-
Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
-
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
-
Working out
I'm coming up on two months after my Prostatectomy and I see my Urologist on Jan 10th, 2025. My questions for you guys. 1. Have any of you been riding your bicycles any issues? 2. Do Any of you ride dirt bikes with any issues? I've only been walking and NO GYM at all! Note: I'm 66
-
Recurrence
Hi, Well wishes to all of you. I started chemo yesterday for a recurrence of gastroespohogeal cancer (at and near GE Junction) . First time was caught very early (stage 1) while checking for a minor swallowing probem and was treated with chemo, radiation and immunotherapy (not a candidate for surgery because of other…
-
Anastrazole
looking for people’s thoughts on anastrozole. Also thoughts on ivermectin/fenbendazole and is ivermectin/fenbendazole used only if you have cancer or can it be used for preventative purposes as well? Thoughts on soursop?thanks very Much.
-
Anxiety and panic over third mammogram
I had a lumpectomy on April 27, 2022, triple negative, 22 treatments radiation. opted for no chemo. Margins clear and no lymph node involvement. Last 2 mammograms were clear. I know I am blessed. I just can't get over the anxiety and panic of my third mammogram this Thursday. Before my cancer I had some anxiety but now I…
-
PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
-
PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
-
Just wanting to be happy after cancer
Did You have a full life before you found out? How did you react to the news? Are you feeling defeated now that chemotherapy and radiation treatments are done? Are you struggling with what you used to look like vs how you look after cancer? If you are like me, I wish to talk to you about your journey and what you’re doing…
-
Hi! Newbie here! Just wanted share, a lil'
Nice group! I joined for information and to tell my strange story. Its been 2 Yrs later I feel like I'm still in the Twilight Zone, still waiting to wake up (that isn't going to happen.) still scratching my head. OK, in 2018 I felt two lumps on the very far right side of breast, Told doctor, went for a mammogram. They did…
-
Recurrence - Fistula
My mom is undergoing immunotherapy (keytruda) after radiation therapy for her brain metastasis due to recurrence of endometrial cancer last may. Today they found she have bowel fistula and samples have been sent for biopsy (doctor suspect its cancer). Have any one experienced fistula due to cancer progression? They…
-
moms diagnosis process and peritoneal mets
hi there, my mom (53) is currently in the process of receiving a stage 4 crc diagnosis. its a little confusing and very scary right now but i want to share the story up until today, looking for advice. she went in for a ct scan about 3 weeks ago for abdominal pain, they located a 4.3cm mass on her colon and "extensive…
-
Anastrazole
I recently just received my second Lupron shot. Had dm on 11-5. 8 lymph nodes removed all tested negative. Cancer free as per my breast surgeon. Onco score was 26. Onco recommended chemo and/or estrogen blocker shots as my cancer was er positive. I opted out of chemo. Obviously if it was in my nodes I would’ve definitely…
-
Chemotherapy before or after surgery
Hi, I am new here. My father was recently diagnosed with NSCLC. It’s at least stage 2b. We have seen two oncologists in Northern Virginia. One suggested to have surgery now and do systemic treatment after. The other oncologist suggested chemo and immunotherapy before the surgery. Given my dad is 80 and qualify of life is…
-
My Battle with Ewing’s Sarcoma
I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery,…
-
Great news
I went for my appointment and have some really good news to share all my scans and X-Ray came back clear. Doc said see you next year. Thank you to all those for your response and support. Best wishes to all And a very Happy Holidays
-
Metastasis to Peritoneum
Has anyone had colon cancer that has metastasized to the peritoneum that can share some positive recovery experience with me? I started immunotherapy yesterday and know it can be effective but feeling a little down and could use to hear some stories of recovery.
-
Scans stress me out
Do any of you get scanziety. I get very anxious for days before. To make it worse I got one recently with one small thing on it. My doc got another radiologist to read it and he came back with a few areas of concern. To of the tests came out fine for me but Monday I have a triple MRI checking for possible diffused bone…
-
Granulation tissue biopsy after surgery
I was diagnosed with Endometrial Adenocarcinoma Grade 1 in March, and I had a hysterectomy with da Vinci robot on April 17 (Stage Ia). I've felt fine since then and had no problems/symptoms. Yesterday I saw my oncologist for a follow-up. He said I have what appears to be "granulation tissue" at the top of the vaginal cuff.…
-
Incontinence
prostatectomy Nov 21 2024 cath removed 1 week later. Doing kegels but incontinence is significantly worse now 4 weeks after cath removal. Is there anybody who can offer positive experience regarding this type of issue?
-
Blogging about Cancer
When I was battling stage 3 breast cancer, talking about it was tough, but I still wanted people to understand what I was going through. Since I’m more of a writer than a talker, I started a blog to process everything and keep others in the loop when I didn’t feel like speaking. I also found comfort in reading others'…
-
Red light caps for hair regrowth
hi! Does anyone have experience with those hats/helmets/caps that use red light on the scalp to regrow hair after chemo treatments? Most of my hair did not come back after taxtotere chemo treatments (I’m six years out from treatment). If you found one that worked, please share brand! Thanks!!
-
What can I expect as family caretaker
My dad is going to begin 8 weeks chemo and radiation for stage 3 non small cell lung cancer. He is 85 and also has congestive heart failure. He has been taking care of his Alzheimer's wife by himself in their own home. They are both somewhat incontinent. Until now, he's resisted all forms of help. We get along great, and…
-
Is this the end for my mom
My mom has been fighting metastic lung cancer for 2 years . She did chemo and immunotherapy for 1 year . Stopped chemo kept up Ketruda . Went along 6 months pretty good- tumors starting growing again suggested chemo. One treatment and things went down hill awful. She can’t even brush her own teeth. She’s so weak 98 lbs.…
-
survivors of Terminal Stage 4 lung cancer
Dear Members, Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation. God Bless All Stardust
-
Bone Strengthening Agents Following Immunotherapy / Radiation?
Hi! Looking for cancer patients to please let me know if they have had any success trying a bone strengthening agent following treatment. I had Stage 4 and endured brain surgery, radiation to brain and lung, keytruda (no good - made the tumor enlarge and come closer to my heart); then a doublet 3 x with the standard opdivo…
-
smelly urine after prostate surgery
-
Hormone therapy
I was diagnosed with DCIS stage 0. Had lumpectomy in 2023 and 22 sessions of radiation after surgery. I had been on Anastrozole with horrible join aches then I was changed to Letrozole but I did not tolerate it as well. I am going to give my body 2 to 3 weeks off medication and try Tamoxifen 10mg. Any suggestions? Tips?…
-
New to group
Hello, I was diagnosed with stomach cancer of April of 2024, 6 months after I had my 1st heart attack. Stage 2 in May of 2024 they removed 80% of my stomach . Currently going thru chemotherapy, sometimes I feel like giving up. The symptoms seem to get worse and last longer with each treatment. I really don't have any…
-
New to The Group
Hello, I am 48, diagnosed with Esophageal/ Stomach cancer in March of 2024. Went through radio and chemotherapy. Then had major surgery in August. I was then told I was “Cancer” Free and called a Survivor. I am currently doing immunotherapy and also getting esophagus dilations almost every 1-2 weeks. I am still battling…