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Worried newbie just a few questions please
Good morning ..I just have a couple of questions...I first was on colon board thinking the pain was my colon abdominal area..well colonoscopy fine...the crampy lower back side pain has me think ovarian...here is my question ..in hospital I had CT of abdomen/pelvis with and without contrast and just showed small cyst on…
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pain in my groin and upper thigh
Has anyone else had pain in their groin and upper thighs. I was on 18 weeks of Taxol and had 6 Carboplatin treatments during that time. this is not neuropathy as I have that in my feet. I had a ultrasound for blood clots and didn’t have any. I finished my chemo 2 weeks ago and still suffer from the pain.
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CA 125 - range of levels
Hi I am new . A stage 4 OC and with 548 CA125 level after first chemo cycle with carbo/taxol . I am trying to find the highest levels known at the start of chemo . can someone please give me some pointer . Thanks a lot .
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"Cgsolomong"~Info 4U re Ovarian Cancer & hyperthermic intraperitoneal chemotherapy (HIPEC)
Hello “Cgsolomong” First of all, allow me to place your posting of February 27, 2018, in a new topic line all your own. You have responded to a line of questions in a post that is now 10 years old. It started back in 2008, and has been read by over 38,000 people. So if you continue to go back there, you may not find many…
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Keytruda
I was told I had stage 4, back in April 2016 ,and was given the impression that I had a couple of months. I knew he was wrong. He was so sure of himself that after I had surgery to remove uterus and ovaries and follow up, I left him and found a better doctor and clinic. This doctor started me on three months of chemo back…
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Bloating on Chemo?
I'm halfway through my chemo treatment (done 3 of 6), and I'm having terrible bloating. It feels like it did before my hysterectomy. It's all the time, and nothing I have tried is helping. I mentioned this to my doctor before the last chemo. He wasn't concerned and said that bloating on carbo/taxol is common. I'm still…
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Question about the nature of ovarian cancer recurrence
Hello all, My girlfriend was diagnosed with Stage III, high grade Ovarian cancer a few months ago and she has been doing better lately, going through chemo and her CA125 has been going down. I am crossing my fingers. I have lurked on this forum, and I have read quite a bit about the topic. I know more about ovarian cancer…
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Pre-Menopausal Salpingo-Oophorectomy
I am about a month away from my surgery. I'm having a prophylactic salpingo-oophorectomy and hysterectomy because I carry a gene mutation that increases my risk of ovarian cancer, and I just got through bilateral breast cancer. My breast cancer surgeon, gynecologic oncologist, and regular oncologist all agree that I should…
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Doxil/Avastin after recurrence
Hi everyone, I'm new to this board. I just started Doxil/Avastin for metastases to the retroperitoneal lymph nodes only five months after finishing carboplatin and Taxol. (I was only Stage IC at initial diagonsis but it is apparently quite aggressive.) I am interested in hearing how others have done with that regimen in…
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Denial or determined
I was diagnosed in October with stage 3c poorly differentiad high-grad mullerian adenocarcinoma. I had a complete hysterectomy and debulking and am about to take my 5th chemo treatment. I am being treated by an gynecological oncologist that I like very much. At first, I told her that I did not want a "prognosis" and went…
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CEA
Hello guys. Can CEA levels rise in ovarian cancer or does that indicate a metastasis? Thank you in advance for your answer.
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8 years ago I was sent home to die
8 years ago I was dianosed with ovarian caners stage 3c. I was told to sign up for hispice that I would not make it. God healed me I was not even able to finish my chemo I was suppose to recieve 6 treamtents, was only able to recieve 4. Today i feel good most of the time i have alot of acid reflux now from the chemo and i…
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Been a while
Hello everyone. I joined this board in June of 2010. I received a lot of support and met many wonderful ladies. I also have endured the pain of seeing most of them pass. The only name I recognize is Tethys41. I mostly post on Facebook on a couple of pages dedicated to ovarian cancer. I was diagnosed with Stage IIIc ovarian…
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PLease Help
Hi All, i am 36 years old my and pass decmeber is started periods thinking this is a normal cycle. beinning of the periods it was a dark blackish/ brownish ( never saw this color before) color for about 2-3 days and red as usual may little dark brown aswell with red. Then it stopped for 2 days then on 3rd day i started…
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A little lost
Hello. I have read this board and everyone seems very informed. I am looking for a few honest pointers. I am not the best at explaining myself so I will try to be quick and clear. I am trying to decide if looking into OC is a logical step for me. I havent Felt well for several months. I experience upset stomach and…
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Exhustive info women need 2 know re Gynecological cancers~
Hello to all my friends here on the OC link: So many of our friends come here with heavy hearts and worries wishing they could find a helpful source of information. We’ve every right to be concerned when all of a sudden we experience abrupt changes in our physical bodies that can’t be explained by the normal “aging”…
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Stage 3C solely based on Lymph Nodes
So, I guess it started in March 2016. At age 50, my Mom started having awful periods, very painful and heavier than ever before. I work in OBGYN, so I thought this was just peri-menopausal symptoms, as did my provider. So an ultrasound was done, everything is normal besides her uterus is slightly long and her left ovary…
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Fatigue after chemo treatment
It's been 6 weeks since I completed chemotherapy and I have fatigue now worse then I did before I began chemo. My Dr. has ordered me to excercise 15 min a day but, with the fatigue and the cold weather I have not been able to do much excercising (it's my crutch). Anyone else experienced fatigue after treatments were…
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Rising CA125, Negative Scans, Letrozole
Hi Ladies, I was treated with Dose Dense Carobplatin/Taxol for Stage II cancer in 2015. When I completed Chemo 9/15 my CA125 was 7 and stayed under 10 for almost 2 years. My CA125 then went to 28, then a month later 268 and now 2 weeks later 470. I have had 2 CT-PET Scans over the past 3 months and both were negative for…
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"Lessharp"-CA-125 & Ovarian Mass ? & some possible answers 4U-God Bless U on this journey!
[My note: “lessharp”—because of the extensive info links relative to your legitimate and understable concerns about an “Elevated CA-125 and Ovarian Mass”, I thought it best to answer you on a separate link. Others may want to answer you on your original posts which you wrote here: https://csn.cancer.org/node/314468] They…
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scary possibilities
Hello - I had a CT scan at an Emergency Room for a kidney stone. The ER doctor said yes, that the CT scan revealed the kidney stone. I go to the urologist who again views the CT scan and says that he also saw a cyst on the ovary (I am post-menopausal) and a spot on the lung. I am seeking follow-up with other specialists…
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What to expect at first oncology appt?
After 2 u/s 8 weeks apart showing something on ovaries my family Dr referred me to a gynecology oncologist. My first appt is this Thursday. What should I expect? I have another u/s in the AM and then meet with her in the afternoon. They did not give me any info on what to bring, info they would collect, etc... any tips,…
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Elevated CA125 and Ovarian Mass
I am a breast cancer survivor diagnosed in 2015 with grade 3 DCIS and Paget's. Did mastectomies and moved on. I am negative for genetic mutations of significance. Ended up in the emergency room from extraordinary pelvic pain and cramping on Jan5th. They did a CT and saw evidence of what they thought was a ruptured ovarian…
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acid reflux with chemo and after
anyone else have hard time with acid reflux
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Recurrent ovarian cancer survival rate
Hi, My mom had stage 3C ovarian cancer 5 years ago. We found out today her cancer is back. I am just wondering some things: 1. What are the survival rates for recurrent ovarian cancer? 2. Is it staged again, or is it always going to be stage 3c, since that is the stage they caught it at? 3. Are there immunotherapy drugs or…
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"Depressed when U C your bald head N the mirror--X 2 Give "yourself" a PEP TALK! Hair will grow back
Good morning ~ Didn’t have time to comment on this site yesterday. My Stage IV Peritoneal Carcinomatosis/Ovarian Cancer is ever with me, and I had to go for another PET/CT Scan yesterday. My thoughts here were prompted by AMoore16's post of December 6th. _________________________________________________________…
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Skipping rounds of chemotherapy
So, my girlfriend has late stage ovarian cancer and has 18 chemo treatments to go through. We're through 5. One week was skipped, and the reason given was 'a break'. This was only relayed to us after they failed to call her with an appointment and she proactively called them. Then again, after hearing nothing from them,…
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acid reflux with chemo and after
anyone here have bad acid reflux it has been 8 years since chemo and the acid is very bad
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New CA125 numbers UPDATE
Hello Ladies!!!!! My lovely wife Michele is doing terrific with what she calls her "Cleansing Treatments", you know, the usual chemo drug mix. She's no longer a total newbie to all this stuff, as she just had her 8th out of 18 treatments. As I said before, her initial CA125 was over 2,000 and after surgery it fell to 424…
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Remission
Remission, I just don't hear that word much anymore. I do believe it exists though. I experienced it from June 2016 to August 2017. I'm stage 4 because of the tumor on a lymph node. I'm having 3 rounds of chemo and planning on " remission" again. Best wishes to us all!