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Colorectal Cancer

Anyone avoid surgery after radiation and chemotherapy?
Hi, I have stage 3 rectal cancer. Has anyone gone through chemoradiation and chemotherapy and decided not to go through surgery? Seems like the recommendation is to go through surgery even if it appears the cancer is completely gone. Curious about anyone who chose not to have surgery-how they made that decision and how it…
There is always something new right around the corner. . .
‘Miracle’ herpes treatment eradicates tumours in terminally-ill cancer patients (yahoo.com)
Ileostomy reversal
I am having my ileostomy reversed on Jan 24th. I no longer have a rectum. I have read nightmare stories of the reversal and was wondering if I could get some feedback here. I have had my ileostomy since Oct 11, 2022 so almost 3 months. I think the number one worry is diarrhea and having to live on the toilet. I hope my…
Newly Diagnosed
My son who is 38 was recently diagnosed with colorectal cancer. He is wanting to move fast with treatments. But the doctors seem to be slow in getting started. Had a colonoscopy and found a 6 mm tumor. It was biopsied and he was told by surgeon they would not operated until he tried to shrink the tumor. Is this normal to…
Lonsurf for liver metastasis
I was diagnosed with stage IV colon cancer four years ago. I was operated on in April 2020 and the tumor was successfully removed. I had been on Folfoxiri and Avastin but was taken off it due to an abscess caused by anastomotic leakage. Doctors took me off the Folfoxiri/ Avastin cocktail as it didn’t seem to be so…
Collapsed Ascending Colon/Tumor on pancreas tail and spleen
Hi, My 81 year old mother has stage 4 colon cancer. She finished 12 rounds of treatment and most things shrunk and some went away. The nodules in her lungs grew a tiny bit so they won’t give her radiation. She has a 4 cm tumor on her pancreas tail and spleen which might even go onto her stomach a little bit. We met with…
survivor story
In 2010, I was diagnosed with Stage 3B colon cancer (sigmoid colon) at age 50. I had surgery first followed by 12 rounds of FOLFOX chemo. I have been NED since then. (I'm a woman, BTW.) I followed the advice of my original doctor to get surgery first... A second doctor advised the opposite -- chemo first and then surgery…
Need advice on Signet ring cell carcinoma for my wife
I need advice my wife got a preliminary biopsy results saying she got signet ring cell carcinoma we are waiting on staging she got admitted to the e.r on 1-13-23 2 weeks prior she kept throwing up her food and lost about 12 lbs in 2 weeks she though it was a side effect of the chemo she had 5 years ago to remove invasive…
where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
2 Liver Lesions one month after Folfox
Hello. I'm 33 and got diagnosed last December. I finished the 6 rounds of FOLFOX after surgery in January and no my latest CT shows 2 small hypoenhancing lesions 12 and 19 mm just less than a month after chemo. The Docs aren't certain it's cancerous but my cea is 33 so they won't be shocked either. Anyone can help shed…
16 years out
Hello all, Been a long time since I posted. Just as a hopeful message to those out there. 16 years ago dx with stage 4 colon cancer, mets to liver and lung. After 10 years of whack and mole with chemo and surgery, I have been just lucky that it hasn't popped back up again. My son, who was in 6th grade when this started ,…
Remission and neuropathy
Question about Power Port removal and replacement
For the last few chemo treatments I 've sometimes needed an injection of Alteplase to unclot my PowerPort catheter. the port hasn't worked for withdrawing blood but they have been able, after the unclotting med works, to go ahead with the infusion. Yesterday was different. When they began the infusion it caused a nasty…
New Forum Format: Feedback for Administrators
As the blue box seems to indicate, the administrators are briefly open to users' feedback about the new format. Here is mine: The format is cluttered and confusing. The "features" are meaningless to me. I have disabled all notifications. The old format (pictured below,) functioned as a bulletin board that I could quickly…
CPT 11 and immunotherapy
Hello my dad's latest petscan showed 2 pen tip metasis in lung and on 1 on liver, Dr put him on cpt11 with immunotherapy. He just had first round and so far he is experiencing alot of bone and joint pain we have been givening him tylenol and ibuprofen mix it tends to help some but he breaks out in a cold sweat... has…
Possible Mets
Hello, Has anyone had the experience where the radiologist has said mets on a MRI result and your CEN is lower than 3 and you CTDNA is 0. Right now, Doctor wants MRI's every two months and if CTDNA comes back positive, mri's every month. I have been diagnosed with stage 3 C on 12/2019. Had a sigmoid ectomey with Capeox…
surviving colonrectal cancer
Is there anyone outthere that has rectal cancer with med to liver, lungs and bones? I would like to know other treatments that are available. MY husband has been on the regiment for 23 treatments and I think it is time to try something else. His cea is steadly going up and ct shows not improvements. Doctors just keep going…
Just diagnosed with Stage IV
Hello, I am new here. 52 year old male. About 7 months ago I noticed I was getting constipated, thought I was not drinking water. it got to the point I was having to be on a clear diet taking osmotic laxatives to have a bowel movement. I ended up going to the ER due to a blood clot jn my vessels gojng to my heart (PE).…
Round 3 of FOLFOX
Hello everyone. In July I went to the emergency room with severe stomach cramps. Tests showed thickening of my transverse colon. When I finally got in for a colonoscopy on August 29th a mass was almost blocking my colon. The next day I had surgery to remove and all margins were clear. T3 with 3 of 16 nodes adenocarcinoma.…
New here - want to share and looking for hope
Hi, I’m new here and just looking for a place. My husband (52yo) was diagnosed in Sep 2018 with stage 4 Mets to liver and has in the last year spread to lung. He had surgery in Oct 2018 in the colon and then started chemo in dec, followed up with radiation, and then tried ablation in the liver to remove the liver spots.…
Encouragement
It has been a very long time since I have posted but have it on my heart to share… to give you hope and encouragement! I was diagnosed with Stage 4 colon cancer (Mets to my ovaries) in October of 2007 and I have just celebrated 15 years of life since diagnosis and remain NED since 2008. I shared so many of the same…
Helen321 saying hello. Boy these new boards are horrible
I am just checking in. Hard to tell who's on here with these new boards. Not at all user friendly when you actually care about the people and not just the disease. I see Kim, Due and Beaumont Dave. Hi all. I made year 10 this year. Finally getting the help I needed for all the pain I've been in. They're finally hearing…
Who has an Ostomy?
I've been thinking it might be useful to have a list of those with an ostomy. If you care to be part of the list, please note the following: Colostomy or Ileostomy? Permanent or temporary? If temporary, have you had the take down surgery? This would be helpful list to PM to any new member with ostomy questions, and I would…
Strange symptoms after APR and Prostatectomy
Hi, everyone. My husband had his robotic APR surgery on Nov 9th and has been feeling OK overall, but he has been complaining mostly of numbness and leg pain. I’m assuming the numbness is to be expected, but we’re not sure where the leg pain is coming from (he never felt them before the surgery). He has also been feeling…
Any others feel like they are learning a lot about nutrition?
I don't always eat as I should, but I do feel like I spend a lot of time looking up the nutrition facts of various fruits and vegetables I like. My latest interest is the antioxidant found in high levels in blue, purple, and some red produce- Anthocyanins I am now trying to get at least one serving of these a day. It…
34 & Nervous
I have always had inconsistent bowel movements. I have always just thought I might have IBS. I also have severe anxiety. A few weeks ago I started having lower back pain near my tailbone. I didn't think much of it. I sit a lot. This past week I have had nothing but mild diarrhea (it looks like soft serve) and hurts to get…
ISO Surgical Oncologist recommendations
I'm looking for recommendations for a surgeon (or team of surgeons) for a friend of mine who has stage 4c CRC. He was expecting liver resection along with peritoneum surgery next month but they found new lymph node mets and just informed him they won't proceed with the surgery now. Can anyone recommend anywhere we should…
And The Drug Trial Keeps on Working - CEA plummets, Cancer Activity Drops, Tumors Shrink
The tumors being tracked have now shrunk a total of 14% since I started the drug trial in July. Had some bad reactions a couple of sessions, but since then it has been easy. PET scan showed that some lymph nodes that had activity/uptake are resolved - no sign of cancer activity in some locations. My CEA (which is always a…
Stage 4 Bowel / Liver Mets - CEA
Hello, hoping someone can confirm if this normal or expected but my Dad has stage 4 Bowel and is currently on his 5th cycle of Chemo. His CEA was over 24000 before Chemo and the speed at which he has improved is amazing (I have my Dad back!) he is on 9 day cycles of tablets, 4 days rest in-between (40% of dosage due to…
Rising CEA with Clear Scans
Hi there, I am a stage 3c colon cancer (transverse colon) survivor and out of treatment/surgery for 19 months now. My CEA level when I had stage III was highest at 6.9 after my cancer surgery and was 5.4 when I first met my oncologist. Now declared NED, the last few CEA levels have been rising and I am at 5.1 presently.…

Colorectal Cancer

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