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Update 2018
Hello all, Its been quite a year. My husband finished treatments over a year ago. It’s crazy to type that let alone think that. While he was going through treatments the future seemed so unsure. And now here we are a year later . His scans have all been amazing. The dr. Is pleased with what he sees when my husband goes in…
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Tomorrow will be four days till my first treatment and I’m OVERWHELMED
As I sit here I’m counting down the days till my first chemo treatment and first radiation and my heart is racing and I feel numb like a fog like state. The days are easier because I keep busy, the nights not so much all I do is sit and think. I realize Monday is going to come reguardless my worrying and the 7 weeks after…
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Husband dx with Severe dysplasia of tongue!
Hi...new here...and looking for information, information, information! My husband has had an on and off again irritation to his underside of tongue for some months now. He went last week for a biopsy from his oral surgeon and it came back today as severe dysplasia! I am trying to stay calm and need to keep him calm but I…
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Welp, my good luck may be running out.
Hi all, I consider myself very lucky to have avoided serious side effects after treatment ended in January. About two weeks ago, I noticed i had a persistent cough, which I assumed was due to some aspiration. Over last weekend, it started to develop into pain, and so I called up MSK. Long story short, I had a chest x Ray…
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HELP TREATMENTS START APRIL 30
I new to this site and this cancer site. I was told I have head and neck cancer stemming from the HPV virus. Been a long few month had a cyst removed on March 1 and the pathology came back there were 2 out of 3 nodes were affected with cancer. My ENT suspected the source being in my left tonsil. Removal of that was the…
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First scan coming up...
Hello Everyone... Hope all of you are well and enjoying the beautiful Spring weather. In about a week and a half , I will be having my first CT scan since radiation treatmenttreatment with an appointment with my ENT following the scan. To tell you the truth , I am petrified. My ENT had told me a couple of months ago that…
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2nd Opinion Squamous Cell Tumor Lymph
Hi, My husband has re-occuring tumor lymph HP-, had vocal nodule removed, next year neck dissection followed by chemo/radiation. 2017, 3 month post treatment PET was told he was clear although there was a slight uptick in surgery area. Insisted ion biopsy, were advised nothing to biopsy likely scar tissue. To our horror 6…
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6 year NED
H&N friends, I crossed over the 6 year post barrier and had my final (actually one extra) cancer exam and it was great. My ENT was in a stellar mood and he felt, looked and scoped to several good words “Everything looks great”. Of course there were more doctor words about no swelling, no mass, no ulcer, patient has…
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Diagnosed with SCC nodal metastatic disease, but true?
Hi, my name is Sandi, and I just turned 58 last month. I've had a lump in my neck, right side, just below my jaw. I first noticed it when I went for a facial, and my technician kept running her fingers over it. It was not painful, so after the facial, I too ran my fingers over it. It was somewhat enlarged. I made an appt…
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Metastasis under jaw line - any similar experiences?
Hi All, I am trying to be a bit more active in this forum to not only support others but continue to voice some ongoing concerns in my own health. Recently I noticed a small hard lump under my left jaw line. It is not on the surface but rather in the hollow inside the jaw (think if you pushed your thumbs up under your jaw…
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To continue or not
Hi everyone, Here is a brief of my story- My mom was diagnosed with tongue C T2N1MZ on the base of her tongue. She had a successful surgery and is going through radiation. So far not good. We are three weeks into it and she is not taking it well. I fear if this is her situation now what do we have in store in the future.…
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Family member almost done w/Tx weight loss??
Have a family member who just had their 3rd chemo, and by the end of the week will be the last of 35 rads for tonsil cancer. They were adament about no PEG tube and have lost a great deal of weight. 25% (44#s) Would appreciate anyone willing to share how much they loss, especially % wise and what kind of treatments you…
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5 Months Post
Well, haven't been on here for a while, keep forgetting my password, lol. Anyway, I was Squamous cell base of tongue with 1 lymph node involved, finished 35 rads and cisplatin Nov 15th. Tongue tumor had long disapperaed, but the lymph node had not shrunk at all. Drs waited til 2 months post and ordered a PET scan, telling…
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HPV+ Cancer Survival Rate
I’ve heard that HPV+ H&N cancer has a 92% cure rate. What are the statistics for 5 year survival and beyond?
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Can't get rid of nausea
I'm in week 3 of my treatments and I have nausea almost every day. The nurses keep prescribing meds that don't work. As soon as I take them I throw up. I have a peg n just started using liquid food. But needless to say the food doesn't stay in me. Nurses are'not listening to me. They just keep telling me to take the nausea…
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Treatment Underway
Hi everyone. I wanted to give an update on my status. After finally getting my PET scan approved by insurance, the results came back as a 48 year old male HPV SCC stage 1 T2/N0/M0. I was able to catch this early because I had a growth off my tonsil that I could feel in the back of my throat and so I went to the ENT. So…
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One side of radiation compared to both sides
Hello question has anyone experienced having just one side that needed radiation and if so how were the side affects for you? Second questions to the individuals that needed treatment on both sides how were side affects for you? I realize all are different but the common realm of things how did each cope? And this magic…
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Week 2 treatment
On day 3 week 2 of treatment. First week chemo brutal! Have chemo every Friday and last weekend had dry heaves took nausea meds didn't work. Could not eat or drink for 3 days. Peg tube got clogged due to nausea meds not totally disolved. Ugh.. They had me go to the hospital for IV infusion. Even on my rad days I try to…
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Half-way point...Scared about long-term side effects
Greetings, My spouse had robotic surgery Feb. 16 to remove a 1.2 cm tumor from the base of her tongue. It was HPV positive. At the same time, the surgeon took all of the lymph nodes from the left side of her neck. Pathology showed three of those nodes were cancerous and two of them showed extranodal extension. So, that…
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Septoplasty and Dry Mouth
I am a 6 year survivor and need some input from the group. Without going into the gory details, while I was recovering from rads I suffered a broken nose when I face planted one night. I've lived with a diminished ability to breathe out of my nose and recently decided to do something about it. I'm going to have a…
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blast from the past...
Hi everyone! I hope everyone is having a great day, feeling well and happy! I haven't been on here for what seems like forever! I had major computer problmes at one point and it gave me all kinds of problems getting on to the site. Anyhow, I'd love to hear how you all are doing. I personally just got my 5 year scans about…
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Adenoid Cystic Carcinoma
Hello, I am new to this site and decided today to join. I found out in 2009 I had Adenoid Cystic Carcinoma, a very rare cancer that usually begins in the salivary gland. After having had surgery at Ohio State, and completed 35 radiation treatments in my hometown, all was well. Until June of 2011 when I found out it has now…
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Mask, phlegmy throat and panic attacks
Hi, I am starting radiation on Monday. When being fitted for the mask I had a claustraphobic panic attack. The nurses said this was comon and prescribed Lorazapam. Having followed manny conversations here over the last several weeks I noticed a common side effect of treatment is phlegmy throat. I am really concerned that…
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Crying times
All this cancer stuff finally got to me. I cried a few times cause of trying to handle upcoming feeding tube rads and chemo. Will miss working badly as its good therapy to get ur mind off ur health issues. Ironically I help elderly people with thier heating bills so they don't get shut off which of couse is dangerous in…
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chronic rash and sweating months after treatment
Hello all, I'm posting on behalf of my dad who underwent successful (we hope) radiotherapy treatment for a tumour in his sinuses last year. The radiotherapy that followed surgery was completed 6 months ago but he has been suffering from a severe rash and chronic sweating which has been slowly getting worse and worse over…
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I just finished treatment
Hello, I'm Tim. I just finished 35 rounds of radiation and 5 rounds of chemo. Boy this took much more of a toll on my body than I thought. I still can't swallow (it's only been one month) nor drink much. I lost 40lbs through this and have no energy. I'm worried about my pet scan and overall prognosis. I'm 54 but have young…
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Proton Beam therapy
Right side tonsil cancer SCC, HPV+, stage IVa N2, no evidence of distant metastasis, both tonsils have been removed, no neck dissection. The plan is for 7 weeks radiation and 3 cisplatin treatments and then possible neck dissection. It looks like I may have the opportunity of getting proton beam therapy. I will be having a…
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Proton Therapy at Scripps
Hello all, I hope to start treatment on January 30th for tonsil and base of tongue HPV+ cancer. I had an enlarged left tonsil which turned out to be cancer and had a tonsillectomy in November. Since then it's been non-stop doctors and trying to decide on the best course of treatment. I'm 54 and in generally good health,…
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Anyone with SCC HPV+ NOT have chemo or had alternative treatment
looking for anyone Stage 3 or 4 SCC HPV+ that did not do chemo, but either did radiation only or an alternative treatment? the more I read it seems the more chemo may not be needed in all treatments. I am just worried they are fighting my cancer with cancer causing agents
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Carbo/ Taxol
This is the 3rd choice of chemo that was decided on. I didn't want to deal with the rash so I decided on this as did the chemotherapist. My radiologist said this wasn't proven for BOT SCC cancer. He said good for lung cancer and I also reminded him also is used for Cervix SCC My question is has anyone used this for BOT…