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Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
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Cervical Cancer and Fatigue
I was diagnosed in April with cervical cancer. I've noticed that I get tried easily and now the past few days my body hurts. Today (5/9) I woke up and my whole body hurts. I'm normally very active and always on the go. I decided to run some errands yesterday and mow my front yard. I felt good till the afternoon when I…
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Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
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Nausea with stint
Hi everyone. Will get final diagnosis this week but I have a resectable tumor at the head of my pancreas. I’ve had a couple of stints placed so far to open up bile duct. First was a larger metal one that caused terrible discomfort, had waves of “contractions “, then they replaced it with smaller plastic one that got…
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NLPHL Diagnosis-Just wanted to say HI
Good morning!! I just recently got diagnosed, still going through staging, but it looks good so far. Seeing Dr. Jeffrey Barnes out of MA Gen in Boston!!! Hope everyone is doing good. A lot of the time I feel great, other times I get down in the dumps for a few minutes, then bounce back, LOL
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Memorial Day May 26, 2025 We Honor and Remember our Fallen
Monday the 26th is Memorial Day, a day set aside to honor our country's servicemen and women who died in service to our country and who gave their all. These are the ones who gave their lives for their country-their last full measure. They deserve no less than the highest honor and respect. Participate in the National…
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Anyone else get triggered like me?
I’ve noticed lately that I’m always seeing on tv shows or movies where they say so and so died of cancer. When they do this I always get a flood of anxiety all over my body like an adrenaline rush. It also happens on social media. I will see someone post about how their relative or this famous actor died of cancer and it…
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Finally I've gotten some good news
After an IRE ablation procedure last year, then a few months of ADT so far, and 40 sessions of IMRT of the prostate and pelvic region for lymph nodes, my most recent blood work indicates a PSA level of .04 ng/ml. Down from over 9 ng /ml about six months ago. If I understand correctly, this is considered undetectable. I'm…
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My partner may have Cancer because of me.
I didn’t know I had HPV when I was intimate with my partner. After I got the diagnosis, I was in tears. I got my HPV vaccination in my adolescent years. I was scared to let my partner know he might have it as well because of me. After telling him, he said nothing was going to change between us and everything will be ok.…
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Biopsy today
I am a 55 year old female. I had a EGD done today. They biopsied a spot that they said looked suspicious for squamous cell esophageal cancer. I’m scared to death. Can anyone offer me any information please?
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38 and diagnosed with stage 4 esophageal cancer
I am a 38 year old male from Minnesota. Non smoker my entire life and pretty much a social drinker until recently. Since essentially Christmas of 2016, all I can say is I have just felt "off". Not really depressed, just unmotivated, undriven, and lethargic. It has happened a few times in the past 2 years that I woke up…
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Faslodex/fulvestrant and tumor markers
hi everyone, my mother has breast cancer that has spread to her bones and liver. She is on enhertu and just recently the doctor has prescribed faslodex injection for her. She is on her third cycle of the injection and she did tumor markers test and it showed very high numbers. She has also finished 5 sessions of radiation.…
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Stage 1 Cancer under left side of tongue front of tongue
Has anyone been diagnosed with tongue cancer under the tongue - will have operation on June 3rd. Is having tongue cancer in the front of your tongue worse than having it in back of the tongue. I never dealt with anything this before and just wondering. Can you all tell me the experiences with tongue cancer and what I…
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Thymoma Survivors/Caregivers?
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!
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Deciding to end treatment or not?
My husband has been through a lot over the last 5 years ( he is currently 63) but we are now at the point where we really need to decide if focusing only on comfort care is best. Since February things suddenly became very bad with spinal metastasis, which then turned into fractures one pressing on his spinal cord putting…
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Swelling in Knees and Ankles Following Chemo and Radiation
New to this network and learning so much as I assist my husband recovering from TORS and the 6 week chemo/radiation that followed. TORS was a breeze compared to the trauma of radiation and chemotherapy. His last radiation treatment was April 28, 2025 and while we expected the dry mouth, difficulty swallowing and general…
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Scar tissue or nerve pain
New to site. I was 44, right before my birthday, great party, kidding. On 07/22/2022 gotten diagnosed with stage four EC. I started treatments two weeks later until end of Oct. then went in for knife on dec. 6. I'm wondering about certain feelings (possible nerve or scar). My right chest/ rib area. Just putting my toes in…
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Nodule
just was told 1.3 cm. Right upper lobe nodule was “ nothing, probably just infection “ I had no sign of lung infection ( fever, elevated WBC, etc) I think Dr is being too cavalier about it- what do other people think?
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2 weeks ... feeling dizzy
Just curious, been two weeks as of today since my surgery and I've been feeling extremely dizzy at times when I stand up.wonder if this is normal.other than that I'm feeling good. Have my follow up tomorrow I can ask the doc but has any one else felt this way after there surgery?
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Got diagnosed with IDC
I just found out I have IDC and will have the lump removed in 2 weeks. After I will have to get checked and see if it moved anywhere else. What’s the best course of action? And is IDC curable?
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Post Chemo issues,,, severe foot neuropathy
under construction
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Endometriod Adenocarcinoma Recurrance to the liver
Hi everyone. It’s been a good long while since posting here. I was diagnosed with endometriod adinocarcinoma Stage 1 Grade 1A eight years ago in 2017. That May, I had a complete, Davinci robot assisted, hysterectomy. I remained NED for 6 years. It wasn’t until we went 1 year in between checkups that it was discovered that…
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Immunotherapy for Squamous Cell Carcinoma, base of tongue
Brief recap: 2007, SCC left tonsil/lymph gland, minor surgery, 35 rads, 7 Cisplatin Chemo, still all clear last PET 3/2025. 2022, SCC right tonsil, TORS for tumor, RND of the neck. No chemo, 30 rads. PET 2025 shows reoccurrence near base of tongue. Surgery and radiation not an option. Waiting on appt to discuss…
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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Post Radiation/Chemo - Pre surgery consideration? / Post severe foot neuropathy
I was diagnosed with stage 3 colorectal cancer in Feb-2024 with the cancer extending into a few lymph nodes. Did five weeks (25 sessions) of radiation & oral chemo then 16 weeks of chemo (6 hours in the chair and 2 days connected to at home pump infusions). The tumor shrank 98+%, no longer in the lymph nodes, had a…
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7 year follow up
Last week I went up to Cleveland Clinic for my 7 year follow up. I met with 2 different NPs (3, if you count the one that was shadowing). It was pretty routine - lots of questions, say ahhh, scope through my nose and down to the original BOT site, say other syllables, etc. Everything looked good and I once again proved to…
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Synchronous primary tumors
Hello! I’m writing about my husband. His story—he had a partial nephrectomy at MD Anderson in February 2024 for Stage 1 kidney cancer. At that time he had a CT scan that showed a thickening of the ascending colon wall at 4.9. This March, he had another scan that showed the thickening had increased and there were suspicious…
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My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
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Journey and what next
Hi there, I'm 41 years old and in October 2024 I'm diagnosed stage 4 anal cancer and liver and anterior lower abdomen wall metastesis. At first, I almost got chemoradiation but after found out that it has spread so the treatment has changed. I got 6 chemo (Paclitaxel/ Carboplatin) and testing PET scan soon (now 4 weeks…
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Coping Tips forTaste Destroyed
Hi. I'm on Entrectinib and it is reaking havoc with my taste of food. It has made many things taste terrible. It might be those things that are sweet or have sugar in them. Not totally sure yet. This morning eggs tasted 'almost' normal. And white toast w/spray non butter stuff tasted okay. Any thoughts/suggestions. Any…