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Myxofibrosarcoma
Hello I'm new here. Sitting at home recovering from surgery to remove a lump from my hip. It came back to be high grade myxofibrosarcoma. I'm 41 and worried, not going to lie. Anyone else know what my family and I have ahead of us or going through it?
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Good News Received-Recent Scans
Hello, everyone, I just wanted to drop by and post some info on my recent yearly scans. I had 2 CT scans recently, one of the chest (No Contrast) because it is found that many times an H&N cancer will go to the lungs next, so they give me a scan each year as a precaution to watch the area, and I had a CT scan of the soft…
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Decision Time RP or ADT/HDR/EBRT
After waiting 8 weeks for my MRI Fusion biopsy the results are in and not great mostly Gleason 9 (4+9) and one Gleason 9 (5+4). Have Bone Scan and CT Thursday and Friday of this week. Hoping it hasn't metastasized but concerned. I have appointments set up at Memorial Sloan Kettering with Medical Oncologis, Radiaiton…
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Young and postmenopausal
I was diagnosed with cancer at 33 and completed my treatment when I was 34. I am now 35 and confirmed to be postmenopausal due to treatment. There is no undoing it. I am wondering if anyone knows of a support group for young cancer survivors who are menopausal/postmenopausal due to treatment.
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Rising CA-125 No Reason Given
Hello and thank you for reading. My CT and PET show NED but my CA-125 is now 530. It was 81 post surgery in October and started going up in January. I have had constant swelling in both feet since surgery with no diagnoses. (Doctors say they are unsure why.) In January I went on 200mg Niraparib but after severe anemia and…
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Trust after Cancer
It seemed to me as I was going through cancer there were really only 2 kinds of people. 1. Outstandingly generous people who were doing everything they could to help and were upset they couldn't do more. 2. People who didn't care at all. Maybe they would do a low effort thing, like a box of cookies in the mail for…
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Confused
I was diagnosed with bc 4 months after 2 brain surgeries to correct essential tremors. My feelings are all over the map. One minute I'm still in shock, the next I'm convinced I'm superwoman and can handle anything, the next all I can think is "damn, I've got cancer". Has anyone else experienced this? How long did it last?…
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colon cancer met to sacrum
Hi I had a resection 2.5 years ago after dr. found a 5cm tumor with no lymph node involvement. everything was going ok until 5 months ago when i started having a nagging sacral/coccyx pain. I thought i just pulled a muscle or strained it. my doctor just told me it might be mets?! I am getting an MRI soon. I just can't find…
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Germinoma brain tumor survivor Question
I was diagnosed with a brain tumor at seventeen years old. I am thirty seven now. The tumor was erradicated with radiation and chemo. My doctors said the tumor could never return. Does anyone know what this prognosis could be based on? Can germinoa brain tumors appear twice in a person's life. What are the statistics for…
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New to this group
I'm 55 and I've diagnosed with MM (plasma cell leukemia) stage 4 about 5 months ago and am in round 3 of my chemo treatment, about 2 months in. I was told 5-6 months of weekly treatment then I will need a stem cell transplant but I'm on the fence on which route to take. I'm not liking the idea of going back to ground zero…
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Anyone have an Incisional Hernia?
I had an appt with my oncologist yesterday and she sent me to a specialist right away due to a large incisional hernia. Apparently my stomach port incision did not hold and now the hernia has gotten quite large. I am going for surgery within the next two weeks or so. Or course, after having ovarian cancer all the red flags…
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I'm so lost and confused
September 2024 I was diagnosed with melanoma and squamous cell carsanoma. I have mohs surgeries and excisions to remove them. Once the biopsies started taking place and the removal started taking place I began to have severe headaches on the left side of my head along with left ear pain,left jaw pain,and pain in the left…
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52yo Gleason score of 3+4 in San Diego
I have a follow up call from my doctor about treatment, surgery, radiation or continued surveillance. I'm a firefighter and in good health, workout almost every day. Anyone receive treatment in San Diego? I've read about other protocols; anyone try them during active surveillance? Thank you in advance for any response.…
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Treatment
So I start my treatment for anal cancer Stage T2 N1a. I am just wondering what to expect with chemo/radiation therapy? I have chemo/radiation for two cycles, for five days straight. I will be using the pump. (Had my port place in late February.) Anyone have any thoughts regarding the anal pain, will it ever go away?
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how can i move past this
I just want to know how i can move past this whole cancer thing i been through it twice and im now in remission but its still always in my head i blame things going wrong in my life on it i feel isolated from friends and family as the only ones in my family who had cancer all died after my first diagnosis. i feel like i…
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False positive PET
So in December I had a PET scan with Deauville score 5. One of the nodes where my original diagnosis in 2017 showed SUV uptake of 20. Local oncologist sent me to University Hospital in state. They looked at PET scan and begin talking about clinical trial CAR T. This was second relapse after RCHOP first line of treatment…
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My 22 yo daughter has cancer & long history of mental illness.
My daughter who has struggled with mental issues- depression, self harm, feelings of worthlessness, suicidal ideations etc, half her life, is now going through treatments for Hodgkin Lymphoma. As if life isn’t hard enough for her as it was. Can somebody please tell me how to cope? I too suffer with her. I feel like I’ve…
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POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
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Chemo/Radiation Long Term Side Effects
I am now about 10 years post treatments. After looking through several discussions it looks like most of us have alot of the same side effects. My first side effect started about 4 1/2 years after treatments ended and while I was on vacation. I never had a issue until that day. We ate lunch and was walking around seeing…
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My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
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Marijuana for pain?
Has anyone had success with marijuana, gummies probably, for pain? Luckily I live in a state where it’s legal. I’ve read that if it’s HPV related then a 3:1 ratio THC:CBD.
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I Have A Kidney Lesion
hello every-1. about 6 years ago this feb. i was diagnosed wit prostate cancer. due to a cyst seen on my right kidney i had an MRI on yesterday. i need to some help and guidance and my nerves calmed. would some1 please help me Indeterminate 2.7 cm lesion in the right lower pole of the kidney with peripheral rim enhancement…
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Curcumin and broccoli supplements
Has anyone been allowed to take curcumin or broccoli supplements during cancer treatment. I read that the broccoli sprout supplements can be effective at killing stem cells but am not sure if that is based on real science. I am healing from a hysterectomy for StageIV serous endometrial cancer and doing research to see if I…
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Husband’s Taste After Radiation/Cisplatin 10/23
I recently posted about a scare we got from my husband’s new dental hygienist who thought he had another swollen lymph node on the opposite side of his neck from where he was diagnosed with left base of tongue and 2 nodes on the left last July 2023 with 7 weeks of radiation and 7 weekly Cisplatin chemos. Saw his Oncologist…
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4+3 with possible Seminal Vesicle Involvement
Hi - 55you with Gleason 4+3 with a primary lesion on the left, and other positives on the right. MRI indicates abutting the capsule, but clear Seminal Vesicles. Pet CT shows "No other abnormal uptake to suggest tracer avid metastatic disease" BUT "Suggestion of bilateral foci of uptake in proximal seminal vesicles not well…
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Anyone Stage 4 and still working?
My husband has been on Short Term Disability for 4 months. We were hoping he would go back next week but we changed our minds. He is just not well enough. His main problem is fatigue. I just worry about the "what ifs" he can't go back. I don't want to be a Debbie Downer but I want to be realistic and plan for our future.…
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Keytruda
keytruda and renal cancer, has anyone started on kektruda after surgery and if so how are you reacting to it?
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New-IDC with Triple Negative
I recently got diagnosed with IDC with triple negative. Trying to wrap my head around all this. Waiting for genetics results too. I have less than 2 cm lump in my right breast. I am doing a lumpectomy early Nov. What is the triple negative? I understand it means the tumor does not grow from estrogen, but what are the other…
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How to manage
I am in treatment for breast cancer, and it has been almost 4 months since my initial diagnosis. I feel sometimes like I don’t have any control over anything and that I am at the mercy of the care providers. I feel like I am waiting. My feet and ankles were really swollen before my first surgery and after this second one…
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Taxol and Neuropathy
Hey All! I am getting ready to finish up my AC/Cytoxan cycles and move into my 12 weeks of Taxol. During AC, I have been doing the ice packs on my hands and feet to help prevent neuropathy. Will I need to worry about that during Taxol or can I finally leave these cold packs behind? 🤣Those are the longest 15 minutes of each…