiation
Is there anyone who has hormone treatment like lupron for 1 month or more. have you had any bad side effects. what is the longest you have kept up treatment before stopping
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Looks like it’s the end of the line. I went into Hospice two months ago.
https://youtu.be/C2owEGUNas4?si=TJy23OUankauJMD_
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Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
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Immunotherapy for Squamous Cell Carcinoma, base of tongue
Brief recap: 2007, SCC left tonsil/lymph gland, minor surgery, 35 rads, 7 Cisplatin Chemo, still all clear last PET 3/2025. 2022, SCC right tonsil, TORS for tumor, RND of the neck. No chemo, 30 rads. PET 2025 shows reoccurrence near base of tongue. Surgery and radiation not an option. Waiting on appt to discuss…
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TNBC Survivors Who Skipped Chemo
Hi! I’m 47, diagnosed with small (5 mm), grade III, node-negative, LVI-negative TNBC. I am choosing not to have chemo and am looking to connect with others who have had similar experiences. I had lumpectomy and will be doing radiation. Would love to hear about your journey, follow-up, and how you navigated life after…
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Having a good day!
Good morning! My last AC infusion knocked me on my ****, but this one I'm doing ok. I made my child breakfast, had some coffee, and even got to my 9am doctor appointment early enough to post here. I think today's going to be a good day. Happy Thursday everyone!
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Side effects of radiation and chemo for treatment of NECK cancer.
Hey all. I am new to this forum, but I have questions. I am 7 weeks post radiation and chemo treatments for HVP small cell squama's carcinoma. I knew most of the side effects going into my treatment plan. They all sucked but I knew. I lost my taste after week 2. Needed a feeding PEG tube after week 5. The horror show had…
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uterine carcinosarcoma
Hi ladies, I had breast cancer did lumpectomy, chemo and radiation removed 11 lymph nodes. Then it came back 3 yrs later so i did double mastectomy this September. Come November this yr mri of the pelvis showed abdominal mass and when they went i.n to do surgery they found mass spread on my omentum. They came out and got a…
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Survivors where are you
I want to know how long everyone is surviving. I was formally diagnosed at 37, luckily with stage 1a. I had no symptoms and they found my cancer by mistake. I am now in remission for one year and I'm having these thoughts of how long will I live after this? I know there's no guarantee. But I'm curious of how long people…
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bladder cancer and neobladder
I was diagnosed with bladder cancer in february 2007. After chemo on July 5, 2007 my canceros bladder was replaced with a neobladder. The surgery was performed at USC LA by the best doctors Dr. Scinner and Dr. Stain. I am able to urinate normally during daytime. At nite i have to wake up using a time clack two three times.…
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Post op PSA rise
I would like to know if anyone has experience with this. I go to the same provider for lab results to analytical method the same. (quest). My Radical Prostatectomy was in May of 2024. Gleason Score 4+3 = 7. 3 lymph nodes negative and no indication it escaped capsule. Post op PSA was < 0.04 then 0.05 or 0.04 for duration…
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Brachytherapy dilator use
I've just finished my 6 rounds of chemo and am now scheduled for brachytherapy radiation (they had found stage 1A carcinosarcoma (MMMT) and UPSC). I'm now scheduled for 3 brachytherapy sessions. I'm finding that I'm rather anxious particularly about the long term dilator use. I found that research on the effectiveness…
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17 Years Ago
Hello everyone. It's been awhile since I've been on, but I hope that you all had a very Happy Thanksgiving. My back story for those of you newer members that don't know me. I went in for my first colonoscopy the day before Thanksgiving in 2008 because of finding blood in my stool. My doctor thought it was hemorrhoids but…
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New and scared
I was diagnosed with endometrial cancer stage one today. I am being referred to a specialist (my gyno doesn't treat cancer). It feels like standing on the edge of a high, high rooftop and looking down. Any suggestions on managing the anxiety and feelings of being overwhelmed? Thanks for reading
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Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
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Reversing treatment resistance in prostate cancer: Study solves longstanding puzzle in tumor biology
My son sent me this article, and I found it to be interesting. So, I'm sharing it. https://medicalxpress.com/news/2025-12-reversing-treatment-resistance-prostate-cancer.html