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Feeding Tube Help!
Hello everyone! I ended treatments for Nasopharyngeal cancer 10 years ago but pretty soon I will have to have a feeding tube. I am freaking out!! Please, I need advice from those of you that eat only 100% by tube. Would like to know: - What are the best tubes to have ( is a button tube better?). - How do you go about your…
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Please write.
OK. Finally figured out how to start a new thread and hope there's still time to hear from you.Biopsy tomorrow morning. Have experienced horrid facial swelling and pain inside and out for awhile now. Dentist ruled out TMJ/D yesterday and clearly didn't know cause. Pain is disabling and I don't understand how radiology…
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Getting close to the finish line
Greetings, I'm sitting here next to my wife as she gets fluids for hydration. She had radiation this morning and tomorrow is chemo. AFter tomorrow, Thursday, April 26, we will have five more rads and one more chemo and then we're done. Hopefully, forever. She has BOT HPV-positive with three lymph nodes involved and two of…
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Feel like a ball is in my throat...normal???
Starting week three tomorrow and today and yesterday it feels as if a ball is in the left side of my throat. I can eat fine but feel it when I swallow, and jaw and neck feel stiff when I do the swallow and neck exercises. Not to mention the entire left side of my neck is tender to toucH. Is rhe lump in my throats normal or…
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Helpful Cookbook
Just thought I would share - I came across this amazing cookbook today. Goes Down Easy - from the Princess Margaret Hospital Dietitians with Elise Mecklinger. It is thoughtfully laid out with chapters dealing with Loss of Appetite, Dealing with Nausea, Taste Changes, Sore Mouth and Swallowing Problems, Dealing with…
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Swollen & inflamed larynx
Hi, All. My fi attempt on the discussion board. After completing 37 rounds of radiation I have had mostly uneventful 18 months. Some horseness, some sensitivity to coughing episodes but checkups by my ENT & Encologist that were clean & problem free. About 3-4 weeks ago I started having some soreness added to the coughing &…
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voice is shot
Is it normal to lose your voice... I have none whatsoever sound like a frog. Can't really talk to anyone not sure if there is a remedy for this
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Dry Mouth Tips?
Hi everyone, Wife is 10 days post radiation and chemo treatments for BOT tumor that spread to lymph nodes in the neck. Both sides of her neck were radiated. The skin is peeling, but getting a bit better. The dry mouth is worse now than during the treatment. Any ideas for that. She hates Magic Mouthwash with an unnatural…
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Induction Chemo?
My partner had his first round of induction chemo last Monday (TPF with the 5 day 5FU pump that finished Saturday pm) He was sailing along Monday - Thursday last week but has been really sick ever since Friday. I can’t get him to consume enough calories and he just wants to sleep most of the time. We have gone in for…
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Bad news...
Hi everyone...yesterday I got some bad news. I had my first ct scan done after finishing radiation and surgery for mandible SSC cancer and the king by showed a 1cm non calcified nodule in my lower left lung . Biopsy is scheduled but trying to move it up. Needless to say, I am depressed and feel like giving up. I fought so…
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Tomorrow is ten days of treatment
Hello everyone tomorrow marks tens days of treatment...10 rounds of radiation and 2 rounds of chemo. Today I noticed a change in the my mouth, NO pain just an over all yucky taste!!! Slight scratchy throat but nothing too bad. Extremely tired and hate that most foods taste like crap, how does one survive the nasty taste of…
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Foods and supplements that reduce fibrosis
Hi Everybody, Well, after radiation and chemo to my throat, and four surgeries, all in the last year, needless to say that I have developed a severe case of soft tissue fibrosis in my throat. I have great difficulty turning my head in any direction and cannot swallow at all even though the last two surgeries were supposed…
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Almost 5 yr survival
hi, some of you know me and helped me when I first was diagnosed with BOT cancer. I had surgery for the removal of the tumour. I had 6 weeks of radiotherapy. i lost shoulder muscle and disfigurement one side of my mouth. After surgery I could swallow okay and after the Trachie came out I could speak fairly well. After six…
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dry mouth help during night
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HPV+ with possible met in liver
Hello - I am new here though have been reading a lot of past threads over the past few weeks. My Partner has been diagnosed with HPV+ tonsil squamous cell. His PET and an ultrasound showa possible met in liver, which he will have biopsied this week. We understand this would be very unusual and would change his treatment…
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will the phlegm disappear after radiation?
Will the phlegm (mucus) disappear after the radiation is over? And will I be able to swallow again?''
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everything tastes like paste
Hi All. I'm receiving radiation and chemo for tonsil cancer (hpv+). I had one round of Cisplatin but my reaction was so poor that we may switch to carboplatin. The nausea and vertigo was insane. Also, I have had 16 radiation treatments so far (total of 37 when it is all over). Now that the nausea is finally under control,…
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Friday
IT’S FRIDAY and that means that those of us who are going thru treatment get to have 2 days off! WooHoo! Really I just wanted to wish you all a great weekend and hope that you all get some rest and feel good...wherever you may be! I’m in Southern CA and we are looking at sunny skies at 76* tomorrow. You?
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Day one done 34 more to go!!
Good evening new friends sorry I didn’t post earlier but I came home changed and crashed and just woke a while ago. Treatments went well the staff at Smilow Cancer Center at Yale are absolutely amazing. My chemo nurse Chris is wonderful she explained every step hour of hydration, 45 mins of nausea meds, then hour of…
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Possible Neck Cancer
Hello, For the past year (14 months) I have been experiencing swollen lymph nodes on the right side of my neck. I feel three total nodes and only one is soft and palpable. I have seen 3 different ENTs and they all say everything is normal, but I do not feel that way. In addition to the swollen nodes, there is a constant…
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Neck Dissection Results, Further Treatment, Spindle Cell Features
Hi everyone, For those of you who've been following my story, thank you again for your support and kind words. For those of you who are just reading, here is a quick recap: 29yo; Feb of 2017 I had an extremely small superficial SCC lesion removed from the right side of my tongue - Stage 1. At the time, I was told this was…
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Shake Boosters
Hi, I'm in week 3-4 of my 7 week IMRT treatment for the left tonsil. I've lost a couple pounds in the last couple of days and don't have a PEG. I think I am getting close to not eating anything solid because of ulcers on my tongue and soreness in the roof of my mouth. I'm getting ready to switch to the VHC Boost to get my…
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Anyone familiar with Proton Therapy and side effects of this treatment?
I am considering Proton Therapy. How bad are the side effects compared to IMRT radiation?
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Working on week 4 -gettin there!
Well this is wonderful week 4 for me. My nausea was really driving me nuts but I saw the doctor for medical marijuana. It is legal in my state (NY) only for medical use. Kinda expensive since private insurance does'nt cover it. But I'm willing to give it a try. It is supposed to take away nausea anxiety and pain!! I know…
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Squarmous Cell Carcinoma
Hi thsi is my first post, still working it out, doing LDN and ALA
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Food, Food,and Food
I'm nearing the end of my 2nd week of treatment. My sense of taste left last night without even saying goodbye! I was expecting this but am surpised how hard it is to ear when everything tastes so awful. I know everyone experiences this to some degree but was wondering how you handled it. Was there certain foods that were…
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Third day of radiation and one chemo treatment
Good afternoon...third day of radiation and I’m not sure if its all in my head and I’m overthinking but all of a sudden I feel a dull pain at the sight of radiation. Is this normal or premature?? I don’t feel sick any other way no pain when swallowing it’s more a dull pain in the neck like the inside. My radiation is just…
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Nausea took meds and woke in a pool of sweat
Went to bed around 9:30 feeling so damn nauseous, took both nausea meds and prayed it would pass. Now just woke to body completely drenched in sweat like when a fever breaks. Is the the norm for chemo/radiation?? Chemo was Monday and I have been fine till this morning it kinda started with the nausea but tonight took the…
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Radiation on one or both sides?
I will hopefully will soon start treatments and was wondering... How many places did you have radiated and number of treatments to each place? In my case, when my tonsils were removed, there was cancer (HPV+) on the right side and the left side tonsil looked "suspicious". There was metastasis to 2 level II nodes on the…
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Weekly Cisplatin + Radiation?
Hi - my husband was just diagnosed with P16+ in February and just started treatment this week - Daily Rad + Weekly Cisplatin. Is any one else doing weekly Cisplatin treatments? I'm worried about how naseous and tired he has been since his treatment - if it will be like this every week - since there is no 'bounce' back…