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What's Next?
I'm new to this site... I was diagnosed with Stage 4 Ovarian Cancer in August. I've had 5 weekly chemo treatments so far, 4 to go before they check to see if it's doing anything. Other than a little constipation, loss of energy, and thinning hair, I'm feeling fine. Assuming that I may become really sick, I applied for and…
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Please help me
A few weeks back I went to the hosptial with bad tummy pain. A ct scan was done and it was noted my tummy looked like a battle field with the adhesions from operatons I had when I was a child and a hystorectomy done years ago from the adhesion issues. They said they saw a 4cm cyst on my right ovary. I went home. I have…
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clear cell survivors
Are any of you clear cell survivors? I am almost 2 years post chemo for clear cell and would like to talk to other survivors.
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Lynparza
Just heard this on the news, think it's in Canada. For very late Ovarian cancer, mostly for people who have had three or more meds fail them. Tumors seem to be shrinking in the woman profiled. She had over 50 tumors. This was on a CBS channel, so not the "gossip" channels. Best, Debrajo, Uterine board
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Ovarian cancer after having a complete hysterectomy 20 years ago
I was diagnosed with ovarian cancer stage 2 in September 2016. This was discovered during surgery for diverticulitis, to remove sigmoI'd colon. I had been treated for over a year with intravenous antibiotics through a pic line as well as six cat scans over this period. Well surgeon called in oncologist surgeon and cancer…
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CA 125 level -- Symptoms?? 21yrs old
Hi, I'm new to this web..I'm 21 yr old.I'm 'currently' not diagnosed with OC; however, I was hospitalized twice this year because of extreme abdominal pain (this has actually been going for 3-4years but i received little help with the excuse that "I'm too young") and I recently received news that my CA 125 level was 300 --…
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Worried I won't know what to do
I've been calling myself "caregiver" but so far I have been doing easy time. I always knew what to do. R - has been through 3 rounds of chemo, including a study "parp inhibitor" - going on 3 years. Her cancer presents as fluid build up in belly and around left lung so we have drained fluids 3 times - giving a day relief…
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Social Security Disability Insurance
I have Stage 4 Ovarian Cancer which was diagnosed in late August, 2017. I applied for SS disabilty insurance right away, and received approval within 2 weeks. The notice that I received says that although my disability has been approved, I will not start to receive benefits until 5 months after my diagnosis. This means…
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Lobulated Cystic Lesion of Left Ovary
Hi everyone. I have not been diagnosed with anything as of now. I have had extreme hip pain for a year. My doc said bursitis, so had a shot in the hip. Felt better a couple days, but then pain came back. Not to the extent it had been, but hard sleeping because of pain. Ordered MRI. Nothing wrong in hip, but they noticed a…
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Question about liver mets.
Dx OC 3C clear cell in may. Initial ca 125 = 118. Had complete hysterectomy, optimal debulking and power port placement. (No scan recommended and didn't know enough to ask). Started dose dense carbo / taxol. Ca125 went to 24 after first cycle, 7.4 after second and <5.5 (lowest the lab reads) after the third and remained…
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MRI or CT ?
Hi - My mother's doctor just ordered an abdominal CT scan as a follow up on some recurring symptoms from a number of years ago. I'm doing some research on her behalf and have found everyone on these boards to be very informative. My current question is what is the benefit of doing a CT scan over an MRI? I've read CT scans…
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Pap Smear
Hello. I had a Pap smear today and when she checked my cervix, she mentioned a red spot on my cervix. I am 26 years old, have two children and am married. I’m worried what the red spot could be. I don’t have any other symptoms, however she mentioned I had a lot of discharge but it is more normal for me. She said that she…
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Survival rates for Stage 4 OCCC
My wife was diagnosed with ovarian clear cell carcinoma in June after her hysterectomy and staging. At the time they said it was stage 3C because it spread to her pelvic lymph nodes and bowels. The CT scan before she started Carboplatin and Taxol showed that it spread to her liver, so I assume that meant it changed to…
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Ovrain or stomac cancer stage 4
My mother is survive with cancer from 2009, and she has now in stage 3 c or 4, doctor said we give the all type of 9 cheemo for this cancer and now cheemo is not working. in stomac fluid building up and doctors drain the fluid 2 or 3 bottle. After 5 or 6 days again the fluid build in stommac. Plsss give me the solution of…
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Should I see a doctor?
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Mets what is next?
I haven't posted for sometime. I was diagnosed satge 1C in 2012. Recurred in 2015. Recurred 2017 with mets to peritoneal area, abdomen, maybe liver, tumour in neck, 15mm. There are no solid tumours apart from neck so surgery is ruled out. Have had 5 doses of chemo but CA125 not moving from 200 mark. Worrying this is it for…
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Cancer Orthodoxy Takes Note of Alternative Treatments
http://anhinternational.org/2017/06/21/cancer-orthodoxy-takes-note-alternative-treatments/#.WUqvDnUCxmc.twitter Cancer Orthodoxy Takes Note of Alternative Treatments 21 June 2017 By Jerome Burne, investigative health journalist Here’s a compelling and emotional argument, published this month (June) for trying a…
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Persistent Granulosa Cell Cancer
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September is National Ovarian Cancer Awareness Month
In case you've forgotten, September is National Ovarian Cancer Awareness month. And TEAL is the color for Ovarian cancer. Loretta
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More Evidence that Sugar Feeds Cancer, but It's a Target for Treatment
https://corporate.dukehealth.org/news-listing/natural-molecule-appears-shut-cancer-cells’-energy-source Natural Molecule Appears to Shut Off Cancer Cells’ Energy Source Lab experiments show promise for an anti-fungal compound found in nature Published September 15, 2017 | Updated September 18, 2017 Contact Sarah…
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PRIMARY PERITONEAL CANCER
Hi, I am 33 years old and was recently diagnosed with stage 4 primary peritoneal cancer. I am looking for others who are in the same boat. I am BRCA1+. I do not mind talking to women who have or had ovarian cancer, however, there is a difference between the 2. It is discouraging to come on this website and not even see a…
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Eczema
Anyone have any break outs of their eczema after chemo? I am having the worst break out that I have ever had on my fingers (the little blister kind) and it's driving me crazy. Seems like the chemo is bringing up any past issues I have had with anything. If you did, what did you do? I've tried hydrocortisone, vinegar, even…
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What is physiological FDG uptake on a PEt scan?
I am reading my mother's report and there is this Physiological FDG uptake in her brain and lungs. I'm thinking this is not very good. ANy thoughts?
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CA 125 response to initial chemo
Hi everyone, new member. My wife was diagnosed with 3c clear cell ovarian cancer 6/1. Had hysterectomy and optimal debulking. Power port installed and began dose dense chemo (carbo & taxol). Pre dX ca 125 was 118. Pre chemo ca 125 was 55. Post cycle 1 chemo was 24 and post cycle 2 chemo was 7.4. Have completed cycle 3 but…
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Anyone experienced this?
Currently receiving chemo at CARTI (Arkansas) for stage 3c clear cell. Ca 125 pre chemo was 55. Then 24 after first treatment and 7.5 after second. The result after the third chemo was "<5.5". I was surprised, and disappointed, that l didn't receive a specific number as opposed to the range of less than 5.5. When I asked…
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Dysgerminoma
My daughter was scheduled to have a large fibroid removed but was in alot of pain so I called the doctor to up her surgery date. When he went in he found that it was a very rare malignant tumor 15 cm called dysgerminoma. She also had to have one ovary and tube removed, however she did not have any chemo/radiation or…
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14 months after Brain Mets and Whole Brain Radiation
My wife has now survived 14 months since diagnosis/treatment of brain mets from ovarian cancer. Last MRI still showed two small mets visible (down from an original 5 mets that were large enough to measure, she had numerous microscopic brain tumors also). Her CA-125 at original OVCA diagnosis was 369, then retreated to 4…
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Side effects and possible change of protocol
Hello everyone, I am new to CNS, but not new to ovarian cancer, as my name suggests. I have two questions: Does anyone else have swollen and tender breasts? They feel like they used to do before I had my period. I am on a regime of two weeks of Abraxane, one week of Abraxane and Avastin, and the fourth week off. My other…
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Allergic Rx to Taxol
I experienced an allergic reaction to Taxol during my first attempt at Chemo. I will now receive a substitute drug, I can't remember the name. Has anyone else received a substitute after being allergic to Taxol? My dr says I should not lose my hair with this new drug. He also says it will be just as effective, it just is…
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DCA (Sodium Dichloroacetate)
Recent medical trials have proven that Sodium Dichloroacetate (also known as DCA) can reactivate the mitochondria and restore the cell’s apoptosis function. The result is shrinkage of tumor size and mass, sometimes reversal of illness and remission. There are several financial reasons why DCA is not and never will be…