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One year NED
Hello Everyone, I have not logged on for quite a while. I just wanted to update that my husband is one year post treatment and he had his one year follow up and everything looks great! He did not have a scan as the insurance only covers one at six months out and that is it. He had an unknown primary, so the doctor is going…
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Charmit
Anyone heard from Charmit? If you are out there... just thinking about you and hope you are doing well! D
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Left side of throat/jaw swollen and painful
Hi thanks for taking time to read this. I'm a 25 year old male that has had no major health concerns up until the past year. I've experienced trouble swallowing and speaking for about a year with other strange sypmtoms including muscle swelling and twitiching in the left side of my face and neck/throat. I've also…
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throat obstruction
Hi, I have been finished with radiation for 6 weeks, and was one of the lucky ones who had relatively easy treatment side effects. After finishing my liquid meals it feels like there is something in my throat. It also feels this way when I try small bites of food as I go about trying to taste foods again. Even with…
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adenoid cystic carcinoma
Dies anyone have adenoud cystic carcinoma? I was diagnosed with 4A. Going to Moffitt in Tampa. Dr Trotti and Dr Kish.
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New to group/surgery question
Good afternoon, My husband was recently diagnosed with lingual tonsil SCC, still waiting on HPV status, hoping for positive result because prognosis seems much better (from what I have read). In 1 1/2 weeks he will undergo a TRANSORAL ROBOTIC BILATORAL LINGUAL TONSILLECTOMY and neck dissection to remove lymph nodes in neck…
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Post treatment, how long does it take to feel good?
My husband finished 8 weeks of chemo, and 8 weeks of radiation with chemo about 2 weeks ago (diagnosed with stage IV tonsil cancer). I believe the doctors said he will still be suffering the effects of treatment for 2 months after stopping. He is still suffering from fatigue, loss of taste, mouth issues. When did you…
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Newbie
Recently diagnosed with Tonsil cancer right side with 3 tiny lymph nodes same side. Nodes are not visible at all. The cancer is HPV positive. This year they did a complete overall of the staging of HPV cancers. In Head and Neck cancers that are HPV negative the staging has not really changed. They have now seperated out…
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Starting treatment 7/30/18
Wish me luck, I am starting radiation 7/30/18 and have my first infusion of high dose Cisplatin on 7/31. Trying to enjoy my last day before treatment begins. I have been eating like crazy the last several weeks and have gained 18 pounds. That puts me at 245 pounds. Should weigh around 185 so hopefully I can make it thru…
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Nervous
So at my last onc visit..did a scope and was NED...yesterday I found 2 lumps ,growths, under my tongue..were not there last month...i dont want to be that patient who freaks out but i am...they have grown in 1 month.. looks like SCC cancer pic ...but on dr google...just afraid of callin dr
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New member/treatment options/Proton
Sat, 07/14/2018 - 4:25pm — skidog Hello all. While I'm a new member to this forum, I've been an avid rsearcher/ learner and reader of many of the good folks who post their experience and stories here. I'm very grateful for you all. You have helped me tremendously from pre diagnosis all the way through my current status ( 1…
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SWALLOWING ALMOST IMPOSSIBLE AFTER IMMUNOTHERAPY
MY FATHER TOOK HIS HIS SECOND IMMUNOTHERAPY AND HARDLY SWALLOWS. BASE OF TONGUE CANCER. ANY SUGGESTIOND PLEASE. HE HAD 2 SURGERY, CHEMO AND RADIOLOGY. DOES THID MEAN DISEASE ADVANCES OR IMMUNO EFFECT ? LITTLE EARLY TO DO CT SCAN WAS TOLD TO SEE PROGRESS. THANK YOU.
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Feeding Tube Help
My husband was diagnosed a year plus ago with SCC P16+. After undergoing a full tonsilectomy & 38 biopsies down his throat and neck, they never found the sight of origin. He went thru 35 radiation and 5 chemo Treatments, finishing in Oct last year. the tumor didn’t shrink as much as they had hoped, so underwent radical…
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BC Cancer Agency
Is anyone else out there being treated at the BCCA?
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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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365 days out of treatment today
Thats the first year done no side effects remaining in any way I was mostly back to normal after 4 months.
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Just Celebrated One Year
One year ago today, my 55 year old husband finished 35 radiation treatments and 3 doses of chemotherapy, Cisplatin, for stage 4a tonsilar cancer. He is now working full-time and is generally in good health. He had a rough time with treatment. He stopped eating completely even with the PEG tube. He ended up on TPN,…
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Just like that...gone
Im sure my bf wouldnt say it quite like that since he was the one with the tumor..but almost 7 months to the day, he is cancer free. The emergency tracheostomy and feeding tube...gone. The large tumor in his throat...gone. There is still a small issue with swallowing but he's up to chicken, steamed veggies and…
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TWO YEARS TO THE DAY SINCE MY OPERATION
Can't believe that it has already been 2 years since my operation (July 18, 2016). Still going strong. Now I have to get over the 5mm nodule that has developed in my upper right lung. CT scan with contrast scheduled for September 15, 2018. Hoping for NED. Take care everyone. Steve
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One week post treatment
Hi all. I have just finished 7 weeks of chemoradiation. I am hpv + tonsil cancer with nodes involved. One week has paased. One week after i notice that nodes have shrunk in size signoficantly but they are still there and i can feel them on touching. I am worried if my rreatment is successful or not. Plz comment. What was…
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Gardasil Injections
I received my 3rd and final gardasil injection yesterday; even though I am way , way, did I mention way, over the age range that they are normally given; my rad doc feels since I was never a smoker or much of a social drinker, that my cancer was something viral. I asked about HPV when he mentioned the injections last…
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Posting Question-Line Spacing
Can't figure it out how do you eliminate the spacing between sentences. Sometimes when posting a fairly long answer or question if it was compacted without the space between lines, it would take less space and be more readable. I have tried a number of things including typing in an office program where the lines are…
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ROLL CALL 2018 - Updated January 1, 2018 CLOSED!! DO NOT POST HERE!
ROLL CALL 2018 1st Update January 1, 2018 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
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My story with SQUAMOUS CELL CARCINOMA, HYPOPHARYNX
Hi my name is Tak, It was the summer of 2016 while sitting in my patio smoking and drinking beer that I noticed a small but persistent lump in my throat around my vocal cords. I said to myself, "Boy, this lump has been there for several months". I wondered if this could be cancer. No way, I have a great lineage. My dad is…
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My answer to urgent help question
All H&N members: Thank you all for your response to my question about painful swallowing and throat excersizes. It really is the hardest thing we have to do. I think rad and chemo treatment easier to handle. I use to love eating but now have anxiety if I will choke just taking sips of soup. I'm alone mostly cause b/f works…
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facial sweats
It's been two months since radiation ended. I have facial sweats while eating for the past few months. Is there medication to reduce sweating? Does it go away over time?
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Carotid Stenosis from Intense Radiation
Has anyone been diagnosed with carotid stenosis due to the intense radiation for nasal pharyngeal cancer? My husband had the 33 radiation doses, 3 chemo doses of cisplatian and one adjuvant of cisplatain and 5FU. Durung last chemo he started displaying coordination issues walking- dizzy, strange feeling and not steady…
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Intamacy- Sex after Treatment
Those who have gone throught the HPV+ treatments and now submitting to the annual PET scans. THose who are clean after 1,2,3,4 plus years. Are you still having sex? Are you taking any precautions?
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7 weeks post radiation still mucus
I thought and doctors said the norm is 3-4 weeks. I am on my seventh week post rad and the mucus is still there. I want to start eating but the mucus makes it difficult. I have been getting some taste back and I want to get off this feeding tube and eat. Damn food commercials on TV are killing me. Its difficult to sleep…
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Neck Dissection Recovery is Erratic
Hi, My name is David and I was diagnosed with squamous cell cancer in lymph node in base of my left side of neck. The drs determined it had originated from my skin ( I’ve had many skin cancers).I had a modified neck dissection 5 months ago. 30 lymph nodes were removed. In general the pain along the incision has improved as…