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Donor
So I donated my kidney 12 years ago to my day. He is diabetic and was on a transplant list and the transplant was successful I only suffered high blood pressure following the procedure. This last year in november I was in a wreck and found out I had a 4cm tumor on my remaining kidney. Was told the day before thanksgiving…
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I am really struggling today
On July 21st a ct looking for problems in my gallbladder found a 4cm mass in my right kidney. A week later I had an MRI and a week after that I was sitting in the Urologists office planning surgery. I know the CT and MRI showed no evidence of metastasis and my kidney function looked good. Surgery is scheduled for Aug…
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New and depressed
I am new to the board. Have been reading everyone's story and response. Unfortunately I am here because of my 42 year old son. He just had a radical nephrectomy on the 15th. Still in pain and recovery. I have read a lot on the new treatments but only a few people are helped by them and kidney cancer is still one of those…
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Scared - Could Someone Look At My CT Scan Please?
Hello, I am a bit scared. If possible, I would love anyone's input regarding my CT Scan. I would truly appreciate it! CT scan in August 2021: A paritally exophytic structure at the upper pole. The right kidney is higher attenuation than a simple cyst and measures up to 1 cm. This was previously present and measured up to…
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Just had a vacation
Took a week off came and seen family never thought of my cancer once what a relief to feel normal again with no worry's well now back to reality it was so nice when it lasted
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New here, sonographer found her own mass, suspected kidney cancer
Hi everyone. I'm really glad I found this board! I'm 35, a sonographer and just found a 3cm mass on my right kidney, near the renal pelvis. I found this incidentally as I was just scanning myself as I do sometimes. I hadnt scanned my kidneys in about 4 or so months... and decided to take a peak... well there it was. I…
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Partial Nephrectomy in the morning for 4.5 cm tumor on the bottom of right Kidney
I have been reading the comments about the surgery and the information is very good and I appreciate it. I was wondering wh7y my surgeon said I am not allowed to drive for three weeks? Is it something to do with driving or just riding? I wished I had asked him but I was processing the whole "you've got cancer info". Thanks
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Name a movie mentioning Uncle Ned.
Name a movie mentioning Uncle Ned. icemantoo
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Checking back in to the board
Hi to everyone, I have been away from these boards for a while and thought i would check back in. i was diagnosed at aget 46 in 2014 with stage 4 RCC and a 18cm tumor in my kidney and 2 additional tumors in each of my adrenal glands. Since then i have had a radical nephrectomy and went into a trail for one of the PDL-1…
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Dealing with anxiety
Hi All, It has been a while since I have posted. Quick recap about me: 33 at time of diagnoses (6/2020) 7/15/2020 - 4.5cm Clear Cell tumor removed via partial nephrecomy. Clear margins. Stage 1b, Grade 3, no sarcomadtoid features. 11/2020 - 1st scan, NED (Abdominal MRI, Chest CT) 3/2021 - 2nd scan, NED (Abdominal MRI,…
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Started pazopanib this week praying my dad gets more time
Hi I have been frantically looking for more information on the drug my dad has started on this week pazopanib, he started with side pains and bad tummy about may time this developed in to a trip to a and e in June to have biosopy and now we are here. Last week he was told he had months rather than years, but this weeks…
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46 yr old female, Stage 4 clear cell renal mets to bone…. anyone else, please
Hi. Diagnosed February 26th and on Optivo/Yervoy, 4th infusion scheduled in a couple weeks. Having my first PET scan before the end of the month. Had 8 radiation treatments for pain that made me so ill, I doubt I'll do that again, at least not anywhere near my stomach. I was working a very physical job and was in intense…
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5 years ago today---wow, what a day!
Hello everybody! I've been on a little break for the past couple of months. I'm sure the events of this past year contributed to the need for a break. I just wanted to share that on this day in 2016, I was told by my nephrologist they found a lesion on the lower pole of my right kidney in scans he had ordered for my…
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Open partial nephrectomy and working from home. Realistic time off?
For background, I posted this a few months ago: https://csn.cancer.org/node/323359 I had asked about time off after a full lap. However, my current doctor is now recommending an open partial, so he'll have better access to the part of the kidney that needs to be removed and closed up. I'm nervous to tell my new job (I did…
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Is a radical nephrectomy worth it in stage 4?
My husband, now 44, was diagnosed with stage 4 RCC in May 2020. First symptom was pain in his leg due to a fast growing bone met. He had an 11cm tumor removed from his leg with titanium rod to replace his femur and total knee replacement. His primary kidney tumor was also around 11cm. He had several small tumors in his…
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5 year scan
The results from my 5 year scan. No cancer. None. The doctor said that it was unusual for someone to have a tumor as big as mine (10 cm) and then have no more cancer. But, I am that guy. He said "you did it. You made it." Not gonna lie, I cried right then. No more scans, only an x ray next year. I do have a small kidney…
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Clear Cell Renal Sarcoma
What is a different between Clear Cell Renal Sarcoma and Clear Cell Renal Carcinoma.
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Had my scans today
I was Ned I'm so thankful
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Question about open nephrectomy
My kidney cancer was discovered in Dec. 2019 and in March 2020 I had an open radical nephrectomy, removing my right kidney. The doctor started out by attempting a laparoscopic nephrectomy and the tumor was too close to the arteries and an artery was hit and they had to go ahead and do an open procedure. I woke up to having…
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Another 5 year scanner
Hi Everyone, I never finished my last post when I was waiting to get my scans. This year was ultrasound and chest xray - all clear all clear. The doc gave me choice of continuing 12-month or 16-month checkup and scans at this point (we alternate CT and Ultrasound). I'm opting to keep the 12-month checkin as long as he (my…
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New and anxious *UPDATE*
Hi...I'm 48 and a few days ago I had some pain all along my right side and ended up in the ER. After a CT and some other stuff the dr said I had a UTI and a soft tissue mass on my kidney. She didn't really go in depth for the radiology report and I had to wait two days to see my GP and have him read them and talk to me…
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RE: Robotic Partial Nephrectomy
My name is Paul and so happy to run into this blog. I had the Robotic partial nephrectomy of my right kidney yesterday and I got discharged today. I was so lucky for it was caught during a CT scan as I was complaining of change in my bowel habits. The CT scan results showed negative results with my Abdomen, but cyst found…
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Just a vent
My ultrasound, blood work, and urinalysis is coming up and I'm a wreck. I'm so anxious. Recently went to the hospital for a severe bladder infection, had an ultrasound of both kidneys and ER doctor didn't mention anything new about cysts. the words maybe slightly complicated are eating away at me right now.
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Anxiety
Does your anxiety ever get better mine hasn't.it's been a year now
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Hypodense lesion on liver
Hi everyone, have a question, has anyone ever had a hypodense lesion found on their liver? I had my annual scan Tuesday and the doctor said it all looked like a perfectly normal CT scan except for a 1.4 cm lesion(approximately the size of a sweet pea)on my liver. The radiologist suggested a liver mri to confirm benignity,…
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10 years cancer free! and pushing for continued observation in Pittsburgh
I haven't been here in quite some time - a couple of years. It is great to see old faces and I offer good will for those of you who are new. I was "accidentally" diagnosed with stage 1 RCC at 42 years old - it showed up on a CT for another issue. I had a hand-assisted radical nephrectomy and adrenalectomy on July 6, 2011.…
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Any Hope for a Partial Nephrectomy?
Greetings, I am new on this forum and would be grateful for any guidance. I had a 3.1 cm tumor discovered on my right kidney during a CT scan for an unrelated issue. My surgeon informed me that he would attempt a partial nephrectomy to preserve right kidney function, however, there is a strong chance that it would not be…
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Symptom Questions
I posted in here back in 2017/2018 when a complex kidney cysts was found. Long story after multiple scans/test & a second opinion I was told that they didn't need to checked anymore. Fastfoward 2021- I have been having spells weird head feeling dizziness, blood pressure spikes, repeated busted blood vessels in eyes and…
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New to Group and Panic Mode is Setting In
My partial open nephrectomy is scheduled for late next week and I’m starting to panic. I don't know if I'm more afraid of the cancer or the surgery! Two complex cysts identified on right kidney (upper pole and lower) during a CT scan prior to my hysterectomy for endometrial cancer in 2019. My urologist has been monitoring…
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Waiting
Sitting in my surgeon's office waiting to talk with him about results of five year follow up ultrasound... from everything I can tell it's all ok. Creatinine a bit higher; egfr a bit lower. Have not done chest X-ray yet. Will head down the hall for that after talking with him. Shout out to my 2016 buds. Take care all ~