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Ovarian Cancer

Doctors are brushing me off
Anyone else have doctors brush you off for months? I'm not diagnosed quite yet, but also have the signs and swollen lymph nodes in groin and neck. As of lately, my lower back and hip are sore to touch, so now I'm extra worried that help is too late at this point since my bones hurt. It started as back pain after stopping…
My mom has been diagnosed with ovarian cancer..seeking advice
Hi everyone, I hope it's ok to post here. Although I haven't been diagnosed, my mother has. We have just found out this week so this is relatively new for all of us. I am an only child so I will be one of the main caregivers for my mom and supports as she goes through this process. She just tured 64 last month. For the…
Olaparib & cediranib (PARP trial)
I'm in the trial at NIH. Starting April 15th. Anyone else doing this trial?
Intraperitoneal chemotherapy vs. IV chemotherapy
Hi everyone, I was just wondering if anyone has gone thru Intraperitoneal chemo and how that worked. I've been on IV chemo for the last 5 years and I don't know, they just can't seem to find the right chemo combination. I understand that IP chemo might work a little better but I also heard that it's a rough treatment. Just…
New/need some guidance
Hi everyone. I am new here and have some questions. I have been undergoing infertility treatment. I had two failed IUIs and was about to start an IVF cycle when my doctor found a 2cm cyst and a polyp during transvaginal ultrasound so we were waiting for them to go away before starting the IVF. My estrogen was also very…
FYI~Novel test to help detect precancerous changes taking place in the Fallopian tubes but not yet "
Good afternoon ladies: Normally I have one person in mind when trying to find references to help them, when it is something I don’t have personal knowledge of or experience with. Much of my e-mail comes in the form of medical alerts relative to Ovarian or Esophageal Cancer because my husband is a 15-yr. survivor of…
Elevated CA72-4 tumor marker
About a month ago, my wife had a panel of serum tumor markers tested in Europe. The reason why she did it is to serve as a "negative" control for her mother (who is currently a 3-year cancer survivor). However, we unexpectedly found that my wife's CA72-4 level was elevated to 24 and to 16U/ml (analysis done in different…
Teflon and Scotchguard toxic
Toxins contribute to cancer: https://www.cnbc.com/2018/07/09/how-the-epa-and-the-pentagon-downplayed-a-growing-toxic-threat.html?__source=twitter%7Cmain How the EPA and the Pentagon downplayed a growing toxic threat Abrahm Lustgarten Published 3:47 PM ET Mon, 9 July 2018 ProPublica rzoze19 | iStock | Getty Images Teflon…
Estrogen Fed Tumors
anyone taking Letrozole? I want to know about your experiencE.
Ovarian / Mixed Mullerian Cancer
Hello, I have a relative who was recently diagnosed with Mixed Mullerian Cancer Stage IV. I understand this type of cancer is rare and I have attempted to do my own research and I haven't come up with much. I would appreciate if you or anyone you know has personally experienced this type of cancer, could give any feedback…
I'm in love with Ned
Finished chemo about 8 weeks ago, likely reccurance
Hi, In December I was diagnosed with stage 3 B cancer. I had 6 months of chemo and then had 3 weeks of shingles. I had debulking surgery in March. I started to have some gastro symptoms a couple of weeks ago which increased with distension and pain. I did get 1.7 litres of fluid drained this morning. I don't have my latest…
Topotecan or Docetaxel
My oncologist has offered me topotecan or docetaxel weekly if chemotherapy is selected. I wonder if any of you have had either of these chemo or havd an opinion as to which would be best. I am 3 years since ovarian diagnosis. I am a 79 year old woman with no previous health problem. I had carboplatin/taxol, with emergency…
Ovarian Cancer Patient State 3C with Bowel Obstruction
Hello Everyone, I am new to this forum and I wanted to reach out in hopes that someone has had a similar experience. My mom was diagnosed with a bowel obstruction in late July of this year. She had an NG tube placed and she was NPO (nothing by mouth) for 5 days. On the sixth day, she was discharged from the hospital and…
Leg cramps & Chemo
Hello Everyone, I've had 12 weekly rounds of chemo since April (Carboplatin once every three weeks, and Paclitaxel every week). I've lost my hair and recently gotten low blood counts, but the symptom that's plaguing me a bit is increased tightness in my calf and other leg muscles. I have been able to take nice long walks…
Dealing with loss
My 55 year old mother passed away after a 20month battle on July 15. I am 5 and a half months pregnant with her first grandchild. I feel like Im in a fog. The 2 week hospice experience, the week of funeral planning.. I’m still waiting to wake up. I keep thinking is there anything different we could have done? What a…
Gastric Metaplasia with Ovarian Pain
Hi. First time on a message board ever but I have so many questions and would like to stay off of Google or worry the family. I am a 39 year old mother of 6 and pretty healthy individual until recently. I began having stomach troubles 4 weeks ago along with severe breathing difficulties. I couldn't dig deep enough for a…
Carcinosarcoma on ovary
My 69 year old "healthy" wife had total radical hysterectomy + appendix 2 weeks ago; "carcinosarcoma" ; going tomorrow to gynocolgical oncologist surgeon to learn "staging" opinion. All comments welcomed.
Recovery time from laparoscopic abdominal surgery?
Backstory (if that helps you give me feedback/insight). I was pregnant when they noticed the cyst - it ended up growing to 15cm by the time of my c-section. The oncologist came in and removed the cyst, ovary and fallopian tube (due to the size and location of the cyst). I misplaced my paper with the pathology results (it's…
JP Drain Log Sheet, printable:
http://bfflco.com/wp-content/uploads/2012/03/bfflco_drain_log.pdf
diagnostic method accuracy
hi all, I am new and I have a question regarding whether oc can be accurate diagnosed and how. I have some symptoms looking like ovarian cancer. but my mom said I may have started premenopause. I am 44. but I checked internet and feel that I fdon' have the most common symptoms at all for premenopause. I had 2 periods in…
Initial OC Diagnosis
I have been complaining of ever worsening pelvic pain/gas/bloating/changes in bowel movements for over 2 years. Finally had ultrasound done that showed a tumor roughly 8cm on right ovary. My doctor called and during our 2 minute conversation said "it's gotta come out! do the bloodwork (CA-125), and CT scan I ordered, and…
And you thought your doctor was insensitive?
The story below, copied and pasted from my local newspaper's online site, made my blood boil. Not only is her "bedside manner" the worst I have ever heard of, but this physician is horribly, and perhaps dangerously arrogant, as well. I seriously don't see that conversation ever taking place.... "Thanks, doc. I appreciate…
Options for 3 suspect cysts
Hello, first post here. I (40 year old, married, no children) have been seeing a gynecologic oncologist for the past month after several suspect cysts were noted on CT and then U/S when I went to the ER with abdominal pain and some pelvic pain. The first U/S in the ER showed 2 cysts - a complex multi-septated cyst 2.5 x 4…
Stage 3a ovarian , cervical and uterus cancer
Hello , Im 33 from australia perth and have recently had a full hysterectomy and 20cm. tumor removed. I have been diagnosed with stage 3a endo cancer and start my first cycle out of 7 of chemo on the 17th of April 2018 scared would be a understatement !! I am looking for friends and any good advice i could take with me on…
I miss my old life
Hi, I'm new to this and I really need to know if anyone has figured out how to be ok with your new/after cancer life. I was diagnosed at 45 with stage 3C ovarian cancer. Surgery, chemo and we thought I was in the clear. Six months later it was back. More chemo, clears up and back in 6 months. I have had 3 rounds of chemo…
Power port discomfort and skin reaction
Hello everyone. I am new to this forum. I have a question about the power port and some discomfort around it. It was placed in me about a month ago and had 4 chemos done through it alreday. The skin around it became very itchy, itrritated and red. I asked my chemo nurse and all she said to wash it and put some odorless…
What difference does 3 weeks make?
Hi everyone, I apologize in advance for this bring so long. I am 41 years old and have been feeling unwell for months (well a couple years but seemed rheumatological). First off I have small % Ashkenazi Jewish decent and am of Eastern European decent. I have the BRCA1 SNP rs16942 which I know puts me at higher risk for…
CAR-T or TCR-T for late stage ovarian cancer
My sister was diagnosed of ovarian cancer IIIC in Jan 2014 and had a successful operation followed by platinum based chemo treatments. However, the cancer came back 1.5 years later and becomes platinum resistant after two relapses. Her current health status won't allow for further chemo treatment and latest CA125 counts…
Fever after chemo
my mom has stage 4 ovarian cancer. She had her first round of chemo on Monday. Today she was running a 100.5 fever. She’s just been admitted into the hospital. My sister says everyone that goes into her room has to wear a mask and her blood cells are low. What are the implications? I just want to know wha to expect and…

Ovarian Cancer

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