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MPNST (Malignant pheriphial Nerve sheath tumor
Looking for people who have MPNST due to NF1(Neurofibromatosis type 1) I’m 23 and my cancerous tumor is back after surgery radiation and chemo. Had surgery before we knew it was cancerous in 2021 and dr had gotten it all. Did radiation and 5 weeks of chemo 5days a week 8-9hrs a day in2022. It’s 2023 and it’s back and was…
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Experience/Guidance Welcomed: To Radiate or Not with Tissue Expanders, Given Oncotype/Known Risks
Hi there! I apologize this has lengthy backstory - I'm grateful for anyone's breast cancer experience whose prognosis may be similar and who've had similar decisions to make: I'm an otherwise pretty healthy premenopausal woman (runner - 30 years with a generally healthy diet) recently diagnosed with invasive ductal cancer…
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Please Advise, I'm Overwhelmed
Hello, friends. I am really hoping some of you might be able to chime in on my situation as I am overwhelmed and don't know what to do. I went from never having a period (years) to having one 50% of the time, and they were painful, long and heavy. Had an ultrasound which revealed a thick lining and some polyps. Had a…
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Biopsy Scheduled
So I’m just on edge.. I had an ultrasound done a month ago and the doctors were concerned about a cyst. Had a follow up appointment this week to have another ultrasound and the cyst was gone, but the doctor is still concerned My endometrium measured at over 13mm in October when I was a week from getting my period and at…
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Good News
I had a robotic prostatectomy in 2008 at age 59. PSA was 6.0 and Gleason Factor 6. In May 2023, my PSA elevated to 0.20. I went through 38 sessions of radiation at age 74 and completed the treatments in early October. One month later my PSA was 0.01 and I hope it continues to fall. Good luck to all.
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Anyone had experience with post op treatment for Laser surgery for vocal cord cancer
I had laser surgery for vocal cord cancer three ago. I am doing well and the doctor feels the cancer has been eradicated. I was teated in Boston by a doctor who is using a new kind of laser that goes after the blood supply. All that aside, I am wondering what kind of post op instructions others have been given for laser…
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Faslodex
Just wondering if anyone has tried Faslodex and how long it took to start working. Also same question on Kisqali. Thanks for any input.
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new diagnosis BCC
I just received diagnosis via phone yesterday. In denial. I went to derm to remove a wart and he? How long I had that blemish on the side of my nose near my eye. It has been there approx 2 years. It is smaller than a pencil eraser and is light almost white looks like a mosquito bite. I have been covering it with makeup not…
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Larangectomy
Hi there im a newbie on here previous left larynx vocal chord cancer treated with radiotherapy and laser surgery diagnosed 2017 finshed treatment 2018 Was doing ok now five years later back on right side also they will see if lymph nodes are affected during surgery will remove and also right vocal cord paralysed since last…
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High PSA
New to the group. 66 y/o male. Having bleeding problems with blood and clots in urine. PSA result. Last year 9.6. New reading 16.0 flagged critical. See urologist in 2 weeks. What do you all think I can expect. 16.0 seems very high.
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Aggressive Digital Papillary Adenocarcinoma with lung metastases
I have posted elsewhere on this cancer (a type of sweat gland cancer). This is my diagnosis and I am seeking others who may have experience with this entity. I am always looking for the experience of others: treatments, cancer centers that may have particular expertise etc. etc. If you or someone you know/ care about has…
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Low Grade Endometrial Stromal Sarcoma
I know this is a very rare type and as such I don’t see much in here about it. Newly diagnosed and haven’t even seen my doctor post hysterectomy to discuss treatments. I would like to hear from others.
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Keytruda side effects
Hi my daughter is having hand and foot syndrome from keytruda is anyone else having these side effects and how are u managing them
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Ampullary Cancer
I was just diagnosed with ampullary cancer and would like to talk to anyone who has it or is familiar with it. Also I would like to know about the Whipple procedure and what all that involves.
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Bile Reflux post Stomach Cancer Gastrectomy
There are some serious posts in the last month from newcomers but I hope it is alright for me to raise a maintenance topic to see if anyone has a good answer to a difficulty. Four year survivor to Stage 3 Stomach Cancer. Chemo - Gastrectomy - more Chemo. Roux-In-Y reconnection. Currently two gall stones show on scans.…
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Thickness of Uterine Lining
New and Nervous. I'm 51 years old and admittedly overweight and pre-diabetic. I've been on seasonique (combination hormone birth control) for almost 10 years. In mid July I had spotting for a couple of days that stopped. I called my Gynecologist and she said it could happen. In August I had a normal pap. (I understand it…
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ALL
My daughter is 42 and was just diagnosed with ALL she needs a BMT
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Disability？
After undergoing a bone marrow transplant for ALL，is that still qualify as having a disability？
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Looking for someone who understands
This is my first time using this website but I just wanted to make a post to see if there was another 21 year old with stage 3 lymphoblastic lymphoma out there who can understand what I’m going through and maybe needs someone to talk to as well.
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Can someone please explain endometrial stromal sarcoma as ovarian cancer?
Obviously, I am new. So new, I haven't yet even got an oncologist. The gynecologist is personally calling around to find one for me. Two pathologists didn't know what I had so they sent it to Mayo clinic and the pathology report just came back this week. I was told this type is very rare. I had a large tumor on one ovary.…
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T Cell Acute Limblastic Lakemia treatments and things happened to me job wise so far
I Had chest Pain, really sharp left side on Sunday, and Noticed what I thought was a bug bite on my neck, I went to work Monday, and was having issues short ness or breath. That afternoon I went to the ER and they took X rays and did not see or catch anything, so I asked about the bug bite on my neck it had gotten bit…
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Pain urinating after pelvis radiation
Ive heard there isnt much you can do for the pain. But ive noticed alot of people talking about pouring warm water on their vagina while they urinate and that it helps alot. Im justt curious exactly how to do it. Do you get in the tub or just sit on the toliet? Ive been doing everything I can to avoid urinating for the…
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Xp11.2 2023
I just had a partial nephrectomy of a 2.2 cm xp11.2 It had gone into the fat but not beyond the fascia that surround the kidney. So the word was "clear margins." In 2023 I'm wondering if anyone knows the following: 1. What doctors by name specialize in this kind of cancer in what locations, and preferably for adults (I'm…
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Shocking result
After radiotherapy, unfortunately, the examination showed a significant increase in the size of the tumor (3.4 cm). Since February, when the tumor appeared, it was 1.9 cm in size. After chemotherapy, it became 1.1 cm in size. After that, I underwent 33 radiation sessions, and I was surprised by the increase in size. I was…
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tonsil cancer
I am a 54 year old woman newly diagnosed with tonsil cancer. My brother, who is 49, was diagnosed 2 1/2 years ago with the same cancer. He successfully underwent radiation and has been cancer free. The doctors are baffled. We are not, and have never been, smokers. We will soon be working with a geneticist to explore this…
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Starting chemo
Hello Everyone, I have stage 1B breast cancer. I had a lumpectomy and I'm starting chemo on Monday. Meds are Cytoxan, Neulasta, and Taxotere. Has anyone had this combo? What was your experience in terms of side effects? Many thanks!
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Biopsy report in
Everybody knows my story, but if you don’t prostrate cancer five years ago, 3+4 radiation treatments plus the breakytherapy booster. Now five years later PSA dropped from its lowest point of 0.9 up to 1.9 but here are the results. Very confusing. I do have a follow up visit on November 8, looks like it’s 4+ 4 this time but…
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Small indeterminate kidney lesion - Very Nervous
Just had Abdominal CT Sscan due to right side cramp/discomfort and it found a 11mm indeterminate lesion on right kidney. I am in the process of getting an MRI as recommended by the reading radiologist. I am very nervous and just wanted to know your thoughts or any helpful guidance or insight. Thank you so much in advance.
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Undefined Renal Cell Carcinoma with Translocation Xp11.2
Just wondering if anyone has had experience themselves or family members with this sub-type of kidney cancer. We were told that this sub-type is usually seen in children, but is rarely seen in adults. My husband is 30 years old and had a radical nephrectomy of his left kidney back in February. Since surgery the cancer has…
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ROLL CALL 2012 - CLOSED. NEW THREAD STARTED
In year 2011, we had 89 folks who registered or checked back in. You now will have the opportunity to report/enroll for calendar year 2012. Please give a brief update of your status. If enrolling for the first time, please list your state, date diagnosed, type of cancer, treatment and your status. Adamson 091654, state…