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Head and Neck Cancer

Question about newly diagnosed SSC HPV Stage II
My husbad was diagnosed with SSC HPV Stage II June 2018. We've been fighting with the insurance company since then. We are on a limited PPO -- who knew cancer was coming? We won the fight and he'll have robotic surgery August 16th to remove the cancer in his throat, as well as regular surgery to "strip" the lymph nodes,…
Stage IV squamous Cell Carcinoma
Hello everyone. My father has stage 4 scc on his cheek and jaw bone. The doctoc at the VA gave him 18 months to live. I convinced him to get another opinion and today the can er center doctor told him. 2 months. It’s very fast progrisis cancer but how are they giving him life expectancies when it hasent spread, he had…
Cancer in the Upper portion of the Esophagus
Hi All. I am wondering if anyone has had Cancer in the upper (cerival portion) of the esophagus? My mom was recently diagnosed with Cervical Esophageal Cancer. She is T2 or T3, N0 or N1, M0. They are not sure about the lymph because they cannot biopsy it due to location. did not light up like normal cancer would on PET.…
Strange Symptoms
This is a difficult one to describe and will most likely not end with knowledge. Trying to keep it short is hard too but I'll try. The year before I was diagnosed with tongue cancer (BOT MEC), several times a month I'd get a low grade fever. (99-100) At the time I assumed it was due to having a sinus infection and why my…
Adjuvant Chemo for Nasopharyngeal Cancer
Hi. New to this site. I am 4 weeks out of concurrent radiation and chemo. I’ll be starting adjuvant chemo (Cisplatin combined with 5fu) and I’m wondering how it compares to the cisplatin I got during radiation. I’m doing ok starting eating soft foods but having a hard time keeping food down. I’ve got the feeding tube but…
Feeling itchy
I am two weeks post treatment of hpv + right tonsil cancer with metts to lymph nodes. I am feeling sore throat and itchiness exactly at the right side of tonsil where my cancer was diagnosed. It comes and goes, not permenant. Plz tell me why it happens? Should i worry about it? Plz comment did you have any feeling like…
Adenoid Cystic Carcinoma
Hello All, I was recently diagnosed with Adenoid Cystic Carcinoma and will be meeting with the Radiation Oncologist on Friday. I am curious about the differernt types of radiation and if anyone has any information on the most appropiate type for this cancer. Any suggestions and information would be most appreciated.…
Salivary Duct Carcinoma
Hello, my name is Hannah and I am newly 26. I live in CT and work as a children's outpat clinician. I was recently diagnosed with stage 1 salivary duct carcinom...I start 6 weeks of daily radiation next week and I'm feeling pretty nervous about it...I had my treatment planning session last week and left feeling pretty…
POST CHEMO/RADIATION-sex drive in men
I'm just going to boldly throw this out there. My husband and I had a healthy sex life before 17 weeks of chemo and 35 days of radiation to the head and neck. He sees an endocronologist and is taking Clomiphine as it tells the brain to produce testestrone. It has increased his testosterone levels to the 400s, but he still…
ROLL CALL 2018 - Updated July 14, 2018
ROLL CALL 2018 1st Update July 14, 2018 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to Enroll…
Shaving during radiotherapy / chemotherapy
All, a dumb yet practical question. Any tips on shaving when skin gets sore. If I grow a beard it gets ginger/white bits. Its likexwearing a black suit with brown shoes! I have never used an electric razor! They seem to be the thing. Any help appreciated. Thanks.
carotid artery damage from radiation treaments
i had throat cancer in 2008, after 35 radiation treatments and 9 chemo treatments i was declared to be in remission, but i was told the my carotid arteries were 80% blocked. this was from a c-scan. i was sent to the university hospital and had an Ultra sound done and it showed me to be barely 50% and 60%. this year my test…
first high dose cisplatin treatment today
Had my first high dose treatment of Cisplatin today in addition to the nornal radiation. All the support staff at UC San Diego Cancer Center were wonderful. I was well taken care of. All went very well and I currently feel fine 4hours after treatment ended. I did tske 1 1/2 mg of Activin after treatment because I still had…
Tongue burning after radiation.
Tongue burning like hell one week post treatment 33 radiations. Both sides of tongue bottom side triggers every 2 to 3 hours. Any suggestion. Plz help.
Tongue Pain months after surgery and Radiation
Hello, So i am 11 months out of my 2nd tongue resection, 10 months out of my lymph node removal and 7 months out from finishing radiation therapy. I had a Squamos Cell Carcinoma on the right anterior portion of my tongue. After mulitple resection and radiation i was told it is gone. About 6 days ago i started to have pain…
Interested in cutting edge research for Oropharynyx Cancer
Helo everyone! I am currently researching Oropharynx Cancer and am interested to share and interact based on medical and unbiased literature.. In my treatment, I do not blindly follow the suggestions made by "doctors": without thoroughly educating myself; embrace the information and reach my conclusions, further edited by…
One year NED
Hello Everyone, I have not logged on for quite a while. I just wanted to update that my husband is one year post treatment and he had his one year follow up and everything looks great! He did not have a scan as the insurance only covers one at six months out and that is it. He had an unknown primary, so the doctor is going…
Charmit
Anyone heard from Charmit? If you are out there... just thinking about you and hope you are doing well! D
Left side of throat/jaw swollen and painful
Hi thanks for taking time to read this. I'm a 25 year old male that has had no major health concerns up until the past year. I've experienced trouble swallowing and speaking for about a year with other strange sypmtoms including muscle swelling and twitiching in the left side of my face and neck/throat. I've also…
throat obstruction
Hi, I have been finished with radiation for 6 weeks, and was one of the lucky ones who had relatively easy treatment side effects. After finishing my liquid meals it feels like there is something in my throat. It also feels this way when I try small bites of food as I go about trying to taste foods again. Even with…
adenoid cystic carcinoma
Dies anyone have adenoud cystic carcinoma? I was diagnosed with 4A. Going to Moffitt in Tampa. Dr Trotti and Dr Kish.
New to group/surgery question
Good afternoon, My husband was recently diagnosed with lingual tonsil SCC, still waiting on HPV status, hoping for positive result because prognosis seems much better (from what I have read). In 1 1/2 weeks he will undergo a TRANSORAL ROBOTIC BILATORAL LINGUAL TONSILLECTOMY and neck dissection to remove lymph nodes in neck…
Post treatment, how long does it take to feel good?
My husband finished 8 weeks of chemo, and 8 weeks of radiation with chemo about 2 weeks ago (diagnosed with stage IV tonsil cancer). I believe the doctors said he will still be suffering the effects of treatment for 2 months after stopping. He is still suffering from fatigue, loss of taste, mouth issues. When did you…
Newbie
Recently diagnosed with Tonsil cancer right side with 3 tiny lymph nodes same side. Nodes are not visible at all. The cancer is HPV positive. This year they did a complete overall of the staging of HPV cancers. In Head and Neck cancers that are HPV negative the staging has not really changed. They have now seperated out…
Starting treatment 7/30/18
Wish me luck, I am starting radiation 7/30/18 and have my first infusion of high dose Cisplatin on 7/31. Trying to enjoy my last day before treatment begins. I have been eating like crazy the last several weeks and have gained 18 pounds. That puts me at 245 pounds. Should weigh around 185 so hopefully I can make it thru…
Nervous
So at my last onc visit..did a scope and was NED...yesterday I found 2 lumps ,growths, under my tongue..were not there last month...i dont want to be that patient who freaks out but i am...they have grown in 1 month.. looks like SCC cancer pic ...but on dr google...just afraid of callin dr
New member/treatment options/Proton
Sat, 07/14/2018 - 4:25pm — skidog Hello all. While I'm a new member to this forum, I've been an avid rsearcher/ learner and reader of many of the good folks who post their experience and stories here. I'm very grateful for you all. You have helped me tremendously from pre diagnosis all the way through my current status ( 1…
SWALLOWING ALMOST IMPOSSIBLE AFTER IMMUNOTHERAPY
MY FATHER TOOK HIS HIS SECOND IMMUNOTHERAPY AND HARDLY SWALLOWS. BASE OF TONGUE CANCER. ANY SUGGESTIOND PLEASE. HE HAD 2 SURGERY, CHEMO AND RADIOLOGY. DOES THID MEAN DISEASE ADVANCES OR IMMUNO EFFECT ? LITTLE EARLY TO DO CT SCAN WAS TOLD TO SEE PROGRESS. THANK YOU.
Feeding Tube Help
My husband was diagnosed a year plus ago with SCC P16+. After undergoing a full tonsilectomy & 38 biopsies down his throat and neck, they never found the sight of origin. He went thru 35 radiation and 5 chemo Treatments, finishing in Oct last year. the tumor didn’t shrink as much as they had hoped, so underwent radical…
BC Cancer Agency
Is anyone else out there being treated at the BCCA?

Head and Neck Cancer

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