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Clear Cell Renal Sarcoma
What is a different between Clear Cell Renal Sarcoma and Clear Cell Renal Carcinoma.
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Had my scans today
I was Ned I'm so thankful
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Question about open nephrectomy
My kidney cancer was discovered in Dec. 2019 and in March 2020 I had an open radical nephrectomy, removing my right kidney. The doctor started out by attempting a laparoscopic nephrectomy and the tumor was too close to the arteries and an artery was hit and they had to go ahead and do an open procedure. I woke up to having…
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Another 5 year scanner
Hi Everyone, I never finished my last post when I was waiting to get my scans. This year was ultrasound and chest xray - all clear all clear. The doc gave me choice of continuing 12-month or 16-month checkup and scans at this point (we alternate CT and Ultrasound). I'm opting to keep the 12-month checkin as long as he (my…
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New and anxious *UPDATE*
Hi...I'm 48 and a few days ago I had some pain all along my right side and ended up in the ER. After a CT and some other stuff the dr said I had a UTI and a soft tissue mass on my kidney. She didn't really go in depth for the radiology report and I had to wait two days to see my GP and have him read them and talk to me…
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RE: Robotic Partial Nephrectomy
My name is Paul and so happy to run into this blog. I had the Robotic partial nephrectomy of my right kidney yesterday and I got discharged today. I was so lucky for it was caught during a CT scan as I was complaining of change in my bowel habits. The CT scan results showed negative results with my Abdomen, but cyst found…
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Just a vent
My ultrasound, blood work, and urinalysis is coming up and I'm a wreck. I'm so anxious. Recently went to the hospital for a severe bladder infection, had an ultrasound of both kidneys and ER doctor didn't mention anything new about cysts. the words maybe slightly complicated are eating away at me right now.
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Anxiety
Does your anxiety ever get better mine hasn't.it's been a year now
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Hypodense lesion on liver
Hi everyone, have a question, has anyone ever had a hypodense lesion found on their liver? I had my annual scan Tuesday and the doctor said it all looked like a perfectly normal CT scan except for a 1.4 cm lesion(approximately the size of a sweet pea)on my liver. The radiologist suggested a liver mri to confirm benignity,…
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10 years cancer free! and pushing for continued observation in Pittsburgh
I haven't been here in quite some time - a couple of years. It is great to see old faces and I offer good will for those of you who are new. I was "accidentally" diagnosed with stage 1 RCC at 42 years old - it showed up on a CT for another issue. I had a hand-assisted radical nephrectomy and adrenalectomy on July 6, 2011.…
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Any Hope for a Partial Nephrectomy?
Greetings, I am new on this forum and would be grateful for any guidance. I had a 3.1 cm tumor discovered on my right kidney during a CT scan for an unrelated issue. My surgeon informed me that he would attempt a partial nephrectomy to preserve right kidney function, however, there is a strong chance that it would not be…
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Symptom Questions
I posted in here back in 2017/2018 when a complex kidney cysts was found. Long story after multiple scans/test & a second opinion I was told that they didn't need to checked anymore. Fastfoward 2021- I have been having spells weird head feeling dizziness, blood pressure spikes, repeated busted blood vessels in eyes and…
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New to Group and Panic Mode is Setting In
My partial open nephrectomy is scheduled for late next week and I’m starting to panic. I don't know if I'm more afraid of the cancer or the surgery! Two complex cysts identified on right kidney (upper pole and lower) during a CT scan prior to my hysterectomy for endometrial cancer in 2019. My urologist has been monitoring…
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Waiting
Sitting in my surgeon's office waiting to talk with him about results of five year follow up ultrasound... from everything I can tell it's all ok. Creatinine a bit higher; egfr a bit lower. Have not done chest X-ray yet. Will head down the hall for that after talking with him. Shout out to my 2016 buds. Take care all ~
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Adult Wilm's Tumur
I was diagnosed with a Wilm's tumor at 45 years old. I was told many times that this is very rare. Are there any other members that have been diagnosed with this as an adult?? Would like to hear from someone else that has been through the same experience. I have not been able to find out much information on this topic…
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Surgery is Done!
Partial open nephrectomy was completed early May and today starts week 3 of recovery. I thought I was prepared for a big surgery but wow, I have never had such pain and discomfort in my life. Of course part of that was coming home with a stent and catheter for two weeks due to a urine leak. That was removed last week and…
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Need help
Hello Everyone, please help as i am very worried and anxious. I had Ct Scan for other issues and the report shows 1.4 Cm cysts in the left kidney and 1.1 in the right kidney. It says the largest has lesions have higher HU for simple cysts. Further evaluation with US needed. I did follow up with US and the report is: there…
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Living with one kidney
On my daughters 12th birthday, I was diagnosed with a large mass in my left kidney that was diagnosed as stage 3 cancer and required a radical nephrectomy. Fortunately, it was confined and there was no evidence of spread to the surrounding lymph nodes so I will not need further treatment, just scans to watch for…
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UTUC
Hi I am new to the site. I am so glad this is here for support. I had blood in my urine 5 months ago which went away but brought me to this point, so no pain and no other symptoms. Having Nephrourterectomy surgery May 24. UTUC found in kidney lining and ureter. Removal of kidney, ureter, and bladder cuff To remove cancer.…
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Rough 2 yrs
Hi, I joined our group in 2016, 9 cm tumor accidentally found, radical nephrectomy, no evidence, stage 2. Then in Aug 2019 a 4 cm RCC tumor in L5 vertebrae, extending into mussel. I had noticed changes how my body was different in 2018, but was informed each scan I was cancer free. Good scan I was told. Had 2 choices,…
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Update
Hi All, It's quite a while since I've visited here. My kidney cancer follow ups have all been NED so far so that's great after 4 years. For the past year I've had recurring troubles with kidney stones which is starting to get annoying. They are uric acid stones so may be preventable. Two weeks ago I had a prostate biopsy…
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Greetings - New to the Group
Hello, fellow travelers. I am a 58-yr old woman w/ a 59-yr old husband with Stage IV Renal Cell cancer - metastasized to the lungs. I am very grateful to have found you all and I hope to achieve some sense of perspective by reading your experiences and sharing ours, as well. DH was diagnosed as Stage 3 in August 2020, six…
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Desk job. Time off after a laparoscopic nephrectomy?
Hi! I'm new here, and newly diagnosed. I have a 5 cm tumor on my left kidney (expected to be RCC), on the side toward my stomach. It is contained within the kidney. They're planning a full nephrectomy, though I'll have more details after I talk to the surgeon on Monday. I'm 49 and overweight with high bp, but no other…
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Ureteroscopy&Biopsy
Good Morning all, I had my ureteroscopy and Biopsy on 2/11/2021 and 5 days later I am still in a lot of pain. They have left a stent in, could this be why? Has anyone here had this procedure done and if so, what was your experience with it. Trying to figure out if this is normal for this procedure. Thank you in advance for…
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I was never the same
4:00 o'clock in the morning and I'm up with pain on the side I had surgery on it it's been over a year now doctor says my kidney is fine he said it was a long surgery I just wonder if this pain will ever go away I'm tired of being up at 4:00 in the morning once I'm up and walk around for awhile the pain goes away but by…
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Active Surveilance Follow-ups with Doc or Assistant (PA orNP)
Hi, Im helping my mother deal with her small renal mass under Active Surveilance. Her Doctor, a kidney oncologist/surgeon, is having his PA meet with us for all follow ups. We asked to meet with the doctor but were rebuffed by the secretary saying it was his policy to have the PA do the follow-ups. Seems somewhat calous to…
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Hi! New to the Group. *update*
Hello everyone! I am new to the group. I am a 41y female and was told Friday of the new diagnosis of Kidney Cancer After the CT scan confirmed that they found a @2.5 inches (almost 6 cm) complex cyst on my right kidney located on my mid to lower pole. I was told that the mass was necrotic in the center and the lymph nodes…
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Had my 1year scans today
Had my scans today was Ned yay
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Question to ask
i had my scans he said I was Ned but then he said there was a small spot on my kidney he believes it's scar tissues and not to worry but of course I worry I question him about it he said kidney looks fine and blood work looks great I don't know what to do
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My annual scans (2 1/2 years post-surgery)
Scanxiety comes at me in such strange ways. I didn't feel scared or nervous about this year's scans, but worry definitely crept back into my head. Last week I had a restless night where all I dreamt all night about non-stop doctor's visits and medical procedures. ALL NIGHT. This week I went in for my scans. My MRI went…