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Partial Nephrectomy recovery
Hello everyone. I saw a post asking about recovery from Partial Nephrectomy and thought I'd post about mine. Mentally, not doing so well (posted about that). Physically: I'm about 6 weeks post op. The first couple of weeks the pain was awful in the abdomen (where the incisions were). Couldn't bend, sit up from lying down…
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CRP
Does anyone else have their CRP monitored in relation to cancer diagnosis. My surgical onc doesnt check for it but my GP does. Mine has been steadily rising from before my surgery. It was elevated in every test but the last two it is severely elevated 27.5 mg/l and 30.5 mg/l. I've read this can be a marked for cancer. I've…
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Nerve Pain and Numbness
I have been off of here for quite some time. more then two years out post surgery for removal of a 3.8 CM chromophobe RCC tumor from right kidney. Now I am experiencing nerve pain in both arms and down one leg radiating out of my lower back (sciatic Pain). The sciatic pain has now caused numbness in my right foot. I…
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Looking for help !! Complex cyst that has changed
I have been being monitored for a complex cyst on my kidney 11mm for a few years now. Yearly ultraounds, bloodwork and urine tests It was going good till this years ultraoud.. The pathologist says that my 11mm complex cyst has stayed the same size but that the septaions seem to have thickened and that it warrants an MRI.…
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Uncle NED came to visit!
Lobbyist, thanks for sending Uncle NED my way for a visit. I'll send him on his way to the next member having scans. In all seriousness, I had my CT scan, chest x-ray along with a doctor visit today--everything was clear. That makes 5 years for me. They want me to come back next year for one more scan then move to every…
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Recovery
6 days post partial robotic nephrectomy and I'm feeling a lot better. Those first few days were brutal! No one warns you about the shoulder pain from the gas!! It was worse than the incision pain. Doc said everything went well and the mass was well contained; I guess that's good news! Waiting on the pathology report has…
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NED at 13 months
What a rollercoaster. Had a week filled with anxiety and panic, and all for naught. Chest CT and Adbominal MRI both NED. Surpassed the 1 year mark and am still NED at 13 months. So incredibly thankful. Praying for many more.
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Surgery Thursday
Met with the urologist today. Surgery scheduled for Thursday. Im going to be honest, I'm a mess. Although I am so grateful my surgery is scheduled only a week after finding my mass. I'm still in such disbelief and I am scared s**tless. I'm so afraid this mass is an aggressive cancer and I have a long battle ahead of me. I…
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NED on my 5th year CT scan!
Hi all, hope everyone is doing well under this pandemic. I would like to share my NED result after my 5th year CT scan (but not till Sept to be 5 years). Somehow, my scanxiety was much higher than the last couple of years. Maybe because understanding the recurrent time is usually later for the early-stage survivors. The…
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COMPLEX SEPTATED CYST ON KIDNEY.
Has anyone had a Complex Septated cyst that has changed on an ultraounds to have thickened in between the septations?? And if so did it turn into anything serious ( cancer)? Its 11mm.
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Recovery questions
As of today I am 2 weeks out from having a hand assisted laparoscopic radical nephrectomy. I was doing fine as of Saturday...still having pain and still taking pain meds but it wasn't crippling. Sunday the area around the top most incision started to hurt so bad I couldn't walk without holding my stomach and it still hurts…
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Septated cyst with interval thickening after watching for 8 years
I was in for an ultreasound around 8 years ago and they found a complex septated cyst on my kidney. We have been yearly watching it with ultrasounds and bloodwork and urine tests.. And it stayed the same size and everything the same till this year.. I had the ultraound this week and it came back saying that it thickened in…
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Pathology results are in
Well, here they are. Apparently a rare subtype of RCC? Has anyone heard of this? Anxious for my follow up appointment on Tuesday, so I can stop googling ? FINAL DIAGNOSIS: Right kidney, partial nephrectomy: - Renal cell carcinoma, eosinophilic solid and cystic renal cell carcinoma subtype Specimen laterality: Right. -…
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Surgery tomorrow
Laparoscopic radical nephrectomy tomorrow and I'm scared but hopeful that maybe I will get a good report and just be able decompress from all that has happened this last month.
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Donor
So I donated my kidney 12 years ago to my day. He is diabetic and was on a transplant list and the transplant was successful I only suffered high blood pressure following the procedure. This last year in november I was in a wreck and found out I had a 4cm tumor on my remaining kidney. Was told the day before thanksgiving…
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I am really struggling today
On July 21st a ct looking for problems in my gallbladder found a 4cm mass in my right kidney. A week later I had an MRI and a week after that I was sitting in the Urologists office planning surgery. I know the CT and MRI showed no evidence of metastasis and my kidney function looked good. Surgery is scheduled for Aug…
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New and depressed
I am new to the board. Have been reading everyone's story and response. Unfortunately I am here because of my 42 year old son. He just had a radical nephrectomy on the 15th. Still in pain and recovery. I have read a lot on the new treatments but only a few people are helped by them and kidney cancer is still one of those…
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Scared - Could Someone Look At My CT Scan Please?
Hello, I am a bit scared. If possible, I would love anyone's input regarding my CT Scan. I would truly appreciate it! CT scan in August 2021: A paritally exophytic structure at the upper pole. The right kidney is higher attenuation than a simple cyst and measures up to 1 cm. This was previously present and measured up to…
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Just had a vacation
Took a week off came and seen family never thought of my cancer once what a relief to feel normal again with no worry's well now back to reality it was so nice when it lasted
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New here, sonographer found her own mass, suspected kidney cancer
Hi everyone. I'm really glad I found this board! I'm 35, a sonographer and just found a 3cm mass on my right kidney, near the renal pelvis. I found this incidentally as I was just scanning myself as I do sometimes. I hadnt scanned my kidneys in about 4 or so months... and decided to take a peak... well there it was. I…
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Partial Nephrectomy in the morning for 4.5 cm tumor on the bottom of right Kidney
I have been reading the comments about the surgery and the information is very good and I appreciate it. I was wondering wh7y my surgeon said I am not allowed to drive for three weeks? Is it something to do with driving or just riding? I wished I had asked him but I was processing the whole "you've got cancer info". Thanks
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Name a movie mentioning Uncle Ned.
Name a movie mentioning Uncle Ned. icemantoo
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Checking back in to the board
Hi to everyone, I have been away from these boards for a while and thought i would check back in. i was diagnosed at aget 46 in 2014 with stage 4 RCC and a 18cm tumor in my kidney and 2 additional tumors in each of my adrenal glands. Since then i have had a radical nephrectomy and went into a trail for one of the PDL-1…
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Dealing with anxiety
Hi All, It has been a while since I have posted. Quick recap about me: 33 at time of diagnoses (6/2020) 7/15/2020 - 4.5cm Clear Cell tumor removed via partial nephrecomy. Clear margins. Stage 1b, Grade 3, no sarcomadtoid features. 11/2020 - 1st scan, NED (Abdominal MRI, Chest CT) 3/2021 - 2nd scan, NED (Abdominal MRI,…
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Started pazopanib this week praying my dad gets more time
Hi I have been frantically looking for more information on the drug my dad has started on this week pazopanib, he started with side pains and bad tummy about may time this developed in to a trip to a and e in June to have biosopy and now we are here. Last week he was told he had months rather than years, but this weeks…
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46 yr old female, Stage 4 clear cell renal mets to bone…. anyone else, please
Hi. Diagnosed February 26th and on Optivo/Yervoy, 4th infusion scheduled in a couple weeks. Having my first PET scan before the end of the month. Had 8 radiation treatments for pain that made me so ill, I doubt I'll do that again, at least not anywhere near my stomach. I was working a very physical job and was in intense…
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5 years ago today---wow, what a day!
Hello everybody! I've been on a little break for the past couple of months. I'm sure the events of this past year contributed to the need for a break. I just wanted to share that on this day in 2016, I was told by my nephrologist they found a lesion on the lower pole of my right kidney in scans he had ordered for my…
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Open partial nephrectomy and working from home. Realistic time off?
For background, I posted this a few months ago: https://csn.cancer.org/node/323359 I had asked about time off after a full lap. However, my current doctor is now recommending an open partial, so he'll have better access to the part of the kidney that needs to be removed and closed up. I'm nervous to tell my new job (I did…
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Is a radical nephrectomy worth it in stage 4?
My husband, now 44, was diagnosed with stage 4 RCC in May 2020. First symptom was pain in his leg due to a fast growing bone met. He had an 11cm tumor removed from his leg with titanium rod to replace his femur and total knee replacement. His primary kidney tumor was also around 11cm. He had several small tumors in his…
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5 year scan
The results from my 5 year scan. No cancer. None. The doctor said that it was unusual for someone to have a tumor as big as mine (10 cm) and then have no more cancer. But, I am that guy. He said "you did it. You made it." Not gonna lie, I cried right then. No more scans, only an x ray next year. I do have a small kidney…