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CAR-T or TCR-T for late stage ovarian cancer
My sister was diagnosed of ovarian cancer IIIC in Jan 2014 and had a successful operation followed by platinum based chemo treatments. However, the cancer came back 1.5 years later and becomes platinum resistant after two relapses. Her current health status won't allow for further chemo treatment and latest CA125 counts…
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Fever after chemo
my mom has stage 4 ovarian cancer. She had her first round of chemo on Monday. Today she was running a 100.5 fever. She’s just been admitted into the hospital. My sister says everyone that goes into her room has to wear a mask and her blood cells are low. What are the implications? I just want to know wha to expect and…
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"Pheach"~Welcome 2A woman's world re Ovarian Cancer~links U might find helpful 4 Mom~DX-Treatment-Ch
Hello “Pheach” Although you haven’t given us specifics about your mom’s age, symptoms, etc. you have told us that you are her sole caregiver. You’ve also wished all of us who are currently being treated for Ovarian Cancer all the best. That goes for those who are enjoying remission as well. And for that we thank you. We…
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Jury Duty ... really?
Hello, I am Wedgworth and this is my first time at this forum. I am very stressed out at getting a jury summons to begin in a couple of weeks. I have served on a jury (a criminal trial that lasted several weeks and three times on grand jury), so I have never shirked my "civic duty." Right now I don't have the energy for it…
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Cyst that doesn't go away
I had an ultra sound back in April of 2017 and there was noted a small hemoragic cyst on my left ovary. I was having some other medical issues, so I did have it checked out by my gyn and she said it was normal to have cysts and not to worry about it. I had a follow up scan recently for kidney cancer, and the cyst on the…
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PALB2, variant p.Y1183
I was diagnoised with stage III Ovarian cancer in October of 2013. Surgery and chemotherapy afterwards. In January of 2014, I was informed that I had the PALB2 gene mutaiton. This gene mutation partners with the BRCA 2 gene mutation and therby increases risk of breast, pancreatic, colon and ovarian cancers. My geneticist ,…
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CT not clean before chemo
Hello, all I underwent debulking surgery more than a month ago and was dx stage 3 high grade ovarian cancer. Before the chemo, the CT scan shows scattered peritoneal implants and 2 soft tissue nodules 1.7*1.4 cm and 2.2*1.6 cm, base on the close location to the cancer site and the fact that the blood marker is still…
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Additional Ovarian Resource
My wife Judy has Ovarian cancer, done chemo, surgery and more chemo. So far blood work has been good, CA=10, five months since last chemo infusion. Our daughter is a cancer researcher in La Jolla, CA and has been a lot of help, her company does not make drugs used for OC yet but the team there is extremely knowlegable. The…
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Stopping Treatment due to low blood counts
Hi all, I was all set to start Cycle 3 of Taxol/Carboplatin and was told we had to stop treatment until by White Counts and my Platlettes come back up to a higher level. Doctor advised this was common and other than increasing my exercise a bit there is not much that can be done. This is just a side effect of the drugs.…
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Can Ovarian Cancer spread to throat?
I am in the middle of the fourth out of six sycles of treatment for Stage 2 Ovarian Cancer. I am 43 years old and very thankful this was caught quite early. Surgery included a total hystorectomy and an appondectomy as there was a secondary canccerous carcinoid found as well. (Thank God for that because I am sure that would…
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Cold Cap Therapy: Or how to keep your hair through chemo
http://www.integrativeoncology-essentials.com/2013/02/keep-your-hair-with-scalp-cooling-cold-cap-therapy-during-chemotherapy/
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Just beginning testing - “things don't look normal”
In November of last year I had a miscarriage at 8 weeks pregnant. I had an ultrasound to confirm baby was gone and at that ultrasound they noted a shiny spot on right ovary and corpus luteum cyst on left ovary (normal). My Dr called and requested that I have another ultrasound in 8 weeks to check the right ovary to be sure…
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Any one here have Granulosa Cell Tumor of the Ovary?
I have GCT. It started as a "cyst" that ruptured, which in fact it was the tennis ball sized rt ovary filled with a tumor. After removal of the rt ovary and tube and upon reviewing the path report, my gyn. referred me to a gyn/onc. who 2 weeks later did a robotic total hysterectomy. The path report is back and GCT cells…
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Understanding CT Results - Ovarian Masses
My mother recently had a CT scan for abdominal pressure they thought was diverticulitis, and found ovarian masses. I've tried to search some of the medical terms included in the CT analysis to better understand as the 3-day wait for her CA-125 results/oncology appointment has been gut wrenching. This is for my own…
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Feeling doomed...again
Can a CT scan and a MRI miss ovarian cancer?
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Night sweats
I was already in menopause before my diagnosis (I am 52). I had occasional hot flashes. Now, one month after completing six rounds of chemo, I have horrible night sweats. They start about 3am, last about an hour. I have two fans, very little clothes on (!!) and sweat from my head to my toes. I can usually resume sleep…
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Do you ever stop worrying?
I was diagnosed with a rare form of ovarian cancer in 2010 (Granulosa Cell Tumor), underwent a hysterctomy, they removed the left ovary where the tumor had been and because they found cells in the abdominal wall was Stage 2B and underwent 3 rounds of BEP chemo. I never considered myself a "survivor" because I was told my…
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Endometrial cancer
In 2016 I was diagnosed with endometrial cancer. When I first started treatment of chemo and radiation, my CA125 number was "only" 10.8 and it was Stage 1A, I was told it was barely perceivable on the PET scan. They started treatment of chemo and radiation and after three months of being off of radiation, i went back for…
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Diet / Nutrition / Menu / Supplements ?
Hi There My mother's ovarian cancer came back after her hysterectomy 9 years ago as tumors on her abdominal walls and malignant ascites. We will be formulating a plan this week with the doctors of how to fight traditionally, but I'm looking for some non traditional methods as well. I know cancer FEEDS ON SUGAR so I want to…
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Please help me understand...
Hi everyone...I am desperate for answers and cannot seem to find any, so I'm hoping someone here can offer some insight. Someone very dear to me is battling ovarian cancer but from the very beginning when she was diagnosed, while she is perfectly comfortable discussing her condition, she has never shared details concerning…
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Side effects from carbo/taxol
Recovery from the 6th treatment of carbo/taxol has left me in bed for a week. Has anyone had this and how long did it take to recover?
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Input please on follow up care
My wife was diagnosed with Ovarian Cancer in July 2107. Did three rounds of chemo Paclitaxil + Taxol, complete historectomy surgery followed by three more rounds of chemo Cisplatin + Taxol. IV and IP ports used other than first infusion which was IV innto her arms. CT scan after surgery showed no masses and CA-125 numbers…
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PARP inhibitors
Haven't visited this site in a while.........but I need some input: Has anyone had any experience taking PARP inhibitors, specifically Zejula or Lynparza ? My CA125 has gone from 19 to 49 and then 425..........latest results from 2 days ago not in yet. After a CT scan (waiting for insurance authorization, don't you just…
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Need advice/help on whether to keep pushing for definitive diagnosis
Hi! Ive been experiencing issues with my CEA and no one can help me so I hope someone can here! My CEA was first checked 2 and 1/2 years ago with some problems I was presenting, the Dr thought I might have uterine or ovarian cancer so she checked it. The first time was 15, and over this time period it has fluctuated from…
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Oxaliplatin & xeloda side effects??? Starting next week
I have heard from my onc and read side effects online but I wanted to really hear from people who have experienced this- weight loss/gain?, how bad is the nausea?. I will be starting with 3 rounds of Oxaliplatin and then the 14 days of xeloda after each infusion. I have ovarian cancer, but my subtype is more rare so they…
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family history of cancer
hi im a 35 year old female, i had undergone three major sugeries for ovarian cyst rupture with in a period of seven years, i also had an ivf done but got unsuccessful, my husband divorced me as i could not concieve despite all efforts, i had been all ok since last surgery in 2013, though i had to take harmones on and off…
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FDA OKs BRCA1/BRCA2 direct-to-Consumer Test for BRCA mutations most often found N people of Ashkenaz
Just for information purposes - Among my many medical alerts comes this article that might be of interest to people of Ashkenazi Jewish descent. This seems extremely limited to a very few, but I know that we always wonder if we have a genetic disposition that caused us to have cancer. So I thought I would pass it along…
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Suepr~Info re IV vs IP chemo treatments & related info 4 Ovarian Cancer w/multiple references
Good afternoon ~ May I call you Sue? As for your question about IP vs IV, you will probably get a more current answer if you will start your OWN topic forum on this same link, for this reason. You have put your query on a link that first began in 2011. That was 7 years ago. Now the only one that is posting currently on…
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OC treatment for my dear Aunt
I'm writing to seek your advice for my dear Aunt (58 y/o Indian) who in February 2018 has been diagnosed with Ovarian Cancer. - CA-125 was measured at 54.4 U/ml - CECT of the Abdomen notes: "Large poorly enhancing and dense soft tissue mass in the left Adnexa and Ileac Fossa with surrounding diffuse fat stranding. Similar…
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Testing just started
Hello everyone. I have been suffering over the past year-and-a-half. I have a family history of ovarian cancer. On my mom's side out of five girls all but my mom and one aunt has passed away from uterine or ovarian cancer. The aunt that didn't pass away from a female cancer passed away from lung cancer. I am 42 years old.…