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Rolles Surgery
Update: I have 5 lung nodules, very small. They showed up in Sept. One liting up with SUV 1.3. Indeterminate by SOC. Here in the USA it is watch and wait mode but don't want to chance it as I don't want to miss the surgery boat and feel I will miss it here. So, going to Germany for Rolles surgery to get them out of there…
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Seeking Advice on Chemotherapy Treatment and Stomach Pain
Hello Everyone, I am writing to seek your valuable advice and insights regarding my brother's current medical situation. We live outside of the United States and have some doubts about the medical staff at the hospital where he is receiving treatment. This is why we are reaching out to you for help. My brother is a…
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A Brother's Heartfelt Plea: Seeking Guidance and Support for Metastatic Colon Cancer Journey
Dear CSN Community, I hope this message finds you well. I am reaching out to CSN community on behalf of my brother, who has been diagnosed with metastatic colon cancer. We are seeking advice or insights from those who have experienced a similar journey, either personally or through their loved ones. Patient Background:…
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Doc says chemo not needed
I was diagnosed with Level 2 colon cancer. The tumor was large but was contained and had not spread outside my large colon. However, it was blocking more than 2/3 of my colon so I had a partial colectomy within two weeks. It was done via robotic laparoscopic surgery. They removed about a foot of my colon and 22 lymph…
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Chemo for stage III colon cancer with BRAFV006 and MSS
Hi, Like everyone, I sure didn't expect to be here. Had surgery on 22 Dec. 2022, mass removed, 3/22 lymph nodes positive for metastatic. I'm 65, female, in pretty good shape. My fears over FOLFOX are numerous. I'm only just now feeling 'normal' again after having my appendix rupture (blocked by tumor) n the ER, then sent…
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Anxiety……
Treatment is over, cancer appears to be gone and I’m back to work. I have less to worry about than I have in a long time. But I find my anxiety getting worse every day, it comes on easier, stays longer. Ativan helps but I try not to take it often, thc helps but it’s not perfect. I can’t watch anything suspenseful or…
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Tumor Deposit pn1c and Perineural Invasion - stage IIIA
I post couple weeks ago about my Robotic Assisted Sigmoid Colon Resection surgery. Now the surgery report came back. It brought back more bad news. My primary tumor is PTis-1. Meaning maybe Tis or T1. However they found 1 tumor deposit and Perineural Invasion. I guess no one can explain how it happens. Now based on the…
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Chemo induced Laryngitis
I have a doctor appointment with a Throat doctor to evaluate my condition. I have have chronic hoarseness or possibly laryngitis which I attribute to the Chemo drugs. My onocologist and the various nurses I have spoken with have claimed no knowledge of such a side-effect. How about all my fellow cancer fighters? Any…
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Encouragement and checking in
Hi everyone I often read and rarely post, but I wanted to update and hopefully have some words of encouragement. I have stage 4 metastatic cancer KRAS mutated G12C, TMB Low, MSS. My cancer was caught early at stage 2 and two years later returned in my liver, I was NED for a few months and then returned in my right lung.…
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Single mom in Dallas with Stage 4 Looking for Support & Friends
Hi All, My name is Shannon. I have stage 4 colon cancer metastasized to my liver. I'm a single mom of an amazing six-year-old boy. I had emergency colon tumor obstruction surgery at the end of December. Just completed chemo #12 with two more to go before I get another CT scan for liver surgery consideration. I look forward…
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Runny nose
Does anyone have a constantly running nose all the time? I take clarinex (even though my oncology doctor suggested I don't) because if I don't the stuff runs down my throat and out my nose. I go through a box of Puffs in a week, I have to use the kind with lotion or my nose goes all red. I can't blow my nose because the…
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High tumor markers (CA) but clear scans.
Hello everyone, My first post. I have elevated Carcinoembryonic Antigen or CA levels of 150. However the PET and echo are clean. What does this mean? We are at a loss. I am currently doing chemo of Oxaliplatin. Many thanks for reading.
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Good scan results followed by pains returning
Hello. Wondering if anyone has any experience of or insights.. My Dad has stage 4 Bowel and liver mets. Received good news last week at his first scan meeting since treatment started, oncologist said there is shrinkage of 30% or more (more so in the liver) however, for the last 3 weeks my Dad has had the usual pains back…
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Power port
Had my power port put in about hour ago. Not bad of course still numbed up from local. Said it shouldn't b much discomfort though. Went to radiation and cancer Drs yesterday very helpful and compationate. The nurse practioner that works with oncologist seems awsome really connected think that helps going through this.…
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Winter Marie has passed away
Her son posted the following: Taken from Winter's son's wall. All friends and family I appreciate your kind words and support for my mother and her courageous battle against cancer. She passed away peacefully a few moments ago with my sister by her side. I know she had many people who loved and cared dearly for her and she…
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Essiac Tea
My husband has stage 4 inoperable colon cancer with mets to the liver. Our oncologist hasn't heard of Essiac Tea. We're trying to find out if it will negatively impact chemo treatments. Anyone have any information they can share?
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anyone have a hoarse voice right after chemo
My voice always gets hoarse when I have an infusion for about 2-3 days after chemo. Anyone else experience this afterwards? Thanks, Patti
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To work or not to work...any suggestion?
Greetings everyone! Real quick...stage IV and getting chemo for the third time in three years...cut two feet of colon, half my liver and the top of my lung... Several weeks ago the cancer clinic admistrator out of nowhere visits my chemo booth and says he thinks I should stay on some kind of chemo regiment for the rest of…
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Nerve and throat pain after port surgery
I had my port surgery over a week ago. My throat inside and on my neck is sore. My upper right back is sore with shooting nerve pain down to my elbow. When I raise my hand above my shoulder then I have pain from my elbow to my wrist. Does anyone have a solution for the throat pain or nerve pain? I can't lay on my back for…
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Stage IV 2nd Opinion Question
My husband was recently diagnosed with Stage IV colon cancer with some omental implants. The primary tumor was removed but only some of the omental implants were removed for biopsy and 19 of 24 lymph nodes were positive. A followup CT showed one possible irregular nodule in his lung but can't be confirmed as mets --even…
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Thoughts on LAR surgery
I was recently diagnosed with rectal cancer. A large polyp was removed during my colonoscopy but came back with cancer still located along the margins. All other tests have looked good (MRI, CT). My surgeon is recommending LAR w/ileostomy to remove my rectum and surrounding lymph nodes to make sure it has not spread. She…
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throat pain after port placement
hi everyone, i had my power port out in tuesday with x-ray verification, i have a visible wire and stitches on my neck as well as the port area, normal. the one thing i am experiencing that seems odd is a soreness in my throat, not like a sick sore throat but as if something is rubbing against it. i guess is another wire…
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Medicare and Cancer
I turn 65 this year and I have started making my way through the Medicare maze (for those of you in the US) and I was wondering if anyone has advice about the best way to get coverage for a potential recurrence of cancer? So far, a Medicap G plan seems the best, but with the Part D, most exclude chemo drugs, so is a…
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5FU take home 24 hr pump
i have fortnightky chemo plus irrinotecan at the hospital over three hours then take home 5 FU 48 hour pump. My question is this. Has anyone decided not to take home the pump and if so any changes in results. my onc had said there was no scientic proof the pump had or had not helped or hindered things?
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This new format is just horrible. Meanwhile long term neuropathy
Hi all, this is for the long haulers who are now cancer free but have residual problems. I did Xeloda, oxiplatin and radiation. My doctor screwed up my apr surgery on so many levels. My body's a hot mess. I need to help myself figure out what's what. These are the problems I have...anyone else relate and get an…
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Natural remedy to help
Hi there everyone, I had a 10cm Stage 3 Colon Cancer removed back in September 2021 with 6 months Chemo finishing in March 2022. I’m u der observation up to 5 years. I drink Alkaline water, been on this concoction 3 months now and recently I had blood and scans tests. All clear.. bless you all and try it out: Cancer killer…
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Getting hair highlights on folfox
I just started my Folfox treatment yesterday. After talking to the nurse, I'm considering going to my stylist in the next week to possibly dye my hair to remove my golden highlights, and add some ashen/ gray highlights to help with the massive gray regrowth I'm expecting if I don't dye my roots every 3 weeks. Then maybe I…
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Robotic assisted Sigmoid Colon Resection about 6 inches
I am new here. I was diagnosed at nov, 2022 in my first colonscopy. No symptoms, Dr. found a polyp has cancer cells in it. But the polyp's deep margin is not clear, so I need a surgery to stage me. I was told it is "Robotic assisted Sigmoid Colon Resection about 6 inches" , I am curious to know how soon can I recover from…
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12mm flat???
I’m a newbie here. I’m nervously waiting for a path report and hope y’all could help me understand if my nerves are warranted or needless. My mom had transverse colon cancer. I get colonoscopies every 2-5 years and I’m 66. Multiple polyps are always found but never anything malignant or precancerous. My last scoping was…
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Just Saying Hello
Hi everyone. I know it has been a long time since I've been on. For those of you who don't know me, I had rectal cancer and went through radiation and chemo, surgery, and then more chemo. I just want you to know that this is a wonderful group that helped me get through many situations. If you want to read about my story…