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Low Grade Ovarian Cancer
Hi, I was diagnosed with Stage 3A low-grade ovarian cancer (micro-papillary serous carcinoma) in September, had an optimal debulking surgery (total hysterecotomy) and started chemo at the end of September. So far 3 rounds down, 5 to go. However, low-grade ovarian cancer supposedly means that it grows more slowly than the…
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Advanced Prostate Cancer
Hi, my father has just been diagnosed with advanced prostate cancer which has spread to the pelive bones and lymph.. gleason score 8 and his PSA was 2800 before we started hormone therapy and after one month of therapy came down to 16. Is there anyone else who has had a similar situation and got better with treatment.…
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MGus
Blessings to all, I was diagnosed with having MGus last year. My levels are low for right now. I was referred to this site as I was seeking out a support group. With so much information out there, I'm curious to find out how one is coping with this? I still have not received my Covid shot and was wondering who did/did not?…
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BiRads 5
Hello everyone. I am new here and am looking for some guidance and support. I had a mammogram yesterday where they found a lump in my right breast. After the mammogram, they did an ultrasound confirming what they had found. The report states that I am BiRads 5. Everything that I am reading online is telling me that I very…
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Breast Cancer
Hello everybody i'm new here to this group. i'm glad i have find a place to express how i'm feeling.i just find out i had breast cancer on nov.5 and on the 20th i had both breast removed.i just turned 44 this month...i'm really afraid that it will come back some place else now...my whole family has had breast cancer except…
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Melanoma
Hello Im new here. Was diagnosed with Stage 2B melanoma May 2023. I had a cyst on my scalp that was melanoma. Did surgery and removed alot of tissue from my scalp (22 staples and 4 stitches). My pet scan showed no other cancer. I started immunotherapy (Keytrunda?) in August 2023. I was doing great and then had a ct scan…
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Anyone have breast pain after lobectomy?
Hi, Up until now I've been an active, energetic person but things have changed. I was 70 in November. In December I had a scan for thyroid cancer (on hold for now) that revealed I had Stage II A, adenocarcinoma, a non-small cell cancer. The 6.3 cm (about 3 inches) tumor was completely removed, with all margins “clean” and…
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Hair Loss with Carboplatin Alone
Has anyone had experience with hair loss/hair thinning on carboplatin alone? It's very hard to find a consistent answer to this question. I've looked at all the most reputable sites, and the answer varies when it comes to how likely that would be. So. I'm hoping for information from women who have taken/are taking…
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Primary central nervous system lymphoma
Can anyone help direct me to a list of hospitals in Illinois that administer high dose methotrexate? My wife was diagnosed with PCNSL in October 2021. She did not do the HDMTX treatment at that time but her cancer has returned and we are considering that treatment option this time. I had found a list somewhere that only…
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38 yo female - worried.
I was having frequent UTIs and I got sent for an ultrasound. I had no other symptoms. Otherwise healthy, no diabetes, not over weight, don't have high blood pressure. Bladder was fine but there is a serious problem with the kidney (as per the technicians comments). He said "it was serious".. I get my results in 2 days but…
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Lung Surgery
I have stage 2 lung cancer and the doctor wants to remove my left lung. I am terrified about the surgery and pain after. They make it sound like nothing. Would like to talk with someone who went through this. Is removing the whole lung as painfull as just removing a portion?
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Just got home
Had my colon resection surgery Tuesday Just got home an hour ago it'd Friday. Now have to wait for pathology report. My question is. I look 9 months pregnant! BLOOOOOATED!! How can I pass gas? Will it just happen or can.i help it along?
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Please Share Your Diffuse Large B-Cell Lymphoma Journey
Hello, I was just wondering if anyone would like to share their journey with me and others about having diffuse large b-cell lymphoma. How their treatment went and if they had a relapse or not. If they had a transplant, how long has it been since that happened and how they are doing? If you read the print down below, some…
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Enhertu
Hi! I am, thus far, a 20 year Stage IV Breast cancer survivor with mets to bones and now liver. After my Xeloda is failing, I am to start IV Enhertu this week. Looking for anyone who has tried this medication. I am worried about the side effects, but the has such promising reviews. Thank you, Kathie
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NEGU (Never Ever Give Up) Works For Rats Too
I saw this in another group and had to share it with all of you. Giving Up Is Not An Option When You Have A Group Like Us♥️ During a study at Harvard in 1957, Dr. Curt Richter placed rats in a pool of water to test how long they could tread water. On average they'd give up, sink, and drown after 15 minutes. But right…
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Rebuilding Teeth
Hi folks - I've been off this list for a while, as my husband's cancer journey was over 10 years ago, and I had to deal with some PTSD afterward, which made me not want to even think of cancer. However, since cancer is the gift that keeps on giving, I'm looking for advice again. His teeth, which made it through treatment,…
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Urine incontinence
I have triple positive breast cancer. I went through 6 rounds of TCHP . When I would be getting chemo in the actual chair I would actually pee myself sometimes! After my 4 round of chemo I noticed that I leaked urine when I would sit down in my car, work out and ride my bike. It’s not a lot of urine. I actually feel it…
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Looking for Guidance
I am 80 and was newly diagnosed with HPV related throat cancer. Based on the biopsy and the PET scan results, my oncologist wants to start me on chemo and radiation. I really do not know what to expect. I live alone in my home with my 17 year old dog. I have heard things about chemo and am concerned about navigating this.…
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Thoughts on Full Brain Radiation
Hello, I am interested in hearing about others experience with full brain radiation for quality of life. We have already been told this is not curable; however, I'm not sure receiving full brain radiation will give my father "quality" of life. He is already suffering from a speech deficit from having a lesion removed from…
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Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
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Newbie
Hello to all, i am new here. I had toyed with joining a chat group before now, but never really did. I am facing radiation soon, after everything I've been through already, and for whatever reason I felt like i just wanted to reach out. I have tried very hard to focus on the good, the people I have met along the way, and…
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Lung cancer with brain metastes
Hello all, I'm new to this board today and I'm sorry if I'm posting in the wrong section - I;ve no posted in brain cancer as well as lung cancer! After several months of headaches which have got progressivley worse my close friend had a scan this week to be given the devastating news she has a tumor on her brain. On…
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Feeling guilty
Hello, My 80-year-old father who has always been extremely difficult and angry recently was diagnosed with Lung cancer that has metastasized to his bones and brain. This is a 2nd primary cancer; he was originally diagnosed with Urethral cancer back in 2020. He had the largest of the 4 lesions in his brain removed a couple…
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NavDx Ups and Downs
Prior to TORS radical tonsillectomy and leftside lymphoid romoval (24) (noids were clear) my navdx results was 77. The surgery was a success and after 3 weeks the results showed undectable. 2 months got a result of 24, and after a retest 3 weeks later it went down to 12. The Unversity of Michigan surgeon is likely to order…
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My experience after radical nephrectomy
I thought I would share my experience losing my kidney to renal cancer. I have questions about some of my post-op observations, and I've engaged physicians for advice and solutions, but to little or no avail. Maybe this community can do better. I know you can do better than my urologist, who requires that patients ask the…
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Venting.
I have been in great to good shape most of my life, I was always a gym rat and liked working out and staying in shape then 20 years ago I was walking down the hall at work when it felt like someone stabbed me in the left eye with an icepick, caused me to fall to the floor. That was the start to a 20 year headache, the pain…
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Stopping Tamoxifen
Hello, i have been taking Tamoxifen for 5 years. My oncologist did a test and the results showed I would not benefit continuing on this drug. In January, I will stop taking this pill. Has anyone else stop taking Tamoxifen after 5 years on the advice of your oncologist? Did you have any side effects - good or bad - when you…
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39 oncotype.
Hello everyone. I'm looking for advice. I'm 52. Type 1 level 3 invasive breast cancer. Diagnosed in August, surgery in September and chemo beginning in 2 weeks. The tumor was very small, however, Oncotype score 39! I'm recommended radiation, plus endocrine treatment, and the strongest chemo option over the course of 5…
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Need Guidance on Where to Even Begin
Hi Everyone, I am posting here to get advice from you. My mother, 72, just got diagnosed with stage 2 breast cancer on Friday. It was unexpected and we have no experience in handling something like this within our family. The whole process between coordinating and managing the complexity of the different specialists,…
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