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Feeling overwhelmed, can't stop crying.
hello, I was recently hospitalized and had to push my treatment back. Since this happened I cannot stop crying and feeling like a failure. I wanted my treatment to go by as quickly as possible and now I don't know when it will start again. My doctor also told me I should take off work until treatment is finished and now I…
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Need help for my mother's Cholangiocarcinoma
I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When we detected it, the cancer had already spread a lot. She underwent whipples surgery, followed by 6 cycles of Gemcitabine + Capecitabine. Then another 15 rounds of radiation. We thought…
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Post chemo issues and severe foot neuropathy
I am nine months post radiation and chemo and still have hand tingling and finger numbness along with severe foot neuropathy (albeit somewhat better than five months ago). A month after chemo my feet (and left leg up to my knee) got severely worse from just the pins and needles feeling that developed after the fourth chemo…
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OSCC of the tongue, heading into chemoradiotherapy...
Hi. My name is Gary Chau. I am a 40 y/o male diagnosed with OSCC of the tongue back in May 2025. My story begins almost a half a year ago after I bit the left side of my tongue. After a day or two it healed up like most tongue bites do, however, in the following weeks it had formed into what I thought was a canker sore.…
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opinions and experience? time of day taking Relugolix (Orgovyx)
Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation. and I'll start with ADT - Orgovyx for 6 weeks before radiation starts. I was advised to take the pills any time of day I choose, but be…
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Choices with AML
I was diagnosed in 12/23 with AML I am 102 days out from my stem cell transplant at UVA. I am about to go on maintenance chemo for 1 to 2 years to help avoid a relapse. Wondering if there is anyone that has been down this road and would love to hear how they are doing with it. My schedule will be every 8 weeks 5 days of…
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Leaukimia
Any one tell about lekuma how to survive from this
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tram flap and pregnancy
I am 32 yrs. old & I recently had a bilateral mastectomy and tram flap reconstruction. Have any of you become pregnant after having this procedure? I need advice...will it be difficult...did you deliver vaginally...was there really enough room for the baby the develop properly? How long did you wait before becoming…
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An Inspiring Lady Trying To Help And Inspire Others
Below are a couple videos of a very inspiring lady who, like all of us on here, suddenly had head and neck cancer to deal with. And like many of us, it changed her life forever. But she fought on and is now a motivational speaker. I found her very inspiring and just wanted to share this with the rest of you on here. Maybe…
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Tram Flap and Complications
TRAM FLAP RECONSTRUCTION AND ABDOMINAL BULGE/PAIN I had the Bilateral Pedicle Tram Flap in 2012. Less than 3 months later, my abdomen began to grow larger and, very painful. After chemotherapy finished, I began to investigate...being an RN, it’s in my nature to look at online journals. I knew something was wrong, but what?…
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Right hemicolectomy in a couple weeks. Looking for info on hospital and recovery experiences
Hi. Newly diagnosed with ulcerated invasive moderately differentiated adenocarcinoma (boy I hope I got those words in the right order…). Surgery coming up in a couple weeks. I'm getting and seeing inconsistent info on how long I might be in the hospital and what I should be prepared for coming home. I know it's different…
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Treated for follicular 3B in 2017, now dlbcl
hello, my husband had aggressive follicular lymphoma 3b in 2017 which he was treated with rchop. Now, he was just diagnosed with DLBCL which they believe is closely related to the one he had in 2017. im just looking for similar experiences. We have two very little kids and I am currently pregnant, so we are worried sick…
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my wife just diagnosed with breast cancer
I finished surgery, chemo & rads in 12/21 for cancer on my tongue. NED so far. My wife had biopsy last week and MRI yesterday. We see the surgeon tommorrow. It appears based on what she has been told so far by the nurse navigator that it's either a lumpectomy w/ radiation & hormone treatment OR a full mastectomy and no rad…
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Survivor Leadership Statement: “What Are You Bringing?
I learned early on: document everything, keep your eye on the ball, ask the right questions, and listen—really listen. You don’t have all the answers. And if you think you do, you’re not doing the job. I’m not here to speak for every survivor. I’m here to change the conditions so we can all speak, be heard, and be…
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Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
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Sertoli-Lydig Stromol cord Ovarian Cancer
Its supposedly the most rare type of ovarian cancer. It affects the connective tissue in your ovaries and makes your hormones go out of control. The tumors grow huge and rupture causing you to bleed internally. Most of the doctors Ive seen have never treated a case. Has anybody else had it or know somebody who does and if…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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Waiting 6 to 7 months for Prostate surgery
Hi friends I am new to this forum. Husband diagnosed with Prostate ca Gleason 7 (3+4) stage II. MRI and PSMA pet scan show it is contained within the prostate. We liven Canada and have a long Queque, so surgery will only 6 to 7 months frm date of diagnosis. Scared to wait so long for surgery. Amy opinions/advice? Has…
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Insurance Denial Tumor Marker Test
Hello. My husband is a stage 4 colon cancer survivor, diagnosed in May 2006 with surgeries in May 2006 and October 2007 and chemotherapy treatment. He is feeling great. I am grateful beyond my ability to express my feelings for my husband's positive response to his treatment. On a negative note, however, as I've posted…
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Enlarged Ovary with complex cyst after endometrial cancer stage 1a grade 2
Hi Everyone, I was diagnosed with endometrial cancer stage1 grade 2 in November 2024. It was found after a hysterectomy because of very enlarged fibroids. I opted out of radiation because of the size and grade. I get exams and scans to keep an eye on things. I was not due for a scan but have been having pain. I opted out…
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Bladder / Ureter Cancer
I am posting this under Bladder Cancer but I have Ureter Cancer. Diagnosed 5/29/2024 with Ureter Cancer. 70 yrs male—mass found in left ureter—Had Kidney and Ureter robotically removed (but had to be switch to open surgery lasting almost 7 hrs.) 6/13/24. Had complications and in ICU for the day after surgery. Hospital for…
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I survived Breast Cancer and then they found Cancer in the Endometrium
Hey everyone, It's been a few years since posting. Been a very busy couple of years. How it started: I began bleeding and got an appointment with my Gyno. He said "You are definitely bleeding, Until proven otherwise, this is likely cancer. " ( I bled for 10 days) I had went through Menopause 10 years ago so I knew this…
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Recurrence of upsc
Hi, I know this board has been quiet. But I have been on for a little over 3 years when my mom was first diagnosed with stage 1a upsc. She was almost 3 years out when it returned in her omentum. She has just finished another 6 rounds of chemo with keytruda, Keytruda will now continue. The last 2 scans have showed a good…
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Post Esophagectomy nausea 61F
Howdy, my mother has spent the last 2 years with hospital complications, it has been 1 step forward 2 steps back. She did well after surgery , was even playing on going shopping. As of now she is probably over a year out of hospital. She has the worst nausea. i cant put it into words how bad it actually is. She still has…
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I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
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Recurrence Anxiety
Hello. My name is Jeff and I was diagnosed with Rhabdomyosarcomo at age 9. I underwent a little over a year of chemo and a short stint of radiation therapy. I've been cancer free ever since. I am now a husband and a father to 3 beautiful little kids. When I think about how well my treatment went and how trivial the long…
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Vulva and sarcoma cancer
I recently have been diagnosed with Vulva and sarcoma cancer. I have lichens schlerosis and haven't gone to gyn for over ten years, mistake! I had one week of bleeding so finally went to gyn. He wanted me to get biopsy of 3 mm mass. That's when two cancers showed up on scan. At the same time, had gallbladder removed…
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Cervical cancer
I’m just wondering how many others are out there that had normal paps only to find cervical cancer later. I had Pap test every year that came back negative but after having a hysterectomy it was found I had Stage 1B2 cervical cancer and now undergoing radiation. Looking back I had symptoms such as post menopausal bleeding…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Injury recovery time
on evening of July 4th, I misstepped in the dark on front porch steps and took a rumple (no alcohol involved) sprained left ankle (swelled up some) and jammed left big toe (swelled up to foot joint) Had it looked at by doc. Not too concerned 5 weeks later, ankle is better but still swells up if I’m on it a lot and big toe…