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Very slowly rising PSA 3.5 years after radical prostatectomy
My surgery went well with really no incontinence issues 1 week post surgery. I have regularly tested PSA and my last several scores over the past year is outlined below. Prior to this I was and stayed in the 0.1 range, both above and below. They had not recommended a radiation oncologist consult until the 0.238 result in…
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Time from diagnosis to treatment
I think this is getting a little ridiculous five years ago first time round I was diagnosed on December 7. I did not start my therapy until the following July 7 seven months now five years later I have a final appointment with the surgeon at UCLA next tuesday and then I’ll make my decision. This will be six months since i…
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UCSF MO
i am looking into medical oncologists at UCSF. Anyone have direct experience Dr. Eric Small or Dr. Rahul Aggarwal and can share their experience
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PLEASE: Last effort to ask about this - Bilateral Mast/Tissue Expanders/RADIATION
Hi! I cannot imagine NO one has been in my position, but so far, no one has replied on this topic. I'd be SO GRATEFUL if ANYONE can offer some insight: Has ANYONE here had ER/PR+/HER2- Stage 2 Invasive Ductal Cancer who got a BILATERAL MASTECTOMY with immediate 2-phase reconstruction (had tissue expanders placed), had a…
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Really long term effects of cobalt radiation?
Following the surgical removal of a medulla blastoma (base of brain), I received cobalt radiation treatment to kill any remaining errant cells. This happened 40 years ago. Since then, life for me has been fairly "unremarkable". During the past half dozen years however, I have slowly lost control over the coordination of my…
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Sinus Cancer
I am looking for someone... anyone... who has had sinus cancer. I have completed my radiation treatments and am recooping == need someone to talk to about side effects, longterm issues.... etc. My cancer was Esthesionueroblastoma and it was in my Ethmoid sinus and part of my sinus cavit.
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Pelvic nodule and endometrial cancer
Anybody have endometrial cancer , no myometrial invasion but MRI found a pelvic nodule ? Is it concerning for Mets? No hysterectomy yet, newly diagnose endometrial Ca.
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Robotic Complete Kidney Removal - Help
Hello, My tumor is around 7 cm. I’m 47 and will have it removed on 1/16. I am trying to find helpful tips to prepare and heal. ROBOTIC surgery only please. For example, I read people get really painful gas. Can I just take Phazyme? Will it help? Others say ice helps with pain, so I’m getting ice packs. Is there itching? I…
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Stage 4 RCC - Don't give up, don't ever give up
I am a 54 yr old male who prior to my annual physical in Mar 2022, experienced night sweats and unexplained weight loss. Lab results from annual physical showed anemia and increased Calcium level. CT scan was ordered and revealed 15cm tumor on lower pole of left kidney, numerous metastatic lesions in both lungs, and…
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Loss of 2 significant others to cancer
About Me - Share your story and let other CSN members get to know you.I, too, lost 2 significant others to cancer. I was with my first husband for 25 years, together since 16 yrs old. We were married for 15 of those years with 3 children. Twelve yrs ago he was dx with Stage 4 Lung Cancer, passed 3 months later. Beyond…
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CivilMatt starting a new year.
I just wanted to share {again) this post by NKimber
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Has anywone heard from NEWHERE?
I wanted to check in with him@NewHere , it notes he was last online Nov6th, 2023. I hope its just a normal break off the boards, and he is enjoying life and doing well. If anyone happens to know him/could provide an update would surely appreciate it. Thx
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Pain in inverted nipple. Scary.
I had my core biopsy 6 days ago. My next appointment is to confirm the suspected diagnosis of cancer. That is to be on December 28th. My breast still a bit tender, which I expected, but I’m having this strange feeling that my inverted nipple is being pulled from within causing little shooting pains. It’s not excruciating…
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Vulvar Cancer
I was diagnosed with stage 3 vulvar cancer a few years ago. Wanted to start a discussion with anyone about this, as we are a rare group and Id like to know your story.
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Kidney Cancer
My journey started mid-March. In a visit with my PC doctor I mentioned having a tender area in the left kidney area of my back. The ultrasound showed a 1x1 area that was possibly an angiomyolipoma in the upper pole of the left kidney and CT was recommended. CT was done with and without contrast…it showed a small (5mm) area…
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Voice Problems
I finished 6 weeks of rads for a tumor that was almost totally confined to one vocal cord. On the last 3 days, the vocal cord got blasted, and my voice has become very weak and almost useless. My wife needs to stand right next to me in order to understand what I say. I am just one week, post treatment. All other effects of…
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How long after HBOT do you have to get your teeth extracted.
Hello, I have been dealing with head and neck cancer for over 20 years. I have had it come back three time. I first had a simple partial glossectomy...I tested negative. Then 2 years later it came back and I had to have a semi glossectomy, radiation, and chemo. Then 15 years later it came back and I had proton radiation…
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Pancreatic Cancer Survivors
Hello, I am wondering if there is a place to find out the longest surviving Pancreatic Cancer survivor. I am doing great myself since 1/2005 Whipple. I thank God for my blessing. I am looking forward to getting through five years, only 3 1/2 years to go, so I was wondering if anyone has contact or knows any Pancreatic…
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Brain fog/cognitive difficulty without chemo or radiation
My cancer support counselor is reading a book called, I think, your brain after chemo, and she commented in our last session that a lot of my issues with brain fog, difficulty concentrating, memory problems, etc. are similar to patients that had chemo. I didn’t have radiation or chemo but I have had three surgeries in less…
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Liver Lesion Growth Rate
Hi, I am currently undergoing diagnostics to determine whether or not a lesion in my liver is a distant metastasis from an as yet unknown primary cancer. The following is quoted directly from the C/T report performed on 1/18/23: "Hypodense lesion in the segment 6 of the RIGHT hepatic lobe measuring 2.4 cm (image 179/series…
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My cancer returned in July and may have metastasized to my liver.
Hi, everyone and Happy New Year! I’m a youthful 64, and a PNW baby from Oregon who lives in Virginia for way too long now! Six years ago, in April of 2017, following WAY too much bleeding for WAY too long, I was diagnosed with Stage 1A grade 1 Endometrial Adenocarcinoma. It was removed via DaVinci assisted Robot that May.…
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Chemo drugs & Mitomycin combined with RA drugs.
I have StageII Anal Cancer & would like to know if anyone also has Rheumatoid Arthritis, in addition to their cancer diagnosis. My treatment starts 1/8/2024 & I would appreciate any comments on what to expect. Thanks for your help.
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MSK - Literally Abandoning a Patient - When Are They Held Accountable?
I have breast cancer, a recurrence. Prior to surgery, my surgeon wanted me to go on medication (Aromatase Inhibitors) that block estrogen so the tumors can be reduced in size before surgery. Fine. WELL, you will need assistance in this as these estrogen blockers cause a host of incredibly unbearable side effects. The first…
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Enlarged Lymph Node Still Present After Treatment
Hi: I was diagnosed with stage 3 anal cancer that had spread to left inguinal lymph node. The enlarged lymph node seemed to go away while I was receiving my treatment but 1 month post treatment I felt what I believe is a lymph node just below. I had 33 radiation treatments with chemo. Obviously I will speak to my doctor…
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How Long do Hot Flashes last after Lupron?
I was on lupron for five months bracketing Prostrate RT. My last dose of lupron expired around a month ago. My hot flashes continue at the same rate, about 10 a day or more. When do they normally diminish?
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wife- looking for support and information
Hello everyone. Been looking through everyones posts. What an amazing resource this is! My husband (54 YO) was just confirmed through biopsy he has high grade adenocarcinoma of the prostate - Gleason score is 8. He had a MRI prior to the bx which showed the presence of abnormal tissue. PSA was only 4 when his PCP told us…
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does Eligard ever wear off
Can any body shed some light on how long the side effects of Eligard last. Its been 15months since partners last injection and he is still the person Eligard changed him into. Stll hot flushes fatigue apathy disengaged impotence and zero libido. His PSA and testosterone are both still negligable...I keep trying to find out…
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Port removal
I go in for my port removal iny dr office , he said its an easy procedure alot easier coming out then going in. Have any of you had it removed in the dr office?
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FISTULA - warning, it's gross
OK, I'm about to try and tackle the fact that the fistula is worsening, and I haven't even started treatment yet. I was only getting gas through the hole from the anus to the vagina, and now I'm getting poo. Really, unbelievably gross. And dangerous for infection both inside the fistula and also migrating into the bladder.…