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Tomorrow is ten days of treatment
Hello everyone tomorrow marks tens days of treatment...10 rounds of radiation and 2 rounds of chemo. Today I noticed a change in the my mouth, NO pain just an over all yucky taste!!! Slight scratchy throat but nothing too bad. Extremely tired and hate that most foods taste like crap, how does one survive the nasty taste of…
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Foods and supplements that reduce fibrosis
Hi Everybody, Well, after radiation and chemo to my throat, and four surgeries, all in the last year, needless to say that I have developed a severe case of soft tissue fibrosis in my throat. I have great difficulty turning my head in any direction and cannot swallow at all even though the last two surgeries were supposed…
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Almost 5 yr survival
hi, some of you know me and helped me when I first was diagnosed with BOT cancer. I had surgery for the removal of the tumour. I had 6 weeks of radiotherapy. i lost shoulder muscle and disfigurement one side of my mouth. After surgery I could swallow okay and after the Trachie came out I could speak fairly well. After six…
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dry mouth help during night
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HPV+ with possible met in liver
Hello - I am new here though have been reading a lot of past threads over the past few weeks. My Partner has been diagnosed with HPV+ tonsil squamous cell. His PET and an ultrasound showa possible met in liver, which he will have biopsied this week. We understand this would be very unusual and would change his treatment…
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will the phlegm disappear after radiation?
Will the phlegm (mucus) disappear after the radiation is over? And will I be able to swallow again?''
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everything tastes like paste
Hi All. I'm receiving radiation and chemo for tonsil cancer (hpv+). I had one round of Cisplatin but my reaction was so poor that we may switch to carboplatin. The nausea and vertigo was insane. Also, I have had 16 radiation treatments so far (total of 37 when it is all over). Now that the nausea is finally under control,…
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Friday
IT’S FRIDAY and that means that those of us who are going thru treatment get to have 2 days off! WooHoo! Really I just wanted to wish you all a great weekend and hope that you all get some rest and feel good...wherever you may be! I’m in Southern CA and we are looking at sunny skies at 76* tomorrow. You?
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Day one done 34 more to go!!
Good evening new friends sorry I didn’t post earlier but I came home changed and crashed and just woke a while ago. Treatments went well the staff at Smilow Cancer Center at Yale are absolutely amazing. My chemo nurse Chris is wonderful she explained every step hour of hydration, 45 mins of nausea meds, then hour of…
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Possible Neck Cancer
Hello, For the past year (14 months) I have been experiencing swollen lymph nodes on the right side of my neck. I feel three total nodes and only one is soft and palpable. I have seen 3 different ENTs and they all say everything is normal, but I do not feel that way. In addition to the swollen nodes, there is a constant…
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Neck Dissection Results, Further Treatment, Spindle Cell Features
Hi everyone, For those of you who've been following my story, thank you again for your support and kind words. For those of you who are just reading, here is a quick recap: 29yo; Feb of 2017 I had an extremely small superficial SCC lesion removed from the right side of my tongue - Stage 1. At the time, I was told this was…
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Shake Boosters
Hi, I'm in week 3-4 of my 7 week IMRT treatment for the left tonsil. I've lost a couple pounds in the last couple of days and don't have a PEG. I think I am getting close to not eating anything solid because of ulcers on my tongue and soreness in the roof of my mouth. I'm getting ready to switch to the VHC Boost to get my…
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Anyone familiar with Proton Therapy and side effects of this treatment?
I am considering Proton Therapy. How bad are the side effects compared to IMRT radiation?
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Working on week 4 -gettin there!
Well this is wonderful week 4 for me. My nausea was really driving me nuts but I saw the doctor for medical marijuana. It is legal in my state (NY) only for medical use. Kinda expensive since private insurance does'nt cover it. But I'm willing to give it a try. It is supposed to take away nausea anxiety and pain!! I know…
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Squarmous Cell Carcinoma
Hi thsi is my first post, still working it out, doing LDN and ALA
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Food, Food,and Food
I'm nearing the end of my 2nd week of treatment. My sense of taste left last night without even saying goodbye! I was expecting this but am surpised how hard it is to ear when everything tastes so awful. I know everyone experiences this to some degree but was wondering how you handled it. Was there certain foods that were…
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Third day of radiation and one chemo treatment
Good afternoon...third day of radiation and I’m not sure if its all in my head and I’m overthinking but all of a sudden I feel a dull pain at the sight of radiation. Is this normal or premature?? I don’t feel sick any other way no pain when swallowing it’s more a dull pain in the neck like the inside. My radiation is just…
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Nausea took meds and woke in a pool of sweat
Went to bed around 9:30 feeling so damn nauseous, took both nausea meds and prayed it would pass. Now just woke to body completely drenched in sweat like when a fever breaks. Is the the norm for chemo/radiation?? Chemo was Monday and I have been fine till this morning it kinda started with the nausea but tonight took the…
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Radiation on one or both sides?
I will hopefully will soon start treatments and was wondering... How many places did you have radiated and number of treatments to each place? In my case, when my tonsils were removed, there was cancer (HPV+) on the right side and the left side tonsil looked "suspicious". There was metastasis to 2 level II nodes on the…
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Weekly Cisplatin + Radiation?
Hi - my husband was just diagnosed with P16+ in February and just started treatment this week - Daily Rad + Weekly Cisplatin. Is any one else doing weekly Cisplatin treatments? I'm worried about how naseous and tired he has been since his treatment - if it will be like this every week - since there is no 'bounce' back…
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Update 2018
Hello all, Its been quite a year. My husband finished treatments over a year ago. It’s crazy to type that let alone think that. While he was going through treatments the future seemed so unsure. And now here we are a year later . His scans have all been amazing. The dr. Is pleased with what he sees when my husband goes in…
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Tomorrow will be four days till my first treatment and I’m OVERWHELMED
As I sit here I’m counting down the days till my first chemo treatment and first radiation and my heart is racing and I feel numb like a fog like state. The days are easier because I keep busy, the nights not so much all I do is sit and think. I realize Monday is going to come reguardless my worrying and the 7 weeks after…
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Husband dx with Severe dysplasia of tongue!
Hi...new here...and looking for information, information, information! My husband has had an on and off again irritation to his underside of tongue for some months now. He went last week for a biopsy from his oral surgeon and it came back today as severe dysplasia! I am trying to stay calm and need to keep him calm but I…
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Welp, my good luck may be running out.
Hi all, I consider myself very lucky to have avoided serious side effects after treatment ended in January. About two weeks ago, I noticed i had a persistent cough, which I assumed was due to some aspiration. Over last weekend, it started to develop into pain, and so I called up MSK. Long story short, I had a chest x Ray…
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HELP TREATMENTS START APRIL 30
I new to this site and this cancer site. I was told I have head and neck cancer stemming from the HPV virus. Been a long few month had a cyst removed on March 1 and the pathology came back there were 2 out of 3 nodes were affected with cancer. My ENT suspected the source being in my left tonsil. Removal of that was the…
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First scan coming up...
Hello Everyone... Hope all of you are well and enjoying the beautiful Spring weather. In about a week and a half , I will be having my first CT scan since radiation treatmenttreatment with an appointment with my ENT following the scan. To tell you the truth , I am petrified. My ENT had told me a couple of months ago that…
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2nd Opinion Squamous Cell Tumor Lymph
Hi, My husband has re-occuring tumor lymph HP-, had vocal nodule removed, next year neck dissection followed by chemo/radiation. 2017, 3 month post treatment PET was told he was clear although there was a slight uptick in surgery area. Insisted ion biopsy, were advised nothing to biopsy likely scar tissue. To our horror 6…
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6 year NED
H&N friends, I crossed over the 6 year post barrier and had my final (actually one extra) cancer exam and it was great. My ENT was in a stellar mood and he felt, looked and scoped to several good words “Everything looks great”. Of course there were more doctor words about no swelling, no mass, no ulcer, patient has…
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Diagnosed with SCC nodal metastatic disease, but true?
Hi, my name is Sandi, and I just turned 58 last month. I've had a lump in my neck, right side, just below my jaw. I first noticed it when I went for a facial, and my technician kept running her fingers over it. It was not painful, so after the facial, I too ran my fingers over it. It was somewhat enlarged. I made an appt…
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Metastasis under jaw line - any similar experiences?
Hi All, I am trying to be a bit more active in this forum to not only support others but continue to voice some ongoing concerns in my own health. Recently I noticed a small hard lump under my left jaw line. It is not on the surface but rather in the hollow inside the jaw (think if you pushed your thumbs up under your jaw…