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I was just diagnosed today, I think I've had symptoms for a long time, anyone else?
my diagnosis is Endometrioid adenocarcinoma, FIGO 1. and my doctor says the outlook is good because it's not something that's been going on for years and years but now that I think about it, I have had symptoms for years and years, I have had difficulty in urination and I guess that's a symptom, now I am super worried
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MRI fusion Prostate Biopsy next Monday. I am doing a lot of research, and have many questions
This is a great forum. I just scratched the surface and I have so much more to research on this. For now, this is what I have. I am 68. I live in Southern California. I have Medicare and medigap insurance. In early 2022, my PSA was 3.9. By November 2023 it went up to 5.3. My PCP gave me referral for a urologist who asked…
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Valentine’s Dinner - Big Increase in Taste
Hi All, Tonight my husband and I went out for dinner to celebrate Valentine’s Day at our favorite steakhouse. We have not been there since May 2023 prior to his diagnosis of SCC BOT HPV +16 last July followed by 33 rad and 7 weekly Cisplatin finished 10/24/23. He had been at around 60% taste bud return up until recently…
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2 weeks remaining. So far, so good. Well, more good than not…
First I want to thank everyone here for sharing their stories and experiences with treatment. It was extremely helpful helping me to prepare the best I could for my husbands newest adventure (Squamous Cell Carcinoma with lymph node involvement). He has his final cisplatin chemotherapy treatment this next week and 10 days…
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Newcomer lung cancer
Hi,68 yrs,right lung adenocarcinoma, just met with oncologist,being evaluated to see if I would make good surgical candidate,scheduling PET,MRI,lots of bloodwork,meeting with thoracic surgeon. I started out with bad cold,x ray showed lots of congestion upper lobe.PNEUMONIA, Had broncoscopy, found adenocarcinoma. Pnuemonia…
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SEEKING KNOWLEDGE - pememtrexed
Hi friends and fighters, So my mother is currently on maintenance therapy for her stage 4 lung cancer. She has been in a remission period since November and seeming to have responded to the radiation and success with the pememtrexed and keytruda. I was reading over the notes on her last visit and noticed that it stated the…
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HOW TO STAY STABLE
As you all know, my stepfather has the fibrosis disease. I am really here this morning to vent. Honestly. I think that no one will get it.... but I also see the purpose. My mom's chemo has been reduced by twenty percent and that has not even had enough time for me to digest. It freaks me the heck out and I have been…
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First PET/CT After Husband's BOT/Lymph Node SCC HPV+ 16 Journey
Hi All, I've written before about my husband's cancer journey, diagnosed with Stage I, base of tongue (left side) and 2 left lymph nodes as SCC HPV+ 16 in late July 2023. You can search my screen name Swoosh13 as I detailed my husband's journey through treatment, which started September 5 and ended on October 24, 2023. He…
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i am 34 gay male who is curently fighting stage 3 intestinal cancer
My name is Manuel [content removed by CSN Support Team] I am writing to you in a time of urgent need. I am currently facing a critical situation as I have been battling cancer for the past three years. Unfortunately, my journey to recovery is hindered by the lack of stable housing.I have diligently applied for all…
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Should I listen to the doctor or my fear
I saw all the oncologists today.. He said to relax Surgeries in 3 weeks.. But it is nodular melanoma.. At least 1 mm.. He would take me on the 10th but I'm gonna wait till the 24th because I need a cardiologist To sign off on surgery.. But. If I can get a cardiologist They'll take me on the temp.. Going from local to…
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CT showing doubling of size of complex adnexal cyst, additional adnexal; need to get past call cente
The doubling is since 9/23. Radiologist suggests MRI with contrast. Size is 4.2 and 4.0, one with high density. I simply cannot get local upstate NY doc to respond to even get order. If needed I can travel albeit with hardship to Sloan Kettering. After reading prior posts, I believe, if need be, I’d be in better hands. At…
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Family member diagnosed with MM. What to expect
Hello everyone, I was just told my 47y/o sister was diagnosed with MM. I know nothing about the disease and doing web searches is confusing. On average it says that life expectancy is five years. This is distressing. Do I really only have five more years with my sister? As only a family member, is there anything I can do…
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Starting the journey
Ultrasound revealed two large modules with a rating score of 7. My doctor is on vacation. Had to fight to get ultrasound and also the biopsies next week from his covering PA. So I don t know yet what type of thyroid cancer I have. My question is how to find the best treatment facility. Looking at Moffit and Mayo. Thank…
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Possible Thyroid Cancer - Any Information Would be Helpful
I had an ultrasound on my thyroid nodule which came back as TI RAD 5. The size of the nodule is .61 cm. Was told to wait a year and have another u/s. I had and still have other symptoms, which is why I went to see my doctor in the first place. Swollen and, at times, painful neck, difficultly swallowing, hoarseness in…
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Considering where to get treatment for my prostate cancer
I recently had a biopsy done and was diagnosed with prostate cancer, and so I'm doing research to determine where to get treatment. I did some more research and found that MD Anderson in Houston is rated very high. I live in San Antonio, and while we have a pretty good medical center here in town (I believe Mays Cancer…
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Just a note to say thanks to this group
Hubby has 2 more Rad treatments this week, and finished his 6th and final chemo last week...being able to read what others have experienced and what has helped them through this has been very insightful. I hope to be able to contribute in some fashion as well down the road as we get through these next recovery weeks. Have…
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Breast cancer that thrives on hormones
Greetings all, how common is breast cancer that thrives on hormones? My cancer does, I was advised to read all labels at the grocery store and be sure to choose foods that don't have rbst or hormones in them. After the first few times reading labels I was HORRIFIED at the amount of hormones that we eat every day! To be…
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Here we go!
I’m a 49 married ,mother of two. This summer I was experiencing some back pain and went to 6 weeks of physical therapy and nothing seemed to work. Finally I was able to get an MRI. A 11 cm mass was found on my left kidney. On Thursday I’m going in to get a nephrectomy as well as my left ovary removed. Doctor seems…
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Husband's Treatments Start Monday Morning
Hi everyone, I wanted to pop in with an update from my previous "Extremely Scared - Husband Diagnosed with Throat Cancer" posting. The biopsy confirmed the tumor is p16 positive and the PET scan showed that it is localized with only a few lymph nodes right next to the tumor affected. His diagnosis is Stage 1, T1, N2b, M0.…
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VIN 3
Hi, I'm new and from the UK but unfortunately there is not much in the way of support for this specific condition in the UK. I was diagnosed with VIN 3 in December and am currently being treated with Aldara cream. Sometimes it really gets me down and I feel like I'll never be normal again! Just hoped that someone who is…
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Private dr or big institutions
like to talk about choosing doctors I always hear find yourself a doctor that’s done 2500 or 3000 prostate surgery I mean let’s face it most of us should have urologist they don’t do the surgeries or maybe they do and if you’re lucky enough to maybe been with your urologist for 10 1520 years and you trust him that’s great…
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Mediport
I am having chemo on Monday and I still have steristrips on my port. How do I put on the numbing cream?
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New Need Info
My son, who is now 49 was diagnosed with Stage 4 Renal Cell Carcinoma, in July 2020. It had already spread in his body, and had one kidney removed. He has suffered thru the treatments, and meds, pain, weight loss, etc. Afraid, now he is going on the last Med that generally last only 4 months. Any info for Clinical trials,…
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TRT on Active Surveillance?
Is there anyone out there that have a gleason 6 or 7 on Active Surveillance that are still on TRT?
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Waiting for Diagnosis
Hello, I had a neck CT for a follow up to parathyroid surgery I had in the summer, and the report came back showing "3 x 2 cm pathologically enlarged left supraclavicular lymph node. Pathologically enlarged bilateral level 1B lymph nodes, up to 15 mm in long axis diameter. Several greater in number than size lymph nodes in…
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cc RCC and MITF mutation
Hello everyone! I am a female diagnosed at 32 with 3cm cc RCC on left kidney, lower pole. I had open partial nephrectomy. I am going to be 6 years remission on 1/20/2024. I had genetic testing done and I came up positive for mutation MITF. It causes cutaneous malignant melanoma. This mutation also causes cc RCC, but…
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Pathology report post nephrectomy
I’m 34 years old and was in a car wreck 1/4/24, where I was rear ended on a major highway. I followed up at the ER for neck and hip pain only to discover I had a complex cystic mass growing on lower pole of my left kidney via CT results. MRI 2 weeks later confirmed that it was over 8cm. I never had any symptoms whatsoever.…
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bisphosphonate (Zometa)
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Tight neck after neck dissection followed by chemo and radiation..
I had my 2nd neck dissection in March 2023 followed by chemo and radiation. I have considerable tightness in my neck after completing PT. Hoping someone else has some tips to help relief the discomfort. Thanks in advance
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My Moms CT Results, help understanding???
Sorry in advance for the long post. First I have summarized the last 2 day’s events anmd start with mom’s CT Results (toward the middle of post) from yesterday. Afterward, I summerize her history after, there is substantial history. My question to those out there who may understand these findings, is does anyone think the…