Buckle up, it’s gonna be a bumpy ride…

Poswatz
Poswatz CSN Member Posts: 1
in Kidney Cancer #1

Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. 

My family has a propensity towards cancer, and every person had a different kind. Stomach, colon, lung/liver, and glioblastoma multiforme to keep it interesting. I’ve been wondering for ages “what” kind of cancer I’d develop, not “if” I’d get it. Now it may be looming. I always try to be pragmatic.

I see the doctor who ordered the scan on Tuesday; unsure of what will happen next. Have also put in a note to my gp via portal. I’m expecting surgery, and bracing myself for a full nephrectomy; anything less will be a blessing.

I’d love to hear your stories, especially post-op and oncology experiences, so that I can feed my pragmatism and get a better understanding of what may happen.

Also, please know that I am here for you as well, and will do my best to support and help anyone I can. It’s nice to not be alone in all this. Thank you!

Comments

  • RadRuck
    RadRuck Member Posts: 4
    #2

    I just robotic partial nephrectomy on 4/21, so just under two weeks.

    That first week post-op was honestly rough—pain, insane fatigue, and just a lot of mental processing—but things have slowly started to improve. Walking has been a game-changer for me. Even just short laps around the house helped reduce the pain, cleared some of the fog, got rid for the gas, and gave me a small sense of control during recovery. I am still getting greatly fatigued, which is the weirdest part for me because I was super active prior to surgery.

    I can imagine the whirlwind you’re in right now, especially with your family history and the looming uncertainty. But I want you to know you’re not alone. Please feel free to reach out whenever, whether it’s to ask about post-op logistics, what helped with recovery, or just to vent. We are here for you.

    Sending you strength as you head into Tuesday’s appointment.

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