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Kidney Cancer

NED @ 1.5 years and new lessons in scanxiety
Hi All, Just wanted to pop in and report some good news on my end. Little recap: Partial Nx 7.2020 @ 34 years old, Stage1b 4.5cm. As part of my surveillance we do a Chest CT and abdominal MRI every 6 months... will graduate to once every year once I Gd willing hit the 2 year mark of NED. Had my Chest CT 2.7.22 early AM and…
Scans
Just had my scans and met with doctor everything was normal and one more time going three month for scans then he’s going to move them to 6 month scans hip hip hooray
NED 3 years out!
Hey all, this forum really helped me when I was going through my surgery and recovery. I wanted to share some good news! 3 years out an I am still NED! My doc is switching me from 6 month ultrasounds/xray to annual ultrasound/xray!
Remaining kidney
Remaining kidney “Developing mild complexity Within an exophytic 11mm left renal upper pole lesion and within the lobulated approximately 2 by 1.3 cm left renal interpolar lesion” please advise scared and very worried. 3/2021 right kidney radical neph by robotic chest pelvis abdomen ct scan clear.
Gas trapped under ribs after partial
Hi all! I just discovered this site and forum and I’m grateful. I just had a robotic laparoscopic R partial nephrectomy 9 days ago. 6 incisions and the healing process has been slower than expected. My pain is much better than it was last week, but I’m still having some major discomfort. I have C02 still trapped in my…
4 years next month NED and now....
Had my annual CT right after Thanksgiving. Stage 1, Grade 2 measured at 2 cm. Di Vinci Right Kidney CCRCC. Still NED thankfully, BUT they found a highly suspicious and pretty much unviewable lesion in my liver right under my rib cage in a very difficult place. Ultrasound couldn't get to it and subsequent MRI Oncologist…
Next week scans
Well next week scan feeling nervous almost at my two year mark wish me luck
News from biopsies
Hello everyone. Just an update on the thyroid and lung biopsies. There is cancer in my thyroid it is a primary papillary thyroid cancer. The lung biopsy was inconclusive. So time to join another discussion board? I meet with a surgeon on Monday to find out about surgery. Thanks for all of your support.
CT? Ultrasound? MRI?
Hi all! It’s been a bit, some of you may remember me as the sonographer that found her own cancer back in august. I had A partial nephrectomy and the margins came back clear. But now I’m having so much anxiety that the cancer has come back or metastasized. I do still scan myself and see nothing but ultrasound can miss…
Question on findings
I had my third set of CT/MRI's post neph. I don't have my doctors appointment for another two weeks to discuss but the results show up on my chart. The results of my CT show "Lungs: The lungs are clear without pulmonary nodules or masses. Micronodules mean diameter less than 6 mm in only 1 to 2 mm in size are stable. No…
NED after 7 years
Hello everyone! Well, the new board had me staring at it like a ram at a new gate :-) But finally figured out how to create a new topic :-) I’ve posted some time ago that my husband had a clear chest x-ray 7 years after Stage 1 surgery. Couple of weeks ago he also had a abdominal USG, finally! I’m happy to report all…
Hi, all - new here/beginning Checkmate 914 shortly
Hello, ali- I'm glad to see this forum exists. I learned about my cancer when I peed a whole lot of blood in early January. There had been clues for about 10 months but the doctors chalked it up to depression (covid, partial retirement). Anyway, the scan they took while I was in the ER revealed a 10cm growth on the kidney…
Back pain post nephrectomy, not prior
I had a nephrectomy of my right kidney. They couldn't do the surgery laparoscopically, as I have a lot of mesh & scar tissue in my stomach, so they cut me from my right front to back & separated my ribs. I am having terrible back pain which shots around my side. The surgeon said it can't be from the surgery, but I didn't…
Post-nephrectomy, esp. for those who have been there
A major concern I have about a pending radical nephrectomy (R kidney) is comfort and safety when I get home after the surgery. I’m 70 and live alone now. If the procedure is laparo, I anticipate an overnight stay in the hospital and then home. From your experience(s), do you think I’d be okay on my own? I’m thinking,…
begonnen aan study chackmate 914
tody had the results of the scan and everyting was fine, so i can officily paticipate in the study checkmate 914 .i have thuoght about it for a long time because of the side effects, in melanoma ( skin cancer). it seens to work ,and even if the cancer returns you can still use imuum therapy get it then seens to work . i…
Post-nephrectomy Fever
Greetings, I had my partial nephrectomy surgery last Tuesday and I was discharged from the hospital on Wednesday evening. The first night home I developed a fever of about 101F. I called my surgery’s nurse hotline where they advised me to go to the ER if the fever reaches 101.5F. The fever has been coming and going. During…
Frustrated with the New System
I’ve been trying for two days to post a reply to Bill’s 2cm post because my situation was similar. Nothing gets posted. I get a message that my comment will post after the moderator approves it. But the comment sits there in limbo. Bill, for a mass your size, CT may or may not resolve what it is. My initial lesion was…
Kidney cancer
Husband just diagnosed with kidney cancer. Doctor recommends removal of left kidney. Please anyone who has lived with one kidney please email us. He needs some encouragement. Thanks
🎶 "It's the most scanxious time of the year!" 🎶 (three years post-surgery)
Last week I had my scans. CT of my chest went quickly, MRI of the abdomen/pelvis felt quick (because I think I fell asleep in the tube). Everything went smoothly... until it didn't. My doctor is always great about sending test results right away so I don't stress out. True to form, he sent me the MRI results within a…
Biopsy or not. Burn or freeze?
Hello, I am 42 years old and accidently found a lession on my left kidney. I have been refferred to a Urologist to resolve (kidney specialist) I have spoke with 2 different urologist. They both say its in a tough location to cut out. The first said that it looks like renal cell carcinoma 17mm and recommends that we biopsy…
Uncle NED, you came back! I've missed you
Hello everyone, I just wanted to update the world. Quick recap, 2015 two small tumors removed from my right kidney, both were chromophobe 2.2cm and 8mm. In 2018 there was a 5mm mass in my left kidney. 2019 it grew to 8mm and then in 2020 it hit puberty and grew to 2.2cm. This time it was cystic clear cell. In October of…
Back and leg pain after radical nephrectomy
I'm 3 months post right radical nephrectomy and I'm having some severe back and leg pain, can anyone please tell me if this is normal?
PET Scan found Soft Glow in Liver (Golf Ball Size)
I am asking for my mother. Are the glows on the PET Scan always cancer? They want to follow up with an MRI to get a better picture and if that's not clear a biopsy. They found one soft glowing golf ball size in her liver. I thought PET Scans were the best. (Background)She started with Kidney cancer years ago and had one…
Clear cell renal cell
June 2017 I had a 1.2cm grade 1 stage t1a clear cell tumor removed by laposcopically. I have had clean follow ups through Sept. 2020. My urologist told me it’s never coming back. Just looking for some opinions. does anyone know about recurrence rates about tumors this size? thanks
Happy holiday
Have a Happy holiday I hope for all of you Ned for next year enjoy your time with your family’s
A question for the gents
I guess a catheter will be a necessary part of the surgery. I’ve looked at info about the process, but nothing has told me how it feels (insertion, wearing/using, removal?). Painful at all, or just uncomfortable? Also, how long was your catheter in place after the surgery? I can’t be assured if the surgery will be lap. or…
Survivorship Program Appointment
I had my first appointment with the nurse practitioner at Stanford’s Survivorship Program this morning. It went quite well. It took an hour, though a part of that was just introducing myself and her asking questions to get to know me. She asked what I wanted to get out of the appointment. I explained that in addition to…
This new board
Takes some getting use to trying to figure it out
12mm clear cell kidney tumor
June 2017 had surgery to remove 12mm clear cell kidney tumor, grade 1 stage pt1a, with no vascular invasion. been consistent with follow ups. September 2020 had a ct which came back clear. Does anyone know odds of recurrence? urologist told me very unlikely to come back, explained to me that it’s somewhat like a skin…
Still NED one year Post Op for 3x3 Stage T1a Grade 3 Kidney Cancer
After having bi-monthly USG with Blood Tests and CXR and then a PET-CT scan in June with another USG+CXR and Blood Tests in November, every test was negative. Hope and pray it stays the same God Willing.

Kidney Cancer

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