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Ovarian Cancer

Endometrioma turned malignant?
Does anyone have experience with an old ovarian endometrioma becoming malignant?
Young ladies dance for BRCA
I want to share these girls dance for those with BRAC mutation. This group consists of 18-6 graders and 4- 7th graders. https://m.youtube.com/watch?v=9EEcNCJ_Nis&feature=youtu.be
Posting pictures on discussion board and expressions gallery
For a while it was not obvious to me how to insert pictures into posts, so I thought I would share. If you know it already, please disregard. (1) Picture size needs to be under 150 pixels, larger pictures sometimes get re-formatted and rotated. Right click on your picture, edit size to under 150 pixels and save somewhere…
In Dire Need of Help Transporting My Mother from Florence, SC to Philadelphia, PA
Hello All, In January 2019, my mother was diagnosed with Ovarian Cancer after a large fibroid was surgically removed and biopsied. After surgery, she underwent chemotherapy treatment and radiation on one of the lymph nodes in her groin area. She completed this regiment on May 2nd. In early September 2019, another blood…
PARP inhibitors
This is my first post even though that I have been following this site for over six years. A quick history. In April of 2012, my wife was diagnosed at age 61 with PPC 3c. Later changed to ovarian. I think that was done for insurance billing purposes, and also it is easier to get the o.k. For certain tests to be done if the…
10 years since I was diagnosed and doing good
It has been 10 years since I was diagnosed with late stage ovarian cancer. I am doing great and give all the praise to God
Rising ca 125 2 years after frontline treatment.
My wife is 2 years past the end of her frontline treatment. Ca 125 at diagnosis was 1700. She was supposed to have surgery, but a day before the surgery, she was diagnosed with blood clot in her lung. So they started her on chemo. 3 months later she had surgery. Complete debulking (better than optimal, no visible cancer…
BRIP1 Gene Mutation
I have just gone through bilateral breast cancer surgery and in the process had the gene mutation testing completed. I discovered that I carry a BRIP1 gene mutation which research says puts me at a high risk for ovarian cancer. I met with a surgeon who said the newest research is putting the BRIP1 gene mutation 3rd in…
Mexico - Oasis of Hope - Tethys41 et al
I am interested in learning more about some of the Mexican clinics that are offering alternative treatment. There are a number that come up on the internet but, there are also caveats that some are excellent and some are not. Tethys41...it sounds like you get consultative services from the Oasis of Hope. Do you mind…
So afraid
Hi - I am going to my first gyn oncology visit. I was told the mass is large. I am terrified, and for some reason I am afraid to go to sleep at night. Can anyone help me?
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Power Port Issue
Hello, I'm here to talk about my mom. She is 1 year and 3 months since last day of chemo. Still NED as of June 2019. She gets CA 125's and port flushes very often. She has never had any issue with port flushes until today. They weren't getting a return at all. They pushed 3 mL? (I think) of Heparin and finally got a…
CA 125 elevated due to endometriosis? - how much?
Hi, This is my first post and I’d like to say that I am so sorry about all the heart-wrenching stories I read on these boards. My heart goes out for everyone who needs to be here. I am an extremely concerned husband of the love of my life, and I am scared beyond words about her. Our story briefly is that she has been…
Does talcum powder cause ovarian cancer?
Hi, I work in a grocery shop in California. One of my colleagues was diagnosed with ovarian cancer a few months back. The biopsy result had evidence of ovarian cancer due to the continuous use of talcum powder. She was fond of a particular brand of talcum powder. It's been 6 years she started using this. She decided to…
Free BRACA testing
UCSF this past week announced on the TV news. That it will be doing free BRACA testing for those of Jewish decent.
Vitamin C IV Infusion
Hi All, Looking for informatin regarding the Vitamin C IV Infusion. I am currently on my 2nd chemo treatment for Stage 3C OVCA. I saw a post that Nancy had put up concerning the Vitamim C. Can someone supply me with more information. As you all know, we all want to try and beat this monster and I can use all the help I can…
The Cosmic Study
does anyone have a loved one on a clinical trial called the Cosmic Study for Ovarian Cancer? My Mothwr is on it and not doing well at all. Severe neuropathy and stomach pain.
Carboplatin Hypersensitivity
I am being retreated for a reoccurence of Ovarian Cancer with Carboplatin single agent. I have previously had 8 carbo treatments for the first occurence( with taxol and Topotecan) and six treatments (carbo/taxol) for reoccurence after 2.5 years. My Dr. decided to do 6 treatments of Carbo alone after surgery and chemo for…
PET Scan, has anyone had one that was bright yellow and later found out that it was inflammation, no
Angela's PET scan showed bright yellow. Her doctor and California said the cancer was back. The doctor at Anderson said that inflammation can cause the PET scan to show bright yellow and said she had to have a biopsy to know for sure if the cancer is back. Does anyone know how common it is for a PET scan to show bright…
Doxil and Avastin side effects
Hello everyone. I just joined the CSN and would like hearing about your experiences with these drugs and their side effects. I have recurrent uterine cancer that is being treated as ovarian. I had a hysterectomy in 2015 followed by chemo drugs. Diagnosed again in 2017 and had Carboplatin/then Cisplaten with Gemzar. The…
Nervous survivor
I was diagnosed with overian cancer November 2018 Stage 4, low grade. I had debunking surgery and 18 weeks of chemo, carboplatin and Abraxine. I will take Letrozole for life. There was still overian cancer remaining in my left breast and a lymph node under my left arm. I had surgery May 1 to remove the lump and node. I was…
Freaking out....
Hi everyone..... I went in yesterday to check IUD placement and ended up having a vaginal US. My OBGYN found a 3cm mass on my left ovary, and an 8cm mass on my right. The right was his concern due to it's size and my family history of breast cancer (mom) I am BRCA negative, so is she. Surgery to remove is a definate but he…
Clinical trials
Could someone explain to me the different phases of clinical trials please. I think phase 1 means it was tested in a petry dish and worked. Phase 2 means it worked in mice. Phase 3: worked in humans????? Thanks
It's been a very long time
Hi all, My name is Brittany. I used to be BrittanyC on this board but I long forgot my password and the email I set the account up with no longer active! 2019 makes 10 years that I lost my mother to stage 4 ovarian cancer. She was 52. I was 21 when I lost my mother. I will be 32 in May. Ever since her passing back in…
Has anyone been on Avastin maintenance
Has it worked with the tumors? Are you still on it? Any side effects like low blood counts. Thanks for any information.
CURE MAGAZINE
I just received my copy of CURE MAGAZINE in the mail today(women's cancers special issue 03.19). This issue is dedicated to women's gynecological cancers. And in particular. articles on Ovarian and PPC. One of the articles is titled, Treating Ovarian cancer like a chronic disease. Subscription to CURE MAGAZINE is free to…
Looking for opinions or advice
Hello it's been a hard battle with my mom's cancer. She was diagnosed with stage 4 ovarian cancer, at the time of diagnosis she was also battling a bad infection. The infection almost claimed her life, her mother had the same experience 1 year earlier with pancreatic cancer but had passed due to the infection she had that…
Symptoms possibly indicative of ovarian cancer?
Hello all, I'm sorry I'm sure you get a lot of posts like this but I'm rather concerned. Since the beginning of March I have lost around 6kg (13lbs). I have progressively been getting other symptoms including: * Early satiety * A feeling of constant fullness and heaviness in my abdomen * Constipation (which is alleviated…
Update & Farewell from Loretta Marshall~stopping treatments~ It's time to WALK AWAY
February 23, 2019 Update &Farewell letter to all my friends here on the CSN site Hello to all dear friends dealing with a cancer diagnosis- As you can see by the date on the bottom of this article by MAYO Clinic – February 20, 2006, I have kept this on file since then. And rightly so, since my husband, William Marshall,…
Olaparib and Cediranib Maleate
These two drugs are typically used to treat ovarian cancers, but with my endometrial serous cancer recurrence, these two drugs are possibilities for next treatment. Has anyone had first hand experience with side effects with either drug? The published side effects sound like torture. Any actual information would be…

Ovarian Cancer

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