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Alcohol
I was just diagnosed. I’m having surgery next week. I just went to my primary MD for the pre-op and she said I have to quit drinking because it would increase the chances of reoccurrence. I wouldn’t say I’m an alcoholic but there’s a lot of wine at book club, out to eat and various parties every week. What if I just cut…
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radiation scar tissue in rectum
has any one had treatment to remove scar tissue from the rectum area due to radiation damage
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Ibrutinib or Imbruvica, my apologies for the duplicate post
In September 2021 my wife started having headaches that progressed to balance issues etc. In October 2021 she had brain surgery to remove 75% of the tumor that was pathologically determined to be primary central nervous system lymphoma, diffuse large b cell lymphoma. She was emphatic that she was not going to do the HDMTX…
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Recent double mastectomy
hello, I was recently diagnosed with breast cancer back in August. I’ve went through all the tests biopsies MRIs ultrasounds. I wound up having a 2.2 nodule in my left breast that was malignant. We spoke but being I have a history of cancer in my I opted immediately to have a double mastectomy. Fast-forward to November 5…
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Orgovyx
After all testing was complete I had the choice of surgery or radiation, I chose radiation. My urologist started me on Orgovyx. I have been on the pill for about a week and now I am having strong hot flashes, does anyone any any tricks to cope ? It wakes me up for hours and I also have bone pain. If anyone has any info on…
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What a journey!
I was diagnosed 9/11/2018. After two rounds of chemo and one radiation, my cancer has neither grown nor disappeared. I am now again, six years and three months later, seriously considering an esophagectomy. I am fearful, yes. But more than that, I consider such as invasive procedure to be an affront to my body. Does anyone…
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New Guy
I was diagnosed with Esophageal Cancer last Monday. I'm a mess. Nightmare of care co-ordination with providers and insurance. How do I see the entire post of people who post? I see things like, "The most important thing you can do to survive is....." And then gets cut off. Tips, suggestions, advice welcome. Thank you.
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17 year survivor
may 2024 be a better year for you all. It’s been a long time since I last checked out this site. I wanted to offer hope to any and all that visit. I am an unusual 17 year survivor and you might be too! Please feel free to reach out
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Topic for Newbies and Radiation
With all the new people coming to the breast boards here on CSN, I thought it would be helpful for us to give hints, tips, basic information on how to handle radiation and the related drugs given during radiation, side effects tips, nutritional information etc. I have been seeing quite a few new people coming into the chat…
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Angiosarcoma
38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all…
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Breast cancer
hello, I was recently diagnosed with breast cancer back in August. I’ve went through all the tests biopsies MRIs ultrasounds. I wound up having a 2.2 nodule in my left breast that was malignant. We spoke but being I have a history of cancer in my I opted immediately to have a double mastectomy. Fast-forward to November 5…
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Endometrial Biopsy
Hello there, In 30 days I will be having an endometrial biopsy. I have no symptoms, but my endometrium is 6mm and I'm postmenopausal. Not only am I scared about the possibility of having cancer but I'm read so many horror stories about how painful the biopsy is and now I'm terrified. I can't stop thinking about it. My…
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Remission
I haven't been on here for a while (maybe a year) and have not had any more symptoms of the EC diagnosed in March 2023. They used to call it remission but I'm not sure if that term is still in use. I'd always been told what an aggressive cancer EC was and was told it was an esophagectomy or bust for me. I didn't opt for it…
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Another newbie here!
Hey all! I just joined and I know my wife Lin and I are glad to be here. I was having problems eating on my 75th birthday on 9/17. Somehow, homemade mac and cheese just would not go down! That's not like me — the old person who could eat anything. So, after the usual going to my PCP and having the barium swallow and the…
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A newer phase in my Systemic treatment now with metastasis in bone
To all in this forum and particularly the old members that have help me along the years in understanding facts on PCa issues based to their experiences, or suggestions to my case. It has been 18 months since I dropped a post in the forum (July 2022). I felt that I have failed those that were used in receiving my prompt…
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Kisqali side effects
I was diagnosed with stage four NBC earlier this year and just started a combination of anastrozole and Kisqali. I am three weeks on with one week off. I have experienced some persistent nausea, but most concerning is my serious fatigue. I’m wondering if this improves over the months as you continue with the Kisqali? I’m…
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1 year out after radiation for re-occurence
Just got the ultra sensitive psa all undetectable. Happy New Year to all
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Everyone around me EXTREMELY begrudgingly deals with me
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Wishing Everyone A Blessed And Joyous Christmas 2024 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Please feel free to leave your own well wishes and Christmas Blessings here, all are welcome. We are all in the same club here so cheers to everyone. Christmas time is one of the highlights of the year. It’s a time of gathering with family and…
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Orpheangeal Cancer due to HPV Virus
I have been in remission since July 2023. Cancer free do far. I am so worried about the Cancer coming back. Is there anyone out there had this Cancer? Did it come back?
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Learn About The Treatment Options Available To You-Sharing This From Local Support Group
Hello everyone. These Head and Neck Cancer handouts were given at our local cancer center support group. I would like to share it because I think it may be helpful. If you find the print a bit small you can increase the size of the print in your browser, I know with Firefox Browser if you push "ctrl +" on your keyboard it…
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New Member Undergoing Treatment Currently with Questions
Hello - new member (50 y/o male) to this site, so hello everyone! I was diagnosed with Papillary Thyroid Cancer (Follicular Variant) two months ago. They discovered this because a CT scan uncovered I had a 9.5 cm mass in my chest that was squeezing my trachea down to an opening the size of just 3 pencil tips. Within two…
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I’m new here & so scared!!!
My name is Stephanie, I am a 44 year old wife & mother of 3 AMAZING boys…men, they are 25, 22 & 19. I have been married to my husband for 25 years, January 2, 2025 we will celebrate 26 years of marriage!!! My husband Bob, 46 years old was diagnosed in May of 2021 with stage VI renal cell carcinoma. They immediately removed…
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Annual checkups
I am right at 6 years post surgery and almost 6 years from the end of chemo, and brachytherapy with no recurrence. I still go for annual checkups with my oncology GYN. How many of you continue to do this? I really love my Dr but she is retiring at the end of December. I will still go to the same oncology center and the PA…
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What to do when you get a recurrence of Endometrial Cancer In 6 months
My mom is my everything. She was diagnosed with endometrial cancer. She had a hysterectomy, & chemotherapy with paclitaxol & carboplatin. Was in remission for only 6 months post 5 cycles, she was supposed to have 6 cycles, but could not have her last cycle due to neutropenic fever putting her in the hospital, & since her…
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What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
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Childhood Medullablastoma
I have a 2 year old nephew that has just been diagnosed with Medullablastoma. I have been desperately trying to find an adult survivor from this cancer that was diagnosed at a very young age (under 3) and have had no luck. I am hoping that someone has some information on dealing with this cancer from this early age. Can…
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Endometrial SEROUS carcinoma
I was diagnosed with endometrial serous carcinoma 10/21. I had a total hysterectomy, chemotherapy, and brachytherapy ending 6/22. I had a CT and PET scan 7/23 which showed cancer recurring in the retroperitoneal lymph nodes. I have my last radiation treatment today (total of 28) and am wondering if there's anyone else on…
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Changes from testicular cancer
I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical urge. I’m a survivor of testicular cancer for six years. I’ve had my testosterone checked and my level is fine but I don’t physically attracted. Is this normal?