-
Help
I’m my husband’s caregiver and I’m alone in this journey. It’s been hell since October. He always hard mitro valve regurgitation for the past 12 years. In October he went into congestive heart failure. We met with surgeon and all was good he could do it the next day if we wanted but we found out he was going out of country…
-
Catheter tips
i recently was asked by someone regarding my catheter experience and thought it might be helpful to share some more specifics with everyone looking forward to it. I had my catheter in for 11 days because of a holiday weekend at the end before my appointment to get it out. I went for Cystogram the same morning I had my…
-
Cervical cancer
I have just recently been diagnosed with cervical cancer and I am very scared for what is to come.
-
Signet Ring Cell Adenocarcinoma of Rectum
I opened a new forum topic on this type of cancer in the Colorectal Cancer Discussion group.
-
Low platelets count
Hi everyone, my mom has stage 4 breast cancer that has metastasized to the bone and liver, she was stable for a while but recently scans showed progression in the liver. The doctor added carboplatin with abraxane and that made her platelets low. They gave her Nplate injection on Sunday and today (Thursday) she was supposed…
-
My mom's breast cancer & question about connecting with caregivers
Hi everyone! I am new here, and really glad that I have found a community where I can hopefully give and receive support. My mom was diagnosed with triple-negative breast cancer in late spring. She has completed her first round of chemotherapy, and fortunately, there are already signs that the cancer is retreating in her…
-
Caregiving experience
Just curious if anyone has experience kinda filling in the blanks after caregiving. I wouldn't give up the experience if I had the choice, but it was incredibly long and challenging. Non the less mom is a long term survivor now but I feel like parts of my journey are in best terms, ahead. Thanks!
-
Caregiver Trama
I am a caregiver of 2 people with cancer. My mother (age 81) who has a rare form of rectal mucosal melanoma, and my partner of 5 years who is age 71 who was recently diagnosed with Squamous Cell cancer of the lung, stage 3. 12 years ago, my late husband of 29 years, was diagnosed with pancreatic cancer. He lived 2.5 years…
-
Anger
Hi. I'm new here. My beloved husband was diagnosed with grade 3 inoperable brain cancer 10/29/25 and began treatment 12/8/25. Our lives have really been turned upside down. I am primary caregiver for my husband, I am working full time, and we have a 15 year old daughter. I expected some brain fogginess…which we have but…
-
Renal Cell Carcinoma lived 13 yrs
Good Day Folks and a big hello. Just joined today.Husband Chip transitioned July 2025 after 13 still good years of RCC. We felt we were the lucky ones to have caught it early. Fri Jan 23 2025 I was told I have a L kidney mass st the upper pole involving the calyx with mild hyponephrosis ( urine backup kidney swelling).…
-
So many questions
I am 70 (that number still surprises me) and was diagnosed with stage 4 sclc in early November of this year. The diagnosis knocked me sideways. If it weren't for my husband and 2 daughters I would still be reeling. They kept me on track with my meds and treatments. They have gone to every meeting and treatment. But there…
-
Seeking Transplant Knowledge
Hello All...My name is Christian and I recently joined the AML Leukemia Patient Group. Found out I had Leukemia while visiting my daughter in Denmark with a mutated gene that wasn't doing its job against Cancer cells. The hospital couldn't believe I was still walking as I only had 4 liters of Blood in my body. Fast forward…
-
Survivor's Anxiety
I am "cancer-free" now, but mentally I feel worse than during all the treatments! Has anyone else experienced this? I have tremendous anxiety over any possible situation and I wake up every morning in a panic attack. I am looking into therapy but does anyone else have any ideas for me? Thank you.
-
Depressed, years post RALP
Seventy-five years old, relatively healthy, not overweight, light exercise every day of the "work week". Married 54 years to the same girl. Had RALP about 4 years ago. Cancer has been "virtually undetectable" since. As best I can now recall, my surgeon/urologist told me both pre and post surgery that I would have ED for a…
-
Tadalafil
Couple of pudgies but nothing I could use in last 2 years I’ve never taken over 10 mg of the Tadalafil. Should I try 20, just to see what happens or just live with it?
-
Abraxane and herceptin perjeta
hi everyone , my mother has stage 4 breast cancer that has spread to the bones and liver. The doctor started abraxane (weekly) with herceptin/perjeta (every three weeks) treatment. Any advice regarding this? How to tolerate the side effects? She's been on 1 dose now but she's been having stomach issues (diarrhea,…
-
2nd time diagnosed with anal cancer in 1.5 years
When I was diagnosed with cancer I had zero signs. They found it by a CT scan for my knee replacement. I was sent to the cancer center. I was told it is completely treatable. So I had chemotherapy by IV (3times) and pills, and radiation. That burned me so much. During all this I got Covid. So that made is worse. They said…
-
Radiation Concerns
New guy here. Had brachytherapy in 2019 and psa stayed low at 1.2 ish until about 2 years ago and started to creep. Now at 4.1 with a 24 month doubling time. New urologist now since old guy retired and the recommendation is to do external beam radiation on the prostate and full pelvic region as a salvage as they call it. I…
-
small 3mm Nodule in right lung
Hi Everyone, I have a question. I was stage 1a, 1.2 com, grade 2 rcc and i was told that my chances of recurrence were less than 5%. Yesterday I had my annual scans and I recieved the CT portion back thus far. All blood looks good. CT scan reveals two small 3mm solid nodules in right lung, lower and upper part. I have read…
-
38 and diagnosed with stage 4 esophageal cancer
I am a 38 year old male from Minnesota. Non smoker my entire life and pretty much a social drinker until recently. Since essentially Christmas of 2016, all I can say is I have just felt "off". Not really depressed, just unmotivated, undriven, and lethargic. It has happened a few times in the past 2 years that I woke up…
-
Inability to ejaculate
I finished treatment a year ago (radiation). My orgasms now are very weak and, of course, I don't ejaculate anymore. I did at first but it's gradually gone away. This has made me damaged goods. All I hear is "did you ****?" or "are you ever going to ****?" or "why can't you ****?" I dread having sex but (not bragging) I'm…
-
Stage IV Signet Ring Cell Colon Cancer
I was diagnosed with Stage IV signet ring cell colon cancer (in the sigmoid colon) in Oct 2017. Tumor was quite large and had exploded which is what caused it to be found but the surgeon was confident she got all of it plus the other 2 tumors that were on the peritoneal (sp) wall. My official staging is T4aN2aM1c with…
-
SBRT with ADT or no ADT
Hello, I have been diagnosed with localized prostate cancer this past summer . PSA 7.2 Gleason 3+4 .decipher 0.49 My Father died of Prostate cancer 2007 at 72 . I am 66 . I have decided on SBRT rather than Radical Prostatectomy . The oncologist suggested ADT ( Androgen Deprevity Treatmant ) or I can decline at this time .…
-
Caring for my husband 💕
Hello, Everyone. I am new to the site and I am hoping to find other people who are on a similar road as I am. My husband is 53, as am I, and was diagnosed with stage 2-b pancreatic cancer on October 20, 2025. He immediately began chemotherapy, 3 types of chemo as well as an external, portable chemo pump that was infused…
-
Still have neuropathy from Folfox/Oxy chemo
Hi, I am new to the forum, I was diagnosed Nov 2015 with a tumor in the rectum. Had 28 traditions, 6 weeks of 24/7 chemo, surg resection of tumor with temp illiostomy (for 12 weeks) then take down, then 12 sessions of Folfox/Oxy plus others that I don't remember currently. I had many of challenges others have experienced…
-
I'm part of a clinical trial
I feel I am a lucky person to have been approved to participate in a clinical trial for a less damaging radiation treatment. I had been seeking treatment with protons for that same "less damaging" reason, but due to various factors, getting insurance approval was simply taking too long. I start Tuesday. Involved Field…
-
After TORS, de-intensified trial of 3 weeks rad
Hi all. Massive thanks to you who have shared your experience and helpful tips about getting through your ordeals. You have shown me what patience and strength is. I'm here for support, but also want to be a resource for anyone going through something similar, as I seem to be a kinda niche patient with this early-stage ssc…
-
Nearing the end of 18 months of ADT
New Year Update It’s been a while since I’ve updated the group. In February I’ll receive my final Lupron shot (one-month dose), and March 22 will be my last day taking 1000 mg of Zytiga. UCSF will then taper me off prednisone over four weeks. I’m also scheduled for my final CT urogram in March, along with a baseline DEXA…
-
Well, that hurts - taxol update
My taxol experience is definitely fascinating from the outside although rather rough from the inside. Great news, my tumors don't like taxol and are shrinking. Bad news, I don't like taxol either. Imagine stepping on a Lego or hitting your funny bone, now imagine that sharp spike of pain anywhere on your body jumping to…
-
Basal cell with perineural invasion.
45 year old male, healthy, no tobacco use ever, no drugs ever, and no alcohol ever...I work as a foreman on a concrete construction crew, so I am outdoors 8 to 10 hours a day. Had a small sore appear on my forehead about 14 months ago. Very small, about 1/8 inch. It would scab over, scab would fall off, and repeat. Went to…