-
When your CLL is coming out of remission, can it affect....
....your mental state, without you even realizing that it's coming out of remission? For example, can the defective white blood cells take up space in your brain that normally your serotonin would occupy? Or could normal white blood cells be pushed in to your brain, taking up valuable area that normally your serotonin…
-
DIEP Reconstruction
Doing a search yields next to nothing for recent discussions of this procedure. I am scheduled for DIEP reconstruction three days before Christmas and would appreciate hearing about others' experiences and advice. And, even if there aren't a lot of responses, maybe this thread can become a more current repository of…
-
Second year follow up CT was good news
I'm two years and four months out from robotic partial nephrectomy. This is the third CT scan (the first was four months after surgery). No obvious evidence of recurrence. Feels grrrreat! Doctor will start rotating ultrasound and CT every other time going forward to limit radiation. Would urge anyone in the same or similar…
-
Biopsy journey
Hi, I just wanted to see about getting other opinions on my whole journey I’ve been on for the last three months. The week before Thanksgiving, I noticed there was a big ball formed under my left armpit. Went to urgent care, she said it was an enlarged lymph node. We did blood work and CBC came back showing high LDH, low…
-
Revision surgery after Total Gastrectomy
Helo everyone, Has anyone had any expeience with revision surgery after your TG. My fiance had TG (Bilroth2 Braun procedure) and because a severe case of acid/bile reflux, we have been advised to perform a second (revision) surgery to Roux en Y. Thank You.
-
Information
Good morning my husband He has throat cancer. is a photographer, we have photos of birds, animals from the zoo, sunsets and waterfalls, do you know of any organization that helps us with the sale to collect funds and be able to cover expenses thank you
-
Groin pain
Was diagnosed with prostate cancer about 5 1/2 years ago. Immediately had radical prostatectomy. Was 58 at time of procedure, now 63. Surgery went well, I was fortunate enough to not have any incontinence issues. Erections are a different story, just not happening. Just accepting that, it is what it is. PSA was…
-
Concerned about possible esophageal cancer
Hi All, I'm concerned about esophageal cancer and I have an endoscopy scheduled for next month. My history: I've had GERD since I was 12 years old (I'm 30 now) and took PPI's from 12 yrs old up until a year ago when I switched to the max dose of famotidine because I was dx'd with osteopenia. I have gastroparesis which…
-
Need opinions about questions for dr
Everybody knows my story failed radiation treatment. It’s not biochemical failure .. the radiation treatment didn’t work because I apparently Cribi form is radiation resistant so now one final meeting tomorrow and then I’m making a decision between Cryo or salvage surgery.. the doctor UCLA will have some serious questions…
-
New to this...
I'm still processing all this... I'm a 58 YO male. October '23 my primary doc sent me for an ultrasound to look at my liver because of some high ALT/AST blood test numbers. Well, it confirmed no cirrhosis, just a bit of fatty liver. It also identified a 5 CM mass on my left kidney. I freaked out!!! A couple CT scans later…
-
Five years of NEDDDDDDDDD!
Went in for my five year scans. By now, the process is familiar - get bloodwork so they know I can handle the contrast, get really scanxious beforehand, get in there, get it over with, get a Starbucks afterwards. As they set up my MRI, they asked me if I wanted music inside, so they put on a Movie Soundtracks channel for…
-
Four year scans
Well next month I’ll go for my four year scans Doctor said we will switch to yearly scans for. My last year then start doing ultrasound scans what a relief this has been a ordeal to go thru but doctor did state last time I was in he be shock to see it come back now let’s hope for the best
-
Getting BACK to living!!!!
Hi all, just checking in. I am one year from my diagnosis now. My treatments ended in Sept 2022. I had a few really dark months and was unable to shake the fear of incontinece. My urgency kept me home and afraid to do much. It was creating more anxiety and messing up my household moral. None of us were able to work. Some…
-
Recent PET/NavDX
Anyone here have trouble with thyroid after their radiation/chemo? My husband has been feeling a lump when swallowing and the front of his neck is getting bigger, a few weeks ago the ENT said it is probably scar tissue from treatment. It is starting to affect his breathing especially when sleeping. Just learned his most…
-
Cancer Survivorship-Video & Information
Hello everyone, I hope you are all doing as well as possible. I came across this video and information and thought it would be good to share it, and I hope it helps you in some way. Cancer Survivorship – An Introduction Long-Term Side Effects of Cancer Treatment Cancer Survivorship Practical and Trusted Information to…
-
Herceptin
Does anybody had herception longer than one year and if so how long and why? Somebody told me that it would be too dangerous to have herception more than one year but my onco told me that I have to have it at least for 5 more years. Coming up this September will be one year and my joints already aching like crazzy every…
-
sarcom kaposi
I would like to know if there is an effective treatment for Kaposi's sarcoma Existing on the legs in the form of a wound.
-
My journey into my worst fears
My journey into the unknown. About 45 days ago during a routine exam it was discovered that I had polyps in my colon, which isn’t abnormal for a person as young as I am. My PCP sent them to a lab for a biopsy. I get regular checkups so I wasn’t too concerned. About a week later I received a call from the doctor saying that…
-
After TORS, de-intensified trial of 3 weeks rad
Hi all. Massive thanks to you who have shared your experience and helpful tips about getting through your ordeals. You have shown me what patience and strength is. I'm here for support, but also want to be a resource for anyone going through something similar, as I seem to be a kinda niche patient with this early-stage ssc…
-
LGL Leukemia
My husband was diagnosed with LGL Leukemia 14 months ago (Jan, 2012). We had just lost his Dad to Multiple Myeloma four months previous. It's all been overwhelming. I would like to reach out to any LGL patients, caregivers, spouses etc. It's been very difficult. We thought we were on the right track with Methotrexate and…
-
T-Cell LGL treatment
In 2012 I was diagnosed with MDS, but later on they diagnosed T-Cell LGL. At one point, I needed a blood transfusion every three weeks. I was put on methotrexaat for 7 months without any effect. After a consult with Professor Schouten in Maastricht, the Netherlands, I was put on neoral ciclosporine and, to my surprise, it…
-
Mucoepidermoid Carcinoma
Hi there! I am new to this site and beginning my battle with Mucoepidermoid Carcinoma (of the minor salivary glands in my throat). It is very rare and I am hoping to find others who are in the same situation, either past or present. I started chemo last week and seeing where that takes me! I am a 31 year old female and…
-
Long-term hair loss
I had my 2-year survival anniversary on Mar 1 2002 (yeah!). I am still suffering from hair loss due to chemo. I have tried the Nioxin products and have checked with my oncologist who says that she has never seen hair that has refused to grow back as mine has. My first chemo round was adriamycin/cytoxin and the second round…
-
Port - take it out or not?
My last chemo was 6 weeks ago, I want this port out. My Dr said she recommends leaving it for a while but I could have it out if I want. It bothers me, I’m always bumping it and sometimes it itches. Should I be cautious and live with it? I choose to think I am done with all this and the port is not needed anymore, so I…
-
New Member
Hi there. Have been lurking for a few days and deciding to register as a new member. I was recently (August 2023) diagnosed with tonsil cancer. Became aware of a problem in late July when I noticed what I assumed were swollen glands in the area under my right jaw. Was able to make things happen pretty quickly thanks to my…
-
Confused! Recently diagnosed with prostate cancer
No prior health issues at 67 years old, with PSA at 4.3 My urologist ordered MRI which showed "suspicious areas" He then performed trans-rectal biopsy which confirmed 3 samples out of 17 having adenocarcinoma. Gleason 3+4=7, 3+3=6, and 4+3=7 respectively. Also one other sample having HGPIN. After consulting with him, he…
-
Alone
So recently mom went to the ER because she started having panic attacks and of course unknown fears etc. My father is finally set up with hospice care and now I know he will get the assistance he needs when it comes to his health and "quality of life" So tired of hearing that saying. Anyways, I havent updated you guys…
-
Decision time on salvage treatment ..i am torn
Well, the first time should’ve been easy do surgery and get this crap out of my body but I chose the other radiation and now I have a reoccurrence.so I’m a candidate for both salvage surgery. Also cryotherapy and radiation radiation is out of the question. I’m not even thinking about it didn’t work the first time I don’t…
-
52 year old Male, Diagnosed 11/23/2022 with HPV+ p16 p40 cancer
I’m in the club no-one wants to be in as a newly diagnosed cancer patient. I’m a former smoker who quit daily 1/2 pack a day habit 19 years ago but still smoked socially up until diagnosis about 4-5 packs a year. Otherwise healthy and on no medications. My details are a mildly painful mass in my left neck just under…
-
Help with decision for surgery. Mom’s triple negative and not sure about surgery.
Please help. My mom was recently diagnosed with triple negative breast cancer. She’s 86 and in good health. She’s starting to waiver on having surgery to remove the tumor or mastectomy. I think she’s afraid and also tired of all of the prep work for surgery. Can anyone offer any advice on how to encourage her to at least…