-
PARP inhibitors
Haven't visited this site in a while.........but I need some input: Has anyone had any experience taking PARP inhibitors, specifically Zejula or Lynparza ? My CA125 has gone from 19 to 49 and then 425..........latest results from 2 days ago not in yet. After a CT scan (waiting for insurance authorization, don't you just…
-
Need advice/help on whether to keep pushing for definitive diagnosis
Hi! Ive been experiencing issues with my CEA and no one can help me so I hope someone can here! My CEA was first checked 2 and 1/2 years ago with some problems I was presenting, the Dr thought I might have uterine or ovarian cancer so she checked it. The first time was 15, and over this time period it has fluctuated from…
-
Oxaliplatin & xeloda side effects??? Starting next week
I have heard from my onc and read side effects online but I wanted to really hear from people who have experienced this- weight loss/gain?, how bad is the nausea?. I will be starting with 3 rounds of Oxaliplatin and then the 14 days of xeloda after each infusion. I have ovarian cancer, but my subtype is more rare so they…
-
family history of cancer
hi im a 35 year old female, i had undergone three major sugeries for ovarian cyst rupture with in a period of seven years, i also had an ivf done but got unsuccessful, my husband divorced me as i could not concieve despite all efforts, i had been all ok since last surgery in 2013, though i had to take harmones on and off…
-
FDA OKs BRCA1/BRCA2 direct-to-Consumer Test for BRCA mutations most often found N people of Ashkenaz
Just for information purposes - Among my many medical alerts comes this article that might be of interest to people of Ashkenazi Jewish descent. This seems extremely limited to a very few, but I know that we always wonder if we have a genetic disposition that caused us to have cancer. So I thought I would pass it along…
-
Suepr~Info re IV vs IP chemo treatments & related info 4 Ovarian Cancer w/multiple references
Good afternoon ~ May I call you Sue? As for your question about IP vs IV, you will probably get a more current answer if you will start your OWN topic forum on this same link, for this reason. You have put your query on a link that first began in 2011. That was 7 years ago. Now the only one that is posting currently on…
-
OC treatment for my dear Aunt
I'm writing to seek your advice for my dear Aunt (58 y/o Indian) who in February 2018 has been diagnosed with Ovarian Cancer. - CA-125 was measured at 54.4 U/ml - CECT of the Abdomen notes: "Large poorly enhancing and dense soft tissue mass in the left Adnexa and Ileac Fossa with surrounding diffuse fat stranding. Similar…
-
Testing just started
Hello everyone. I have been suffering over the past year-and-a-half. I have a family history of ovarian cancer. On my mom's side out of five girls all but my mom and one aunt has passed away from uterine or ovarian cancer. The aunt that didn't pass away from a female cancer passed away from lung cancer. I am 42 years old.…
-
Worried newbie just a few questions please
Good morning ..I just have a couple of questions...I first was on colon board thinking the pain was my colon abdominal area..well colonoscopy fine...the crampy lower back side pain has me think ovarian...here is my question ..in hospital I had CT of abdomen/pelvis with and without contrast and just showed small cyst on…
-
pain in my groin and upper thigh
Has anyone else had pain in their groin and upper thighs. I was on 18 weeks of Taxol and had 6 Carboplatin treatments during that time. this is not neuropathy as I have that in my feet. I had a ultrasound for blood clots and didn’t have any. I finished my chemo 2 weeks ago and still suffer from the pain.
-
CA 125 - range of levels
Hi I am new . A stage 4 OC and with 548 CA125 level after first chemo cycle with carbo/taxol . I am trying to find the highest levels known at the start of chemo . can someone please give me some pointer . Thanks a lot .
-
"Cgsolomong"~Info 4U re Ovarian Cancer & hyperthermic intraperitoneal chemotherapy (HIPEC)
Hello “Cgsolomong” First of all, allow me to place your posting of February 27, 2018, in a new topic line all your own. You have responded to a line of questions in a post that is now 10 years old. It started back in 2008, and has been read by over 38,000 people. So if you continue to go back there, you may not find many…
-
Keytruda
I was told I had stage 4, back in April 2016 ,and was given the impression that I had a couple of months. I knew he was wrong. He was so sure of himself that after I had surgery to remove uterus and ovaries and follow up, I left him and found a better doctor and clinic. This doctor started me on three months of chemo back…
-
Bloating on Chemo?
I'm halfway through my chemo treatment (done 3 of 6), and I'm having terrible bloating. It feels like it did before my hysterectomy. It's all the time, and nothing I have tried is helping. I mentioned this to my doctor before the last chemo. He wasn't concerned and said that bloating on carbo/taxol is common. I'm still…
-
Question about the nature of ovarian cancer recurrence
Hello all, My girlfriend was diagnosed with Stage III, high grade Ovarian cancer a few months ago and she has been doing better lately, going through chemo and her CA125 has been going down. I am crossing my fingers. I have lurked on this forum, and I have read quite a bit about the topic. I know more about ovarian cancer…
-
Pre-Menopausal Salpingo-Oophorectomy
I am about a month away from my surgery. I'm having a prophylactic salpingo-oophorectomy and hysterectomy because I carry a gene mutation that increases my risk of ovarian cancer, and I just got through bilateral breast cancer. My breast cancer surgeon, gynecologic oncologist, and regular oncologist all agree that I should…
-
Doxil/Avastin after recurrence
Hi everyone, I'm new to this board. I just started Doxil/Avastin for metastases to the retroperitoneal lymph nodes only five months after finishing carboplatin and Taxol. (I was only Stage IC at initial diagonsis but it is apparently quite aggressive.) I am interested in hearing how others have done with that regimen in…
-
Denial or determined
I was diagnosed in October with stage 3c poorly differentiad high-grad mullerian adenocarcinoma. I had a complete hysterectomy and debulking and am about to take my 5th chemo treatment. I am being treated by an gynecological oncologist that I like very much. At first, I told her that I did not want a "prognosis" and went…
-
CEA
Hello guys. Can CEA levels rise in ovarian cancer or does that indicate a metastasis? Thank you in advance for your answer.
-
8 years ago I was sent home to die
8 years ago I was dianosed with ovarian caners stage 3c. I was told to sign up for hispice that I would not make it. God healed me I was not even able to finish my chemo I was suppose to recieve 6 treamtents, was only able to recieve 4. Today i feel good most of the time i have alot of acid reflux now from the chemo and i…
-
Been a while
Hello everyone. I joined this board in June of 2010. I received a lot of support and met many wonderful ladies. I also have endured the pain of seeing most of them pass. The only name I recognize is Tethys41. I mostly post on Facebook on a couple of pages dedicated to ovarian cancer. I was diagnosed with Stage IIIc ovarian…
-
PLease Help
Hi All, i am 36 years old my and pass decmeber is started periods thinking this is a normal cycle. beinning of the periods it was a dark blackish/ brownish ( never saw this color before) color for about 2-3 days and red as usual may little dark brown aswell with red. Then it stopped for 2 days then on 3rd day i started…
-
A little lost
Hello. I have read this board and everyone seems very informed. I am looking for a few honest pointers. I am not the best at explaining myself so I will try to be quick and clear. I am trying to decide if looking into OC is a logical step for me. I havent Felt well for several months. I experience upset stomach and…
-
Exhustive info women need 2 know re Gynecological cancers~
Hello to all my friends here on the OC link: So many of our friends come here with heavy hearts and worries wishing they could find a helpful source of information. We’ve every right to be concerned when all of a sudden we experience abrupt changes in our physical bodies that can’t be explained by the normal “aging”…
-
Stage 3C solely based on Lymph Nodes
So, I guess it started in March 2016. At age 50, my Mom started having awful periods, very painful and heavier than ever before. I work in OBGYN, so I thought this was just peri-menopausal symptoms, as did my provider. So an ultrasound was done, everything is normal besides her uterus is slightly long and her left ovary…
-
Fatigue after chemo treatment
It's been 6 weeks since I completed chemotherapy and I have fatigue now worse then I did before I began chemo. My Dr. has ordered me to excercise 15 min a day but, with the fatigue and the cold weather I have not been able to do much excercising (it's my crutch). Anyone else experienced fatigue after treatments were…
-
Rising CA125, Negative Scans, Letrozole
Hi Ladies, I was treated with Dose Dense Carobplatin/Taxol for Stage II cancer in 2015. When I completed Chemo 9/15 my CA125 was 7 and stayed under 10 for almost 2 years. My CA125 then went to 28, then a month later 268 and now 2 weeks later 470. I have had 2 CT-PET Scans over the past 3 months and both were negative for…
-
"Lessharp"-CA-125 & Ovarian Mass ? & some possible answers 4U-God Bless U on this journey!
[My note: “lessharp”—because of the extensive info links relative to your legitimate and understable concerns about an “Elevated CA-125 and Ovarian Mass”, I thought it best to answer you on a separate link. Others may want to answer you on your original posts which you wrote here: https://csn.cancer.org/node/314468] They…
-
scary possibilities
Hello - I had a CT scan at an Emergency Room for a kidney stone. The ER doctor said yes, that the CT scan revealed the kidney stone. I go to the urologist who again views the CT scan and says that he also saw a cyst on the ovary (I am post-menopausal) and a spot on the lung. I am seeking follow-up with other specialists…
-
What to expect at first oncology appt?
After 2 u/s 8 weeks apart showing something on ovaries my family Dr referred me to a gynecology oncologist. My first appt is this Thursday. What should I expect? I have another u/s in the AM and then meet with her in the afternoon. They did not give me any info on what to bring, info they would collect, etc... any tips,…