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Anniversaries
Hello, I'm approaching my one year anniversary of my screening mammo which resulted in my diagnosis. I'm interested in hearing how others have dealt with these anniversaries. Were they difficult for you? Did you intentionally do anything distracting on those days? What advice can you give me as I recognize triggers which…
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My survival journey through anal cancer
I was diagnosed with stage 3b anal cancer in Sept 2022 and while I consider myself a survivor, my experience was difficult, I'm sorry to say. In Aug 22, I started noticing that I was passing blood in my bowels movements. I was 59 at the time and I've certainly had plenty of hemorrhoids where there was bright red blood, but…
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Neuroendocrine tumors/cancer
Hello all! I am curious as to if there is anyone else here fighting neuroendocrine tumors/cancer? I'm 36 years old & was diagnosed at 34 with my primary tumor site being in my small intestine and my appendix with mets to my liver. I'm currently being treated at Henry Ford Hospital in Detroit, Michigan and am receiving PRRT…
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NEED INFORMATION
HI BEAUTIFUL LIVES OUT THERE. ITS SO NICE THAT WE ALL ARE IN SUCH A GOOD HEALTH THAT WE GOT AN OPPORTUNITY TO BE HERE AND DISCUSS ALL THESE THINGS TOGETHER. FIRST OF ALL THUMS UP FOR THEM WHO ARE FIGHTING WITH THIS ILLNESS AND DOUBLE THUMSUP FOR THOSE WHO ARE GIVING CARE TO THEM. SO ITS THREE THUMSUP HERE. LETS ASSUME THAT…
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I need help with early symptoms of pancoast cancer
Hi, I don't know if these are symptoms of a pancoast tumor or just joint pain from everyday activities. My pain is in my right shoulder joint and feels like a rotator cuff injury. It started 3 weeks ago and hasn't gone away. It only hurts when i move my arm around, mainly when i lift my arm straight out to the side. Some…
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Pxa grade 3 anaplastic Tumor .. Rare .. 11 year old boy
My sons been diagnosed with a rare pxa grade 3 Tumor ? Anyone heard of this before ? He has had surgery and are confident they have got it all, will be starting radiation for 6 weeks and chemo for 6-8 months HAs anyone come across this before .. We are devastated thank you
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Grade 3 PXA brain tumor
My step son (14) was diagnosed (6/2025) with a rare malignant PXA grade 3 brain tumor (with BRAF600E mutation) Initial resection went well, surgeon was confident he got most if not all of tumor. We followed this by 6 weeks of radiation, little amount of symptoms but not too terrible. A month later MRI came back with some…
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I Have A Story Of Amazing Saving Grace Though Undeserving Am I
My third Cancer-My Biggest Personal Struggle The Holy Spirit Interceded-God Extended His Grace To Me In September 18 of 2019 I went into Hershey Hospital, PA to be operated on by Karen Choi a surgical oncologist for head and neck cancer. I was to have lymph node cancer surgery on the left side of my neck removed. I had a…
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Long Term Radiation Side Effects
Hi, I'm new to this forum and wanted to reach out and see if others are experiencing similar side effects that my mom is experiencing. My mom was diagnosed with a left frontal lobe grade 3 anaplastic astrocytoma back in 98'. She had a craniotomy to remove the bulk of the tumor and then had targeted radiation therapy and…
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Family in need of support
Idk where to start. But I will start with please pray for my family. My 31 yr old boyfriend was diagnosed with 3 different cancers almost 3 yrs ago its in his brain lung an bones. He has stage 4. He had full brain radiation about a yr ago. He struggles with remember anything . He thinks he can still do everything like…
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Chat GPT
Many will have heard the name, but know little about this great learning resource. I was diagnosed with a stage 1b adenocarcenoma over 2 years ago and declined the default treatment of esophagectomy, opting instead for 3 then 6 month follow up endoscopy visits. I was declared cancer free at one point but then another…
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What a journey!
I was diagnosed 9/11/2018. After two rounds of chemo and one radiation, my cancer has neither grown nor disappeared. I am now again, six years and three months later, seriously considering an esophagectomy. I am fearful, yes. But more than that, I consider such as invasive procedure to be an affront to my body. Does anyone…
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R-CHOP Progressive Side Effects
I was diagnosed with stage 3 two months ago. I have had three of my projected six rounds. The first two after periods were relatively mild nausea, fatigue, constipation, and diarrhea. The third session, however, resulted in much more illness for these first ten days. Can someone tell me what 4, 5 and six are going to be…
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reduced dosage whole brain radiation therapy (rdwbrt)
Has anyone had the rdwbrt for primary central nervous system lymphoma (PCNSL)? My wife was diagnosed in October 2021 with PCNSL and refused the HDMTX treatment. She did a different treatment and it worked very well for 4 years. She recently developed a new tumor on her brain that doubled in size in about 50 days. She is…
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Salivary Duct Carcinoma
Hello, my name is Hannah and I am newly 26. I live in CT and work as a children's outpat clinician. I was recently diagnosed with stage 1 salivary duct carcinom...I start 6 weeks of daily radiation next week and I'm feeling pretty nervous about it...I had my treatment planning session last week and left feeling pretty…
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
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External tumor
My tumor is now pretty much outside my butt hole. is this normal? should i be alarmed ? should i push it back in? Suggestions?
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ER+ HER2+ breast cancee
hello all, I was diagnosed with ER+, HER2+ breast cancer this past September. 1A, grade 2. No lymph node involvement. Lumpectomy. I qualified for a trial that my oncologist recommended. No chemo, 20 rounds of radiation, Phesco shots every 3 weeks for approx a year, and Letrozole estrogen blocker for 5 years. I’ve completed…
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Why does a prostrate cancer get more awareness like breast cancer?
as we all know this is breast cancer awareness month ..my work is having all kinds of events to raise money. You see commercials for breast Cancer ..it is not good and I know it affects women at alot younger age than it does for men, but I still think it’s wrong that BC gets all the attention. In the United States in 2025…
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Vitamin C IV Infusion
Hi All, Looking for informatin regarding the Vitamin C IV Infusion. I am currently on my 2nd chemo treatment for Stage 3C OVCA. I saw a post that Nancy had put up concerning the Vitamim C. Can someone supply me with more information. As you all know, we all want to try and beat this monster and I can use all the help I can…
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Seeking Help For My Sister
My sister was just diagnosed with Stage IV Metastatic Ovarian Cancer. They said they can add maybe a year longer to her life with immunotherapy. She had no symptoms and was seemingly completely healthy up until some abdominal discomfort 4 days ago. Is there anything else we can do to fight this and extend her life? Are…
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HEATT
Just curious has anyone consideeed the heatt trial in california (verthermia)?
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Endometrial Biopsy
Hello there, In 30 days I will be having an endometrial biopsy. I have no symptoms, but my endometrium is 6mm and I'm postmenopausal. Not only am I scared about the possibility of having cancer but I'm read so many horror stories about how painful the biopsy is and now I'm terrified. I can't stop thinking about it. My…
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Caregiving experience
Just curious if anyone has experience kinda filling in the blanks after caregiving. I wouldn't give up the experience if I had the choice, but it was incredibly long and challenging. Non the less mom is a long term survivor now but I feel like parts of my journey are in best terms, ahead. Thanks!
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My mom's breast cancer & question about connecting with caregivers
Hi everyone! I am new here, and really glad that I have found a community where I can hopefully give and receive support. My mom was diagnosed with triple-negative breast cancer in late spring. She has completed her first round of chemotherapy, and fortunately, there are already signs that the cancer is retreating in her…
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Keytruda - Recurrence during treatment
My mom initially diagnosed with high grade serous ovarian cancer in 2021 had recurrence to brain last year. After 18 cycles of Keytruda she got recurrence in abdominal lymph nodes and pelvic area now despite her scans six months ago were clean. Doctor suggested given her very weak condition and lack of progress to stop the…
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3 months after finishing radiation, PET scan recommends lymph node biopsy
My husband finished 6 weeks of radiation in July, after having a tonsillectomy and a neck dissection that removed one cancerous lymph node and 29 additional lymph nodes. He has HNSCC-HPV-16+. Last week he had his first follow-up PET Scan and unfortunately it shows Prominent FDG uptake in another lymph node. The radiology…
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kegel chair
Has anyone gotten good results using the Kegel Chair for incontinence? I tried it twice hoping for good results but nothing.
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Essential thrombocytosis
Hi there. I am looking for anyone else who has this disease/cancer (depending on who you talk to). It is very rare. Any fellow ET'iers out there? It would be nice to compare notes… :]
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Radiation necessary??
hi, I’m looking someone that might have my same situation. I’m 71, recently diagnosed with triple lobular breast cancer. I had a lumpectomy and several lymph nodes removed. I’ve had chemotherapy and I am currently on Herceptin for nine more months. I will be starting letrozole soon. My question is has anyone refused…