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Cancer in multiple places
I always had Renal issues I have had kidney stones about 4 times a year for 25 years I am turning 45 in Mar. I am on allipurinol. I am physical, Was a military contractor (specialist in heavy armoured machines) and worked rail road, Networ Admin, was Head of Robotic Maintenance in Factory who builds ATV's, worked in 2…
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Have a question for folks who have had a full neph
My kidney came out aug 2021 so 6ish most ago. This week I had routine blood works and stuff from my GP for med refills....yanno check up things. My urine came back with creatinine (or however its spelled) levels of 9.5 and showing micro levels of protein...it was like 146 . Is that something I should be worried about or is…
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New here. Got CT scan. Suspicious RCC.
I’m feeling a little overwhelmed with my abdomen CT scan results. I got my results back from Touchstone today. My doctor is on vacation for 2 weeks and I don’t have an appointment with him until March 29th. I had my first CT scan 10 years ago on my spine. That’s when they first discovered a my kidney cyst. I’ve been…
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Today 2 years NED
Had scan today still NED!2 years i soo happy
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Newly diagnosed and struggling mentally any positive thoughts would be helpful
Hello everyone! I’m new to the group with being diagnosed in January 2022 along with my surgery. Like many I’m struggling with constantly obsessing about my cancer. From when I wake up to when I go to bed it is overwhelming. My doctor gave me a really good prognosis and I realize others have it worse so please forgive me.…
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Cancer is back :( Should i chose partial nephrectomy on the lone remaining kidney
Friends, I am in a terrible state of mind. Three years before my right kidney was fully removed. Pathology report after surgery showed stage 3 (pT3a)- renal cell carcinoma (clear cell) - 7.5 x 5 x 4.2 cm Oct 2020 - CT Chest and Abdomen - No evidences of cancer Oct 2021 - 0.9 cm exophytic lesion on left kidney (CT scan…
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Suspected RCC midpole of right kidney, radical nephrectomy planned in two weeks time
My husband is scheduled to have right kidney removed laparoscopically after a highly suspicious mass in the midpole was found in incidentally on imaging in connection with a liposarcoma discovered last month. The liposarcoma was removed with clear margins, and apparently is unconnected to the kidney mass, which is…
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Complex renal cyst upper left lobe
I had 2 Complex Renal cyst in upper left lobe discovered during a CT scan along with a kidney stone. 1cm and 2 cm cyst. I’m going to urologist this week. From what I have read they are to be taken very seriously. Im scared to death!! Just wanted to post here for info and support. Thank you!
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Second opinion?
Hi all- I received my pathology report a few days ago. 2.2cm clear cell carcinoma of the R kidney removed via partial nephrectomy. Grade 2 and pT3a. I was told on the report that the margins are not clear and that cells have spread to a segmental branch of the renal vein. My doctor told me he feels very confident that they…
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NED @ 1.5 years and new lessons in scanxiety
Hi All, Just wanted to pop in and report some good news on my end. Little recap: Partial Nx 7.2020 @ 34 years old, Stage1b 4.5cm. As part of my surveillance we do a Chest CT and abdominal MRI every 6 months... will graduate to once every year once I Gd willing hit the 2 year mark of NED. Had my Chest CT 2.7.22 early AM and…
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Scans
Just had my scans and met with doctor everything was normal and one more time going three month for scans then he’s going to move them to 6 month scans hip hip hooray
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NED 3 years out!
Hey all, this forum really helped me when I was going through my surgery and recovery. I wanted to share some good news! 3 years out an I am still NED! My doc is switching me from 6 month ultrasounds/xray to annual ultrasound/xray!
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Remaining kidney
Remaining kidney “Developing mild complexity Within an exophytic 11mm left renal upper pole lesion and within the lobulated approximately 2 by 1.3 cm left renal interpolar lesion” please advise scared and very worried. 3/2021 right kidney radical neph by robotic chest pelvis abdomen ct scan clear.
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Gas trapped under ribs after partial
Hi all! I just discovered this site and forum and I’m grateful. I just had a robotic laparoscopic R partial nephrectomy 9 days ago. 6 incisions and the healing process has been slower than expected. My pain is much better than it was last week, but I’m still having some major discomfort. I have C02 still trapped in my…
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4 years next month NED and now....
Had my annual CT right after Thanksgiving. Stage 1, Grade 2 measured at 2 cm. Di Vinci Right Kidney CCRCC. Still NED thankfully, BUT they found a highly suspicious and pretty much unviewable lesion in my liver right under my rib cage in a very difficult place. Ultrasound couldn't get to it and subsequent MRI Oncologist…
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Next week scans
Well next week scan feeling nervous almost at my two year mark wish me luck
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News from biopsies
Hello everyone. Just an update on the thyroid and lung biopsies. There is cancer in my thyroid it is a primary papillary thyroid cancer. The lung biopsy was inconclusive. So time to join another discussion board? I meet with a surgeon on Monday to find out about surgery. Thanks for all of your support.
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CT? Ultrasound? MRI?
Hi all! It’s been a bit, some of you may remember me as the sonographer that found her own cancer back in august. I had A partial nephrectomy and the margins came back clear. But now I’m having so much anxiety that the cancer has come back or metastasized. I do still scan myself and see nothing but ultrasound can miss…
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Question on findings
I had my third set of CT/MRI's post neph. I don't have my doctors appointment for another two weeks to discuss but the results show up on my chart. The results of my CT show "Lungs: The lungs are clear without pulmonary nodules or masses. Micronodules mean diameter less than 6 mm in only 1 to 2 mm in size are stable. No…
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NED after 7 years
Hello everyone! Well, the new board had me staring at it like a ram at a new gate :-) But finally figured out how to create a new topic :-) I’ve posted some time ago that my husband had a clear chest x-ray 7 years after Stage 1 surgery. Couple of weeks ago he also had a abdominal USG, finally! I’m happy to report all…
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Hi, all - new here/beginning Checkmate 914 shortly
Hello, ali- I'm glad to see this forum exists. I learned about my cancer when I peed a whole lot of blood in early January. There had been clues for about 10 months but the doctors chalked it up to depression (covid, partial retirement). Anyway, the scan they took while I was in the ER revealed a 10cm growth on the kidney…
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Back pain post nephrectomy, not prior
I had a nephrectomy of my right kidney. They couldn't do the surgery laparoscopically, as I have a lot of mesh & scar tissue in my stomach, so they cut me from my right front to back & separated my ribs. I am having terrible back pain which shots around my side. The surgeon said it can't be from the surgery, but I didn't…
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Post-nephrectomy, esp. for those who have been there
A major concern I have about a pending radical nephrectomy (R kidney) is comfort and safety when I get home after the surgery. I’m 70 and live alone now. If the procedure is laparo, I anticipate an overnight stay in the hospital and then home. From your experience(s), do you think I’d be okay on my own? I’m thinking,…
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begonnen aan study chackmate 914
tody had the results of the scan and everyting was fine, so i can officily paticipate in the study checkmate 914 .i have thuoght about it for a long time because of the side effects, in melanoma ( skin cancer). it seens to work ,and even if the cancer returns you can still use imuum therapy get it then seens to work . i…
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Post-nephrectomy Fever
Greetings, I had my partial nephrectomy surgery last Tuesday and I was discharged from the hospital on Wednesday evening. The first night home I developed a fever of about 101F. I called my surgery’s nurse hotline where they advised me to go to the ER if the fever reaches 101.5F. The fever has been coming and going. During…
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Frustrated with the New System
I’ve been trying for two days to post a reply to Bill’s 2cm post because my situation was similar. Nothing gets posted. I get a message that my comment will post after the moderator approves it. But the comment sits there in limbo. Bill, for a mass your size, CT may or may not resolve what it is. My initial lesion was…
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Kidney cancer
Husband just diagnosed with kidney cancer. Doctor recommends removal of left kidney. Please anyone who has lived with one kidney please email us. He needs some encouragement. Thanks
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🎶 "It's the most scanxious time of the year!" 🎶 (three years post-surgery)
Last week I had my scans. CT of my chest went quickly, MRI of the abdomen/pelvis felt quick (because I think I fell asleep in the tube). Everything went smoothly... until it didn't. My doctor is always great about sending test results right away so I don't stress out. True to form, he sent me the MRI results within a…
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Biopsy or not. Burn or freeze?
Hello, I am 42 years old and accidently found a lession on my left kidney. I have been refferred to a Urologist to resolve (kidney specialist) I have spoke with 2 different urologist. They both say its in a tough location to cut out. The first said that it looks like renal cell carcinoma 17mm and recommends that we biopsy…
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Uncle NED, you came back! I've missed you
Hello everyone, I just wanted to update the world. Quick recap, 2015 two small tumors removed from my right kidney, both were chromophobe 2.2cm and 8mm. In 2018 there was a 5mm mass in my left kidney. 2019 it grew to 8mm and then in 2020 it hit puberty and grew to 2.2cm. This time it was cystic clear cell. In October of…