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Longer Time
Hi Everyone, I have not posted a NED thread before mostly because my kind of cancer was different from the norm. Most here suffered through SCC and have a 5 year clear goal line. Mine was Mucoepidermoid Carcinoma and not as bad if caught early. The main difference was not getting chemo because they said my C wouldn't…
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Question For the Experts
Hey folks, just want to run this by you. I’m a 39 year old maLe, smoked marijuana and drank pretty heavily in my 20’s, haven’t smoked anything in over 10 years have a glass or two of wine every day. Two weeks ago today I got a sore throat which hasn’t responded to any otc medicine. It gets better for a day than goes back…
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lump in neck
Hi im a year and a half post treatmant for HPV ,PRIMARY TUMOR WAS IN TONSIL.Has any one had a lump come back in neck that wasnt cancer
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skipping radiation/chemo after surgery for neck cancer
I have surgery scheduled for July 3 to remove my left tonsil and some lymph nodes that most likely is caused by HPV (I'm in my early 40's, male, never smoked). last Thursday I got the chance to sit down with my "team" of doctors to discuss my treatment. My doctors want to follow up surgery right away with 14 days of…
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Best doctor/hospital for laryngeal cancer (recurrence)?
Hey everyone, I posted last week that we saw growths on my vocal cords that were new since December. Biopsy confirmed that the cancer is back. Came back in less than 6 months after I finished radiation. Wish I would've done chemo, too. CT scan showed that it hasn't spread anywhere outside of my vocal cords. My doctor is…
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Partial Glossectomy Yesterday 6/21/18
Good Morning First I would like to give God the Praise Glory for a successful operation that went well. And thank him for the all the many who were praying so fervently for me. And for the great medical team I had that made everything go so smoothly and successfully. That applies over the whole gamut of my care at the…
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New to board
So I am new to the board and group. While I have not had an actual diagnosis of cancer of my tongue, I was diagnosed with high grade dysplasia. I know my diagnosis could be worse, but I can’t get the worse case scenario out of my mind. Anybody with experience with this and advice? I’m am so scared that maybe I have cancer…
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5 years officially "Cancer Free"
It has been a long time since I was here, but wanted to let all new folks here that there is a light at the end of a miserably long tunnel. ENT says she only needs to see him once year. Long list of long term side effects but he is glad to be here today. 2 years ago today he was able to walk his daughter down the aisle.…
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Finished my 7 weeks of treatments
Hello all I just finished my 7 weeks of treatment this past Friday and I faired pretty well compared to others. No pain other the skin pain and that is because the last week my skin finally broke down and I have a few sores in my mouth that week as well. My questions are when does the skin heal because the pain is awful…
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Magic mouthwash
Hello Everyone just picked up my magic mouthwash....doesn’t smell bad which is a good thing but what about taste?? I can not do things that taste gross. Also no info on this on the pamphlet they give other the four times a day before meals and bedtime. Does this help with the throat meaning soreness?? Thank in advance…
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Radiation causing skin cancer
Well I went to my dermatologist because I have had a rash on my arms for the last 6 weeks. He let me know that it was due to the changes in my skin brought on by the Cisplatin. I have been out of treatment just shy of 1 year, but he said this could be a life long side effect. I was prescribed some creams which do help by…
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Lymphedema and ear pain?
Hey all - does anyone have any experience with ear pain that may be caused by lymphedema, or by the lympedema massages? I've had pretty significant lymphedema on the right side/tumor side of my neck ever since the surgery to remove BOT cancer and neck dissection in December, just started getting the massages/therapy about…
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BASE OF TONGUE CANCER
Hi eeveryone. My father has base of tongue cancer since mid-end 2015. It was found only october 2016 as a base of tongue cancer or carcinoma.He got succesful surgery january 2017 removing the mass which was huge. after that he got 2 chemos and 35 radiology ending novemebr 2017 which shrank the the tumor andsome in lymph…
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I'm part of a clinical trial
I feel I am a lucky person to have been approved to participate in a clinical trial for a less damaging radiation treatment. I had been seeking treatment with protons for that same "less damaging" reason, but due to various factors, getting insurance approval was simply taking too long. I start Tuesday. Involved Field…
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23 Months Post NED
Hello all. Been some time since I posted to the site. I hope all are doing well and those in current treatment are receiving the advice they desparately need. I know this site helped me during my time in treatment. I had a 23 month post treatment ENT appointment today for Stage IVA Tonsil cancer (T2N2aM0). Cancer had…
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Five Years and Still Going Strong
Friends It is has been a long long while since I have been here but turned the corner and it was my 5th year anniversary of ending treatment and being declared cancer free. In two weeks I return to the wonderful place of hope and healing at MD Anderson Houston for my fifth year checkup (you know what that means -- sniff…
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How to overcome Radiation Mask fear? or unable to breath?
Hi everyone, its me again. I've just completed my first chemo today but was unable to get my first radiation because either I had gain and put on 3kgs or I just have this feeling and fear that I am unable to breath. Therefore would greatlly appreciate some advice on "how to lose 3kgs" fast at the head and neck within 3…
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Hi All! I'm checking in
As some of you know, I've had a hard ride but I just finished (about 3-4weeks ago) my second course of radiation to the area where my cancer had spread. In March, I was in hospital, unable to see, walk, or dress myself. I was prepared for death but amazingly there were treatments that gave me quality and my life back, for…
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ENT Visit Preop-
I had my ENT visit on Tuesday June 12, 2018. This was for preop consultation and any questions I had relating to the cancer under the left side of my tongue. I have been calling this a recurrence of cancer from my previous episode of throat cancer but the ENT says it is not a recurrence but another cancer a new episode of…
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Peg Tube removal
After 10 long months, I have just received the word that I can have my PEG tube removed! Happy Day! The doctors office was pretty vague about the procedure. Does anyone have any words of wisdom or hints or tips that I should be aware of before hand? Thanks Deb
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End of week five no pain but thick mucus....HELP!!
Hello everyone.... Today marked the ending of week five and I’m fairing pretty well my doctors tell me. Aside from being tired all the time and now build up of mucus is gagging me and making me throw up!! And secrets or suggestions to help with this??? I have two weeks left and I am anxious and waiting for the ball to drop…
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Chemo radiation to lymph nodes vs neck dissection
Hello, it’s been a while since I last posted . The first time was for treatment advice for my husband back in December 2017 and many members offered very useful information at that time. My husbands 13 week post treatment PET scan is approaching and the scanxiety I see discussed on the boards here is setting in. His…
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Interesting information for the new comers
I am a 3 1/2 year survior of HPV positive Tonsil cancer and finished 6 weeks of IMRT with no chemo 3 1/2 years ago. I got 70 GY on the left side of my neck and 35 GY on the right side. Other than some dry mouth which has imroved significantly since treatment, I am doing great. The following video talks about de-escaltion…
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Hey Curlyn! Thinking of You
I know you are fighting with all your might right now. Just really wanted to let you know that I am thinking of you and praying that you are doing well with your treaTrent. You likely have little energy to respond but are lurking. Know that your friends over at Head and Neck Cancer are here for you!
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constipation
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An easier fix for radiation scatter/burn off dental work?
Hey kids, noob here. I'm about four weeks into chemo and radiation [for a tumor on a tonsil and a couple spots on some adjoining lymph nodes (all taken out, in addition to most of the rest of that side of my neck, haha)]. Anyhow, at the zap lab, I was getting radiation burn on my tongue due to scatter off my new dental…
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Teeth problems
Hello to all, My dad is 5/12 years from chem and radiation treatment to his tonsil. One problem we are having is his teeth just break off, come out whole or have been grinded down as a result of a root canal. The only treatment I have been offered is to go in the hyperbaric chamber to try to promote bone growth. Has anyone…
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Alcohol after treatment
My bf of 22 years never told me how bad his swallowing was getting. When his voice changed dramatically and I was able to drag him to the hospital we learned he had Stage IV HPV scc tonsil cancer. His tumor was between 5 to 10 cms. He had emergency tracheostomy and feeding tube. We've ended 40 rads and 3 Cisplatin. PET…
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Scared to death
I was diagnosed with throat cancer 3 months ago.. treatment was supposed to be 33 radiation treatment and chemotherapy. I had the mask made but due to my aniexty and claustrophobia which I didn't even know I had an issue with I freaked out once they put me on the radiation table..they not only locked my head in place but…
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Treatment done - Feel worse!
Hi everyone. Sorry it's been awhile since I posted. In and out of the hospital. Feeding tube fell out dehydration severe nausea. My treatment ended last Monday but my wonderful radiation team failed to tell me that the next 3 weeks post treatment are the worse. I have more mucuos nausea and dizziness than I did before!…