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TritonMaxx For Ed In Today's Men Not Good!
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Taste - Post Treatment
So, I am now 13 days post treatment. Everything seems to be healing well. I think I may be one of the lucky ones, as I have been seeing signs of improvement for about a week now. my concern is with taste. I've had no changes regarding my taste... still taste nothing! I was reading some posts and have become confused as to…
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Scared & Emotional
After waiting 16 days, without my PCP giving me any info except a referral to a Hemotologist, I was told I have CLL. I now have to wait 7 more days to find out "specifics". The lack of communication with my health care providers is frustrating. I'm staying positive with my family & friends, but silently I'm freaking out.
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Sleepy, tired, exhausted, forgetful, yes sometimes depressed
Hi Everyone, Does anyone have a suggestion, or the best trick besides healthy lifestyle, I personally follow, on how to alleviate TIREDNESS when taking Revlimid as maintenance therapy or plain therapy as it's for me? I won't give up writing (and reading) since they are my preferred indoor activities. Chemotherapy…
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Skin care/household products after cancer treatment
Has anyone switched up their skin care and household products? I'm trying to get better about using cleaner products to help reduce the chemicals, if possible. I have very sensitive skin so it takes awhile to switch. My daughter got on me about some of the things I was using, and she was right. Anyway, I switched body…
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Vectibix Rash
Just started on Vectibix last week. Acne rash started yesterday. I called my oncology Doctor today and he called in a prescription for Doxcyline, but only gave me enough for 7 days with no refills. I have read past discussions that other people has taken this and it has helped, however, what I gather from the posts is that…
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Advocate for Yourself!
Hi all! I previously posted about the problems I have 9 yrs post chemo. What i wanted to say was that when I started having side effects during chemo, my Oncologist and the pharmacist said they had never heard of those side effects and it couldn't be from my treatments. After chemo when my neuropathy really started kicking…
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Happy Easter Wishes to All 2025
This year I am wishing everyone a wonderful Easter as best as I can on here.. I had posted this message in a different form, and this site policy caused it to be removed. I cannot tell you the truth, or my post will be removed. For that matter this one may well be also I am not allowed to post XX xx xxxxx, xx xx xxxxx…
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Long term Chemo induced neuropathy
Hi. I was diagnosed with 2 types of Ovarian Cancer in 2015. After chemo I became disabled with peripheral neuropathy and my entire life as I knew it changed. Fast forward, I noticed pain and neuropathy symptoms worsening about a year ago and now I have pain, burning, extreme muscle tightness and pain if I'm touched on my…
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HR+ Her2-/Menopause Treatment Options
Hello, I have HR+/Her2- beast cancer, and the treatments have thrown me into instant menopause. Are there any non-estrogen-based over the counter meds/foods/natural things I can use to help? I'm in a lot of pain with the menopause itself on top of the cancer. At the same time, I don't want to take something that will feed…
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Update on my esophageal cancer
I had an esophagectomy on Oct 2 to remove a squamous cell carcinoma tumor. I was stage 2 with no metastasis. I had a complication after my surgery (an Anastomotic leak) and spent an extra month in the hospital. It was a rough time and I was pretty ill. I lost 37 pounds. I am doing better now, thankfully. I have recently…
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ER+, HER2+ breast cancer. New here, Nervous, have questions
was diagnosed with Stage 1, grade 2 er+, her2+ breast cancer. No lymph node involvement. Very small. Lumpectomy, 16 rounds of radiation, currently doing immunotherapy (session 9 of 18)and on Letrozole. My reason for being nervous…..although protocol called for me to do chemo, my oncologist felt I would be a good candidate…
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Looking for information regarding immunotherapy infusion : keytruda
I am looking for some information regarding immunotherapy treatments . I am inquiring for my husband. He had prostate cancer & bladder cancer. Prostrate removal & cystectomy in 2023. Now the cancer is back & the Dr would like to try immunotherapy & possible chemo. I would like to know about reactions & any other advice for…
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Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
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Radiation for refractory PMBCL: proton v photon
I have Primary Mediastinal Large B-cell Lymphoma and the chemo didn't work. Started working and then quit responding. Now I am in between Photon and Proton therapy and not sure what to do. Has anyone on here had any experience in this? The Proton would be at 60Cy and the Photon at 20cy. CAR-T as well. Anyone have any input?
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Pre-surgery anxiety & fear
I am 69 years old and recently diagnosed with lung cancer. I don't have a surgery date yet but should find out this week. Or at least I hope so. (This process has moved much more slowly than I imagined.) But in any event, I find myself experiencing waves of intense fear and anxiety that I cannot push past on my own. I seem…
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Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
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Looking for others with NSCL BRAF mutation
Hello, I was just wondering if anyone is on Braftovi and Mektovi and how is your experience with these medications. I have been on them for 1 month now and have had quite an improvement in my symptoms. I do have fatigue and some muscle pain in the evenings, but not enough to stop my day. Just wanted to connect with people…
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Battling Chronic Myeloid Leukemia
I had a Brother that was a year older than I am, who passed away from Stage IV Liver Cancer in November, 2022, and I'm a 72 year old female, living with Chronic Myeloid Leukemia.. I was Diagnosed with Leukemia on: April 27th, 2023, which was 5 month's after I lost my Brother... I stayed in the Hospital for about a week,…
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Choosing not to do Hormone Therapy after Lumpectomy
Two months ago I had a lumpectomy to remove Grade 1, Stage 1 Estrogen Progesterone positive mucinous cancer. My oncologist wants me to take Aromatose as I am 74. This drug is known to cause bone loss. I am .1 point away from osteoporosis. A Mammoprint test was done and the outcome shows a possible 98% non recurrence with…
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New Member- Any Guidance is Much Appreciated :)
Hello, I am joining to gain insight on behalf of my 59 year old mother who was diagnosed in February 2025 with Grade 4 Glioblastoma brain cancer. it metastasized to her lower spine. She had a craniotomy to remove as much of the brain tumor as possible, and the spine tumor is inoperable. She has completed radiation for both…
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Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
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Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
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Young Esophageal Cancer Patient
Hi everyone, my name is Emily, and I was diagnosed with Stage 3A Adenocarcinoma of the Esophagus at the age of 26. I wanted to share my story with those who might find it helpful, or just insightful in the journey of someone going through this cancer treatment at this age. In May of 2021, I ended up in the ER with upper…
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Option on Stent vs J Tube
Hi All, My dad has Esophegal Cancer which he was diagnosed with in 2021, to date he has had 2 rounds of chemo and 2 rounds of radiation, as a family we decided we did not want to go the surgery route. The second time was because there were signs that the cancer had moved into a small section of the liver. He finished last…
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Proton Therapy for Breast Cancer
Anyone know of any proton therapy for early stage breast cancer?
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vigina problems
after 7 months since my last cancer treatment. still having problems with sex. Hurts very much. I feel bad for my husband. I don't want to give that part of my life up. Anyone else have these problems?
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I am pretty terrified
Since mid sept. I have been passing blood very intermittently, sharp pain as if I am passing glass/sand paper and persistent itching around the anus almost every bowel movement. I have no pain outside of BM I am 37 years old, non immune supressed, no hiv etc otherwise in healthy shape in a long term relationship. I had a…
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Folfiri
I have stage 4 metastatic colon cancer. I did 8 rounds of Folfox and only had hair thinning. I ended Folfox back in Sept 2024. Now I am in folfiri currently finished cycle 3. When did people start loosing /thinning hair? I most likely will be on at least 12 cycles maybe more.