Who has an Ostomy?
Buckwirth
Member Posts: 1,258 Member
I've been thinking it might be useful to have a list of those with an ostomy.
If you care to be part of the list, please note the following:
Colostomy or Ileostomy?
Permanent or temporary?
If temporary, have you had the take down surgery?
This would be helpful list to PM to any new member with ostomy questions, and I would store it in my Expressions page, trying to keep it as up to date as possible.
Thanks in advance to all who would like to participate!
Ostomy List
Blake
If you care to be part of the list, please note the following:
Colostomy or Ileostomy?
Permanent or temporary?
If temporary, have you had the take down surgery?
This would be helpful list to PM to any new member with ostomy questions, and I would store it in my Expressions page, trying to keep it as up to date as possible.
Thanks in advance to all who would like to participate!
Ostomy List
Blake
0
Comments
-
Ileostomy
Had a temporary ileostomy and takedown surgery in November, 2009. If anyone has any questions, ask away. Always here to help if possible.
Kim0 -
Add me to the list
I have a perm colostomy since March 2010.
Always glad to help any who have questions about it.
Marie0 -
Temp ileostomy in june 09,Buzzard said:Permanent Colostomy
July 15th, 2008, at somewhere in between 7 am and 120 pm and it is open to any and all discussion............buzz
Temp ileostomy in june 09, takedown in sept 09. will to answer any questions. Petrina0 -
temporary ileostomy Nov 2008
Take down surgery June 2009. Would be happy to be on your list.
hugs
Shanna0 -
Permanently Changed for life
I have a permanent Ileostomy. It was given to me at age 37 on 12/21/06.0 -
I've had both
colostomy from 08/09 - 4/10
ileo from 4/10 to present.
The ileo was meant to be temporary, but the cancer came back fairly quickly after surgery and I have never had an opportunity to get it reversed. Sometime perhaps.
I'm always happy to help ostomites. I received a lot of ostomy help from folks here - still do.
Roger0 -
Colostomy forever.steve g said:Permanent colostomy
Happened Nov 4th o8 a date I can't seem to forget, hardly remember anything else but that day sticks with me......Steve
Since Sept 2010...Not as bad as i ever thought it was gonna be. Adapted to it well (no choice) can go places now without worries.0 -
Need InfoKenny H. said:Colostomy forever.
Since Sept 2010...Not as bad as i ever thought it was gonna be. Adapted to it well (no choice) can go places now without worries.
Roby just had a colonoscopy and the surgeon said tumor did not shrink as much as he hoped it would. Surgery will be soon and he'll have a permanant colostomy. Roby wants to know what to expect after surgery.
What is the difference between a colostomy and a ileostomy?
Diane & Roby0 -
Ileostomy
Ileostomy
bag off in 7 days or 168 hours. who is counting....
great idea blake.
pete0 -
Diane & Robydianelynn41 said:Need Info
Roby just had a colonoscopy and the surgeon said tumor did not shrink as much as he hoped it would. Surgery will be soon and he'll have a permanant colostomy. Roby wants to know what to expect after surgery.
What is the difference between a colostomy and a ileostomy?
Diane & Roby
Re:
"What is the difference between a colostomy and a ileostomy?"
With a Colostomy, they pull a section of Colon out through the abdomen,
and with an Ileostomy, they pull out a section of the Ileum (small intestine).
A Colostomy will put mostly solid waste into the pouch (since the
colon removes water from the waste), while an Ileostomy will put
mostly liquid waste into the pouch (since that's what it usually
dumps into the colon).
When they give you an Ileostomy, the "Ileocecal valve" is usually
removed, since it is part of the Colon. That valve normally serves
two purposes: 1. Keeps bacteria from the colon from travelling
back into the Ileum. 2. Provides another way for the body to regulate
the amount of waste (speed of discharge) going from the ileum
into the colon.
Without that valve, the food product (now waste), travels though
the body faster, allowing less time for absorption of water and nutrients
before it's discharged into the pouch.
If/when the ileum is reconnected to the colon, the speed of the
transfer of waste is usually faster, creating a more liquid stool
(as if you have diarrhea).
An Ileostomy usually presents more of a problem to the owner,
since the waste is more acidic than the usual output from the colon.
The colon neutralizes the acid, and puts the liquid back into the
system, producing dry(er), and somewhat formed stool.
The Ileo output is uncontrolled, since the normal job for it doesn't
require preparing it for discharge (bowel movement); it just
absorbs what it's designed to absorb, and sends the product into
the colon for finalization ( makes a turd for the worst). (haha)
Anyway, that's basically the dif.
If you're anticipating an ostomy, make sure that the surgeon is
well experienced, and marks out where the best spot -for you- is.
A poorly placed and/or formed stoma can make life a living hell,
so be sure it's done right the first time.
Generally the rules are: 4" to the side of the navel, and 4" below the
belt line. It should protrude from the body by at least 3/4" to 1"
to provide what is known as a "spout". That spout allows the discharge
to properly enter the appliance. A recessed stoma, or one not
protruding out far enough will cause problems with waste seeping
under the appliance. It's not as much of a problem with a Colostomy,
since that outputs somewhat formed stool, but with an Ileostomy
and it's very acidic liquid output..... it can be hell! The acid eats
away at the skin, causing blistering around the peristomal area.
It's not a situation you want to experience.
I've had an Ileo since 2006, and just had a new one provided to me
as part of a plea bargain. The new one was a total surprise, since
the surgeon said he would not have to do anything with my present
stoma, and would re-use it if there were any changes in plans of
the procedure I was undergoing. Really. That's how things happen.
My new stoma is above the belt line, in the totally wrong spot for me,
and my old stoma is left in place, discharging mucus at a high rate.
"Very unusual for it to do that", the surgeon says. And he adds
to my pain, by telling me it may have to remain for the rest of my life.
So two stomas, one 6" above the other on the same side, making
it near impossible to wear any normal clothing.
So please, do yourself a favor and demand the stoma is placed
where it is best for you. And demand a proper length spout.
Always cut the hole for the appliance as snugly to the stoma as possible, no skin
should show between the stoma and wafer.
Always wash the peristomal area with water only, NO SOAP.
Always dry the area with paper towels, not any type of treated fabric or paper.
Do NOT use any skin preps under the appliance; it degrades the integrity of the adhesive.
Warm the appliance with your hands after applying it, to set the adhesive.
Use an Ostomy belt in the beginning.
Always empty the appliance when it is no more than 1/3 full.
If a rash or sore develops, use Convetec's Stomahesive Powder, with nothing else.
(put some on a finger and dab it on, brush off the excess. nothing under the
powder, and nothing over it, except the appliance.)
That should be a start....
I use Coloplast products (Assura series or Sensura series). I found
that Convetec and Hollister caused me to have rashes. You'll have
to experiment to see what's best for your conditions. It's all a trail
and error experience, so don't give up or cry too much, it gets better.
Ask any questions you need to, and ask here as well. Once you're
an ostomate for any appreciable amount of time, you are more
than willing to share what you've learned!
Take care.
John0
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