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Who has an Ostomy?
I've been thinking it might be useful to have a list of those with an ostomy. If you care to be part of the list, please note the following: Colostomy or Ileostomy? Permanent or temporary? If temporary, have you had the take down surgery? This would be helpful list to PM to any new member with ostomy questions, and I would…
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Strange symptoms after APR and Prostatectomy
Hi, everyone. My husband had his robotic APR surgery on Nov 9th and has been feeling OK overall, but he has been complaining mostly of numbness and leg pain. I’m assuming the numbness is to be expected, but we’re not sure where the leg pain is coming from (he never felt them before the surgery). He has also been feeling…
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Any others feel like they are learning a lot about nutrition?
I don't always eat as I should, but I do feel like I spend a lot of time looking up the nutrition facts of various fruits and vegetables I like. My latest interest is the antioxidant found in high levels in blue, purple, and some red produce- Anthocyanins I am now trying to get at least one serving of these a day. It…
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34 & Nervous
I have always had inconsistent bowel movements. I have always just thought I might have IBS. I also have severe anxiety. A few weeks ago I started having lower back pain near my tailbone. I didn't think much of it. I sit a lot. This past week I have had nothing but mild diarrhea (it looks like soft serve) and hurts to get…
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ISO Surgical Oncologist recommendations
I'm looking for recommendations for a surgeon (or team of surgeons) for a friend of mine who has stage 4c CRC. He was expecting liver resection along with peritoneum surgery next month but they found new lymph node mets and just informed him they won't proceed with the surgery now. Can anyone recommend anywhere we should…
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And The Drug Trial Keeps on Working - CEA plummets, Cancer Activity Drops, Tumors Shrink
The tumors being tracked have now shrunk a total of 14% since I started the drug trial in July. Had some bad reactions a couple of sessions, but since then it has been easy. PET scan showed that some lymph nodes that had activity/uptake are resolved - no sign of cancer activity in some locations. My CEA (which is always a…
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Stage 4 Bowel / Liver Mets - CEA
Hello, hoping someone can confirm if this normal or expected but my Dad has stage 4 Bowel and is currently on his 5th cycle of Chemo. His CEA was over 24000 before Chemo and the speed at which he has improved is amazing (I have my Dad back!) he is on 9 day cycles of tablets, 4 days rest in-between (40% of dosage due to…
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Rising CEA with Clear Scans
Hi there, I am a stage 3c colon cancer (transverse colon) survivor and out of treatment/surgery for 19 months now. My CEA level when I had stage III was highest at 6.9 after my cancer surgery and was 5.4 when I first met my oncologist. Now declared NED, the last few CEA levels have been rising and I am at 5.1 presently.…
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Chemo working after treatment ends?
Hello. I just finished my folfox treatments. My MRI just posted and it shows no change in the tumor. I’m just wondering if there is any hope that the tumor will shrink in the months following treatment. In other words, does the chemo continue to work when treatment is finished or does my lack of shrinkage mean the chemo…
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Cea levels jumped fast.
Hello my father had surgery for colon cancer chemo and then chemo embolization procedure to one metastasis on liver. He was scanned and all showed cleared then put on remission. Three month follow up was last week and CEA jumped from 10 to a 400. He will have his petscan Friday. Has anyone experienced this before hoping…
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High CEA marker without symptoms or any sign of malignancy
Hi to everybody from Croatia! I am writing this in behalf of my father, 79 years, non smoker. He had heart infarct 12 years ago and since then he is OK wtih the help of medications. In one RTG after heart attack there was noticed one smal lung nodule 10x10 mm thaht has progrresed to 20x20 mm in this 12 years. Many CTs,…
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fallopian tube removal?
Have any females had their fallopian tubes removed during colectomy? My surgeon has given me the option and I'm wondering what others have experienced.
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Cytoreductive surgery
Hi! Anyone here had succesful cytoreductive surgery, with or without HIPEC (hyperthermic intraperitoneal chemotherapy) for peritoneal carcinomatosis? Stage 4... If in Canada, what hospital? Thanks!
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20 Years Cancer Free
Hello CSN Family, Today is certainly a Huge Milestone! For anyone just starting this journey I just wanted to give hope and encouragement. For me I had my surgery March 20,2002. Diagnosed Stage 3C, 10 out of 14 positive lymph nodes. Followed up with Chemotherapy & Radiation. At the time I was 40 years old with a 10 year…
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CEA Update
So my dad got diagnosed with Stage III colon cancer last year and after all his treatments he was declared all clear in January of this year. We recently all had a scare where his CEA went up to an 8.1, but after a few more higher levels his CEA was back down to a 4.8 at his appointment this past Friday. I’m so relieved!…
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Mini update - Lonsurf, trials, etc.
Hi all, hope everyone doing as well as can be expected. I started Lonsurf with Avastin in September but the effects were not as hoped. I'm going to be in a trial, however, starting in a few weeks. TBH I don't expect much but the idea of helping others with the results appeals to me. That said, the docs are excited about…
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Thin stools after colorectal surgery
Hello, It has been over 2 months since I had my reversal and over 7 months since my LAR (removing a portion of the rectum) surgery was done but I still continue to have thin pencil like or even flat ribbon like stools. I am really worried and was wondering if someone could offer their opinions on this. Jack
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Has anyone heard from NewHere?
I am just wondering how NewHere is doing.
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Sensation of fullness in stomach
Hello, my 81 year old mother has just recently been diagnosed with stage IV colon cancer (5mm tumor) mets to liver and lymph. We are waiting for the first oncology appointment (next Thursday, which feels like forever) and in the meantime I'm concerned about her getting enough calories. She has a good appetite, (meaning…
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UTI after surgery
Hi, everyone. Sorry I keep coming back to the forum, but it seems to be the only place where I can find reliable information from people who have been in my husband’s shoes… My husband had an APR about 2 weeks ago, and at first his main inconvenience was some strange leg pain, and the drain (he was prescribed pregabaline,…
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Uncertainty
Hi there- I had a recurrence of my colon cancer after 5 years- I had 6 treatments with fulfox and then surgery/ I was told that the margins were clean and had three positive lymph nodes- I just had my port removed but am still having difficulty with believing that there is NED. I sometimes get paralyzed and don’t want to…
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Stage 2 - chemo decision help!
Hi all, I found this forum as I’ve been trying to understand if I should be doing chemo or not for my recent diagnosis. I had surgery a few weeks ago after discovering a 7cm tumor in my colon. Presented with some abdominal cramping but big concern was low hemoglobin (8.7) indicating I was bleeding internally. Tumors…
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Study with Interluken at MD Anderson
anyone getting into the new trial at MD Anderson where they use Interluken . I hear its the first time where all patients in a study were moved to remission. Its Drug Factory Implants.
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Sue?
i Haven’t seen Sue on here lately…..does anyone know what happened? I miss her.
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Hair Thinning after Folfox
Hey all, I had 6 cycles of folfox, with all kinds of fun side effects including hair thinning. Particularly traumatic because my doc explicitly said I wouldn't lose my hair. I try and wash it every 10 days or so, keep it in a bun and try not to mess with it. Use baby shampoo, and be gentle, etc. Well, I've been done since…
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father with possible recurrence
Hello, I’ve been looking through the forum at peoples experiences which have given me a little more hope than I has before. My dad was diagnosed with stage III colon cancer in 2021. Had resection and then chemo for 6 months and was NED on Dec of that same year. He just had his recent follow-up with his oncologist and his…
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Is my brother dying
Dear Friends, Its been a long time since I chatted to anyone because I have been so caught up trying to make my brother comfortable through his chemo sessions. The last time I wrote to let the cyber family know that god came through for us and we eventually got medical insurrance to approve treatment. Its been 4 months…
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Urgh Typed Long Message - Good News
And it disappeared. Long story short (I had more details), been a tough year. Arub passing away hit me hard, as she was there for me from the beginning and we kept on making plans to meet up, but had fall them through. Then shortly after she passed away, it was confirmed my cancer bloomed. Tumors in spine were bad, psoas…
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Just diagnosed - age 42
Hi everyone, my name is Fraser. I was diagnosed with colon cancer last week after going to emergency because of severe stomach cramps and vomiting. It turns out that my tumour was fully blocking my colon. I had a right hemicolectomy the next day which sounds like it went well. The surgeon said the lymph nodes (which were…
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hemorrhoids or cancer?
Hello... Please don't judge me because I am terrified, I suffer from anxiety. I've been having pain in the anus area for a few weeks, which comes and goes.. better and worse days... and I notice that I've been going to the bathroom more than usual. I looked for a proctologist, and he did the touch exam, said that I have an…