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Ibrutinib or Imbruvica, my apologies for the duplicate post
In September 2021 my wife started having headaches that progressed to balance issues etc. In October 2021 she had brain surgery to remove 75% of the tumor that was pathologically determined to be primary central nervous system lymphoma, diffuse large b cell lymphoma. She was emphatic that she was not going to do the HDMTX…
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I would greatly appreciate your opinion.
I am 70 years old with good health. My prostate biopsy indicates Gleason 3+3 well-defined in 5/12 (40%, 50%, 20%, 60%, 15%) all on the left side. In 2/12 perineural permeation present. Rectal examination indicated hard movable parts and the biopsy showed well-defined edges. Diagnosed since 2020 with BPH Grade II by annual…
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Feeling Ugly
It has been four months since my last chemo and my recent CT scan showed no evidence of cancer. I know I should be ecstatic, but I am so depressed. I know this is selfish of me to feel this way, and I am super lucky to be alive, but I feel so ugly since chemo. My hair is growing back, but it's not the beautiful red it used…
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Basil cell carcinoma what does one do for there nose?
I have used so many different types of sun block since my first Mohs surgery on the (corner of my eye and nose) they had to do the surgery 2 times that day, digging so deep, i walked around with a hole in the location, I was barely able to cover it up and only used Aquaphor to help with the healing.. I use sunblock and A…
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Adrenal Cortical Carcinoma
My wife was diagnosed on Jan. 16th with an adrenal cortical carcinoma (only 30 - 50 cases per year nationwide). The only treatment is mitotane. This cancer doesn't respond to chemo. I've found survivors who used an alternative treatment protocol and I have put her on the same program. She is recovering nicely and we are…
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4+3 with possible Seminal Vesicle Involvement
Hi - 55you with Gleason 4+3 with a primary lesion on the left, and other positives on the right. MRI indicates abutting the capsule, but clear Seminal Vesicles. Pet CT shows "No other abnormal uptake to suggest tracer avid metastatic disease" BUT "Suggestion of bilateral foci of uptake in proximal seminal vesicles not well…
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Follow ups after surgery
Just diagnosed w endometrial cancer caught early stage1A1 had my surgery which went very well and now just have the every 3-4 month check for reoccurrence, my first coming up next month. My gyn/onc said I could follow up w my regular gyn whom I have a appt w the month after. Im at the nervous stage of “what if its back”.…
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Frodolass Update...
I also posted to the "long" thread which I read and found some great information. I just wanted to introduce myself. I'm 52 years-old and was diagnosed with UPSC with clear cell features in early August. I had a total abdominal hysterectomy with ovaries and fallopian tubes removed as well. I hadn't been to the doctor in a…
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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Diagnosed with 3.5 cm ovarian endo, CEA and CA125 normal. Should I get a laparoscopy or watch and wa
I have a 3 month follow up U/S in 3 days since I opted for the watch and wait scenario rather than surgery since the OBGYN I dealt with told me she thinks the chance of cancer is low. I told her my aunt died of OC but that didn't change her mind. I asked a couple of times to get the CA125 test but was told they wouldn't do…
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Is this the end for my mom
My mom has been fighting metastic lung cancer for 2 years . She did chemo and immunotherapy for 1 year . Stopped chemo kept up Ketruda . Went along 6 months pretty good- tumors starting growing again suggested chemo. One treatment and things went down hill awful. She can’t even brush her own teeth. She’s so weak 98 lbs.…
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How do you move on after treatment? (severe hearing-loss, neuropathy, weakness, brain fog, etc.)
Hi, My name is Logan. At 35, I was diagnosed with testicular choriocarinoma with mets to the liver and lungs. For men with this cancer, a bHCG level over 40,000 is associated with poor prognosis. Mine was 437,000. One year, eight rounds of chemo including two that were high-dose with autologous stem cell transplants, an…
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SKIN CARE advice for those with accelerated aging effects from AI and Lupron?
Please forgive me in advance if this seems trivial, considering these drugs are intended for one purpose - to significantly reduce the risk of a metastatic recurrence. I am trying so hard to be grateful for a chance to not deal with cancer again — I'm struggling in so many areas of my life and was already at rock bottom…
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Ovarian Cancer Symptoms
Okay, this may be a little long but please bear with me. In 2019 | had some health issues going on, I had a mammogram done and they found several enlarged lymph nodes in my armpit area, a biopsy was done and it ended up being nothing but I still didn't feel right, so my doctor ordered a CT scan and she called and said "I…
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Follicular non Hodgkin's lymphoma
My 21 yr old nephew was just diagnosed today. He was told he needs to get an echocardiogram, bone biopsy and pet scan. Plus he needs to see a Dr. In a large town 2 hours away. My question, is there anyone on here with this diagnosis? Anyone who has been through these tests that could tell him what to expect? Someone he…
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My experience after having a Laparoscopic Partial Nephrectomy
I had my surgery 2weeks ago. This is what i experienced, Remember we are all different. On day one was stay was in hospital day 2 went home. Wow pain for the first few days was pretty ripe no laughing deep breathing coughing sneezing or yawning. My Shoulders hurt. Did not really eat the first few day slowly started to eat…
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How do I cope With Loss?
My grandma recently lost her battle with cancer, and I was her primary caregiver. it felt like the only thing I knew how to do, but since she passed, I feel lost. What can I do?
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Orpheangeal Cancer due to HPV Virus
I have been in remission since July 2023. Cancer free do far. I am so worried about the Cancer coming back. Is there anyone out there had this Cancer? Did it come back?
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Losing Your Smile
Did anyone's teeth start to break so easily after receiving intensive radiation? I have completely lost most of my teeth and I get excruciating pain in my teeth for days and since I was homeless I didn't have the means to go to a dentist and check them out and I'm so afraid my smile is horrible I hate speaking to people I…
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Prostate cancer age related
so I’m 77 years old and was just recently diagnosed with prostate cancer with a score of eight and PSA of 6.6. I had a bone scan and a PET scan and it showed that the cancer has not spread outside of the prostate so that’s the good news. Surgery has been recommended but everything I read and seem to witness on these chats…
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MRI PI-RADS 3
Rapidly rising PSA (1.9 to 7.6 in 6 months - but might be due to just having Covid. Urologist wants retest in a month). MRI shows 8 mm lesion (mild decreased T2 signal, DWI=3, but without rapid contrast wash). Is this probably cancer? Should I get a biopsy? (I also have BPH).
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Happy
Cancer has touched my life in many ways. In 1980, I lost my mother to ovarian cancer when she was just 28 years old. Her death left a profound impact on me, and I’ve carried her memory with me throughout my life. This year, cancer struck closer to home than I ever imagined—this time, within my own body. On October 2, 2024,…
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Feeling fortunate
I had been feeling extremely fatigued for the last year and my primary started doing lots of blood tests. Eventually it was noted that I had slightly elevated liver enzymes so a liver ultrasound was ordered. Turns out that mg liver was fine, but a large mass was seen on my right kidney. A CT scan the following week…
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Just had biopsy
I’m new here. I have had prostate issues for about 15-20 years. Usually bph and prostititis. Mathis year my psa went from 4 to 6 and my isopsa is 14. I had a biopsy the other day and this is all That was in the drs notes.”The seminal vesicals were normal in size, shape, and configuration. The capsular margin was intact. A…
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Biopsy results
Hello: Received results this morning. Any informed comments would be appreciated. Final Diagnosis View trends A. Prostate, right posterior medial, needle core biopsy: Prostatic tissue, negative for carcinoma B. Prostate, right posterior lateral, needle core biopsy: Prostatic tissue, negative for carcinoma C. Prostate,…
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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Any low grade endometrial cancer stage 4 survivors out there?
Hi, Just wondering if there is anyone with low grade stage 4 endometrial cancer and if so what treatment options were you given and how successful are the treatments for your low grade cancer? I'm needing some hope for a newly diagnosed friend. Any stories of hope would be really appreciated!
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R U just diagnosed and overwhelmed? Some info for you
Diagnosed about 5 months ago and I couldn't believe that I had to make the final decision about what option (surgery / radiation ) to choose. So I am going to list some info hopefully to make it easier to understand what questions you have to ask. My journey. High PSA 8.5, up from 4.0. Urologist orders MRI. MRI comes back…
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Did your anal cancer affect vaginal opening
This question is for females I was recently diagnosed with anal cancer when I met with 2nd group Dr for 2nd opinion I mention that the vaginal opening is itching as much as anus, is this common for anal cancer? He referred me to gynecologist to be checked.
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Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…