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The Power Of A Hug In Caring For Head And Neck Cancer Patients
The power of a hug cannot be underestimated especially during a time like a cancer diagnosis and treatment. It says more than any words and with words added goes far beyond anything imaginable in strengthening, supporting, and caring. Many of us on here have had our first cancer long before covid and social distancing and…
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biochemical recurrence
I just joined and was wondering Is there already a discussion of this? My husband had stage 4 prostate cancer but radiation and Hormone T has resulted in a five year remission with undetectable PSA. In the last six months PSA is up several times and is going for PSMA-Pet in three weeks and I'm wondering what all this…
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So God Made a Mother: A Beautiful Mother's Day Poem-Happy Mothers Day Everyone!
I have come across this wonderful poem to share Mother's day with each and every one of you today. God's Blessings to you all. At the dawn of time, God needed someone He could trust to love His precious children. And so, God made a mother. God said, “Life will often be harsh, so I need someone with a gentle touch. Someone…
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Recently Diagnosed
Hi. I am 50 years old and I recently learned I have cancer in 4 areas. I am amazed how slow the medical field is but then I have no patience. I came here to get advice and help me keep sane. I am reading posts. I am not handling the news very well. I am not sure how long I have had the cancer but I was sick for 10 weeks…
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Throat Cancer Symptom Advice From A Survivor,Things Doctors Don't Tell You Once You Start Treatmen
Advice from a throat cancer patient for people who are about to go through radiation and chemo treatments. Things I wish my doctor had told me. https://www.youtube.com/watch?v=qBzz3CuQBIQ Take Care, God Bless Russ
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Humane treatment for cancer patients
My mom was diagnosed of ovarian cancer , we need help. Doctors in Summerlin hospital keep saying she is dying- we feel like it’s not right and humane. Please help us she is fighting, she is in icu right now. We only went there to drain her asceitis from then on she got weak. She does her chemo at ucla but c/m she live in…
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My Last Days Follow-Up: How Are They Doing Now?
One year ago we aired My Last Days season 2 on SoulPancake. We checked in with all the participants about updates on their conditions. https://www.youtube.com/watch?v=ZV2mSPDDkOg Take Care, God Bless Russ
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Breast Reconstruction Education
Hey everyone! I hope you're doing well! My friend is getting a breast reconstruction surgery, as she just had a breast mastectomy. Is there any resource she can refer to learn more about her options for reconstruction. Any leads will be great!
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Surviving UPSC
In August of 2025, at 63, I was diagnosed with uterine cancer. On September 30, 2015, I had a complete hysterectomy and was diagnosed with Stage III, UPSC. I came to this board a little bit after that looking for answers. I only made it through three chemos of carboplatin and taxotere. In December of 2015, I had a stroke…
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I am a Grade 3 Anaplastic Ependymoma Survivor: Survivorship Story
Hello. I learned about this group during my most recent clinic visit. I want to connect with others who have undergone or can relate to my treatment story. In 2016 I turned 18 years old. Three weeks later I was diagnosed with a Grade 3 Anaplastic Ependymoma. I had attributed 6 months worth of daily headaches to being a…
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Anyone using Fulvestrant or another SERD?
Looks like I may be changing from anastrozole (an aromatase inhibitor) and Ibrance to fulvestrant or imulestrant and staying on Ibrance. I'm in remission after two recurrences, and it looks like I can stay on the lower dose of Ibrance, but all my research points to changing the ai to a serd. I would like to hear the…
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Follow up
I had surgery and lymph nodes removed and was told all was clear. A year later colonoscopy was clear. I have been wondering about cancer showing up in other places and have tried to get some answers about this but can’t seem to find a way to do it. I had a consult at Sarah Cannon right after surgery and have reached out to…
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NED UPSC for 10 years!
I joined this board in October 2013 shortly after receiving my diagnosis. In December 2013 I had surgery at Moffiitt Cancer Center in Tampa Fl followed by chemo and internal radiation therapy. I am one of the very few lucky survivors to have never had a recurrence and am still NED today. I don’t think I realized until…
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Cervical cancer
I have just recently been diagnosed with cervical cancer and I am very scared for what is to come.
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Anaplastic Large Cell Lymphoma ALK Positive
Anyone on the boards have this besides me?
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Radiation therapy
Now have PC and plan to take radiation therapy, but have heard of incontinense with radiation when I thought it was more of an issue with removal. Anyone have experience or comments
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ROLL CALL 2024
How is everyone doing, I hope all is well with each of you. I hope you are recovering nicely from your cancer treatments and are returning to your life as it was prior to your diagnosis. Well, this will be my last time running the entire Roll Call by myself. Over the past few years I have continued to fall further behind…
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How long to worry about clots and strictures
If I have surgery, how long are blood clots and possible contractures a thing to look out for? Do people still have to pass daily thin catheters through to keep things open for a period of time? I'm wondering if it is advisable to travel overseas within three months of surgery, if all goes well. I know it depends on how…
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Biofilms: A DEADLY Complication from Implanted Medical Devices. ESSENTIAL Trach Tube Info!
Here is a video from a young lady I follow on her channel. She always has good information in short easy to understand videos. Here is one recently about something I have never heard of "Biofilms", never knew such a thing existed. This may be helpful to some of our members with trachs and it apparently can affect…
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Effectivity of second RAI treatment without second operation?
Hi! So I was diagnosed with papillary thyroid carcinoma in 2017. Had a total thyroidectomy with bilateral neck dissection for some cancerous lymph nodes in July. RAI (105 mci) in August of the same year. Did a whole body scan in 2018 and it showed that the ablation worked. Haven’t had any symptoms ever since then. However,…
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Advanced Cancer and waiting...
I've been watching my score go up this year (surgery early 2010 and salvage late 2015). My PSA is now .310 up from a .207 in March and .210 in July...I continue with a good and mostly plant base diet, which I believe has helped me over the years (outcome could have been aggressive but it hasn’t to date). Some days I hate…
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scientific American Article
https://www.scientificamerican.com/article/treating-prostate-cancer-at-any-stage/
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Katie's Story - There is #lifeAhead After Your Cancer Diagnosis
Listen to Katie Drablos tell her story of how she was first diagnosed with Oral, Head and Neck Cancer (OHNC), and overcame her journey by continuing to fulfill his passions and dreams. Katie's Story - There is #lifeAhead After Your Cancer Diagnosis https://www.youtube.com/watch?v=oAXPvlL8qL4 Take Care, God Bless Russ
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Frank's Story - There is #lifeAhead After Your Cancer Diagnosis
Here is an uplifting inspiring story to say there is hope beyond the diagnosis. Listen to Frank Marcovitz tell his story of how he was first diagnosed with Oral, Head and Neck Cancer (OHNC), and overcame his journey by continuing to fulfill his passions and dreams. Frank's Story - There is #lifeAhead After Your Cancer…
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Is this normal in my mouth or?
Hi all so I’ve noticed I’ve had a sore area in mouth for ages with my tounge it feels like a raised cut and is sore to touch - this is the little red marks seen in the photo and i took a video and caught this so I have a few red marks and the lighter patches in my mouth? I was wondering if this warrants any concern People…
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Treatment options, poorly differentiated non-small cell carcinoma?
Greetings, everyone. I had ovarian cancer 28 years ago which predisposed me to lung cancer which I now seem to have developed. It was discovered due to a mass on my liver. Additional staining on the liver biopsy sample revealed the non-small cell carcinoma to be poorly differentiated. Can anyone tell me what that means in…
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Just had MRI
Hello everyone, just had MRI because my PSA was 14. I have 3 lesions: 1.6 × 0.8 x 1.4 cm lesion left anterior transition zone at the mid gland (ROI #1). PI-RADS 5: Very high (clinically significant cancer is highly likely to be present) 1.9 x 0.9 x 2.5 cm lesion right posterolateral peripheral zone at the gland base and…
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Support for survivor teen daughter
Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive…
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About Facial Prosthetics for Head and Neck Cancer Patients
Sometimes a cancer event takes more than we imagined but there is help. About Facial Prosthetics for Head and Neck Cancer Patients https://www.youtube.com/watch?v=b4osM9jv0I8 Take Care, God Bless Russ For more information about Facial Prosthetics and Head and Neck Cancer, visit www.headandneckcancer.org.au. Head and Neck…
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Jen's Tongue Cancer Story Video
I am sure there are those on this forum that can relate to this lady's story. To commemorate Head and Neck Cancer Awareness Month we'd like to share the story of one of our community members, Jen Mackay. Jen had never heard of Tongue Cancer when she was diagnosed with Stage 3 in 2022 after an ulcer appeared on her tongue.…