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So afraid
Hi - I am going to my first gyn oncology visit. I was told the mass is large. I am terrified, and for some reason I am afraid to go to sleep at night. Can anyone help me?
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pa
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Power Port Issue
Hello, I'm here to talk about my mom. She is 1 year and 3 months since last day of chemo. Still NED as of June 2019. She gets CA 125's and port flushes very often. She has never had any issue with port flushes until today. They weren't getting a return at all. They pushed 3 mL? (I think) of Heparin and finally got a…
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CA 125 elevated due to endometriosis? - how much?
Hi, This is my first post and I’d like to say that I am so sorry about all the heart-wrenching stories I read on these boards. My heart goes out for everyone who needs to be here. I am an extremely concerned husband of the love of my life, and I am scared beyond words about her. Our story briefly is that she has been…
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Does talcum powder cause ovarian cancer?
Hi, I work in a grocery shop in California. One of my colleagues was diagnosed with ovarian cancer a few months back. The biopsy result had evidence of ovarian cancer due to the continuous use of talcum powder. She was fond of a particular brand of talcum powder. It's been 6 years she started using this. She decided to…
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Free BRACA testing
UCSF this past week announced on the TV news. That it will be doing free BRACA testing for those of Jewish decent.
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Vitamin C IV Infusion
Hi All, Looking for informatin regarding the Vitamin C IV Infusion. I am currently on my 2nd chemo treatment for Stage 3C OVCA. I saw a post that Nancy had put up concerning the Vitamim C. Can someone supply me with more information. As you all know, we all want to try and beat this monster and I can use all the help I can…
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The Cosmic Study
does anyone have a loved one on a clinical trial called the Cosmic Study for Ovarian Cancer? My Mothwr is on it and not doing well at all. Severe neuropathy and stomach pain.
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Carboplatin Hypersensitivity
I am being retreated for a reoccurence of Ovarian Cancer with Carboplatin single agent. I have previously had 8 carbo treatments for the first occurence( with taxol and Topotecan) and six treatments (carbo/taxol) for reoccurence after 2.5 years. My Dr. decided to do 6 treatments of Carbo alone after surgery and chemo for…
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PET Scan, has anyone had one that was bright yellow and later found out that it was inflammation, no
Angela's PET scan showed bright yellow. Her doctor and California said the cancer was back. The doctor at Anderson said that inflammation can cause the PET scan to show bright yellow and said she had to have a biopsy to know for sure if the cancer is back. Does anyone know how common it is for a PET scan to show bright…
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Doxil and Avastin side effects
Hello everyone. I just joined the CSN and would like hearing about your experiences with these drugs and their side effects. I have recurrent uterine cancer that is being treated as ovarian. I had a hysterectomy in 2015 followed by chemo drugs. Diagnosed again in 2017 and had Carboplatin/then Cisplaten with Gemzar. The…
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Nervous survivor
I was diagnosed with overian cancer November 2018 Stage 4, low grade. I had debunking surgery and 18 weeks of chemo, carboplatin and Abraxine. I will take Letrozole for life. There was still overian cancer remaining in my left breast and a lymph node under my left arm. I had surgery May 1 to remove the lump and node. I was…
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Freaking out....
Hi everyone..... I went in yesterday to check IUD placement and ended up having a vaginal US. My OBGYN found a 3cm mass on my left ovary, and an 8cm mass on my right. The right was his concern due to it's size and my family history of breast cancer (mom) I am BRCA negative, so is she. Surgery to remove is a definate but he…
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Clinical trials
Could someone explain to me the different phases of clinical trials please. I think phase 1 means it was tested in a petry dish and worked. Phase 2 means it worked in mice. Phase 3: worked in humans????? Thanks
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It's been a very long time
Hi all, My name is Brittany. I used to be BrittanyC on this board but I long forgot my password and the email I set the account up with no longer active! 2019 makes 10 years that I lost my mother to stage 4 ovarian cancer. She was 52. I was 21 when I lost my mother. I will be 32 in May. Ever since her passing back in…
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Has anyone been on Avastin maintenance
Has it worked with the tumors? Are you still on it? Any side effects like low blood counts. Thanks for any information.
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CURE MAGAZINE
I just received my copy of CURE MAGAZINE in the mail today(women's cancers special issue 03.19). This issue is dedicated to women's gynecological cancers. And in particular. articles on Ovarian and PPC. One of the articles is titled, Treating Ovarian cancer like a chronic disease. Subscription to CURE MAGAZINE is free to…
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Looking for opinions or advice
Hello it's been a hard battle with my mom's cancer. She was diagnosed with stage 4 ovarian cancer, at the time of diagnosis she was also battling a bad infection. The infection almost claimed her life, her mother had the same experience 1 year earlier with pancreatic cancer but had passed due to the infection she had that…
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Symptoms possibly indicative of ovarian cancer?
Hello all, I'm sorry I'm sure you get a lot of posts like this but I'm rather concerned. Since the beginning of March I have lost around 6kg (13lbs). I have progressively been getting other symptoms including: * Early satiety * A feeling of constant fullness and heaviness in my abdomen * Constipation (which is alleviated…
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Update & Farewell from Loretta Marshall~stopping treatments~ It's time to WALK AWAY
February 23, 2019 Update &Farewell letter to all my friends here on the CSN site Hello to all dear friends dealing with a cancer diagnosis- As you can see by the date on the bottom of this article by MAYO Clinic – February 20, 2006, I have kept this on file since then. And rightly so, since my husband, William Marshall,…
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Olaparib and Cediranib Maleate
These two drugs are typically used to treat ovarian cancers, but with my endometrial serous cancer recurrence, these two drugs are possibilities for next treatment. Has anyone had first hand experience with side effects with either drug? The published side effects sound like torture. Any actual information would be…
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Seeking Advice-14cm cyst on left ovary
Hi Ladies, I'm 46 and I found out last week I have a 14cm cyst on my left ovary. This was found through ultrasounds my doctor ordered due to my lower abdomen sticking out while lying down. One was pelvic and other transvaginal. Ob doctor gave me the CA125, did cervical biopsies, and biopsied a cervical polyp. She said the…
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Lisa1984~Ovarian Cancer~Exhaustive reputable links~ALL U ever need 2 know about OC~
My Dear Lisa~ May I say “welcome” to this Ovarian Cancer forum, although honestly I know that both you and I wish we had never met. Moreover, we wish we had never heard the word “cancer”. However, “You gotta dance with the one what brung you!” This is an old country saying, (no aspersions to the wonderful country relatives…
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HU5F9-GR with Avelumab clinical trial
Hello, I'm a new member and only just found this forum. My mom has been battling a second round of Ovarian since 2016 (was previously 10 years in remission). After running through all the platin-based chemos, her cancer is now considered platinum resistant. Doctor is out of options other than putting her on Tamoxifen, but…
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Tessy3~Your ltr 01-19-19~since orig post was "lost", here is reprint-Valuable references re Ovarian
HERE IS "Tessy3" letter and my reply. I'm very upset about all the valuable information that is missing. Since I keep a record of the posting as well as my reply in my WORD file, I've decided to reprint this. I gave Tessy so many valuable references to help her understand all about Ovarian Cancer. So just in case she…
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Lynparza vs chemo
Greetings! I am new to this panel as a contributor, but have been reading and finding much needed information, confirmation and comfort from many of the discussions over the past year. Now I am at another crossroads, and I would love to hear from others if they have faced or have knowledge to share on this topic. I have…
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"SandiDogLover"~Welcome~Most ladies Here R DX w/some type of OC~a fewer# have Peritoneal Cancer also
Good morning Sandi ~ You came on late last night, consequently I missed reading your post. I was watching the World Series baseball game. But I’m glad I didn’t miss it altogether. I will say that the forum on which you wrote mainly dealt with Lynparza vs. chemo as written about by “VajraWoman8”. There were 16 replies…
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symptoms for recurrence
Hello, All, I just finished 6 cycles of chemo treatment and is currently in NED status. I wonder what types of symptoms to watch out for OC recurrence as I do not like to be CT scanned every 3 months (I plan to discuss with my doctor to opt out for CT scans), I'd rather watch symptoms and blood marker. I do not know if…
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Mom just got diagnosed
My mom just got diagnosed with cancer. She is recieving treatments at vanderbilt soon. Any tips 9r tricks i can help her with.
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Growth found outside the peritoneal cavity
Hi I'm Cindy Exactly a year ago I had surgery to remove an ovarian tumor the size of a small watermelon. Of course it was Stage lllc so I had debridement and omentum removal. I went through 10 sessions of chemo was proclaimed in remission in March now yesterday which is exactly one year since the surgery I had a CT scan…