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Robotic prostectomy Vs Radiation
Hi, My husband is 50 years old and is diagnosed with prostate cancer with gleason score of 6. The biopsy report also shows perineural invasion shows cancer spread in 15 out of 17 cores. The urologist initially recommended monitoring but when we questioned regarding perineural invasion and risk of spreading the cancer…
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cold cap for chemo
Does anyone have directions for making a cold cap for chemo. I've looked on Amazon but don't think those featured will help me avoid hair loss.
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Hair loss with chemo
It seems like I had been told that hair loss in not usually a side effect of chemotherapy drugs in the treatment of colon cancer. Yet, lately, my hair seems to be getting quite thin. I am on 5FU + Oxaliplatin + Avastin. Has anyone else experienced hair thinning or hair loss from these drugs? I'm wondering if my hair…
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Radiation Update
I have now undergone 12 treatments my 13th is tomorrow, I find myself counting the treatments till it's over. It's not too bad, the hour drive there sticks to only have treatment for 10 mins. i am going through Jan 2024. As of Thanksgiving I began to have some problems with eating, this morning i ate some scrambled eggs it…
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Tattoo Artist Wanted!
I saw my PS Monday. I was so hopeful he would have great ideas for whipping these disappointing girls into shape. I left very upset. He acted as though, now that its 5 months since my implants were put in, that we're 'done'. I made it clear that I don't think we're 'done' and while he was whipping out his camera for my…
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Effects of IMRT pelvic radiation for uterine cancer
Have been told that IMRT pelvic radiation has fewer side effects than EBRT but am still wary and need to hear from those who pulled through pretty well and those who haven't. Please indicate whether you ALSO had high-dose brachytherapy as well and whether you were treated at a major cancer-treatment center. Can you comment…
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Loved One Fatigue?
Hi everyone. I hope this finds you well. I was diagnosed with Stage 3 rectal cancer in November 2022 at the age of 40. They also found a rather large tumor in my sigmoid that wound up demanding emergency surgery. 6 weeks of radiation/chemo, 3 major surgeries, and 8 rounds of chemo later I'm on the cusp of potentially…
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Oral chemo - xeloda
Anyone had any experience with oral chemo xeloda ?? I welcome any suggestions, ideas, outcome success stories if any, advice, side effects (specifically with regards to psychological). I want to know the good, the bad, and the ugly !
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Neuropathy of the hands after treatment
Hello all. I start treatment ( chemo and radiation)for throat cancer next week and I have some questions. I play guitar and a few other stringed instruments. The doctor said I may lose the ability to play due to neuropathy. He also said I will probably lose my hearing. Is this common? Has anyone had that happen? How long…
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Gaining weight after chemo
My dad is struggling to gain weight after his chemo & pancreatic surgery (he had the Whipple procedure). He is deemed cancer free, is eating all the time but cannot seem to gain weight. He is eating lots of protein, drinking an ensure, adding calories wherever he can and still cannot gain. He is somewhat limited in what he…
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Stigma and Strides
Stage 4 small cell lung cancer here. Wishing everyone out there hope and hugs! Lung cancer is a shamed cancer that inevitably leads to the question "do/did you smoke?" Then silence if you answer yes as if to confirm you're deserving of such an awful diagnosis. Such a shame as all cancers suck and there are many causes. My…
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man i’m losing it right now
i know i got to pull it together but can’t seem to just get up and do it . i just need to stop it and numb up and keep going
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Whole Brain Radiation
Hello, I was diagnosed SCLC stage IIA back in June. Did 6 rounds of Etoposide and Carboplatin along with 33 days of radiation. I had scans last week and all was clear. Doctor is now wanting me to do 10 days of whole brain radiation as a preventative in case there are any cells hiding in the brain. I am a 57YO female.…
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Multilocular cystic renal neoplasm of low malignant potential
They found a bosniak 2f incidentally during scans. I am only 32. I chose to have it removed rather than following it. Turns out it was multilocular cystic renal neoplasm of low malignant potential. I am only 32 years old so it is freaking scary. stage 1/grade 1/2.2cm My surgeon basically told me it’s not “really” cancer…
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Best cancer center?
Hi everyone: My husband was diagnosed with early stage hpv + throat cancer about a year ago. His treatment (surgery and radiation) was successful at first, but about a month ago we were told his cancer had come back, both at the original spot and in several lymph nodes. We realized we had to go for the best care possible…
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10 years and grateful
Hi, I used to be on this board every day. It was a lifeline. I wsa very frightened and hurting. Anal Cancer put me through a lot too. But I am happy to say even though my cancer was late stage, we beat it back with the protocol treatment, chemo and radiation, simultaneously. For me it was brutal. I am alergic to Sulfa and…
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Open Partial Nephrectomy Complications
I had a open partial nephrectomy back in May of 2023. Very invasive. Had a rib removed and my kidney had to be reconstructed. I had a rough recuperation but slowly made progress. After 12 weeks I was back to work part time and after 5 months back full time. The problem I am having is that shortly after the 6th month mark I…
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CA125 11.718 U/ml :(
hi I'm from Indonesia. I didn't have any symptoms until last week I felt bloated in my stomach and it was followed by my stomach suddenly getting bigger like a pregnant woman. I immediately went to the doctor and an ultrasound revealed cysts on the right and left ovaries. It is said that cysts are liquid and solid. The…
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Life after Cancer
How are some ways you guys have coped after Cancer? I don't really know how to live my life now. It's been really hard to get back into just living my life normally. I feel like I'm not the same person anymore:( I guess I never really processed any of it til now.
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Just Diagnosed - Scared and Stressed about doctor selection
Hi all, during a routine annual mammogram followed by a biopsy I was diagnosed with breast cancer. My radiologist said I would need a lumpectomy and suggested I go to a doctor named Dr Mcntoch out of Englewood hospital in NJ (very close to where I live) who is highly recommended. I also called a trustworthy organization…
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anal cancer
I have just completed anal cancer treatment. Chemo/radiation. I was diagnosed at Stage II, NO, MO. Fortunatley, I have a great medical team that answers all my ?s. I would like to hear from anal cancer survivors. I will not know if the treatment worked for several months.
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UPSC: 11 years NED
Hi all - it’s been awhile since I’ve posted so wanted to pop in! 2 months ago I celebrated my 12-year cancerversary. I was surprised with a UPSC diagnosis 10/20/11 after a robotic hysterectomy (had a fibroid in an awkward spot near my cervix - dr tried a D&C but I had a septum in my uterus [im just full of surprises] hence…
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Shifting my attention slightly
Hello ladies, Does anyone know about changes in microsatellite instability from "stable" to "high?" And what about changes from mismatch repair deficiency "absent" to "present?" I thought the designation was always one way or another and was imprinted in all your cells. I think now it is dependent on the tumor tissue. I am…
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Endometrial cancer in lung
2017 diagnosed with endometrial carcinoma. Had hysterectomy. No other treatment. 2023 diagnosed with endometrial tumor in vigina. 25 radiation therapy and 3 brachytherapy. Tumor gone, but a nodule on lung 8mm. Biopsy showed endometrial cancer. I am now on Everolimus and letrozel for life or until I can’t. Tumor seems to be…
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Newly diagnosed Melanoma
This is new and scary. 1.95mm malignant melanoma on left temple with microsatellites. scheduled to start Keytruda Immunotherapy this week and, at some point, have a Lymph di section. I have heard about FDA trying to Fast Track a new vaccine for melanoma that shows good results but not sure how far along. I am very thankful…
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Itchy Itchy Itchy ! Skin is itching fiercely after chemo
I just finished my last round of chemo, #6, The next day ( Yesterday) I was over come with severely itchy skin, everywhere but especially my arms and legs. I never had this reaction after any of my previous treatments. The only thing different about this one was that they stopped the Taxol infusion, to ease my newly…
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Chemo smell 4 years later
Everything brings out a chemo smell for me. My last chemo (heated intraperitoneal chemo aka hot chemo bath in abdomen) was July 15, 2020. What can I do?
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Update on my journey.
I finished radiation 10 days ago. I had used aquaphor from the start. Had turned a bit pink, then red, then rather purpley, then brownish black. It hurt, only yesterday did I figure out most of the paint and itch was from the aquaphor. Got it washed off and was so much better. Today the skin began coming off. Saw my onc 2…
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Lonsurf
Hello there. My husband has been diagnosed with stage 4 esophageal cancer (with metastases near his pelvic bone and some spots on his lung as well). He had 10 chemo sessions since August 2023, unfortunately nothing seems to work at this point. His doctor had suggested for him to take Lonsurf as a "last resort", and they…
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Post Esophagectomy
My husband was diagnosed in February with early stage 1 esophageal cancer. He underwent a transhiatal esophagectomy on May 17th. Lymph nodes and tissue surrounding his esophagus were biopsied and all came back negative and he has been deemed cancer free. What I am dealing with now as his caregiver is his mental state. He…