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Church-Based Cancer Support Ministries
Because of my cancer journey, I am motivated to start a Christian cancer support ministry at my church. I would like to hear from anyone who has had experience with a cancer support ministry at their church and get thoughts and reactions about the idea. Thanks for your input!
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Not eating
My husband has been diagnosed with stage 4 non small cell lung cancer that has spread to his bones. He was put on capmatinib. From the last pet scan the drug was working but one of the side effects of the drug was swelling. He went to his family doctor about the swelling and the family doctor advised him to stop taking the…
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Needed to talk
I'm new to CSN. My story is, I was diagnosed with DCIS breast cancer 2002. I rejected the standard of care, chemo, radiation, or HRT. I believed I was 52 years old, when the doctor suggested left breast removal in 2005, with treatment. At that time my husband and I was on our 33rd year of marriage, so I rejected breast…
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Faith talk
I'm new to CSN. About me. I was diagnosed with DCIS 2002. I rejected the standard of care, chemo, radiation, or HRT. I believed I was 52 years old, when the doctor suggested breast removal in 2005. At that time my husband and I was on our 33rd year of marriage, so I rejected breast removal for now, maybe I was a little…
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New to page and Dx
I was Diagnosed 8/4 with Invasive Ductal Carcinoma in my left breast found on a screening mammogram. So thankful for this. I feel like things have taken so long to get going. Screening mammogram was 7/15 follow up 7/22 Biopsies x2 had 3 suspicious areas 7/30 results 8/4. MRI of both breast 8/15. I have seen Surgical…
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Social Security Disability
I just finished my online application for Disability benefits. What an ordeal--I see why people hire attorneys for this. Monday, I filed the Application for Benefits and printed out some instuctions about what information I would need to file the Disability Report. Tuesday, I assembled, compiled, and recapped medical…
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Stage 2 BC Triple negative Tamoxifen 8 yrs Uterine lining 22 mm
Started with intermittent discharge in Sept, had a negative pap. Went to a Gyn in Jan , had an US and measured 22 mm. My oncologist took me off tamoxifen right away and asked for a CT scan to be done before the D&C is completed. Waiting on the CT Scan results and D&C is scheduled for next Tuesday.. Wondering what my…
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Side effects from anastrozole
I started anastrozole about seven weeks ago. I am having leg pain, headaches, and hot flashes. Looking for suggestions on how to deal with these effects.
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Tips for managing side of effects Oxycaliplatin infusion
Hi, I stage 3 colon cancer and the tumor was removed by surgery. I am now undergoing CAPEOX treatmetnt. I am posting this question in hope that you might share insight on managing side effects. I have read all the patient education information about the cold sensity after oxaliplatin infusion, but I believe those of you…
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Calling all Gay, Lesbian, Bi, Transgender cancer survivors and caregivers
Hi everyone, I have been watching this board for a long time and see very little activity. I have to believe that in all of america there are more than a few glbt people dealing with cancer. I would love to see this board an active board like many of the others I see on this site. One possibility is to combine and make a…
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Side effects
So, I’m 22 months out from prostate removal and 5 months out from 35 prostate bed radiation treatments Received my 2nd and last lupron shot a month ago 1 - Haven’t had an erection since December of 2023. I guess I can kiss that goodbye 🧐 2 - Only issue I still have from the prostate removal is some minimal leakage during…
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Just wanting to be happy after cancer
Did You have a full life before you found out? How did you react to the news? Are you feeling defeated now that chemotherapy and radiation treatments are done? Are you struggling with what you used to look like vs how you look after cancer? If you are like me, I wish to talk to you about your journey and what you’re doing…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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need infor about high-dose IV vitamin C
Hi dear all, I read a few articles about high-dose IV vitamin C, I believe it will at least help with reducing the side effects from chemo. Since my husband will start chemo soon, I would like to have him give a try. So if you had experiences with high dose IV vitamin C, please help me with these questions: 1, what dosage…
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where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
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State Disability, Social Security, Social Security Disability
Just thought I would pass this info on to anyone who might find it helpful. I may have mentioned some of this before. My last day of work was 2/26/2010. I was ill but didn't know the horrible truth yet. After literally begging my doctor for more tests I was given the CT scan which forever changed my life. I applied for…
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NHL Large B-cell--I want feedback on bone marrow transplants!
The scoop: Diagnosed with Diffuse large B-cell aggressive NHL with bulky tumor in lung in May. Received 6 treatments of CHOP-R. Lymphoma responded very well at first. Now the follow up PET scan on Oct. 22 showed greatly increased cancer activity in part of original tumor. Had that area biopsied on Oct. 25 to verify that…
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Lhermitte's Symptom or Sign
Hi All, We have discovered a common symptom among a few of us here (D'Ware Jim, Skiffin John & I) called 'Lhermitte's Symptom'. Please read below to see if you think you get this sensation and can anyone who has, please post a brief note re: when it started, where you get it and if you have had any medical opinion etc.…
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question about diet
so I just had an old friend of mine who got his first PSA test at 61 and he got bad news. psa was 13 gleason score 9 4+5 good news still contained prostate so he elected to have surgery and of course, the first PSA test was above the minimum so they did radiation and now he's on hormone treatments, but he has a question…
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11 month post RARP
Just had what is considered my one year visit post surgery by my Dr. PSA still undetectable at 0.014 which is where it has been since my surgery a year ago. We are now moving to six months appointments vs 3 months and if still undetectable in a year will go to annual PSA testing and visit. Still slightly incontinent. Had…
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Hearing loss/ side effects of R-chop or methotrexate?
Hello everyone, I had 2 cycles of R-Chop ( but instead of doxorubiciin I get epirubicin), 2 cycles of intrathecal methotrexate and I am experiencing increased tinnitus ( buzzing in ears) and mild pain. I have had tinnitus for years but I believe the chemo regime is increasing it. Or I may have an ear infection. I need to…
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I am new here
I was diagnosed with diffuse large B cell non Hodgkin lymphoma 12/1/2024. I have just completed my 5 th of 6 RCHOP treatments. I have so many feelings and I just want to curl up and sleep. My family and friends have been praying for me which I appreciate, I just don’t know what to say. I am primary care provider and work…
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Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…
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Treatment Center Options - High Rish Aggressive Prostate Cancer
Hello - my BIL (61) had his first PSA done a couple of months ago with a 7.1 result. MRI and biopsies showed Gleason 9 with PNI and swollen pelvic lymph node. PSMA CT scheduled for next week. Urologic oncologist said very bad cancer. Can anyone recommend a treatment center that may be better than your standard local…
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Abraxane and herceptin perjeta
hi everyone , my mother has stage 4 breast cancer that has spread to the bones and liver. The doctor started abraxane (weekly) with herceptin/perjeta (every three weeks) treatment. Any advice regarding this? How to tolerate the side effects? She's been on 1 dose now but she's been having stomach issues (diarrhea,…
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Bladder cancer treatment
My friend diagnosed with stage 2 bladder cancer, doctor say that they need to remove bladder in order to treat cancer. but, my friend worred about bladder removal, is any other effective way to treat stage 2 bladder cancer.
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Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
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Motivation in remission
Hello, my name is Judith. Couple months ago I've survived stage 2 Hodgkin's Lymphoma. I feel almost like new person in terms of being able to do things like I used to before I went through chemo, but I'm having a bit of trouble with going back to normal life routine. I feel very alone these days and lost - many people that…
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Surgery or continue with chemo with follow up radiation
Diagnosed with endometrial cancer, I had a full robotic hysterectomy with no positive lymph nodes. About four months later the cancer metastasized on my abdominal wall. I just finished six sessions of chemo and four with Keytruda (had to stop Keytruda due to my high levels of TSH).. Recent PET SCAN results: Soft tissue…
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My Battle with Ewing’s Sarcoma
I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery,…