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Colorectal Cancer

Rectal cancer on sacrum
Hi! I am a new poster here. My father was diagnosed in May 2021 with rectal cancer stage 3 with involvement on the sacrum. Radiation didn’t do much and he has been stable on panitumumab and folfiri for the past two years. It has been frustrating as we are based in Ontario, Canada and no surgeon is willing to consider…
Two months in
Hi all! 30 yo female with current diagnosis of stage 4 rectal with metastasis on liver as well as bone. Just finished round 3 of 12. I’ve done 5 rounds of radiation on Mets on my hips. Currently on irinotecan, fluorouacil, and oxaliplatin for my chemotherapy. How do you guys cope with everything? I feel like time is moving…
UPDATE
My surgery is scheduled for this coming Monday. There was a cancellation so I am able to get it done sooner. A big thanks to all of you for the encouragement. Will update from the hospital.
Recently diagnosed
Hello all. Hope everyone is staying healthy and taking care of them selves. I’m a 48 year old male. Had my first colonoscopy on 04/17. During the procedure a 2x2cm polyp was discovered in my Sigmoid colon. Biopsy and CEA blood work completed. CEA results were a 2.65. Biopsy returned as a well differentiated invasive…
First CT results mid-chemo--what to make of this?
My husband got his first CT scans since starting chemo--he has Stage IV with peritoneal mets. Everything is clear--he originally had lymph involvement and some suspicious lung spots, and he had an emergency colon resection for a primary tumor in January--except the following: "Some nodularity within the omentum and…
Just saying hi. Terrible format, can't navigate like before
Hi all my 10 year just came and went. Just a reminder that YOU CAN DO THIS. Change your diet, exercise, talk to your body during treatments, fight for those trials, tell yourself theren is an end goal when you hit that why is this my life, I hate chemo wall. Whatever you have to do to help yourself. Tell yourself YOU CAN…
Finger Neuropathy
Hello to everyone! I came across something that has helped me and I wanted to share. I have stage 4 colorectal cancer. I had my tumor removed and went though 12 rounds of FOLFOX. I was only able to do 6 rounds of the oxaliplatin due to the severity of my neuropathy. I have found my hands are healing from the neuropathy a…
Vitamin D & Omega 3 in CRC
Here is a very small study that found Vitamin D and Omega 3 fatty acid (such as found in fish) supplementation can be helpful for those with colorectal cancer (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/31106659 [P]atients who received combined vitamin D3 and omega-3 fatty acids supplements compared with omega-3,…
Psoas/Colon Abscess with JP drain
Hi everyone, new to the boards. Thanks for sharing your knowledge. My husband had an infection that on initial diagnosis, turned out to be either a psoas abscess or diverticulitis. They have placed a JP drain in his Lower left abdomen (and it is very uncomfortable) which he has had for 3 weeks. Drains ~20 ml every 12…
Colostomy 6 years ago and cancer recurrence in neck and chest.
Hello, I am hoping for some advice from anyone who has been given less than a year to live. My brother-in-Law had a colostomy 6 years ago and the hospital have been too slow in my opinion to do scans and the proper investigations for a lump in his neck and a further one in his chest. The pain has become very strong and…
New Diagnosis - Colon Cancer Stage IV
Hi, I'm 52 and received a stage IV colon cancer diagnosis at the beginning of April. I'm on a three month Oxaliplatin and Capecitabine combination regiment. This is all been a shock and learning curve to me. I'm be interested to hear from anyone in same situation or had experience.? Thanks
where to buy Vitamin C IV drip / injections???
Hi. I need to buy for my grandfather some Vitamin C Intravenous drip or injections...his health is critical... The doctor prescribed him but it is so hard to find here in NY... the doctor will do the procedure... Does anyone know where to buy it online??? Thanks in advance! Carla
Side effect year or two from surgery
Colorectal survival including surgery and chemo. What kind of day to day things should I expect with my body and mind? Cause I think every time I sneeze, I’m dying.
When Was Your Port Removed?
My oncologist just advised yesterday that if my scans and bloodwork look fine next spring she will recommend that my port be removed. That would be about the four (4) year mark from my DX and surgery. When was your port removed - or how long have you had it if not removed? I am a Stage 3 colon cancer patient with lesions…
Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
colonoscopy
I have been cancer free for over 1 1/2 years from colorectal cancer I am due for my first colonoscopy since and I am looking for suggestions on how to stop the anxiety I am having for my upcoming test on May 24th. I just keep remembering the surgeon coming to me telling me I had rectal cancer. Thanks
After coloctomy
My surgery is May 3rd and we are trying to figure out the after. We live on 3rd floor apt and have 40 lb pit puppy. I know I can't walk dog but will I be able to get up to our apt?my boyfriend thinks I should stay at my parents immediately after. I really don't want to but open to advice. Any other advice for immediately…
Xeloda and nausea, please help!
My husband, recently diagnosed with Stage IV colon cancer, has been put on the Xelox regimen with 1 oxipalatin infusion every three weeks (he has only had 1 so far and it was well tolerated) and 2000mg of Xeloda AM/1500mg PM 5 days on/2 days off. He is only on his 3rd week of the Xeloda and he is having terrible stomach…
Newly diagnosed - looking for help and support
I am a 52yo single female just diagnosed with probable stage 3 colon cancer (adenocarcinoma that started in appendix). I'm told it's rare and aggressive. I'm still in the process of testing to determine stage and scope (CT today and Colonoscopy Friday), but trying to line up resources because I know things will need to…
Update on husband almost 6 years stage 4
It’s been a long time since I’ve posted. My husband was diagnosed in 2017 at 37 with stage 4. Many surgeries, an ostomy, too many chemos to count and radiation he is still here fighting and enjoying life! In between the 8 reoccurrence we’ve lived and enjoyed so much! Most recently he had 12 liver Mets removed, bile duct…
Update and question (BRAF mutation)
Hello! My son (stage 4, liver Mets, BRAF) had a meeting with oncologist today. I mainly wanted to ask about a possible liver resection. He basically said it will never happen because he has many (small) tumors on both lobes of the liver and because his mutation (BRAF) which is very aggressive, makes surgery not only…
Stage iv colorectal cancer
Hi, my husband was diagnosed with stage 4 cancer mets to the lungs and liver. He also has a peretonial carcenoma. He just finished 13 cycle of folfox. Everything has shrunk but they wont operate. They say the cancer will only travel more if we stop the chimio to operate. So continue chimio forever… should we get a second…
Six years
Although the reformat has rendered this forum a bit of a ghost town, I will fall back on an old pattern and note that yesterday was the sixth anniversary of my colectomy. At that time, with a major blockage, I had no idea if I would survive another day, no less another year. I figured if I could survive ten years, I would…
Fart question (sorry)
I hate to even ask this question but this is the only place to get answers...I have what I call chemo farts and they are very bad I do it alot and smell .....OMG the odor does anyone else have this please respond as soon as you stop laughing... Thanks Louann
Help with advice
Hello CSN! I was diagnosed recently with colon cancer. I was wondering if there are any survivors who had successful comfortable colon surgery and if there any surgeons that you worked with that you would recommend. I live in Pennsylvania. Thank you for your help!
Live support group
Does anyone know if there is a live support group in Tampa Fl? or how to find one?
Fast growing colon cancer
I’m new new to this. Diagnosed with tumor 4 days ago. Malignancy 2 days ago and I have question no one will answer. I had colonoscopy less than 2 yrs ago that was clean, no polyps at all. Now I have malignant invasive tumor and polyps. Everything says wait 10 yrs between if colonoscopy is clear., so this to me is some very…
Life updates and wanted to hear how you are doing
Hello guys, This post doesnt mean that I am back. What keeps me away is the design. I hate it. I wanted to tell you how the last months went. It was probably more than a year ago that I posted last. More than 90min ago the day went on to 13th March. Yesterday would have been Papas 59th birthday. Let us start with the good…
Any men develop prostate cancer?
I have a biopsy in a few weeks because it seems I might have prostate cancer now. Wondering if anyone ever had a spread to the prostate. Coach
Update on old member Diane
Just got the news from Diane that 5 years and 3 months since her first dx (Stage III) and 2 years and 3 or 4 days since her hepatic resection, her CT and MRI's were clear. Her doctor was very upbeat and said that at 2 years with no recurrence, she has a really good chance of no other recurrences. CT and MRI every six…

Colorectal Cancer

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