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2026 Ocular melanoma (eye cancer)
My husband was diagnosed with choroidal melanoma December 9, 2025. He completed plaque brachytherapy January 2026. His biopsy came back Class 1A, PRAME Negative. He's is in a clinical trial studying sight preservation .
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Low grade endometrial stromal sarcoma
Hi, I also was recently diagnosed with low grade endometrial sarcoma. It also spread to a lymphnode outside of my uterous. So it is considered stage 3. I am not starting my 4th week after a total abdominal hysterectomy. I have just started letrozole. Since I’m experiencing full on menopausal symptoms even though I am 50 it…
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wife and husband thyroid cancer
I was diagnosed with Thyroid cancer in 2007 and now my husband has been diagnosed in July of 2016 -- is there any connection?? has any one else had something similar?? thanks Deborah
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The Untold Truth About Mental Health and Cancer
Welcome to our latest video where we delve into the complex and often overlooked relationship between mental health and cancer. Many individuals facing a cancer diagnosis also experience emotional and psychological challenges, which can affect their overall well-being and treatment outcomes. In this video, we explore the…
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Help
I’m my husband’s caregiver and I’m alone in this journey. It’s been hell since October. He always hard mitro valve regurgitation for the past 12 years. In October he went into congestive heart failure. We met with surgeon and all was good he could do it the next day if we wanted but we found out he was going out of country…
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Low Grade Endometrial Stromal Sarcoma
I know this is a very rare type and as such I don’t see much in here about it. Newly diagnosed and haven’t even seen my doctor post hysterectomy to discuss treatments. I would like to hear from others.
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Chemo late side effects
I had Testicular Cancer 10 years ago. I had Chemo and have lived normal life since then. My quesiton is I have noticed when I strart to get sick, such as a cold. I now have sever aches, like after you workout lifting very heavy weights, all over my body that I had never had before. I also experience this when the weather…
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Artificial Sphincter
I’ve looked thru the topics here and don’t see much info post 2022 Meet with my Dr in a couple weeks and he said last time we’d discuss Artificial Sphincter. Looking for details from those who have had it done Pros? Cons? Recovery time? Painful? Would you do it again?
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When to Get Second Opinions
I started a thread last week about my situation having recently got the PRADS 5 score. My urologist moved up my follow-up appointment to late this afternoon. I'm trying my best to be calm and to get the most from the visit. I'm wondering at what point in the process it's recommended to get a second opinion. He'll almost…
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Reduced radiation
Any reports on side effects of reduced or low dose radiation for anal cancer? Are they as bad as regular dose?
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Radiation for Invasive squamous cell carcinomas of scalp
hello, I have been referred to a radiation oncologist for invasive squamous cell carcinomas of the most of my scalp. Since the area is so large, it seems that continuing to cut away smaller areas of my scalp is not a great option. Has anyone had radiation to the top of their head that could help guide me through what I can…
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56 years old, stage 3 Plus tongue base tumor
I am 5 weeks post surgery to remove the 5cm tumor from my throat. I feel so lost as I can still not eat anything at all, my neck and tracheotomy site are a source of endless pain. I eat and drink through a tube. I also can not speak. I was a professional singer before all this started. And they want to start radiation and…
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Renal Cell Carcinoma lived 13 yrs
Good Day Folks and a big hello. Just joined today.Husband Chip transitioned July 2025 after 13 still good years of RCC. We felt we were the lucky ones to have caught it early. Fri Jan 23 2025 I was told I have a L kidney mass st the upper pole involving the calyx with mild hyponephrosis ( urine backup kidney swelling).…
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Focal Therapies
My prostate cancer as of six weeks ago and a Pet Scan has remain within the prostate. I have been asking questions at this forum and its amazing and helpful in my decision making process. Now I have another what about FOCAL THERAPIES? Im reading some about it so have any gone this direction? Here at my local hospital like…
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Site history
does anyone know how this site was started and when? I used to be part of a support group back in 2008 when my dad was diagnosed…it was called the EC cafe Mark Wolgram started it it took it over He was an inspiration and so helpful after he passed I believe his wife took it over for a while I am wondering if this is the…
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Excessive hair growth on face after chemotherapy
Hi everyone, I hope to hear from you! Uterine cancer stage 3, dx'd last summer, hysterectomy in August. I had 3 chemotherapy treatments last fall, each 3 weeks apart. I lost my hair within 1 month of the first one. Then I had 6 1/2 weeks of daily pelvic radiation (the side effects were awful - ask me questions if you're…
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New turp 12/8/2025 couldn't void/diagnose ca
I just know too much as a nurse and I'm scared to have rectal biopsy in april
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Next Monday I get my pake put in my chest 14 days later I'll be starting chemo and radiation
Well I'm getting ready to start my chemotherapy and my radiation treatment on my throat yeah yeah I'm scared to death 5 weeks of chemo therapy and 5 weeks radiation it might not work we don't know they might have to go back in and do surgery or trying not to think about that
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Post SBRT
My SBRT completed Oct 2024, no ADT. (3+4=7) PSA - 7/2025 = 2.30 PSA - 10/2025 = 2.50 PSA - 1/19/2026 = 2.99 Does anyone out there have any similar experience? I'm hoping this is a temporary bump. But only time will tell, feeling anxious.
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Long term swallowing issues
Hi, Before I begin, I just want to offer some encouragement and hope to anyone recently diagnosed. It was my second cancer, the first being unrelated colorectal cancer. I began my NPC journey in 2011. I underwent both radiation and chemotherapy at MSKCC (highly recommended). But have been NED since. Recently, I have…
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Chemo meds
Hi, I'm new here. I just started chemo for metastasized (to peritoneal lymph nodes) cervical cancer. I had my first series of chemo radiation and brachytherapy treatments Oct-Nov 2024. The drugs I'm getting are Carboplatin, Paclitaxel, and Keytruda. Bevacizumab was originally in the plan, but I decided to decline it due to…
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8-year-old Chinese boy diagnosed with rare brain cancer, parents seek treatment experience
Hello everyone, I am the father of an 8-year-old boy from China. My son suffered an epileptic seizure in August this year and was diagnosed with a brain tumor. Puncture biopsy and craniotomy were performed, and the pathological diagnosis was polymorphic xanthoastrocytoma grade 2-3 (APXA), which is a high-grade glioma.…
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radiation......later
Has anyone here been treated with 59.4 gy of radiation to the brain??
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What does long term survivorship of childhood MB look like?
Hi, I'm new here. I did some searches and found old threads with a similar question to mine, but nothing recent, so I'd thought this could be an update. In 1980 my sister had a medulla blastoma. She had surgery and full brain and spine radiation. I've been her guardian since our mother died. She is now 46, lives with…
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DCIS
I was diagnosed with DCIS January 2. From my first mammogram in November to surgery in March, I have struggled. I hear that DCIS is not cancer because it’s non invasive. I read that it’s pre cancer. Anyone else with DCIS struggle with this? My treatment has been the same, to some extent, as if it was cancer. I even feel…
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Ned after 5 years.
5 years ago a kidney stone blessing came into my life. It found kidney cancer in my left kidney. Since then I have been well and continue to be Ned after successful surgery! Wanted to let u all know. Keep fighting and staying positive.
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Total Gastrectomy - Excess Bile Pain Issues and solutions
I would like to share my experience and see if anyone has advice regarding, post stomach cancer Total Gastrectomy w/ Roux-In-Y reconnection, excess bile acid/salts release into the duodenum (gut). I have been living with the somewhat random triggering of excess bile and the acid burning pain, now for almost 12 years ago.…
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Just had surgery for kidney cancer
Hi i had part of my kidney taken out I thought I had stage one come to find out I have stage 3 I'm worried sick about it my tumor was 4.1 centimeter I read something it don't sound good I'm being scan every three month it seams like forever I just need to talk to someone thanks
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Cars for Cancer patients
I am looking for a free or low cost vehicle to purchase. I am currently homeless and seeking permanent housing as well. Having a vehicle would help me in my housing search as well as being able to get to medical appointments. Would anyone have any information on where I might be able to find this particular resource?…
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A Early New Survivor of IDC Breast Cancer
I had gotten diagnosed with IDC from high grade dcis 3 in September and then I had a lumpectomy surgery in October didn't have clear margins so 7 weeks ago from tomorrow I had to go through a bilateral masectomy. Due to that I got free from cancer and at my last appointment with the surgeon she was like with a slip on the…