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Intamacy- Sex after Treatment
Those who have gone throught the HPV+ treatments and now submitting to the annual PET scans. THose who are clean after 1,2,3,4 plus years. Are you still having sex? Are you taking any precautions?
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7 weeks post radiation still mucus
I thought and doctors said the norm is 3-4 weeks. I am on my seventh week post rad and the mucus is still there. I want to start eating but the mucus makes it difficult. I have been getting some taste back and I want to get off this feeding tube and eat. Damn food commercials on TV are killing me. Its difficult to sleep…
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Neck Dissection Recovery is Erratic
Hi, My name is David and I was diagnosed with squamous cell cancer in lymph node in base of my left side of neck. The drs determined it had originated from my skin ( I’ve had many skin cancers).I had a modified neck dissection 5 months ago. 30 lymph nodes were removed. In general the pain along the incision has improved as…
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9 weeks post eating some solids
I am tryng various foods. I notice i have to chew pieces to very small size. Chicken hangs up in my throat. The other day had pork chop and no problem swallowing. I still have mucus fits so thats not helping. I tried russian pancakes the other day and it got hung up in my throat. I starting gagging and had to stop. Does…
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Answers Can't Come Soon Enough
I had a tumor removed from the base of my tongue and partial neck disection in August of 2016. Followed by 30 radiation treatments. I am nearing my 2 year anniversary. I began experiencing tenderness in my throat and tongue about a month ago. My tongue feels bloated abd I have some difficulties swallowing. During a routine…
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Urgent question - Help!
Hi all H&N members: I'm 6 weeks post treatment and I still have bad throat pain where I can barely get a trickle of water down and can't eat soft foods. The speech therapist said if I don't eat and drink Now I will have my feeding tube forever. Because my throat muscles need to be excersized. Is this true? When I try to…
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Wet cough
there are times when I tend to get involved with my life and the fact that my husband had camcer a year ago. But then something happens and i remember. About a week ago i had a pretty nasty cold. It lasted a few days and then it was gone. Last Tuesday my husband said his throat hurt, kinda swollen. The next day he was…
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Scar tissue
Hi I've recently had my 2 year mri following a tiny low to intermediate grade mucoepidermoid carcinoma on the tongue tip removed. My consultant said its a clear scan with the scar tissue having shrunk in size since my scan a year ago. However I read stupidly radiologist report which said area in tip lit up and can't rule…
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Fried neck fried brain
Fried neck FRIED BRAIN.Im sorry that I put on here that I would have to go to the bank and borrow money if insurance wouldnt pay for Pet scan.My wife brought it to my atention that money wasnt a problem as I had sold my 2 buinesses as soon as I found out about the cancer.The bad part is I dont remember owning them.My Pet…
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Radiation Damage to tongue surfacing 2.5 years later
Hello, I posted a few weeks ago when I had a biopsy on my tongue. It was negative, but I met with my Dr. yesterday and actually read the results. First, I am extremely thankful the result was that it was a benign ulceration. I essentially have a large fissure on my tongue. I recall it being there since my treatment, but…
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Spell Check
Does anyone know if there is spell check as when you are composing new or leaving a comment. I have made some bad spelling mistakes and when I reread they really stick out but have seen no indication of a spell checker. I have been looking to try and turn it on but cant find it maybe there is none-anyone know-thanks
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Will immunotherapy help repeat base of tongue cancer
After throughout 2 years. 2 surgery(1 base of tongue,1 lymps), 35 radiology and 12 chemos , base of tongue cancer growing. Now my father should get immunotherapy and 6 light radiology. I am completely hopeless. Is this the end ? Will immunotherapy help at all ?
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Treatment after Cetuximab
Hi there. I'm looking for advice because it seems my dad is running out of options. In 2016, he had a round of cisplastin paired with radiation. He maxed out his lifetime allowance of radiation, so that is no longer an option. They then put him on Opdivo when his cancer spread to his lungs, but it had very adverse effects-…
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Burning Mouth Syndrome: Radiation & Chemo
Hello all... I'm searching for the cause of the burning sensation on my tongue. I've read that "Burning Mouth Syndrome" can be caused by a variety of reasons including a complication of radiation and chemotherapy and thyroid issues. Has anyone experienced "Burning Mouth Syndrome" after receiving radiation and…
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Biopsy....potential recurrence
Hello, Its been 2.5 years since last treatment for HPV tonsil cancer. Had a small painful sore on top of my tongue that won't heal. Looked like a canker sore. Biopsy Friday. Waiting game. ENT said it would be "very rare" for it to come back in the middle of my tongue when it was previously in tonsil/throat region. Well I…
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I'm Back and so is cancer
Hi all Been a while since I visited the site for various reasons but mainly because I hated reading bad news. I could never understand how I could feel the pain of others added to the gut wrenching sadness I felt for people I never met. I have come to realize and have known for quite some time it’s because we all share a…
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Infusio dendritic cell based vaccines
Hello everyone I'm new to this group I was diagnosed with glotis cancer HPV in March of 2016. I had surgery chemo and radiation. I thought cancer was in my past but this December they found three spots on my lung had it removed with surgery and my latest scan shows two lymph nodes in my chest beneath my hilum. I m trying…
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2 Weeks Out - Question about Nausea
This forum is so helpful - thought you might offer your experiences with something my husband is going through. He is 2 weeks from last of 33 rads and erbitux/carbo treatments. He is doing well. Food still tastes like krap so he is doing nutritional shakes only, no real food for nourishment, but getting all his calories…
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6 month post treatment check up
I had my 6 month post treatment check up yesterday. ENT scoped me and all was clear. NED! They want to do another PET or CT scan w/contrast (whichever insurance will allow) in Sep when I return. Every day is a blessing. I live in Panama City Beach, FL but decided to have my treatment at Levine Cancer Institute in…
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7 months post - what test do you do now?
I am 7-months post treat for stage 3, HPV+, BOT, SCC. -- I am 100% back to normal. Weight has returned, no fatigue, no lymphedema, and only slight saliva loss. At 3-months I had a PET scan and the oncologist told me my cancer had metastasized to my heart and lung area. A followup CT scan showed that to be wrong and that…
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6 months down the road; is this normal?
Ladies and Gents, I finished 35 rad and 7 Cisplatin treatments mid January; I was doing ok until about 6 weeks ago when the Limphedema started getting real sore in my upper and lower Jaws; I'm getting worked on once or twice a week by PT and others trying to open up the drainage, plus I'm wearing a head wrap, but it's sure…
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NEW TO THIS FORUM
Hello, everyone. First off, let me say that I have read every topic on head and neck cancer on this site. Thank you so much for your insight and personal experiences with this form of cancer. In July 2016 I was operated on for cancer in my neck (left side). The SCC cancer was involved in my skin, large salivary gland,…
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Back from KU Med
Choices to be made ct scan showed a very large tumor back/base of tongue stage 4 one node, went through my nose looked around said epiglottis was not affected. Upcoming biopsy to determine exact pathology. He said surgery was would need to remove entire tongue but that would be my choice. The board will discuss it after…
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Does my throat look normal?
I've been depressed for years and just started smoking few weeks ago. Sometimes i am having fever and feeling lump in my throat. Thank you guys...
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1 year later
Well, 1 year ago this week I started chemo/radiation for stage 4 base of tongue cancer. I had 35 rads and 6 weekly chemo of cisplatin. I had a PEG tube as well. I had a really hard time not with treatment, but with recovery. When treatment ended, I didnt eat food until 4 months out from treatment. I had very bad pain and…
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First scan post radiation for tongue cancer met
I'd like to let folks know that my husband's first scan post radiation was all good, no evidence of disease. Thank you to everyone who took an interest in his case, especially kak0402, katlou, and Gavin. His cancer began with leukoplakia on tongue, which was monitored for several years unitl the dysplasia became stage I…
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Biopsy....potential recurrence
Hello, Its been 2.5 years since last treatment for HPV tonsil cancer. Had a small painful sore on top of my tongue that won't heal. Looked like a canker sore. Biopsy Friday. Waiting game. ENT said it would be "very rare" for it to come back in the middle of my tongue when it was previously in tonsil/throat region. Well I…
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Into the void I go.. KU Med
Into the void I go.. 61 year old male heavy smoker,, and drinker at times... stopped drinking almost 3 years ago. Ear and throat pain Jan 18.. no primary doc. Went to clinic got antibiotics.. went back 3 weeks later got another round... went to dentist pulled 2 teeth... still had pain then it stopped. Went back to dentist…
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DAY 2 AFTER CISPLATIN TREATMENT - HOW SHOULD I FEEL???
Let me start at the beginning, my Cisplatin treatment was actually the 4th bag they hung on me with a totalof 6 infused. it all started with a one Liter bag eash of NS w/ Magnesium and Potassium. Then a drug called Ethyol was given with me laying flat on my back with my legs raised and my BP was monitored every 3 min. As…
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Long time reader/lurker now member with recurrence
Hello I have always been a lurker in the background reading the posts during my bout with throat cancer. Found in late 2012 I started treatment in January 2013. Probably stage 3 or 4 squamous cell because scope showed my throat was pretty well almost closed but the only indication was a sore throat that did not respond in…