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Ileostomy reversal

CiscoKitty
CiscoKitty CSN Member Posts: 2 Member
edited February 2023 in Colorectal Cancer #1

I am having my ileostomy reversed on Jan 24th. I no longer have a rectum. I have read nightmare stories of the reversal and was wondering if I could get some feedback here. I have had my ileostomy since Oct 11, 2022 so almost 3 months.

I think the number one worry is diarrhea and having to live on the toilet. I hope my surgeon keeps me on Loperamide to help with that.

Just a short story of how it went for you and what you did would help me immensely.

I just wished that I would have been chatting on here from the start but for the most part I have had a relatively good experience.

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Comments

  • sew322
    sew322 CSN Member Posts: 1 *
    #2

    hey hope you are well.How did it go?

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  • CiscoKitty
    CiscoKitty CSN Member Posts: 2 Member
    #3
    https://csn.cancer.org/discussion/comment/1703709#Comment_1703709

    It’s been touch and go. I’m 10 days post op and have to remember that. I’ve had diarrhea for multiple hours and thought I would never make it. I decided to take Loperamide and that helped. My doctor took it off my medication list but I think as maintenance. It helped and the relief was all I could take.

    Every day is touch and go. Lots of nausea and abdominal cramping. Not able to do much.

    I hate this not knowing how my new life is going to be. It’s scary to think about.

    Thanks for asking.

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