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Radiation cystitis
Hello everyone i am James, this is the first time i post on this forum after I join CSN. I have prostate cancer and undergo radiation treatment summer 2016. I am doing very well until March 2018. I found blood in my urine. It happened for a few days and I was hoping it gone away. But it become more serious in 3/17/18. I…
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Have very thick uterus
Hi, I have not been diagnosed with anything cancerous. But I have 3 children all were born by c-section. My last child was born in Oct. I never stopped bleeding after I had her. Sometimes it was heavy sometimes I spotted and other times just a wierd discharge. I went to the doctor and they done a transvaginal sonogram.…
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Juvenile Pilocytic Astrocytoma Recurrence - Starting Chemo
Hello - My 3 year old grandson was recently diagnosed with a JPA in December 2018. The surgeon was able to resect what she felt was 100% of the tumor. 10 months later, the MRI show a recurrence of the tumor and his oncologist wants to immediately put him on a chemo regimen of Carboplatin and Vincristine. We were told that…
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Newly Diagnosed and Alone/Widowed.
I am 65, otherwise incredibly healthy and active for an older guy. I am widowed, live alone, so sharing my thoughts with someone is awkward b/c no one is here. My Sons and their wives (even though in their 40s, seem removed and uninterested... so that's not an option. (I will share that their mother died at age 44 from…
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Head and neck cancer-food
My father who is 70 years old has been suffering from head and neck cancer , we have done the laser ablation for right buccal mucossa and cancer has metasized to lymph nodes as well. right now it been 2 weeks since laser abalation, he doesn't feel like eating anything which and felling nausea everytime he sees the food,…
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cisplatin
it is it true that you cannot get cisplatin if you are over 70yrs old
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Kidney Lesion
So I'm not actually diagnosed with kidney cancer. I'm 21, fixing to be 22 in October and a little over a month ago I was diagnosed with papillary carcinoma of the thyroid. Done the ultrasounds and fna's. All that fun stuff. About three days after my first biopsy I had my first ER visit for ear pain/pressure that was…
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Second Breast Cancer
I was diagnosed and treated for stage IIIB HER2 positive breast cancer 14 years ago. I had a complete pathologic response to the ACTH chemo, but was left with permanent side effects, several of which are quite painful. I have just been diagnosed with stage IIIB triple negative breast cancer in my remaining breast. My…
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Relugolix
Well I am back after 12 years clean post surgery. I am a 61 year old in shape relatively healthy man and had a robotic prostectomy in 2011. Was good with a very slow rising PSA. Just recently hit .3804 and doctor wants to do radiation and hormone therapy with the Relugolix pills for 4 months. Anyone have experience with…
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excessive mucous production in throat following radiation
Last year my 82 year old husband underwent 6 weeks radiotheraphy twice daily for squamaous cell cancer of the epiglottis this proved unsuccessfull and in Jan this year had lazer treatment to remove the tumour, ever since the radiation he has suffered with excessive thick mucous whwich seems to be getting worse Dr's just…
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lower dose chemo for the elderly
Was just reading about lower dose for the elderly some say it has no effect on outcome and others say it does have a negative effect on outcome . Idont want to do anything to affect the outcome.
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Resource for latest NLPHL studies
I stumbled across a Twitter feed called GLOW (Global nLPHL One Working Group), which is a community of hem/onc docs who treat and conduct research around Nodular Lymphocyte Predominant Hodgkin's Lymphoma (or whatever you want to call the disease now). Here is the link: https://twitter.com/glow_nlphl. It seems to be a good…
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Any new treatments available for Kidney Cancer?
Has anyone hear of any promising new treatments or research studies for Kidney Cancer?
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+BRAF V600E with PTC and kidney lesion
I want to start with I don't know if my kidney lesion is cancerous or not yet. I was diagnosed a little over a month ago with PTC of the thyroid and my ENT finally told me when I first got in about my BRAF gene mutation. I read somewhere on here that someones doctor told them it was like stepping on the gas petal and not…
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Hi there
I was informed 72 hours ago by my doctor that it was " extremely likely" I had pancreatic cancer in the tail of my pancreas. I had been given an urgent referral to UVA in Charlottesville VA and having spoke to them have been told I should have my first appointments with them later this week, I'll be honest I'm still…
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Dad with esophageal cancer
Hi I am here to ask for some hope since my dad has 74 year got diagnosed with esophagus cancer on mid of june he will have the surgery in aboutvtwo weeks his cancer hasnt spread to any organ per last diagnosed have any of you had a surgery at that age my dad has never smoke or drink alcohol i am scared my soul in now in a…
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Prostate contained cancer but one positive margin
I had a radical prostatectomy five weeks ago and just now found out from my doctor what was meant by "tumor focally extends to the inked/cauterized margin in the left apex." Meaning: one positive margin. It's got me very spooked, I have to say. I know that a positive margin increases the chances of recurrence. The cancer…
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Should I get an biopsy?
Hi, I was on therapy for low testosterone for several years until my annual exam with my urologist showed my PSA had risen to a 2.91 from 1.75 within a year. So we stopped the testosterone therapy to see if my numbers would go down. My PSA went down to 1.93 in September of 2022. I caught a bad uti in October of 2022 and…
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Endometrial biopsy
Hello. I am new here. I am scheduled for endometrial biopsy tomorrow that I have put off for far too long. My mom passed from uterine cancer. I had some bleeding but I was barely perimenopausal. Ultrasound showed the lining was enlarged. My question is, I asked for a paracervical block. I am wondering if anyone had a block…
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Hello everyone
Hope theirs someone that remembers when I was on here few years ago.I have had several Cancers.Now been dignosed. With Perapeneal Cancer.I remember a few of ones still on here.Vicky sams how are you.
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Had stage 1 prostatectomy and 3 AUS procedures - best absorbent underwear?
Hi, I went with prostatectomy and have had terrible experience with incontinence. Just had my 3rd AUS procedure. 1st one went ok with more control than not. 2nd to make an adjustment and improve brought back to square 1 with 0 control. 3rd procedure was 2 days ago so wait and see. Anyways, best underwear for some…
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HIPEC Questions
Hi, I’m looking for more information on HIPEC surgery. My mother was diagnosed in 2020 with appendix cancer we found out because her appendix had ruptured. The mucin from the appendix got to her colon. So now they are calling it colorectal/small bowel cancer. She was cancer free after they removed her appendix in 2020 but…
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it is not my boday anymore
I have a very long treatment of breast cancer, with 5 tumor in my breast I should remove it completely after doing mastectomy and Implant I lost the symmetric with the other breast completely my look is ugly and I don't feel this is my body anymore, can anyone give me any advice to accept this **** as my body again, I used…
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What’s next
I just got my results yesterday for invasive ductal carcinoma and my feelings are all over the place. First visit with doctor is today and my mind is already spinning.
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Sevondary Cancers
Just wondering if anyone has any experience or knowledge of secondary cancers which may have been caused by their treatment for Lumphoma.
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Survivor Guilt
This is my first post. I was dx in March with HR+, HER2- cancer in my left breast. It was from my first mammogram, and I was shocked because I have no breast cancer history in my family and am sort of young (42). We initially thought we'd get away with lumpectomy and radiation only, but pathology showed a tiny infiltrate…
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Breast Cancer Survival Rate
Hello, I was diagnosed with BC this month. Wanted to know do people with BC live long lives? Mine is Stage 2, Estrogen - Positive, Progesterone Positive and HER2 negative. The doctor mentioned people do live for 10 years and beyond.
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Unfortunately RADIATION TREATMENT Causes Short And Long Term Side Effects
Here is a communication and study I have come across from a Doctor, Dr. Itzhak Brook MD about radiation's short and long term side effects. There is a link that takes you to a Pdf. He has covered the subject of radiation effects very well and it is good information for our H&N group very interesting and well-covered.…
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Insurance is PAINFUL
anyone else have sooo many issues with insurance that it delayed your treatment? How is this the best healthcare systems?! It blows my mind how what my doctor deems is best for me won’t be done because of some jerk at an insurance company. I have United Healthcare and for everything else they have been fine but for my…
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CEA rising with No Evidence of Progression (Covid related maybe)
Good Afternoon Everyone, I just returned from my regular 3-month lab work, CT scan, and Appt. with Oncologist at MD Anderson Cancer Center in Houston. The lab work had a very wonky CEA reading. Back in November, I had one lesion on my liver that was growing larger despite being on Folfiri + Erbitux. Doc decided to ablate…