7 months post - what test do you do now?
I am 7-months post treat for stage 3, HPV+, BOT, SCC. -- I am 100% back to normal. Weight has returned, no fatigue, no lymphedema, and only slight saliva loss.
At 3-months I had a PET scan and the oncologist told me my cancer had metastasized to my heart and lung area. A followup CT scan showed that to be wrong and that what she saw was just infection from something else. The only thing the CT Scan showed was the original neck lymph node was borderline larger than normal and the doc felt it was just scar tissue.
At 6-months I had another CT Scan and it showed everything in my heart and lung area (Thoracic) was clear and that the one lymph node had not gotten larger nor smaller.
Doc says she's not concerned about the lymph node and can't even feel it with her fingers. She said in most cases they just leave it alone.
However, she suggested I get another PET scan "just to be sure." This would be my 3rd PET scan in less than a year. Apparently I have good insurance because they keep approving them.
I'm hesitant to just "do it because the doc says so" for a few reasons;
1.) I'm not big on so much radiation over such a short period of time - 35 rads during treatment, 3 PET scans and 3 CT scans - all within a year.
2.) I have a $10,000 deductible so, depending on where I get the PET scan, it will cost me $900 - $6,000 out of pocket.
3.) My last PET scan seemed like a total waste as they scared the crap out of me and misdiagnosed me.
I know many people rely solely on CT scans, and I can get those for only $230.
My options are;
1.) Get a PET scan at the best price I can (probably $900 out of pocket).
2.) Don't get a PET scan and just keep doing CT scans.
3.) Get a needle biopsy of the neck lymph node (last time they did that my neck got huge for weeks).
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