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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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Scar tissue 6 years NED
Yes, It hurts and is scary. My colon Doctor put me on Metamuscil in the morning and Miralax in the evening. It has helped me stay soft enough to pass normal size stool then goes to shoestring size. However, the scar tissue in on my sphincter and that's where to stool passes through. It gets inflamed and hurts now and then.…
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I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
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Has anyone had colo-anal anastomosis surgery and a colostomy reversal?
I needed a colostomy for my anal cancer because of a fistula between my vagina and rectum. Now that my treatments are over and the cancer is gone, my colorectal surgeon believes she can reverse the colostomy. I will get a temporary ileostomy and she will do a colo-anal anastomosis at the same time, then after 2 months, she…
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Questions about IMRT and Urinary Urgency
I'm currently into my 14th of 40 IMRTs today. In the last few days I've been struggling to hold my bladder while on the machine. Had two incidences of having to stop the treatment for me to get off and pee. I barely made it to the restroom both times. They're very understanding and after I drink some more water and wait a…
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Fever possibly delaying resumption of chemo?
My mother in law is a sixty-six-year-old woman who was diagnosed with a grade 4 glioblastoma last November. More than 95% of it was removed via surgery, the tumor is methylated, and she tolerated her initial treatment (six weeks of simultaneous radiation and temodar) well. Two weeks ago, she started her new cycle of…
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Chemo or No Chemo - Stage 1C1
Finding myself in the decision making stage for Chemo or No Chemo (Observance) for Stage 1C1. Single ovary cyst with recent surgery to remove cyst, ovaries, fallopian tubes. Spillage during surgery (due to cyst size, needed drainage prior to removal). Cyst results returned as Grade 1 mucinous carcinoma. All post-op CT…
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is it wrong of me?
in a few days i go back to my doctor and get the results of my recent pet scan what i want to know is , is it wrong of me to kinda hope to have cancer again? cause i feel like its all i know at this moment and i guess i just feel lost as to how to go on or what to even do. i feel like a monster for hoping it to happen.
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…
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Insight on Permanent colostomy
Hello, I was looking to see if some folks here could provide me some information on living life with a permanent Colostomy. I was diagnosed back in 2020 with Rectal Cancer. Since having treatment and an Ileostomy + reversal I have struggled with rectal incontinence. Not having a rectum and the area where my tumor was…
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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New here
I was diagnosed with stage 1b adenocarcinoma of the upper right lung. Tumor was 1.3 cm, poorly differentiated with visceral pleural invasion, no nodes involved. I had a segmendectomy 2 weeks ago. I was told by my surgeon I will need to have chemo and or immunotherapy, haven’t seen the oncologist yet. In my research for…
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New PSA level was only a 0.54 as of yesterday;
Greetings all; I was officially diagnosed with an enlarged prostate, and approximately 3 mths later, prostate cancer. My PSA level went up to over 400 points (yikes), but I absolutely felt 100% normal as if nothing was wrong. Immediately, I was enrolled in Cancer Treatment, with only meds, which was to follow up with chemo…
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My partner may have Cancer because of me.
I didn’t know I had HPV when I was intimate with my partner. After I got the diagnosis, I was in tears. I got my HPV vaccination in my adolescent years. I was scared to let my partner know he might have it as well because of me. After telling him, he said nothing was going to change between us and everything will be ok.…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Hormone therapy for ILC
stage 1, Grade 1 ILC discovered during a preventative mastectomy. Did not spread. It is estrogen receptive, so hormone therapy is recommended. I started anastrozole 5 days ago. I developed hives. Is there a hormone therapy out there with less side effects? I m 62.
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HPV positive
My husband had throat cancer due to HPV 16 stage 4 in 2014 he survived it but recently is having throat and sinus issues as well his taste buds seem to be going again:( … at the time we were told by the doctors that he would be unlikely have a recurrence of the same strain we also had asked if I should be tested and were…
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Time for some support
Long time member of CSN, but have been absent several years. 10 years ago husband diagnosed with stage 4 nasopharyngeal tumor. Treatment was successful in eliminating the cancer but radiation effects over the last 10 years have piled up. Hearing loss, no longer able to swallow so PEG tube feeding, tracheostomy, balance…
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LONG TERM THRIVER HERE!
Hi everyone! Most of you are not going to know me as I haven't been active on these boards for about 12+ years. For some reason I felt compelled to come on here today and check in and see if there were any names I remember from back in the days of our Colonpaloozas and such. I was dx'ed Stage 3 adenocarcinoma of the…
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Update on 2010 diagnosis and treatment
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years. Five years after…
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dietary suggestions during pelvic radiation
Does anyone have suggestions for me related to good nutrition during pelvic radiation for uterine cancer, post hysterectomy.
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Live from The Blue Room!
One of the notebooks I brought to the infusion center was my SNL skit writing notebook. The skit I was working on took place in the infusion waiting room, (*ours was called the blue room, because it had exclusively blue chairs). In the blue, blue room (the walls were also blue), every 2 weeks, I wrote down 100s of…
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79 year old with Advanced PC to L-1 & Pelvic
Always have enjoyed the wonderful testimonials from Forums! I Went to ER with Urinary Retention on this past December, 2024. Inserted Cathether due to Very large Gland First Urologist visit confirmed PC, CT couple of weeks later confirmed APC Then PSA with a high Gleason of 4+5.. Had first HT Firmagon injections a month…
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When to consider yourself cancer-free post surgery
Some of you US guys may be familiar with Rick Steves, the travel guru. He has the most popular guidebooks for travel to Europe, as well as TV, radio, podcasts, and tours. He had surgery for prostate cancer last October. Recently, he made an online statement saying he is cancer-free, based on his most recent non-detect for…
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Osteosarcoma Metastases to Lungs
My wife was diagnosed with Osteosarcoma in her right upper arm last August. She went through 6 rounds of chemo and limb salvage surgery. A CT scan determined that it had metastasized to both lungs. She had 13 spots in her left lung and around 20 in her right lung. These were tiny sub centimeter nodules that were barely…