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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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I’m a bladder cancer survivor, i am sharing my journey to help others
Hello everyone, I wanted to share my journey as a bladder cancer survivor in the hope that it might encourage or help someone who is going through a similar phase. My journey began when I noticed symptoms that I couldn’t ignore anymore. Like many people, I didn’t initially think it could be cancer, but after proper tests…
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"Invisible" tumor causing pleural effusion
Hi everyone, I am new to this forum. I am the caregiver to my dear 64 year old mom who has stage IV colorectal cancer. In July 2016 she suffered pleural effusion. Adenocarcinoma cells were found in the fluid but there was no visible tumor in her lungs even under PET scan. She then underwent pleurodesis and then 6 rounds of…
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Melanoma
I am a 33 year survivor of melanoma. I was 23 years old. From the beginning, I refused to be defeated by cancer. I have done research, been treated by homeopathic remedies, herbs, and diet. I believe I have survived because I rebuked cancer from my mind and body. I attribute my healing to God, healing scriptures prayed…
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CSN Feedback
Ive been around the organization a bit. I am from a healing community so its a neat fit. I think with respect to brain and lung cancer CSN is doing a disservice. Performs more like a social club than actually getting things done. At best I'd say upkeep is around 2023 and that is like with anticpated donations on par or at…
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Need help with multiple basal cell carcinomas
Hello, A few years ago I had two BCC's removed using the MOHS procedure. But since April 2016 I have had more than 30 spots that my dermatologist has burned off and five that have been biopsied and came back positive for BCC. These five have been treated with the MOHS procedure. Friday I received the results of my sixth…
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Buccal mucosal squamous cell carcinoma
Hello there! I am a 51 year old woman who was recently diagnosed with squamous cell carcinoma right buccal mucosa. Started with what I thought was a cheek bite in Decemeber. It would not heal properly, and in January at my normal dentist appointment he was concerned and sent me on for a biopsy. Got the call Feb 6th that…
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Anal Cancer - no one to talk to - does anyone survive this disease and come out with reasonable norm
I am a 43 year old female. I watched the Farrah Fawcett documentary regarding her experience with anal cancer and had never heard of it prior to that. I was shocked when only 3 weeks later I was diagnosed with the same thing - especially because I am the picture of health, other than this disease. I was diagnosed with…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Breast cancer metastasized to liver, anyone have experience with this?
I was just rediagnosisEd with breast cancer which has metastasized to the liver. Right now ct/pet scans are just showing one spot, which is about 5 cm. I am considering having surgery to remove the part of the liver where the spot is and I am wondering if anyone else has been through this and can tell me what to expect…
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I need some advice please
I have started developing many medical issues since my cancer treatment. I have neuropathy everywhere. I have cranial pressure and now I have cardiovascular disease. I looked at all the tests that they gave me before during and after cancer treatment and my heart was perfect. I started having issues about two years ago. I…
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Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
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Ascitis
Hi everyone, My mother has stage IV breast cancer that has metastasized to the bones and liver. She has been treated for it and recently she has started having ascitis in the abdomen. The doctor said no need to drain it currently because the fluid is no much, but i am a bit concerned about it and wanted to ask you guys if…
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New here
Just diagnosed with Eye Cancer. Currently using Chemotherapy eye drops. Anyone else have experience like this?
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Revision surgery after Total Gastrectomy
Helo everyone, Has anyone had any expeience with revision surgery after your TG. My fiance had TG (Bilroth2 Braun procedure) and because a severe case of acid/bile reflux, we have been advised to perform a second (revision) surgery to Roux en Y. Thank You.
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Getting help after 30yrs of radiation treatment
Hello everyone, I am new to this site. This has been a crazy time for me because I am a 30-year cancer survivor. The radiation treatment that I have received during my treatment is kicking my butt. Six months after receiving radiation treatment, My small intestants became fused together. surgery was performed. Since then,…
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35 year old husband just received diagnosis
I'm beyond devastated. It was only 2 weeks ago we were living the most full, happy, loving life. We've been married for only 9 months now and never anticipated he'd be diagnosed with Stage IV stomach cancer. The horrific prognosis we've seen all over the internet are making our worst fears feel more realistic. I feel like…
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Stomach Cancer survivor
In 2014 I underwent surgery to remove 85% of stomach. For ten years still cancer free. Since COVID I find myself with constipation more frequently even though I don't eat a lot of food. I eat smaller meals and try to eat every two hours however the constipation tend to prevent my food intake. Any suggestion or…
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in need of support
hello everyone, i am 18 years old and almost died of stomach cancer. I was wrongly diagnosed and no one knew i had cancer until i was on my deathbed. I had a partial gastrectomy and am struggling with my recovery. I don’t know anyone my age that has had or has cancer. It is very difficult.
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The next "Step" after robotic prostatectomy
Good Day. I'm 64, and had a robotic Prostatectomy in Oct 2022. The Dr was confident all cancer was encased in the gland, but the 3 month PSA check was .29. Next PSA check 3 months later was up to .65 so a PETScan was scheduled. A tiny hotspot was on the Prostate bed, and Dr. is recommending radiation treatment. I am…
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New to The Group
Hello, I am 48, diagnosed with Esophageal/ Stomach cancer in March of 2024. Went through radio and chemotherapy. Then had major surgery in August. I was then told I was “Cancer” Free and called a Survivor. I am currently doing immunotherapy and also getting esophagus dilations almost every 1-2 weeks. I am still battling…
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New to group
Hello, I was diagnosed with stomach cancer of April of 2024, 6 months after I had my 1st heart attack. Stage 2 in May of 2024 they removed 80% of my stomach . Currently going thru chemotherapy, sometimes I feel like giving up. The symptoms seem to get worse and last longer with each treatment. I really don't have any…
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Orgovyx stomach pain side effect
For those of you taking ADT med ORGOVYX.. I began taking Orgovyx about 2 1/2 weeks ago as a replacement for FIRMAGON which I initially took for 2 months with only minor side effects. Now on Orgovyx I have developed upper stomach cramping in upper abdomen just under rib cage. I have some history with diverticulitis but it…
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Trapped Gases
After being diagnosed with adeno carcinoma in the stomach and part of the esophegus I had my total gastrectomy surgery in March 2025. Did anyboy had experience with post surgery painful trapped gases after meals. I get a lot of pain and sometimes I can't sleep. I tried smaller meals didn't work. Any advice from your…
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Should I book a vacation? Dad with stage 4 cancer
Hello, My dad was diagnosed with stage 4 gastric cancer in October 2023. It was very traumatizing at first has we were told he would have 6months to a year. It took a huge toll on us, specially me as he was estranged to me. Long story short we’ve gotten closer & I help him as much as I can. It bas been a year & 3 months…
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Thyroid cancer - advice for recurrence and medications
Hi all, I have a couple of questions I'd love some insight on from the community. First, some background, I was diagnosed with papillary thyroid cancer in July 2023 at 43 years old. The main tumor was on the right side and it was 2.5cm, there was spread to the left side, but no apparent spread to the lymph nodes. I had a…
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Connecting with Grandkids
Hi. I'm stage 4 non small cell lung cancer matastised to my brain. Cannot travel much anymore. And my posterity is scattered around the globe. So Grandma and I started to get picture books from the library and read/record onto YouTube. Great way to stay in front of the little ones so they don't forget us. And it keeps my…
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Recurrence after almost 10 years NED - came back with a vengeance!
Hi, Well been a while since I have been on this board. My husband was diagnosed with stage II colon cancer back in Sept 2009. Had surgery and was NED ever since. Well during just a routine annual Xray guess its back in full force. They found liver mets and mets in the periitneal and also he has some ascites. He was felling…
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Grandpa's Porch
I wrote my way through cancer—85 poems in total. I'm now sharing these recordings to remind my fellow survivors that we are stronger than we know. If you need a friend's voice today, feel free to listen to my journey here. Grandpa's Porch
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Radiation or no radiation
I just had my third surgery since May 2017. First surgery was to remove a liason on the floor of my mouth under my tongue. 2nd surgery (June 2018) was to remove my right neck lymph nodes. 3rd surgery (August 2018) was to remove my left neck lymph nodes. CT scan results were the reason for the right removal. Of 27 nodes…