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3 Years post op, severe neuropathy, intense pain. Anyone else?
Hi there. I'm new here, but have a question. I'm 26 years old and am 3 years post op. I had a full right nephrectomy after being diagnosed with Renal Cell Carcinoma ( kidney cancer ). I am still in constant pain. The doctors say that it's because all of the nerves in my abdomen were cut during surgery, and in hopes of…
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To the Caregivers
To all the Caregivers on this site.. I wish you all the strength, courage, and fight.. You help your loved one with their Cancer Even though there is not always an answer... Your comments and questions help us all You are all Angels with mercy and yet have gaul.. You help more here than just that one you love.. For those…
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Simple Question
Has anyone on here or they know developed metastasis from a sub 3cm grade 2 tumor? ? thank you Paul
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Awaiting neph surgery... thank you!
I just wanted to say thank you to all who took the time to share and reply to those in need on this forum. I have gathered much support since diagnosis, and the feedback and positivity is truly inspiring! Lots of calming the mind through meditation, exercise and eating healthy is my regime; and I now feel even better after…
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I’m back, sadly.
So, I just got my results back from an ultrasound largest cyst at a whopping 11 cm, is mildly complicated. It went from simple to mildly complicated. im going crazy. i don’t even know what this means anymore.
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Pathology report
Okay kidney angels, have received pathology report from last week surgery. Apparently as good as I was hoping. 3cm Chromophobe renal cell carcinoma t3a. Negative margins. Can anyone tell me what exactly this means. Doctor says need to keep close eye, scans every 3 months. Monitor closely. I'm a bit discouraged because Of…
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How do you deal with pain, fatigue, isolation, and chores?
I have been unable to go out for fun, food, errands, etc. With all of that, I have put off exams, scans, blood tests, etc. Then, in my abode, chores, clothes, dishes, and bills stack up and up, so high. I do what I can, but the chronic illnesses that developed after the 1st rcc . . . slowed me down to a crawl. It wouldn't…
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1 month post RN, questions
Thanks so much for participating in this forum. It helps. I am one month out RN, 7 cm grade 2, mass. Stage 3 as it had grown jnto the renal sinus fat, clear margins. I have not seen a nephrologist yet, appt is scheduled for y months post op. Does anyone know if this is standard? My eGFR post op was like 42, which seems…
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RCC slow or fast growing?
Is RCC slow or fast growing? I have a 1.6 cm suspicious for RCC and a 6.2 simple cyst. Both are in left kidney.
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Was NED today
Today got report still clear,glass wine for every one! 1.5 years cancer free
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Cancer in multiple places
I always had Renal issues I have had kidney stones about 4 times a year for 25 years I am turning 45 in Mar. I am on allipurinol. I am physical, Was a military contractor (specialist in heavy armoured machines) and worked rail road, Networ Admin, was Head of Robotic Maintenance in Factory who builds ATV's, worked in 2…
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Have a question for folks who have had a full neph
My kidney came out aug 2021 so 6ish most ago. This week I had routine blood works and stuff from my GP for med refills....yanno check up things. My urine came back with creatinine (or however its spelled) levels of 9.5 and showing micro levels of protein...it was like 146 . Is that something I should be worried about or is…
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New here. Got CT scan. Suspicious RCC.
I’m feeling a little overwhelmed with my abdomen CT scan results. I got my results back from Touchstone today. My doctor is on vacation for 2 weeks and I don’t have an appointment with him until March 29th. I had my first CT scan 10 years ago on my spine. That’s when they first discovered a my kidney cyst. I’ve been…
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Today 2 years NED
Had scan today still NED!2 years i soo happy
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Newly diagnosed and struggling mentally any positive thoughts would be helpful
Hello everyone! I’m new to the group with being diagnosed in January 2022 along with my surgery. Like many I’m struggling with constantly obsessing about my cancer. From when I wake up to when I go to bed it is overwhelming. My doctor gave me a really good prognosis and I realize others have it worse so please forgive me.…
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Cancer is back :( Should i chose partial nephrectomy on the lone remaining kidney
Friends, I am in a terrible state of mind. Three years before my right kidney was fully removed. Pathology report after surgery showed stage 3 (pT3a)- renal cell carcinoma (clear cell) - 7.5 x 5 x 4.2 cm Oct 2020 - CT Chest and Abdomen - No evidences of cancer Oct 2021 - 0.9 cm exophytic lesion on left kidney (CT scan…
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Suspected RCC midpole of right kidney, radical nephrectomy planned in two weeks time
My husband is scheduled to have right kidney removed laparoscopically after a highly suspicious mass in the midpole was found in incidentally on imaging in connection with a liposarcoma discovered last month. The liposarcoma was removed with clear margins, and apparently is unconnected to the kidney mass, which is…
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Complex renal cyst upper left lobe
I had 2 Complex Renal cyst in upper left lobe discovered during a CT scan along with a kidney stone. 1cm and 2 cm cyst. I’m going to urologist this week. From what I have read they are to be taken very seriously. Im scared to death!! Just wanted to post here for info and support. Thank you!
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Second opinion?
Hi all- I received my pathology report a few days ago. 2.2cm clear cell carcinoma of the R kidney removed via partial nephrectomy. Grade 2 and pT3a. I was told on the report that the margins are not clear and that cells have spread to a segmental branch of the renal vein. My doctor told me he feels very confident that they…
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NED @ 1.5 years and new lessons in scanxiety
Hi All, Just wanted to pop in and report some good news on my end. Little recap: Partial Nx 7.2020 @ 34 years old, Stage1b 4.5cm. As part of my surveillance we do a Chest CT and abdominal MRI every 6 months... will graduate to once every year once I Gd willing hit the 2 year mark of NED. Had my Chest CT 2.7.22 early AM and…
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Scans
Just had my scans and met with doctor everything was normal and one more time going three month for scans then he’s going to move them to 6 month scans hip hip hooray
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NED 3 years out!
Hey all, this forum really helped me when I was going through my surgery and recovery. I wanted to share some good news! 3 years out an I am still NED! My doc is switching me from 6 month ultrasounds/xray to annual ultrasound/xray!
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Remaining kidney
Remaining kidney “Developing mild complexity Within an exophytic 11mm left renal upper pole lesion and within the lobulated approximately 2 by 1.3 cm left renal interpolar lesion” please advise scared and very worried. 3/2021 right kidney radical neph by robotic chest pelvis abdomen ct scan clear.
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Gas trapped under ribs after partial
Hi all! I just discovered this site and forum and I’m grateful. I just had a robotic laparoscopic R partial nephrectomy 9 days ago. 6 incisions and the healing process has been slower than expected. My pain is much better than it was last week, but I’m still having some major discomfort. I have C02 still trapped in my…
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4 years next month NED and now....
Had my annual CT right after Thanksgiving. Stage 1, Grade 2 measured at 2 cm. Di Vinci Right Kidney CCRCC. Still NED thankfully, BUT they found a highly suspicious and pretty much unviewable lesion in my liver right under my rib cage in a very difficult place. Ultrasound couldn't get to it and subsequent MRI Oncologist…
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Next week scans
Well next week scan feeling nervous almost at my two year mark wish me luck
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News from biopsies
Hello everyone. Just an update on the thyroid and lung biopsies. There is cancer in my thyroid it is a primary papillary thyroid cancer. The lung biopsy was inconclusive. So time to join another discussion board? I meet with a surgeon on Monday to find out about surgery. Thanks for all of your support.
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CT? Ultrasound? MRI?
Hi all! It’s been a bit, some of you may remember me as the sonographer that found her own cancer back in august. I had A partial nephrectomy and the margins came back clear. But now I’m having so much anxiety that the cancer has come back or metastasized. I do still scan myself and see nothing but ultrasound can miss…
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Question on findings
I had my third set of CT/MRI's post neph. I don't have my doctors appointment for another two weeks to discuss but the results show up on my chart. The results of my CT show "Lungs: The lungs are clear without pulmonary nodules or masses. Micronodules mean diameter less than 6 mm in only 1 to 2 mm in size are stable. No…
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NED after 7 years
Hello everyone! Well, the new board had me staring at it like a ram at a new gate :-) But finally figured out how to create a new topic :-) I’ve posted some time ago that my husband had a clear chest x-ray 7 years after Stage 1 surgery. Couple of weeks ago he also had a abdominal USG, finally! I’m happy to report all…