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severe mood/endocrine/mental health effects from steroids?
New here- my husband was dx fall 2023 with stage 4 oligometastatic CRC (mets to liver). He is (thank God!) NED as of a couple months ago, after 4 months of CAPOX, LAR/hai pump install, HAI pump chemo + systemic irinotecan, ablation, 4 more months of irinotecan, liver resection, HAI pump replacement. He is now on cleanup…
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Lung cancer survivor
Diagnosed with NSLC in 2019, staged 3d . After oral chemotherapy, Alecensa to shrink cancer spread, followed by radiotherapy , chemotherapy and immunotherapy I have been cancer free for 6 years now. Stay positive and hopeful.
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Keytruda side effects
My mom is in 10th cycle of keytruda for ovarian cancer recurrence. Last month her PET scan showed initial all lesions in brain and inguinal lymph nodes resolved. Doc said to continue treatment for six more cycles. However she is extremely fragile, lost 20 kilos, could take only fluids via tube and nervous all the time. Has…
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Vagal Nerve Damage from Radiation
Hi folks - it's been a long time. My husband had tonsil cancer over a decade ago and got the full chemo and rad treatment. I was active here for a while, but after a few years, I saw that others could provide any info I could, and it was hard to relive the bad days. Now, I'm learning about something that might be new to…
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Post radical prostatectomy sex.
Six weeks ago, I had a radical prostatectomy due to prostate cancer. After my resent doctor's appointment (over the phone) he gave me the green light to have sex. My question is, what will it be like? Will having an orgasm be painful? Will getting and maintaining an erection be a problem? What consideration should I bestow…
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Blood in stools...kind of scared
I'm 5 months post treatment. I've had a colonoscopy and there was no more cancer. I've been on a vegan diet for 5 months. Things were going well until this morning. I had a "normal" stool and it kind of hurt, but there was bright red blood in it. I'm not in pain but it really scared me. I see my general onc next week.…
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Fissure after biopsy
Hi! New to this site, please bare w me... I got diagnosed 2022 w squamous cell approx 2" in the anal canal. Finished treatment 12/22. Had port taken out along w final 6 mon biopsy. 2 weeks later, in debilitating pain, had to go back out on disability. I go to all my docs. They went to go back in for botox. They do a…
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undiagnosed could be anything
so i have been struggling with fatigue and my neck felt puffy since last august but then i came down with pneumonia which was diagnosed close to october but started in september. but prior to that in spring i asked a primary care doctor to feel my neck and she couldnt feel anything. i was anemic in november with elevated…
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Just started treatment
Recently diagnosed with anal cancer stage 3 A, and just finished 1st week of chemo and first 4 radiation therapy treatments, and am already experiencing extreme pain from RT. I keep reading it usually takes a few weeks to become painful, and am terrified because it is already so intense, and bound to get worse. I usually…
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Sharing...good...or bad?
Hello, Have you encountered any family member(s) who grill you about your condition, your treatments, etc. or the person you're caring for, in such a way that after the conversation, you feel…worse? I am wondering how to shut down such discussions, w/o being rude. Any tips? Can you relate? Thanks…
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Treatment
So I start my treatment for anal cancer Stage T2 N1a. I am just wondering what to expect with chemo/radiation therapy? I have chemo/radiation for two cycles, for five days straight. I will be using the pump. (Had my port place in late February.) Anyone have any thoughts regarding the anal pain, will it ever go away?
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biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
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The Triad of Accountability in Survivor Late Effects
When it comes to the long-term damage survivors face after cancer treatment—what we call “late effects”—it’s not just unfortunate fallout. It’s the result of structural decisions made by three major sectors: Sector Role in the Crisis Proposed Responsibility Hospitals Delivered life-saving treatment without long-term…
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still learning and more
Hey all, I was told I was posting on old comments so hopefully this is to a more recent arena. I was diagnosed on 12/2023. Started as 4+3 later changed to 3+4. Have a quite a bit of cores that are cancerous, but low PSA, no symptoms. I've had Prolaris done, came back Intermediate Unfavorable, but very low prognosis for…
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To Whom It May Concern: I Am Not Gone.
A Living Letter from a Survivor Still Fighting I’ve seen the reports, the search blurbs, the cautious headlines. I understand how easy it is to file away a name like mine into a footnote of survivorship—quiet, distant, presumed done. But let me make this perfectly clear: I am not gone. I am not fading. And I am not…
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Do Not Want to Take Aromatase Inhibitors
Hi, I had a lumpectomy and am in the middle of radiation treatments. When radiation is complete it is recommended that I take aromatase inhibitors. Stage 1 invasive no lymph nodes. The Oncotype Dx test put me in the low risk category, but there is a percentage of reoccurance that is there. The AI's are suppose to cut that…
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does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
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Life after prostate cancer radiation treatment
My life has changed, then maybe not, just extended? Do you feel the same? My close male friends have asked "how are you doing? Then we just go on. However, I am not the same as in so many recent changes of my past consistent body and expected functions. I will share what happened to those that want to listen. It has…
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TrueBeam radiation treatment system
Is the TrueBeam system accurate enough for treatment if no fiducials and no hydrogel are used as my radiation oncologist recommends. I don’t think it does real time monitoring and adjusting for position changes during a session?
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From an Old Childhood Cancer Survivor to a Young Survivor
I’m speaking from the experience of a long-term childhood cancer survivor—just myself, not all of us. It's been a 60-year journey: good, bad, and everything in between. I don't know exactly what this young person is going through, but when I was their age, I didn’t have anyone to walk beside me, hold my hand, or tell me…
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Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
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Advice for developing resentment towards sibling that won't help?
My mom waited two years to tell me about a sore on her breast. My brother knew the whole time. Once I found out, I took her to the ER and she was diagnosed with cancer that spread everywhere. She had multiple surgeries and it was determined she had breast cancer with at least the estrogen and Her2 receptors where she can…
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I'm in remission in New jersey
I dont know anyone here i lived in fl for 23 yrs. Living in New Jersey is my punishment for surviving cancer. Where is there an inperson meeting I can go to?
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The little stuff (hints and tips): life after surgery
How about sharing practical tips for post surgery life. Look forward to reading everyone’s tips. Here is what is working for me 8 weeks out dealing with incontinence. Doing my Kegels and pretty happy with my progress but I occasionally leak or have a small squirt of urine when I cough, sneeze, laugh, stand up, bend down,…
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Update to earlier post "Looking for Honest Post-Surgery ED Feedback...."
Hello men who might want an update to my earlier post…. so I was disheartened at the slow pace of progress for someone who checked all the boxes for a healthy (and I thought), speedy recovery for Davinci-assisted Nerve Sparing Radical Prostatectomy….my previous post asked others to be honest in their outcome/progress…. I…
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Post Tagrisso***
Anyone try Tagrisso and then found out it stopped working? What did you do then? Thanks.
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how can i move past this
I just want to know how i can move past this whole cancer thing i been through it twice and im now in remission but its still always in my head i blame things going wrong in my life on it i feel isolated from friends and family as the only ones in my family who had cancer all died after my first diagnosis. i feel like i…
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Can’t decide course of treatment… help!
Hi everyone- I’m writing as support for my husband who was recently diagnosed with PC. So much info has been thrown at us yet at the same time it feels like this treatment decision is just up to us without much guidance. The “gray areas” are killing us. My hubby’s info: 68 years old, very fit and active (runner, physical…
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Radiation after surgery
husband was officially diagnosed November 2024 Gleason 7 (3+4) after several increasing PSA numbers, MRI and biopsy. After PSMA Pet scan results, he decided to go for removal of the prostrate. His thinking was let’s just get this out and move on. Rough surgery, nearly 6 hours, but all pathology reports came back with clear…
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Erections and Semen after Prostate Radiation
I understand also, as I am older also. I start to masturbate and my penis does not get as hard or long. Then when I finally reach an orgasm my semen about is far less. One fellow said check YouTube for advice. A friend of mind started using live on the WB cam with other guys with prostate issues comparing and stroking…