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Endocrine disorders in Rhabdomyosarcoma patients
Hi! I am a childhood cancer survivor who was diagnosed at 4 months old. I am now in my 20s and have recently been diagnosed with Hashimoto’s disorder, which is an extreme type of hypothyroidism. I am messaging here to ask if anyone else has experienced this same path of diagnosis, as I know endocrine disorders are…
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No engery
Hello all. Thank you for reading my post. I was diagnosed with lung cancer a few months ago. Just had my last chemo last week. Any advice on how to keep my engery up. Seems to be impossible. Is that normal?
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MPNST Sarcoma
Im new to this. I would like some thoughts on mpnst sarcoma.
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Newbie - trying to put it all together
Had a D&C and Hysteroscopy on Friday and awaiting results, I guess in a few more days. This procedure followed a biopsy that said I had endometrial atrophy. Endometrial thickening was 5 mm on ultrasound. I have a great gyn/onco. I’m concerned because I have also been having a work up with my Endocrinologist over the past…
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resmed airsense 10 and cancer
A couple of my doctors were talking with me about my cml diagnosis, till this day I try to figure how I caught it. The doctor in your office before you was a sleep apnea doctor I can’t remember his name but he did my test there and at the time they prescribed a resumed air sense 10machine It was between September and…
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Hearing Loss: How to Navigate This Side Effect of Cancer Treatments
Video covering hearing loss or compromised hearing after H&N treatment. Cancer treatments, such as chemotherapy, radiation therapy, and certain medications, can sometimes lead to hearing loss or other auditory complications. In this video, we will explore the causes, symptoms, and management strategies for hearing loss…
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Breast cancer and melanoma
diagnosed with breast cancer in march, had mastectomy with breast reconstruction in April. After complications and hospitalizations, I finally healed from open wound in August. On August 6th, I got the call I have melanoma. I recently this week had surgery to remove the tumor. Awaiting pathology report. I’m an emotional…
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Hypoechoic Lesion on Right Kidney
Hi everyone, A little background info about myself, I’m 31 years old. I started having upper and mid right abdominal pain last October so I’ve been seeing a gastro fairly regularly to find a cause to my pain. A month ago, I went for ovary pain and my gyno requested an ultrasound. Lo and behold they found this lesion on my…
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How long have you survived
I think this would encouraging for new and old members to read how long you have survived H&N c (cannot give it a capital) I am a 5 month survivor of Right tonsil c, with 1 lymph node involvement T1N1M0 Cheers Jen xxxxx
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Caregiver (lack of support int he communities + higher education)
I was a caregiver for my mom for about five years whilst she recovered from 2b lung cancer. It took four surgeries and about 6 months worth of really hard treatments. It completely changed her. I did everything from picking up to dropping off and not just the car ( i dont own one) In any event, my alumni suny albany like…
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Keytruda, ChRCC, pT3a, pNO(0/8), LO, V1, RO, two doctors, two opposing recommendations
Hi everyone, I need help making a decision. The tumourboards recommendation: one year Keytruda on account of my young age, size of tumour, a lack of studies showing no/negative impact of Keytruda on ChRCC and Keytruda being the only available adjuvant treatment. The oncologists recommendation: no therapy with Keytruda on…
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Kidney confusion
So will they just do another scan in 6 months do you think? Thank you
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Keytruda immunotherapy
Has anyone had experience with Keytruda infusions? My first infusion is this Friday. Any tips on what to bring/expect? My regimen is planned for every 3 weeks for a year currently.
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Stable scans but worrisome labs.
Long story short….originally stage iib colon cancer in May 2021. Resection and 4 rounds of Oxaliplatin and NED for 2 years. Now I have mets to liver and lungs. Liver resection, one lung surgery and then 5 rounds of Irenotecan/5FU but disease progressed. Now I'm 12 weeks into a trial drug. Scan at 8 weeks showed "stable"…
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September 2024 PSA
Well, it has been around 6.5 years since my RALP. My latest (09/03/2024) PSA results: <0.1ng/ml. To best of my knowledge that is still undetectable. I get tested once a year. I will be 74 years old this month. This is a journey for us. I am still continent. I still enjoy trying to catch my wife every once in a while, but…
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Advice On Home Medical Equipment Required For Recovery
Hello all you courageous and fierce cancer fighters. My elderly father is going in for a radical nephrectomy and I’m taking time off to care for him after he is released from the hospital. My question is what home medical equipment would you recommend I purchase to make the recovery slightly more comfortable? Things I’m…
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Mental breakdown that I may have needed…
I was diagnosed with stage 2b breast cancer in 2023. Had the full treatment- double mastectomy, chemo,breast reconstruction. Then in September 2023 found out that my cancer came back to my lymph nodes had an axillary lymph node dissection followed with 28 rounds of radiation, oral chemo, immunotherapy. Fast-forward to…
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After Lupron and Radiation
I need help recovering strength and energy after completion of radiation and Lupron (2 x 3 months). I don't lnow where to turn. My Urologost is no help. He says his only concern is keeping my PSA down. Can anyone give me suggestions? Thank you.
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Work up complete - headed for surgery
I had a PSA done in June which was 15 (outpatient Quest lab drawn on a Friday, sample run on Monday in a different state. I followed up at a close by regional cancer center who repeated the test 1 month later (24) - different lab in house. MRI, followed by fusion biopsy - showed 2 lesions 1.9 CM ( rt. peripheral) and 0.7…
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Gastroparesis and post menopausal bleeding
I started having abdominal pain, heartburn, early satiety, regurgitation while sleeping, followed by currently severe epigastric bloating (like an alien is moving around, it’s wild). This all began in February ‘24 and I was recently diagnosed with gastroparesis (GP) “caused by covid infection” in Jan 2024. I’ve been post…
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Chondro sarcoma
I had a skull based chondrosarcoma surgically removed from behind my right ear in 1990. Another was diagnosed, growing in the same place, in 2000. Surgical removal is not an option second time around. Although only slow growing I have had two bleeds in the last 18 months, one into surrounding brain tissue, the other inside…
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Radiation side effects
I just finished this week 30 treatments of esophagus radiation, about 4 inches above my stomach junction. I also went through 30 radiation treatments for neck cancer and 6 weeks of chemo. My question is I have acid reflux bad and the dry heaves that are really misserable, how long before this all goes away. Thanks for any…
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Blood work
So I recently had 2 iron infusions for iron deficiency anemia. I just had my blood work redone and now my red blood cell count is high and it was normal before? Also my MCV, and MCH are lower than before and my RDW is higher than before? Anyone know anything about blood work?
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Prostate, need to get Biopsy.
47 year old. PSA kept rising, highest 3. MRI (2 lesions), it doing well mentally, planning a transperneal Biopsy: CLINICAL INDICATION: Prostate screen, PSA > 3, post repeat (PSA, DRE, benign workup) Encounter for screening for malignant neoplasm of prostate Z12.5; TECHNIQUE: Using a body phased array coil small…
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Nephrostomy tube
has anyone had a nephrostomy tube placed for the instillation of Jelmyto to treat urothelial cancer in the renal pelvis. If so, how was it ?
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A TRUE LOVE STORY
People always talk about true love stories, most of them being fiction, but this is mine and it is true. My name is John and I want to talk about my and my wife's battle with cancer, how it affected both of our lives and how our faith was not broken at all. I met Gail at McDonalds in Winston-Salem, NC where we both lived…
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For those recently diagnosed....
There is hope. I was diagnosed last February, had surgeries in March and October, and am currently on the path to recovery. One thing I learned: Cancer is not a "ME" disease, but a "WE" proposition. WE CAN ALL HELP EACH OTHER. I detailed my journey in this 10 minute read. I hope this helps YOU, whether you are a patient or…
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Post catheter Urine stream slowing
On Monday my catheter came out and my urine stream seemed stronger than before but not because of any enlarged prostate issues previously. I had always for the last 15 years just had a slow stream. So initially I was wow this is great. Now over the last three days my urine stream is slowing down again and the last time it…
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Interpreting Surgical Pathology Report
I have my follow surgery discussion with my surgeon 9/4. He did call me after he got the report and said he had good news , clean margins, clean lymph nodes, etc…everything looked good. But I want to make sure I can ask proper questions regarding my report. My initial Gleason score in February was 3+4+7, intermediate…
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Treatment advice
I'm I 58 year old male healthy, non smoker no drugs in very good shape on active surveillance for 1 year. My PSA has been stable for last 9 months at 6.0. Original Biopsy (1year ago) I had 3 cores 3+3 and grade 1. Recent Biopsy I had 5 cores 3 at 3+3 and 2 at 3+4. I'm seeking treatment advice from anyone who would like to…