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Infusio dendritic cell based vaccines
Hello everyone I'm new to this group I was diagnosed with glotis cancer HPV in March of 2016. I had surgery chemo and radiation. I thought cancer was in my past but this December they found three spots on my lung had it removed with surgery and my latest scan shows two lymph nodes in my chest beneath my hilum. I m trying…
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2 Weeks Out - Question about Nausea
This forum is so helpful - thought you might offer your experiences with something my husband is going through. He is 2 weeks from last of 33 rads and erbitux/carbo treatments. He is doing well. Food still tastes like krap so he is doing nutritional shakes only, no real food for nourishment, but getting all his calories…
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6 month post treatment check up
I had my 6 month post treatment check up yesterday. ENT scoped me and all was clear. NED! They want to do another PET or CT scan w/contrast (whichever insurance will allow) in Sep when I return. Every day is a blessing. I live in Panama City Beach, FL but decided to have my treatment at Levine Cancer Institute in…
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7 months post - what test do you do now?
I am 7-months post treat for stage 3, HPV+, BOT, SCC. -- I am 100% back to normal. Weight has returned, no fatigue, no lymphedema, and only slight saliva loss. At 3-months I had a PET scan and the oncologist told me my cancer had metastasized to my heart and lung area. A followup CT scan showed that to be wrong and that…
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6 months down the road; is this normal?
Ladies and Gents, I finished 35 rad and 7 Cisplatin treatments mid January; I was doing ok until about 6 weeks ago when the Limphedema started getting real sore in my upper and lower Jaws; I'm getting worked on once or twice a week by PT and others trying to open up the drainage, plus I'm wearing a head wrap, but it's sure…
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NEW TO THIS FORUM
Hello, everyone. First off, let me say that I have read every topic on head and neck cancer on this site. Thank you so much for your insight and personal experiences with this form of cancer. In July 2016 I was operated on for cancer in my neck (left side). The SCC cancer was involved in my skin, large salivary gland,…
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Back from KU Med
Choices to be made ct scan showed a very large tumor back/base of tongue stage 4 one node, went through my nose looked around said epiglottis was not affected. Upcoming biopsy to determine exact pathology. He said surgery was would need to remove entire tongue but that would be my choice. The board will discuss it after…
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Does my throat look normal?
I've been depressed for years and just started smoking few weeks ago. Sometimes i am having fever and feeling lump in my throat. Thank you guys...
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1 year later
Well, 1 year ago this week I started chemo/radiation for stage 4 base of tongue cancer. I had 35 rads and 6 weekly chemo of cisplatin. I had a PEG tube as well. I had a really hard time not with treatment, but with recovery. When treatment ended, I didnt eat food until 4 months out from treatment. I had very bad pain and…
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First scan post radiation for tongue cancer met
I'd like to let folks know that my husband's first scan post radiation was all good, no evidence of disease. Thank you to everyone who took an interest in his case, especially kak0402, katlou, and Gavin. His cancer began with leukoplakia on tongue, which was monitored for several years unitl the dysplasia became stage I…
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Biopsy....potential recurrence
Hello, Its been 2.5 years since last treatment for HPV tonsil cancer. Had a small painful sore on top of my tongue that won't heal. Looked like a canker sore. Biopsy Friday. Waiting game. ENT said it would be "very rare" for it to come back in the middle of my tongue when it was previously in tonsil/throat region. Well I…
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Into the void I go.. KU Med
Into the void I go.. 61 year old male heavy smoker,, and drinker at times... stopped drinking almost 3 years ago. Ear and throat pain Jan 18.. no primary doc. Went to clinic got antibiotics.. went back 3 weeks later got another round... went to dentist pulled 2 teeth... still had pain then it stopped. Went back to dentist…
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DAY 2 AFTER CISPLATIN TREATMENT - HOW SHOULD I FEEL???
Let me start at the beginning, my Cisplatin treatment was actually the 4th bag they hung on me with a totalof 6 infused. it all started with a one Liter bag eash of NS w/ Magnesium and Potassium. Then a drug called Ethyol was given with me laying flat on my back with my legs raised and my BP was monitored every 3 min. As…
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Long time reader/lurker now member with recurrence
Hello I have always been a lurker in the background reading the posts during my bout with throat cancer. Found in late 2012 I started treatment in January 2013. Probably stage 3 or 4 squamous cell because scope showed my throat was pretty well almost closed but the only indication was a sore throat that did not respond in…
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Longer Time
Hi Everyone, I have not posted a NED thread before mostly because my kind of cancer was different from the norm. Most here suffered through SCC and have a 5 year clear goal line. Mine was Mucoepidermoid Carcinoma and not as bad if caught early. The main difference was not getting chemo because they said my C wouldn't…
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Question For the Experts
Hey folks, just want to run this by you. I’m a 39 year old maLe, smoked marijuana and drank pretty heavily in my 20’s, haven’t smoked anything in over 10 years have a glass or two of wine every day. Two weeks ago today I got a sore throat which hasn’t responded to any otc medicine. It gets better for a day than goes back…
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lump in neck
Hi im a year and a half post treatmant for HPV ,PRIMARY TUMOR WAS IN TONSIL.Has any one had a lump come back in neck that wasnt cancer
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skipping radiation/chemo after surgery for neck cancer
I have surgery scheduled for July 3 to remove my left tonsil and some lymph nodes that most likely is caused by HPV (I'm in my early 40's, male, never smoked). last Thursday I got the chance to sit down with my "team" of doctors to discuss my treatment. My doctors want to follow up surgery right away with 14 days of…
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Best doctor/hospital for laryngeal cancer (recurrence)?
Hey everyone, I posted last week that we saw growths on my vocal cords that were new since December. Biopsy confirmed that the cancer is back. Came back in less than 6 months after I finished radiation. Wish I would've done chemo, too. CT scan showed that it hasn't spread anywhere outside of my vocal cords. My doctor is…
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Partial Glossectomy Yesterday 6/21/18
Good Morning First I would like to give God the Praise Glory for a successful operation that went well. And thank him for the all the many who were praying so fervently for me. And for the great medical team I had that made everything go so smoothly and successfully. That applies over the whole gamut of my care at the…
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New to board
So I am new to the board and group. While I have not had an actual diagnosis of cancer of my tongue, I was diagnosed with high grade dysplasia. I know my diagnosis could be worse, but I can’t get the worse case scenario out of my mind. Anybody with experience with this and advice? I’m am so scared that maybe I have cancer…
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5 years officially "Cancer Free"
It has been a long time since I was here, but wanted to let all new folks here that there is a light at the end of a miserably long tunnel. ENT says she only needs to see him once year. Long list of long term side effects but he is glad to be here today. 2 years ago today he was able to walk his daughter down the aisle.…
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Finished my 7 weeks of treatments
Hello all I just finished my 7 weeks of treatment this past Friday and I faired pretty well compared to others. No pain other the skin pain and that is because the last week my skin finally broke down and I have a few sores in my mouth that week as well. My questions are when does the skin heal because the pain is awful…
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Magic mouthwash
Hello Everyone just picked up my magic mouthwash....doesn’t smell bad which is a good thing but what about taste?? I can not do things that taste gross. Also no info on this on the pamphlet they give other the four times a day before meals and bedtime. Does this help with the throat meaning soreness?? Thank in advance…
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Radiation causing skin cancer
Well I went to my dermatologist because I have had a rash on my arms for the last 6 weeks. He let me know that it was due to the changes in my skin brought on by the Cisplatin. I have been out of treatment just shy of 1 year, but he said this could be a life long side effect. I was prescribed some creams which do help by…
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Lymphedema and ear pain?
Hey all - does anyone have any experience with ear pain that may be caused by lymphedema, or by the lympedema massages? I've had pretty significant lymphedema on the right side/tumor side of my neck ever since the surgery to remove BOT cancer and neck dissection in December, just started getting the massages/therapy about…
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BASE OF TONGUE CANCER
Hi eeveryone. My father has base of tongue cancer since mid-end 2015. It was found only october 2016 as a base of tongue cancer or carcinoma.He got succesful surgery january 2017 removing the mass which was huge. after that he got 2 chemos and 35 radiology ending novemebr 2017 which shrank the the tumor andsome in lymph…
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I'm part of a clinical trial
I feel I am a lucky person to have been approved to participate in a clinical trial for a less damaging radiation treatment. I had been seeking treatment with protons for that same "less damaging" reason, but due to various factors, getting insurance approval was simply taking too long. I start Tuesday. Involved Field…
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23 Months Post NED
Hello all. Been some time since I posted to the site. I hope all are doing well and those in current treatment are receiving the advice they desparately need. I know this site helped me during my time in treatment. I had a 23 month post treatment ENT appointment today for Stage IVA Tonsil cancer (T2N2aM0). Cancer had…
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Five Years and Still Going Strong
Friends It is has been a long long while since I have been here but turned the corner and it was my 5th year anniversary of ending treatment and being declared cancer free. In two weeks I return to the wonderful place of hope and healing at MD Anderson Houston for my fifth year checkup (you know what that means -- sniff…