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Partial Nephrectomy in 5 days - pre-surgery advice from those who've been there?
Hi everyone. I basically am getting nothing from the urology/oncology group...having to discover information and tips from online. My question: What helpful tips would you give to me on how to conduct myself with 5 days left? Things to gather together....things to avoid eating....things you wish you had done…
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Pre surgery question
Hi, this is my first post here, I have recently been diagnosed with renal cell carcinoma stage 1. They found it by accident because I have a benign 8cm tumor in my other kidney and started to bleed. They had to embolized it and that’s when they found the cancer. I had a biopsy and I will be having a robotic partial…
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Chemophobe renal cell carcinoma
Hey everyone, my name is Kimberly I'm a 29-year-old kidney cancer survivor. I was diagnosed last year with a rare form of kidney cancer. It's been ten months now since my surgery and I have been in pain with nerve damage and where the procedure was done has been hurting terribly. Do anyone have any suggestions on what I…
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NED 7 years
Had ultrasound and xray Today. All good just have a stable simple cyst for past 2 years tho. I still sweat these out till I get results.
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Uncle NED is that you?
Well yes it! On Dec 14 2022 I had my yearly CT scan and it was normal!!!!
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At 25 should I feel stuck?
I had a my kidney partially removed after finding a mass 2.4cm in December and ever since I’m lucky but I don’t feel it. Am I ungrateful? Should I feel like this is a gift that’s suppose to be life changing? Sorry just wanted to share. Hope all goes well with you all in this coming year. God Bless Noah
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Six Year Tests
I haven’t been around for a while…..traveling…..woo hoo. But back home and had tests/scans needed for my annual survivorship program appointment. The results are already in. Creatinine was 0.94, better than before my merry-go-round started. eGFR was 89, also a high for me. Chest x-rays were clear. And the ultrasound showed…
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Night sweats?
Hi, since I had my partial nephrectomy on 12/20 I've been having night sweats just about every night the room is cool so I don't understand it don't know has something to do with the surgery recovering or what has anyone else experienced this? Also 10 days after catheter removal still having issues, the stream is still…
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Jelmyto
Hello, my father has been battling bladder & kidney cancer for a few years now and at his last follow up they spotted a suspicious spot on his remaining kidney. He’s already had his bladder, prostate, & one kidney removed. The biopsy is being scheduled but in the mean time his surgeon has asked him to think about his…
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Radical Nephrectomy
I am facing a radical nephrectomy, and I want very much to hear from people who have had either laporoscopic or open surgery. (Laporoscopic surgery might not be feasible in my case, but it will only be when the anesthetic has worn off that I’ll actually know which method was used.) Can anyone help me by sharing your…
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RCC with renal vein invasion
I am 53 yr old male and I had a partial nephrectomy a month ago. It was a 2.5 cm tumor and confirmed to be clear renal cell carcinoma. The pathology report indicated grade2 but stage3. (PT3a). This was because of vein invasion (renal vein). The resection had negative margins which is comforting, but I am worried about the…
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Feet nerve pain 2 months after radical nephrectomy
Hello everyone, I'm new here. I had a radical nephrectomy 3 months ago after a large tumor was found in one of my kidneys. I had had some nerve pain in my feet before the surgery but it disappeared in a few days on it's own. Now it's back and getting way worse, to the point I barely can walk. I have a scan in a few days…
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What if your Doctor said No to Tylenol?
It's Thursday. The radical nephrectomy of my left kidney was done on Monday. As everyone here can understand, pain is an issue. I got out of the hospital yesterday. The standard advice seems to be, take a more serious but limited number of pain meds (Tramadol, Oxycontin, etc.) every six hours and then fill in the blanks…
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Biner
Has anyone heard from biner lately just wonder how he was doing
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Biopsy results
Update - appointment with oncologist Dec 1st. Will know more about treatment and let you know. Did find out that there will most likely not be surgery. Hi I got the biopsy results and the RCC has spread to the pancreas. Will hear about next steps soon. I'm definitely scared but I know God is helping me. Thanks for your…
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Kidney Tumor
Hi I have just been informed by my doctor that after waiting almost 3 months for the information from ultrasounds and CT Scans that I have a tumor in my right Kidney. He wanted me to wait and see if it got any bigger 6 months from now, but I opted to see a specialist. There is a lot of Cancer in my family. Does anyone know…
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Left Kidney removed
I am 36, got 5.8cm mass on left kidney. Both mass and the left kidney was removed laparoscopically. It’s been 6 weeks since the removal. Life has changed, emotionally too. Should I be on a specific diet. Should I specifically do something. Can I lift weights and go for runs?
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problems after nephrectomy...anyone else have this?
Hi! I had a full nephrectomy 5 months ago and I am still severly swollen on that side. I am numb (feels like when your hand goes to sleep) from my hip to 1/2 way down my thigh all the way over to my groin area. This is all the time... I have not had feeling since my surgery. I have sharp stabbing pains all the time in this…
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My Four-Year Scans: NED!
Had my four-year scans this week. I've been so busy with work and family and upcoming holidays , I haven't had time to get nervous about them. No time for any scanxiety. Oh, but it eventually got me. Scanxiety is a clever monster, I'll give it that. Had my CT scan of my chest, quick and easy, no problem. Had to wait a…
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Holiday Season
Happy Holidays to everyone! Wishing everyone a”Negative” 2023!
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Radical Nephrectomy
Hello, I'm scheduled to get a radical nephrectomy for a very small tumor (2.5cm) in my kidney. I'm a 31 year old female and do not fit the normal profile for RCC but they are very concerned about the tumor so my kidney will be removed. I had my pre-op appointment yesterday and asked as many questions as possible. I'm…
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3 time rcc champion
I just wanted you all to know that Lord forbid your kidney cancer to return, mine did 10 years after my 1st diagnosis. And then again just 4 months after my 2nd. I am proud to say I beat it for the 3rd time in June 2020. I hope everyone else is doing good. Thank you and God bless you all
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First three month scan
My three month scan is negative! The best Christmas present ever!
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Small area of T2 hyperintensity within the left kidney
Hello My 70+ YO bride of many years had a spine MRI recently. The MRI says in part: "Small area of T2 hyperintensity within the left kidney is incompletely characterized on lumbar spine MRI." Question: What does this mean? The F/U with the doctors is scheduled for early next year. Thank you and take care
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1 month post-op, & I just don't feel well.... Insight, anyone?
Hey, everyone -- This is Terri. I'm 46, and am one month (tomorrow) post-op after my open radical nephrectomy to remove my left kidney. I am taking Advil for some minor discomfort (mainly where my 10" abdominal incision crosses my c-section scar). For the past week or so, I have just not felt 'well'. I feel very tired &…
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Cryoablation for kidney cancer
A couple of weeks ago I had a 2cm malignant tumor removed by percutaneous cryoablation. For now, the scans show that the tumor was completely frozen and the outlook is good. My concern is that I have had a consistent swelling (the size of an eggplant) starting at my waist and going almost to the navel. I am also completely…
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Lung Nodules Confirmed to be RCC METs
Diagnosed with kidney cancer in October 2018. Woke up one morning with blood in urine and severe back pain. Left kidney was involved only with 6.5cm mass. Entire left kidney removed was considered stage 1, grade 1 with no lymph node involvement so confidence was high I was completely cured. Pathology was Clear Cell…
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Renal mass right side
I was recently diagnosed with RCC, I have a rather large mass like 18x13x13 cm on my right side, It may be connected into may large intestine can barely see my kidney, all my other organs are fine for now according to doctor and my ct scan, Doctor wants to try shrink and remove, but this is in early stages of…
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Long Break...update
Hello, everybody I've been away from this forum for quite some time. Reason: I felt I was spending too much time thinking about cancer and needed to get away from it. Even now, six years from diagnosis, I still get a weird feeling in my gut if I think about "it" too much. I guess I still have some healing to do:) Anyway, I…
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Enlarged lymph nodes 2 1/2 years after RCC
I was in the ER Saturday for what had been diagnosed as cellulitis 2 weeks earlier. I had many tests including a chest X-ray followed by a CT scan that showed bilateral hilar lymphadenopathy. It was suggested I follow up with my oncologist on Monday. He has suggested a PET scan. I was just wondering if anyone has had a…