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Hair Thinning after Folfox
Hey all, I had 6 cycles of folfox, with all kinds of fun side effects including hair thinning. Particularly traumatic because my doc explicitly said I wouldn't lose my hair. I try and wash it every 10 days or so, keep it in a bun and try not to mess with it. Use baby shampoo, and be gentle, etc. Well, I've been done since…
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father with possible recurrence
Hello, I’ve been looking through the forum at peoples experiences which have given me a little more hope than I has before. My dad was diagnosed with stage III colon cancer in 2021. Had resection and then chemo for 6 months and was NED on Dec of that same year. He just had his recent follow-up with his oncologist and his…
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Is my brother dying
Dear Friends, Its been a long time since I chatted to anyone because I have been so caught up trying to make my brother comfortable through his chemo sessions. The last time I wrote to let the cyber family know that god came through for us and we eventually got medical insurrance to approve treatment. Its been 4 months…
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Urgh Typed Long Message - Good News
And it disappeared. Long story short (I had more details), been a tough year. Arub passing away hit me hard, as she was there for me from the beginning and we kept on making plans to meet up, but had fall them through. Then shortly after she passed away, it was confirmed my cancer bloomed. Tumors in spine were bad, psoas…
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Just diagnosed - age 42
Hi everyone, my name is Fraser. I was diagnosed with colon cancer last week after going to emergency because of severe stomach cramps and vomiting. It turns out that my tumour was fully blocking my colon. I had a right hemicolectomy the next day which sounds like it went well. The surgeon said the lymph nodes (which were…
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hemorrhoids or cancer?
Hello... Please don't judge me because I am terrified, I suffer from anxiety. I've been having pain in the anus area for a few weeks, which comes and goes.. better and worse days... and I notice that I've been going to the bathroom more than usual. I looked for a proctologist, and he did the touch exam, said that I have an…
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CT SCAN BOWELL WALL THICKENING
I found this website, to get more knowledge about what is going on with my CT scan abdoment result. Asymmetrical polypoidal mural thickening of the sigmoid colon with surrounding fat stranding and small perirectal nodes noted – possibility is likely neoplastic bowel wall thickening (inflammatory or infective etiology is…
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macular degeneration from chemo- any one else?
Hi, It has been awhile since I have posted about my Mom. Recap- she is 5 years post CRC re-section and chemo. CT scan this past month showed another year all clear which we are oh so thankful. It seems that she continues to have one thing after another showing up from the chemo. She has been having trouble with her vision…
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Need help in understanding cancer language
This was on a biopsy report and of course makes no sense to me. Can anyone explain? Thank you Interpretation: No loss of nuclear expression of MMR proteins, low probability of MSI-H Antibody Clone Results MLH1 M1 Intact expression MSH2 G219-1129 Intact expression MSH6 SP93 Intact expression PMS2 A16-4 Intact expression
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Remission?
I'm back after a brief absence here so I'll probably repeat things: I was diagnosed with liver cancer a year ago (metastatic from the colon). After 12 chemo fusion sessions (24 weeks) my CEA dropped to 7 and a PET scan showed 6 of the 7 lesions originally in my liver were totally gone and the 7th was “inactive.” Because I…
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High CEA number - excellent CT Scan
I recently had a CT scan and all doctors and nurses are really pleased with the "clear / clean" CT scan. . .however, two days later I had my blood test done, and the CEA number was high at 14.4. I've had two high CEA numbers out of 29 CEA tests done, however, these were during the beginning of Chemo and was 4.5 and 5.3 .…
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Shaken Not Stirred...
Hello I know there are no easy answers but I am hoping to get some insight if possible about my path forward. About me -- I am 51 and live in Huntsville Alabama. I weigh about 160, never been sick much, and overall pretty healthy. I eat pretty well and use to run pretty regularly until this year when we moved to AL. Dont…
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APR - Recovery and tips
Hi, everyone. My 41-year old husband is scheduled to have a robotic APR on Nov 9th after being diagnosed with Stage IV colon cancer on Xmas of last year (he was later “downgraded” to Stage III after the liver mets were discovered to be hemangiomas). I’m looking for any info on what the surgery and recovery were like for…
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CEA Level drops without treatment
I have pretty consistent CEA levels. When its high, cancer usually has grown quite a bit. It has never dropped without any treatment. And my doctor says it's not possible for it to drop without treatment. However last result it drop about 25%! (330 -250 w/o treament). Unfortunately, current CT scan vs 3 months ago shows…
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Port problems-Can't get blood from it
Hello to everyone. Hope you all are doing well. I went to the doctor today for 1st blood work after my first round of chemo last Wednesday-Friday. The port worked fine last week, but today they couldn't get any blood from it. She flushed it first with saline but still couldn't get any blood. She added a blood thinner and…
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Irinotecan and UGT 1A1 Genotyping
My Pam has had a harsh reaction to Folfiri since her first infusion with it. She has had 15 infusions with it so far. So a month ago a CNP ordered a blood test, UGT1AA Genotyping. A week or so later we got the results: variant(s) detected. We learned that what this means is that Pam cannot process Irinotecan (and some…
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Head/Neck Cancer survivor & brother has colon polyp
I am 3 years out of Nasal cancer and I am active in that forum. Yesterday, I found out my brother had a colon scan, and has a polyp (tumor?), that is 50mm (2 inches ) in diameter. He tells me it is also close to his (kidney? liver?) He is waiting for the biopsy, and in the head & neck world, one is always reminded, “it’s…
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Severe Allergic reaction to Oxaliplatin - I almost died!
Yep, I almost died last Monday! I had what was to be the second of four treatments, I started feeling mucus going down the back of my throat and started coughing. I called one of the kids to bring me some cough drops to the cancer center. I also had sudden low back pain. By the time my son got there, my chest began which…
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liver resection and hepatic pump
I have not posted here for a while but have been following on posts here frequently. My dad was diagnosed in Nov 05 with stage 4, with 5 nymph nodes positive and liver mets. Did a resection in december on his colon and removed lymph nodes. Now he has completed 8 rounds of Xeloda, Oxiliplatin and avastin. The mets on his…
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stage 4 colon cancer with aggressive metastasis to the liver
I am 47 years old with stage 4 colon cancer metastasis to the liver, with KRAS G12S mutation. Had successful colon resection on 8/22/2022. At that time there were only 2 lesions in the liver, both around 1cm. One month later (8/23/2022) when I'm ready to start FOLFOX chemotherapy, the new CT scan revealed the existing…
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Asking for some inspiration and advice for my brother
Hi all! I'm posting from the UK so I understand there will be some different info from what I assume are mostly USA friends. My brother, 33, was diagnosed with stage 4 colon cancer which had spread into his liver in January. He began chemotherapy quickly for 3 months which he responded to well (minus side effects). It…
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5000mg Xeloda hard on the hands and feet!
Hey Everyone, I'm finishing up my second to last chemo. Taking a lot of Xeloda, feeling actually pretty good, but it tore up my hands and feet. My palms and the sole of my feet are very red and burning. No sores yet. Will finish with this round on Friday and one more 2 week regimen. Everything looks good sofar, surgery…
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Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
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21st Century Cures Act
Thanks to this law, by Oct 3rd, results have to be available immediately, when ready, to patients. Maybe it is the 6th. I am sooooooooo happy that now I won't have to wait 6 days for results after a scan. Even when you feel like everything is okay, for some reason, at least for me, I get a sense of overwhelming dread and…
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Ammonium Tetrathiomolybdate (TM) Anyone?
I have been taking ammonium tetrathiomolybdate (TM) for approximately 6 months in an effort to fight my metastatic colon cancer in my lungs and liver. This is experimental treatment that attempts to lower your copper levels to approx. 15% of normal to slow the cancer growth, since the cancer needs copper to grow. I have…
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Had a choice between APR and ULAR - findings and consequences
Dear All, A few months back I was scouring this forum for answers as I agonised between complete APR and resulting permanent colostomy, and ULAR with a temporary ileostomy to preserve my sphincter. With so few people answering, and confusing outcome statistics in medical scientific papers, I mostly went with my own "gut…
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Radiation for Spinal Bone Mets
After a scan a few months ago we learned that after liver and lungs, bones are a common place for metastasis to land. we met with the radiation oncologist who was fantastic! She came across as very confident and knowledgeable without arrogance. We knew we were in good hands with this woman. We met with her in the morning…
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Scared
I’m sorry if this isn’t the right place to post. I’m so scared and don’t know who to talk to. I recently had my annual physical and my blood work came back with a low MCV and mu doctor recommends a colonoscopy because it could indicate a GI bleed. I spent way too much time on Google and all seems to point to cancer. I’m…
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In recovery
Hey everyone- just wanted to share that I am nearing being checked out of the hospital following an 11hr laparoscopic LAR surgery. Went through short course radiation(5 treatments) back in march followed by 6 rounds of CAPOX. Have a loop ileostomy and will hopefully be reconnected in December. Just hoping this is the end…
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Colon cancer
Recommend oncologist Kc area