-
CA125 11.718 U/ml :(
hi I'm from Indonesia. I didn't have any symptoms until last week I felt bloated in my stomach and it was followed by my stomach suddenly getting bigger like a pregnant woman. I immediately went to the doctor and an ultrasound revealed cysts on the right and left ovaries. It is said that cysts are liquid and solid. The…
-
Life after Cancer
How are some ways you guys have coped after Cancer? I don't really know how to live my life now. It's been really hard to get back into just living my life normally. I feel like I'm not the same person anymore:( I guess I never really processed any of it til now.
-
Just Diagnosed - Scared and Stressed about doctor selection
Hi all, during a routine annual mammogram followed by a biopsy I was diagnosed with breast cancer. My radiologist said I would need a lumpectomy and suggested I go to a doctor named Dr Mcntoch out of Englewood hospital in NJ (very close to where I live) who is highly recommended. I also called a trustworthy organization…
-
anal cancer
I have just completed anal cancer treatment. Chemo/radiation. I was diagnosed at Stage II, NO, MO. Fortunatley, I have a great medical team that answers all my ?s. I would like to hear from anal cancer survivors. I will not know if the treatment worked for several months.
-
UPSC: 11 years NED
Hi all - it’s been awhile since I’ve posted so wanted to pop in! 2 months ago I celebrated my 12-year cancerversary. I was surprised with a UPSC diagnosis 10/20/11 after a robotic hysterectomy (had a fibroid in an awkward spot near my cervix - dr tried a D&C but I had a septum in my uterus [im just full of surprises] hence…
-
Shifting my attention slightly
Hello ladies, Does anyone know about changes in microsatellite instability from "stable" to "high?" And what about changes from mismatch repair deficiency "absent" to "present?" I thought the designation was always one way or another and was imprinted in all your cells. I think now it is dependent on the tumor tissue. I am…
-
Endometrial cancer in lung
2017 diagnosed with endometrial carcinoma. Had hysterectomy. No other treatment. 2023 diagnosed with endometrial tumor in vigina. 25 radiation therapy and 3 brachytherapy. Tumor gone, but a nodule on lung 8mm. Biopsy showed endometrial cancer. I am now on Everolimus and letrozel for life or until I can’t. Tumor seems to be…
-
Newly diagnosed Melanoma
This is new and scary. 1.95mm malignant melanoma on left temple with microsatellites. scheduled to start Keytruda Immunotherapy this week and, at some point, have a Lymph di section. I have heard about FDA trying to Fast Track a new vaccine for melanoma that shows good results but not sure how far along. I am very thankful…
-
Itchy Itchy Itchy ! Skin is itching fiercely after chemo
I just finished my last round of chemo, #6, The next day ( Yesterday) I was over come with severely itchy skin, everywhere but especially my arms and legs. I never had this reaction after any of my previous treatments. The only thing different about this one was that they stopped the Taxol infusion, to ease my newly…
-
Chemo smell 4 years later
Everything brings out a chemo smell for me. My last chemo (heated intraperitoneal chemo aka hot chemo bath in abdomen) was July 15, 2020. What can I do?
-
Update on my journey.
I finished radiation 10 days ago. I had used aquaphor from the start. Had turned a bit pink, then red, then rather purpley, then brownish black. It hurt, only yesterday did I figure out most of the paint and itch was from the aquaphor. Got it washed off and was so much better. Today the skin began coming off. Saw my onc 2…
-
Lonsurf
Hello there. My husband has been diagnosed with stage 4 esophageal cancer (with metastases near his pelvic bone and some spots on his lung as well). He had 10 chemo sessions since August 2023, unfortunately nothing seems to work at this point. His doctor had suggested for him to take Lonsurf as a "last resort", and they…
-
Post Esophagectomy
My husband was diagnosed in February with early stage 1 esophageal cancer. He underwent a transhiatal esophagectomy on May 17th. Lymph nodes and tissue surrounding his esophagus were biopsied and all came back negative and he has been deemed cancer free. What I am dealing with now as his caregiver is his mental state. He…
-
Questions to ask before starting radiation about how the radiation machine works
Hi, I have come up with a list of questions I wish I had known needed to be asked about what my eyes would see and what my ears would hear while the radiation machine is moving around me. The only information I was given was that the treatments would be "quick", which I interpreted to mean "the same", and it really scared…
-
More than I imagined
I don’t know if it’s the hormone therapy or my physically demanding job or radiation treatment but after week one 5 treatments I am a little overwhelmed
-
Prayers please for my firend
I've tried to get her to join us but she wasn't sure she'd fit in since she was diagnosed 4 1/2 years ago and has been doing well. To make a long sotry short, sort of, things have changed. She had a lumpectomy and rads when originally diagnosed. She has now been told that she is one of the "rare birds" whose rads caused…
-
Port films
I would be interested in hearing breast cancer radiation experiences with port films, the extra weekly xrays taken during radiation to check the machine alignment with the tumor area. Were you told ahead about these port films, or was this information withheld from you?
-
Has anyone had the campto/5FU regimine?
Supposed to start treatment on Wednesday but haven't gotten call to have port placed yet. I had oxaliplatin/capecitbine in 2021 and had major nerve damage along with a lot of bad g/i issues. I'm pretty worried about starting this new protocal and was wondering who else has had this and how did it go for you?
-
Wake Forest or Atrium Health Levine in Charlotte
I am exploring my options for a 2nd opinion or treatment outside of my hometown. I know Duke is probably the most well regarded cancer center in NC, but Wake Forest (NCI) and Atrium Health Levine Cancer Center in Charlotte are closer to me. Does anyone know anything about these 2 places in regards to Anal Cancer? Thank you!
-
Freaking out over here.....CEA/L5 mets
Long story short...Stage IIB colon cancer April 2021. Everything good until METS on liver July 2023. Liver resection. One nodule less than smaller than 1 cm. CEA returned to normal Dec 2023 METS to lung (1 nodule smaller than 1cm) and 1 small tumor (actual size unknown). Surgery with nodule removed and lung resection…
-
HIFU
I'm just beginning this journey. I've posted in a couple of threads, but wanted to ask if anyone on here had or studied the HIFU (High Intensity Focused Ultasound) proceedure. My questions are, is it covered by Blueshield CA advantage medicare plan? Am I a good candidate? If the answer to the first question is no, then I…
-
Trying to make sense of this whole thing. Newbie here.
I was just diagnosed with PCa a little over one month ago. PSA rose to 4.9 at my annual physical, saw a Urologist who ordered an MRI which was Pirads1 nothing seen and biopsy. Biopsy-G. PROSTATE, RIGHT MEDIAL BASE, NEEDLE BIOPSY: PROSTATIC ADENOCARCINOMA, GLEASON SCORE 3+3=6 (GRADE GROUP 1). CARCINOMA INVOLVES 35% OF ONE…
-
Three different opinions need a recommendation for Telehealth consultation.
66 year old healthy male PSA 4.9, MRI Pirad 1, ExoDx 58, Biopsy 3/12 positive cores, 2 were 3+3, the other was 4+3 with 75% being a grade 4 and 25% a grade 3. Decipher score .44. Pet scan was normal except the two areas of concern mentioned above. Impression of PET "The prostate measures 4.4 x 3.3 x 3.5 cm. Focal increased…
-
Mom - Stage 4 Colon Cancer
Hello everyone! I just found this website today, and decided to join for my mom who was diagnosed with stage 4 colon cancer back in December of 2021. I have read a few posts and really appreciate everyone's openness and vulnerability of discussing their diagnoses and their stories. The story itself is quite wild. My mom…
-
Scans after Radiation and Chemo
Hi everyone I’m new here and I’m just looking for a bit of clarification my current experiences with Anal cancer treatment stage 2. I finished my last radiation treatment 4 months ago, had a scope done by the surgeon and he claimed tumour was gone “just a scar” this was excellent news. And he doesn’t want to see me for a…
-
How to show love and support
Hello My girlfriend's mother was diagnosed with stage two colon cancer back about five months ago. Since then it has spread to stage three and chemotherapy is likely needed. Her mom is 62 and my girlfriend has become deeply affected and worried that she won't be able to survive through the treatment. She has lost hope and…
-
When to Get Second Opinions
I started a thread last week about my situation having recently got the PRADS 5 score. My urologist moved up my follow-up appointment to late this afternoon. I'm trying my best to be calm and to get the most from the visit. I'm wondering at what point in the process it's recommended to get a second opinion. He'll almost…
-
Re: New Roll Call Team
Civil Matt and wbcgaruss (Russ), I wish to thank you both, first a Huge Thank you to you Matt for all the years of work you have put into this Roll Call. And a Huge Thank you to you Russ for volunteering to take on such a meaningful task to so many. I for one often look for any updates to the Roll Call to see new members…
-
Mucoepidermoid intermediate
Olá poderia me ajudar? Meu esposo está passando pelo tratamento de mucoepidermoide intermediário e gostaria de ter notícia sobre como é lidar com o tratamento, se existe cura
-
Husband just diagnosed with MCL
After 6 weeks of testing, my husband has been diagnosed with a rare cancer, mantle cell lymphoma. We are waiting for Mayo Clinic in Rochester to call us. We are in the small town of Ironwood in the upper peninsula of Michigan. Our oncologist is out of Chicago. He said he would start my husband on chemo here, while we wait.…