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Chemo stopped working for me.
After three years on Avastin, it stopped working for me. PET shows new spots on left lung. So, I have appointment on the 6th with my clinicial trial doctor to select a drug. I have a kras mutation so I'm told it will probably be some kind of inhibitor in pill form. I don't know. I'm a little down. Disappointed Avastin…
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It's been a long time.. 5 years clear!
I am posting this to hopefully give hope. Its been a long time since I have been on this site. On 9/20/12 (in the middle of a long divorce) I heard those words, you have ovarian cancer. To be more specific my diagnosis was Stage 3b Low Grade Papillary Serous Stromal Cell Ovarian Cancer. (I call it my big girl word). On…
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I know I know... but still worried about CA-125
Hey ladies. My CA-125 had been 117 before surgery then between 6-9 during and after treatment until today. I just noticed that my ca-125 came back with 14. That's double what my last number three months ago. Should I be worried? I know that doctors wil respond to an upward trend but 14 seems high to be considering my…
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Looking for Hope
So, I guess it started in March 2016. At age 50, my Mom started having awful periods, very painful and heavier than ever before. I work in OBGYN, so I thought this was just perimenopausal symptoms, as did my provider. So an ultrasound was done, everything is normal besides her uterus is slightly long and her left ovary…
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Newbie with a crazy question
I had MRI on back, found 3.5 cyst on ovary and kidney. Had US and CT. Tests concluded kidney cancer likely and healing currently from surgery. Cyst on ovary tests were disputing a bit US made ovary cyst sound run of the mill and ct made it sound like a problem. Gyno not concerned because I have pcos and fibroids. Periods,…
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(4 Sasha) Peritoneal & Ovarian Cancer helps 4 newbies-There R no crazy ?s but we think we'll go craz
Good morning Sasha, First of all I thank you for sharing information on your “about me” page. This helps me greatly when trying to see in what way you might be helped the most. Furthermore, I am referencing your original letter which you first posted here: https://csn.cancer.org/node/313625. You titled it “Newbie with a…
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Side effects after completing Taxol/Carbo treatment
Hi I've just joined the site this evening. I completed my 18 weeks of Taxol/Carbo treatment 5 weeks ago today. I did very well on the chemo with relatively few side effects apart from weight gain (arghhhh) and hair loss. Anyway about 2-3 weeks after completing the treatment i started to get aching muscles and painful…
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Ongoing fatigue after treatment is complete
Hi.....I am 7 months out from my last treatment and am in remission. My question concerns the great fatigue I still feel. Does that get better with more time?
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CA125 questions from my mom
Hi everyone I am new in this forum. Actually I am posting this for my mom. My mom got the ovarian cancer surgery done back to mar 2015. Before she had the surgery, her CA125 was never over the range. And in the next following two years, her CA125 stays under 35. But the test at the beginning of this month(dec 2017), the…
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DOXIL-My reply to "BethC"-Does anyone wish to share their Doxil treatment experience, side effects,
Well Good morning Beth ~ Actually I was up very late last night doing research for a dear wife whose husband has been diagnosed with Esophageal Cancer. So by the time I read your letter, I was, shall I say “brain dead”. Now Beth, I read your “about me” page and I see that you didn’t put down an age bracket. Now if I put on…
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Waiting is the hardest part
Hi there, I'm new here. First, Congratulations to everyone who has survived cancer, prayers for those who are going through it, and Love to all. We are WARRIORS! I survived Breast cancer in 2015. I now have a 6.6 cm mass on my left ovary that is undetermined. I have been really sick for over two months, and I have chronic…
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Bleeding 1year after hystorectomy
I am just shy of one year after my hysteroctomy. Yesterday I started bleeding....like a light period with some small clotting. I called the Dr office and he said to call on Monday to come in. Has anyone experienced this? Is it bad? I have been dealing with rising CA125 numbers, but nothing showed on scans. I had kidney…
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Testing for ovarian and cervical cancer.
Hello, My name is Tracy. I am new at this. I have some questions if anyone can help. I went to my Dr do to my whole body, from toes to head blowing up like a baloon. He said I was having an allergic reaction to something. Gave me meds, went home it went away. Except for my huge belly. I had gained 20 lbs in one month, 10…
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Small Cell Ovarian Cancer Hypercalcemic Type - Survivor
Hello out there. I'm new here... but I probably shouldn't be. I was diagnosed with small cell ovarian cancer hypercalcemic type stage 3c last year around this time (March timeframe). It is a very rare cancer with a very low survival rate: 10% chance to make it to 5 years. ----------------------------------------------My…
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Sad news
I have sad news to report. Our dear friend Susan Cats Merrick known here as scatsm passed away peacefully on Tuesday with her two children and family ar her side. I got to know Susan on this board and then we connected on Facebook. A very gracious lady who was kind, supportive and loving. It's so hard to explain to people…
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Testing for ovarian and cervical cancer.
Hello, My name is Tracy. I am new at this. I have some questions if anyone can help. I went to my Dr do to my whole body, from toes to head blowing up like a baloon. He said I was having an allergic reaction to something. Gave me meds, went home it went away. Except for my huge belly. I had gained 20 lbs in one month, 10…
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Another IP port question
I've had my port in about 6 or 7 weeks. It's located right above my right breast. Depending on how I move, I feel a little bit of soreness. Is this normal? Since this is my first port, I'm not sure what's normal or not. I'd appreciate any insight. Thanks in advance.
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Dysgerminoma
My teenage daughter was diagnosed with Dysgerminoma in October 2017. Looking for a Dr that specializes in Dysgerminoma. Does anyone have a recomendation?
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Anastrozole
Hi all! I was diagnosed with stage 3b ovarian cancer of the BST variety back in May of this year. It was determined to be estrogen receptor positive so my oncologist has me on anastrozole. The side effects are HORRIBLE....I mean life changing horrible...joint pain all the time, muscle pain, my hair is becoming wiry and/or…
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How can I feel this good, and still be really, really sick?
People are very kind, but sometimes they drive me nuts. I am constantly asked, "How do you feel?" I actually feel just fine, thank you very much. I get tired easily, but even that is a lot better since the last transfusion. And except for the day or two right after chemo, I hardly know I'm sick. Then they say, "Well, you…
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What's Next?
I'm new to this site... I was diagnosed with Stage 4 Ovarian Cancer in August. I've had 5 weekly chemo treatments so far, 4 to go before they check to see if it's doing anything. Other than a little constipation, loss of energy, and thinning hair, I'm feeling fine. Assuming that I may become really sick, I applied for and…
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Please help me
A few weeks back I went to the hosptial with bad tummy pain. A ct scan was done and it was noted my tummy looked like a battle field with the adhesions from operatons I had when I was a child and a hystorectomy done years ago from the adhesion issues. They said they saw a 4cm cyst on my right ovary. I went home. I have…
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clear cell survivors
Are any of you clear cell survivors? I am almost 2 years post chemo for clear cell and would like to talk to other survivors.
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Lynparza
Just heard this on the news, think it's in Canada. For very late Ovarian cancer, mostly for people who have had three or more meds fail them. Tumors seem to be shrinking in the woman profiled. She had over 50 tumors. This was on a CBS channel, so not the "gossip" channels. Best, Debrajo, Uterine board
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Ovarian cancer after having a complete hysterectomy 20 years ago
I was diagnosed with ovarian cancer stage 2 in September 2016. This was discovered during surgery for diverticulitis, to remove sigmoI'd colon. I had been treated for over a year with intravenous antibiotics through a pic line as well as six cat scans over this period. Well surgeon called in oncologist surgeon and cancer…
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CA 125 level -- Symptoms?? 21yrs old
Hi, I'm new to this web..I'm 21 yr old.I'm 'currently' not diagnosed with OC; however, I was hospitalized twice this year because of extreme abdominal pain (this has actually been going for 3-4years but i received little help with the excuse that "I'm too young") and I recently received news that my CA 125 level was 300 --…
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Worried I won't know what to do
I've been calling myself "caregiver" but so far I have been doing easy time. I always knew what to do. R - has been through 3 rounds of chemo, including a study "parp inhibitor" - going on 3 years. Her cancer presents as fluid build up in belly and around left lung so we have drained fluids 3 times - giving a day relief…
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Social Security Disability Insurance
I have Stage 4 Ovarian Cancer which was diagnosed in late August, 2017. I applied for SS disabilty insurance right away, and received approval within 2 weeks. The notice that I received says that although my disability has been approved, I will not start to receive benefits until 5 months after my diagnosis. This means…
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Lobulated Cystic Lesion of Left Ovary
Hi everyone. I have not been diagnosed with anything as of now. I have had extreme hip pain for a year. My doc said bursitis, so had a shot in the hip. Felt better a couple days, but then pain came back. Not to the extent it had been, but hard sleeping because of pain. Ordered MRI. Nothing wrong in hip, but they noticed a…
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Question about liver mets.
Dx OC 3C clear cell in may. Initial ca 125 = 118. Had complete hysterectomy, optimal debulking and power port placement. (No scan recommended and didn't know enough to ask). Started dose dense carbo / taxol. Ca125 went to 24 after first cycle, 7.4 after second and <5.5 (lowest the lab reads) after the third and remained…