Looking for folks taking repotrectinib for ROS1 mutation

debbiemiranda
debbiemiranda Member Posts: 1 *

My husband was initially diagnosed in 2016 with non small cell adenocarcinoma. He underwent a right lower lobectomy, chemo, and radiation. Fast forward nine years and it is back, this time it has metastasized. He has the ROS1 mutation, the only option for us is a TKI. He started taking repotrectinib April 2. Anyone else out there taking this medication for stage 4 lung cancer with this mutation? We would love to discuss side effect management, cancer symptom relief, all things. Thanks very much for reading.