-
Stage vs Grade?
Hello everyone, I just came across this message board, what an awesome resource. My story, like most, begins with an incidental finding during an MRI for an issue with a pinched nerve in my lower back. I was soon referred to a urologist and a CT scan confirmed the MRI....a suspected 3.5 cm RCC tumor on my left kidney. 4…
-
Uterine papillary serous carcinoma (UPSC), Brain metastasis
Hello all, I'm new to this forum. Dx'd 2017 with UPSC stage 4B. Metastasized to lung, brain, adrenal gland over the course of 2019-2021. I've been NED since Sept 2021 (after adrenal gland removed). More details on my profile. I'm curious to know of others who had USPC metastasized to brain - symptoms, treatment, status…
-
Waiting Phase of Diagnosis- Bosniak 3
Hello Warriors A typical case of going to hospital for an infection and by chance a Bosniak III renal cyst was discovered. At the stage where no doctors or urologist wanted to commit and state their diagnosis and prognosis.So waiting patiently and hoping that it is not kidney cancer.Although all the symptoms are pointing…
-
My endometrial cancer surgery
As promised I am updating here on the next step. I have been called in to; to attend a Pre Admission Clinic ( PAC) on the 2nd of January The surgery is scheduled for the 8th of January. I was wondering what exactly happens at a pre-admission clinic? Do they do more tests and answer our questions? I have been given 4 hours…
-
CLL & an Enlarged Spleen - Treatment and What to expect??
My husband has CLL and has been on "Watch and Wait" for about 10 years. His Lymph nodes go up and down in size but now he has an enlarged spleen and the doctor wants to start treatment. He is worried if that is a drastic step or necessary or what to expect? Does anyone have any advice or suggestions or what to expect? She…
-
How would I know what is the best option for me? Total- or hemi-thyroidectomy or RFA?
Hi, Just diagnosed with PTC. A 1.4cm malignant nodule on the left lobe, and one 1.5cm indeterminate on the right lobe. There is a suspicious lymph node on the left side as well but came back non-cancerous after 2 separate FNAs. I do not want to let the fear of cancer lead me to a decision or procedure that is more…
-
Question on post D&C operative report
Hello all, 39, premenopausal. After more than a year with increasingly heavy (but regular) menstrual bleeding and anemia, in late 2023 I found an OBGYN clinic that could see me several months earlier than my regular OBGYN. On my first visit, I had a pelvic exam and PAP smear, which found a slightly enlarged uterus and good…
-
Cost of Orgovyx
I am 61 years old and have been told I need to go on hormone therapy. I was considering trying to convince my urologist to get me on Orgovyx, but he explained (and I found out after doing some research) that it is pretty expensive, and also said that my insurance (I am still working at 62 with insurance through Blue Cross…
-
Perineural invasion
my be pathology after lar surgery stated perineural invasion positive otherwise no other risk factors nonlymph node involvement I’m 42 w two small kids last yr has been a total nightmare. Looking for anyone in similar situation that survived rectal cancer
-
Unexpected D&C results for CAEH - Likelihood of cancer?
I am 48 and haven't had my period in a couple of years. I had unexpected bleeding in September 2023, finally got an appt in October 2023 with my gynecologist who used ultrasound to diagnose 1cm thickness of my endometrius and a polyp. I had my D&C on Jan 2, 2024 and thought it would be like a previous polyp. Benign and no…
-
Experience with Keytruda/Lenvima?
I am trying to decide which regimen, among three of four choices, to try. The first best would be another carbo/taxol, but I am unwilling to lose my hair again. The second best choice -- medically best, I mean -- would be Keytruda/Lenvima. It seems like most posts about that combination have been pretty dire in terms of…
-
Survivorship Today: Cancer Survivorship Q&A: Impact on Friendships
This is a short video, 2:27 min. and I am hoping there is a tidbit in there for you somewhere...Take care, God Bless-Russ
-
What Precautions Should You Take During Chemotherapy Treatment?
I found this and thought it might be helpful to those in treatment. It is some recommendations of things to do and not do during Chemotherapy treatment from Healthline... Take care, God Bless Russ What Precautions Should You Take During Chemotherapy Treatment? Things to avoid Things to do Resources and support Bottom line…
-
Uterine Serous Carcinoma
Hello- I am new to your board. I am stage 3C2 and 61 years old. I was diagnosed in October. I had open abdominal surgery Nov. 7 to remove my uterus, cervix, etc... and 4 enlarged cancerous lymph nodes. Next Wednesday (29th), I start chemo ...6 cycles once every 3 weeks. I want to try icing/cold therapy on my hands and…
-
De-intensification Clinical Trial
Hello everyone! Thank you all for posting your journey lessons, insights, experiences, etc. I feel like I've read them all since I joined you as a cancer patient. I begin treatment after surgery in a couple of days as part of a clinical study. Your posts have been so meaningful to us that I hope that by doing the same I…
-
USPC and breast cancer
I have gone through 2 bouts with BC, one in 2002, the next in 2010 (new primary in lateral breast, NOT recurrence.) In Oct 2011, less than a year after my last chemo for BC I was dx with USPC grade 2, stage 1a. Now here is what I want to share..... My onc said uterine CA has been associated with BC but because many women…
-
Endometrial biopsy
I am just curious if anyone's endometrial biopsy missed cancer. If so, how did you find out about the cancer?
-
Rapid rise in PSA, recently diagnosed
I have recently been diagnosed with prostate cancer following a biopsy in early January (gleason 6, 6 cores positive, 5%-50%, PI). At my follow up appointment my urologist recommended active surveillance with an MRI in 3-4 months. At that point, he said the cancer was "far from scary". They told me to get another PSA last…
-
Survivorship Today What It’s Like to Live with Cancer
Hello, everyone, I came across a related video that led me to this site which I am posting a link to. The website is Bristol Myers Squibb Survivorship Today... There is a section on there called "Survivorship Today What it's Like To Live With Cancer" and there are many videos on there in this section of people giving…
-
Elevated PSA
My PSA rises quickly recently. Table below is my PSA history Date Value Free PSA % of Free PSA 2/15/24 5.43 0.96 17.7% 1/9/24 4.2 0.9 21.41 11/21/23 4.20 0.8 19.04 11/14/23 4.80 N/A 2/27/23 2.15 N/A 7/2/20 2.00 N/A My MRI PIRADS = 2 (12/15/2023) Prostate size MRI result (12/15/2023) 4.7 x 5 x 4.1 cm (length x width x…
-
Alternative treatment and cholangiocarcinoma is working
Hi All, My wife was diagnosed with cholangiocarcinoma, bile duct cancer, last fall. She was operated on but the cancer was non-resectable. The doctors and oncologists I spoke to were giving poor prognoses about her chances. The oncologists and other info I was able to find basically said that chemo and radiation wouldn't…
-
Salvage surgery it is
Everybody knows my story been going on for about eight months I’m really really tired of the scrap PSA scan then another scan and MRI then a biopsy then meet with a radiologist meet with a cryotherapy doctor meet with two different surgeons radiations out of the question that guy screwed me. I asked a point blank about…
-
caregiver living a sober life
Hi. I am new here. My husband and I are both sober. He has stage 4 metastatic cancer, and has been getting chemo for the last year. It was worse than either of us had imagined, but we got through clean and sober. My twin daughters were seniors in high school, and I was managing being there for their fun stuff: senior…
-
Didn't think it was important..
I still have imposter syndrome, I was diagnosed with colon cancer back in 2021 Dec, had it removed Jan 25th 2022. It was stage three, but I have a 12 percent chance to get it again, so low risk. I didn't go through chemo or anything like that. So for me I figured it wasn't that bad, but when I look back at the photos, I…
-
I was just diagnosed today, I think I've had symptoms for a long time, anyone else?
my diagnosis is Endometrioid adenocarcinoma, FIGO 1. and my doctor says the outlook is good because it's not something that's been going on for years and years but now that I think about it, I have had symptoms for years and years, I have had difficulty in urination and I guess that's a symptom, now I am super worried
-
MRI fusion Prostate Biopsy next Monday. I am doing a lot of research, and have many questions
This is a great forum. I just scratched the surface and I have so much more to research on this. For now, this is what I have. I am 68. I live in Southern California. I have Medicare and medigap insurance. In early 2022, my PSA was 3.9. By November 2023 it went up to 5.3. My PCP gave me referral for a urologist who asked…
-
Valentine’s Dinner - Big Increase in Taste
Hi All, Tonight my husband and I went out for dinner to celebrate Valentine’s Day at our favorite steakhouse. We have not been there since May 2023 prior to his diagnosis of SCC BOT HPV +16 last July followed by 33 rad and 7 weekly Cisplatin finished 10/24/23. He had been at around 60% taste bud return up until recently…
-
2 weeks remaining. So far, so good. Well, more good than not…
First I want to thank everyone here for sharing their stories and experiences with treatment. It was extremely helpful helping me to prepare the best I could for my husbands newest adventure (Squamous Cell Carcinoma with lymph node involvement). He has his final cisplatin chemotherapy treatment this next week and 10 days…
-
Newcomer lung cancer
Hi,68 yrs,right lung adenocarcinoma, just met with oncologist,being evaluated to see if I would make good surgical candidate,scheduling PET,MRI,lots of bloodwork,meeting with thoracic surgeon. I started out with bad cold,x ray showed lots of congestion upper lobe.PNEUMONIA, Had broncoscopy, found adenocarcinoma. Pnuemonia…
-
SEEKING KNOWLEDGE - pememtrexed
Hi friends and fighters, So my mother is currently on maintenance therapy for her stage 4 lung cancer. She has been in a remission period since November and seeming to have responded to the radiation and success with the pememtrexed and keytruda. I was reading over the notes on her last visit and noticed that it stated the…