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Lanitis plastica
Hi my friend was just diagnosed with Lanitis plastica , given the option to remove stomach or start chemo looking for info from other folks that have had this situation
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ACC , Adrenal Cortical Carcinoma
Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan". I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost…
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Hi. Has anyobe recieved financial help from government, or organizations?
hi. Just wanted to see if anyone has had help to pay for co pays. I have a pretty high deductible which has been met. But miw i have to meet out if pocket another 3600 before they cover 100% i did find organization to help. But i am not sure i qualify. I have stage 2 breast and in lymph nodes. So doctor says stage 3 but…
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Up all night
Hello. I am a mess! I am 64 and am scheduled for a cardiac ablation on the 18th for svt. Went to the hospital today for pre admission testing ...blood work and ekg. Tonight I get a. Email stating my test results were ready. When I went online, all tests were there Nd looked good. However, one tedt for cbc with automated…
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Latest in research for small cell lung cancer
For those patients and their families affected by lung cancer. This is a free Zoom register at: https://us02web.zoom.us/meeting/register/tZIldOirqzMjGtQH1QTLsTksmiyFrtDgAl1j#/registration
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Adrenal Cortical Carcinoma
This cancer affects about 1-2 people per one million. I was diagnosed with stage 3. Anyone else have this very rare cancer?
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Surgery, radiotherapy and a marathon
It’s been one year and three months since my last radiotherapy treatment, and yesterday I ran my first marathon. PART 1 Hi, my name is Simon. I’m 47 and was diagnosed with pT2N1 ORL cancer. I received the news on the 28th of February 2022. It was a sunny day. I was on my way to the bookstore with one of my daughters to buy…
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Tirads 5 and pregnant
I had an ultrasound in January and multiple nodules were found. I didn't see the report but was told to follow up with another ultrasound in 6 months. I found out I was pregnant in March and am due in December. Last week, I had my follow up ultrasound and the results showed one tirads 4 nodule and two tirads 5 nodules on…
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Well meaning relatives
Just spent a week with a relative who proceeded to tell me, that there was no cure for my cancer .This was such a depressing conversation and I am struggling to shake it. She took away my hope and I told her so. She says she is just being real.
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Am I a horrible caregiver?
I’ve been giving care to my mom with lymphoma this past year. For the most part, it’s been an honor to provide support. It has been a lot of appointments, calling providers, getting medications, managing side effects, talking through issues, all of it. Now I am burnt out. I have the small kids including a newborn. I have a…
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New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
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Modified Appleby Procedure
Husband is a Stage 4 pancreatic cancer patient. Currently going through treatments. Drs are now recommending the Appleby procedure. I have read about it but looking to connect with anyone who has had this procedure.
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Prostate cancer returned twice
My husband had his prostate removed (RRP) in 2004. In 2010 his PSA increased and he had radiation and hormone therapy. His PSA has been very low or undetectable since then. Now in 2023, thirteen years later, his PSA level has doubled in the last six months. What are the chances that it has metastasized? Twice we were told…
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Early PSA Results
I usually get my PSA test once a year in late February or March. Also, I go for my semi-annual check up with my Primary Care Provider around every 6 or 7 months. Prior to this check up (Sept) I have to get several panels of blood test. Well, this time they went ahead and did a PSA test also. Here are the results: PSA,…
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Penguin Cold Caps and Hair Loss
Anyone here about the Penguin Cold Caps? I was diagnosed with Cervical Cancer in April 2012 and had a partial hysterectomy. I underwent 6 weeks of radiation and 6 sessions of chemo. In August 2012 I found a lump on one of my scars and turns out I had to have surgery 2 weeks ago. The cancer was there again. I know have to…
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tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
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Boron Neutron Capture Therapy (BNCT) (Informational)
This is from the National Cancer Institute in a small description. I am posting this as information because at this point it is not widely available. I understand the most activity on this is in Japan. It seems there is strong renewed interest given the technology improvements. There are quite a few being built around the…
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Glioblastoma grade4
hi, I have just been reading your stories about alternative therapies. I AM a 58 year old female after a week of losing ability to use my r,hand and then arm, an MRI was done and on 11/28/16, an MRI showed a tumor about the size of a small orange, 1 week later it was resected with the surgeon saying. He got 99% of it. 2…
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Glioblastoma
Experiences with glioblastoma II on radiation and temodar following surgery
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Tinnitus due to chemotherapy (cisplatin) and radiation to cure NPC
I had radiation and chemotherapy (Drug:cisplatin) in 2021 to treat my nasopharyngeal carcinoma. My treatment ended in Aug 2021. I had side effects that came with the treatment and had handle them well. However, recently (early Aug 2022), one year after the treatment, i suddenly develop tinnitus and it’s effecting me very…
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Loss of figure after tug flap
I’m looking for some advice on fat grafting after TUG flap breast reconstruction. I had this procedure done 12 years ago, and since then I’ve had several fat grafting sessions to fill in my breast. However, I’m very unhappy with how my body looks now. The fat grafting took away the curves from my hips and thighs and…
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Any local support groups?
Hello, I’m looking to understand if there are any local community support groups for a caregiver. I am struggling with lack of anyone to talk to about what its like to watch someone you love in so much pain. I’m the daughter of a mother with ovarian cancer. Welcome any advice on where to go or resources I can reach out to.…
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hair loss with Avastin?
My mother (3c/4 Feb 09) received two infusions of carbo for recurrence, which made her hair thin a little but didn't make it fall out. Last week Avastin was added -- she got her first infusion of it, along with carbo #3 and a neulasta shot on Friday. Today she read that hair loss is on the list of side effects experienced…
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Daughters Bone cancer
I am new at this so please bear with me. My daughter now has Stage 4 Bone Cancer. She was diagnosed with a rare uterine cancer in 2008. After years of medication, chemo, and radiation and a few years in remission the cancer has returned as bone cancer. When this was discovered she was already at Stage 3. She is a single…
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kidney cancer
I am so scared. There is a cyst on my kidney. Have had an mri and ct...They are suggesvine of renal cell..I do not have a support system or anyone to talk to. My husband passed in 2011..Dont know what next step is they will take...
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8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
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Just Plain Tired
Tonight, I’m tired. Tired of waiting for test results. Tired of waiting for the doctor to call. Tired of putting on a brave face. Tired of going to appointments. Tired of being behind. Tired of trying to catch up. Tired of waiting for surgery. Tired of dreading it. Tired of being patient. Tired of being a cancer patient.…
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1st Mammogram after treatment
Can anyone tell me your experience with your first mammogram after treatment? My breast is still so sore I guess from the radiation plus surgery etc. I can’t imagine how they are going to be able to do this. I have my first mammogram in 11 days and worried it is going to hurt too much to get a good image. Finished…
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I’m a survivor but never dealt with cancer
Hello Ny name is Rich and I’m 56. I had kidney cancer at age 35. I’m lucky and blessed that my cancer was contained within my kidney. I had a RT Nephrectomy with no chemo or radiation at age 35. At that time I was a carpenter and my wife also worked and we had a 6month old son. I thought I had another kidney stone but it…
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Just Checking In
Hi everyone! I had my Nephrectomy Aug 2021....stage1 grade 1. I'm 2 years out and still NED. Seems surreal sometimes, like it happened to someone else. It's weird. I can remember two years ago and thinking that I would never feel the way I do now about it, I was sure that I would never feel better about it. I do though, so…