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You Might Be A Caregiver If.......
You feel like smacking the next person who says "Boy, you really look tired". You make life and death decisions with a snap of your fingers but you need 30 minutes to select an item from a dinner menu. You can rattle of the generic and brand names of medications and the family they belong to quicker than the nurse. Going…
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Caregiver support-New Here
Good Afternoon Hope all is well! I am new here. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading researching and feel overwhelmed. When the doctors ask “do you have any questions” I feel…
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Socialising physically with someone with an astrocytoma
I am a Ghanaian who have had a brain tumour surgery in 2020. I would like to have a personal encounter with someone in similar condition where we can exchange ideas and see if we going through the same pains
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Feeling Alone
I (43, female) am sole caregiver for my husband (70, male). We were married for 20 years and i moved out seven years ago because of many reasons but mostly the age difference and needing my own life. He has hd NHL for about 15 years but recently, tongue, neck and possible throat cancer. He never went to doctors. Just once…
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Caregiver stress
I am a sister , aunt and nurse to my brother with recurrence of glioblastoma and his 28 year old daughter with neuro sarcoma with Mets. I tend to be pessimistic when they are so optimistic. I try so hard to remain positive for the future, but the nurse in me jumps to conclusions. Any help groups or suggestions are…
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Do you feel forgotten as a caregiver?
I feel so alone and forgotten in all of this. This is my 4th time as a cancer caregiver. I lost my fiancee 6 years ago this New Years Eve, and 10months later my mom had breast cancer and survived. Two months ago my present partner of 4 years was diagnosed with throat cancer. I suffer from PTSD from the horrid journey with…
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Caregiver Reprieve
Hello everyone, My father (74) had a brain tumor removed September 2022 and pathology determined he had Glioblastoma Multiforme Grade 4, started chemo and radiation treatment November thru December 2022. When he started the chemo/radiation, he was also fitted with an Optune device that he wears 90% of the time. He is now…
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Seeking caregiving advice
I am at the moment taking care of my 85 y.o mother diagnosed with Metastatic stage 4 Cancer (primary being Uterine cancer). It has been 6 months since she has started her chemotherapy. The oncologist started her on 7th cycle yesterday. After she was diagnosed, I got a room built downstairs and also a shower was added to…
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Ovarian Cancer Care Giver
I hate to complain. I don't have cancer. I will live way too long. My wife was diagnosed with Stage 4 ovarian cancer six years ago this month. 2022 was entirely about treating her third recurrence, started with an ablation of tumor on her liver, other tumor grew while arranging that surgery, got qualified for a promising…
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Workplace support
My wife is coming off of a year where she has had a number of surgeries, all but 1 of them related to her cancer, and is now having to deal with an employer that is concerned about her performance slipping and may be looking to terminate her. Does anyone know of any resources that we could contact that might be able to…
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I feel so lost....
This is fight two for my mother. The first was when I was 16 and we had no support system but what we could figure out on our own. She had Chemo and Radiation then. She ended up in the hospital once, besides the treatments and surgery. This time I am 42, we have a great support system but it seems worse this time. She is…
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Caregivers Chatroom
Meeting in chatroom2 at 7 p.m. Eastern standard time 6 p.m. Centeral Standard Time 5 p.m. Mountain Time & 4 p.m. Pacific Time. All caregivers and surviving caregivers welcome! See you there.
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Live CHAT & Support - Saturdays
Hello my fellow caregivers, I regretfully joined this club in 2016 when my husband was as diagnosed with C. I did not find any local support groups for caregivers and I had so many days filled with unwelcome emotions (isolation, sadness, lonely, frustrated, angry, heartbroken and more) and I clawed my way out each and…
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Newbie seeking support
First of all, Merry Christmas! I just joined this site and I am a complete neophyte on social media. My wife was recently diagnosed with stage 2 breast cancer. Her prognosis is very positive - pending a few more test results - but I am struggling with how it has already impacted our relationship and our family. I'm scared…
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Octriotide for a snowbird??
My dad gets octriotide injections every 2 months. When he is in Florida for the winter, he actually spends about $600 to travel back to Ohio to get the injections insisting that "my personal doctor needs to do them because they freeze and thaw and mix and...it's tricky". My girlfriend has been through breast cancer…
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Looking for any kind of help
I am helping my mother, I'm her caregiver. We cohabit a home together, we have for years. Her journey started this time last year with non small cell carcinoma in her right lung. She underwent radiation for 6 weeks 5 times a week, she also has had chemo and immunotherapy. Then they found uretal cancer and had to remove it…
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anger towards caregiver
Has anyone had the cancer patient take their anger and/or frustration out on the caregiver? My husband seems angry and frustrated with me when I ask a question ie What did you say? or when did you take your last meds?
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November is National Family Caregivers Month
Caregiver… NOT Guilty! We the jury in the case of you giving the ultimate act of selflessness - being a caregiver… find you NOT GUILTY on all accounts! Being a caregiver is hard! There are days you are completely at your wits end, there are days you are physically, mentally, and emotionally exhausted. There are days you…
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I think I'm making my dad's cancer worse got to handle my stress better
Hello So my dad was diagnosed with stage 3 rectal cancer almost two years ago with a colonoscopy . The doc who did the colonoscopy told us there was no hope the tumor was to big treatment wouldn't work . I lost it I have struggled with ocd and anixety and depression and anger issues my whole life my dad was always the one…
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Synovial Sarcoma Caretaker
All, forgive me if this is not the right way to post in this forum. I found the instructions vague at best, but please point me in the right direction if I'm lost. My wife was diagnosed with synovial sarcoma in her leg about 2 years ago. After the worst 24 months of our lives with aggressive chemotherapy, radiation, and…
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Financial Assistance for Uterine Cancer
Hello, I am a breast cancer patient navigator. I have recently been assisting a sweet lady with uterine cancer. She has expressed that she is needing some financial assistance. However all my resources at my disposable are for breast cancer patients. Would any one of you be willing to point me in the right direction? I…
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Anger Management
Anyone have good ideas how to manage anger with the patient (spouse) who does not comply with the dietary and exercise components of treatment? He feels so much better when he does, but then gets lazy and suffers setback that could have been easily avoided. It's wearing me out because I feel like I'm married to a stubborn…
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Is this Real?....
Hello, I am a 30 year old women that partner was diagnosed with stage 4 neuroendocrine cancer in the lungs. My story is very complicated or should I say unique...? So, I will do the best I to explain my situation. I dated a man for about two years prior to his diagnoses. The relationship was not healthy for neither one of…
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Help, please
My wife (my supposed caregiver) has been melting down far past my ability to deal with. She's screaming and ranting and terrifying the dogs (and me). She's ranting about things with a previous girlfriend from when Bill Clinton was president. She's just screaming and cursing for hours. I had to call 911 last week b/c I just…
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Possibly losing our marriage
My wife was diagnosed with Stage IV ovarian cancer with mets to liver and lung 5 years ago. We’re in our 40s with two kids, 8 and 11. The prognosis wasn’t great, but she got into a trial that saved her life. During that time, we moved halfway across the country to be closer to her Dr and the trial. I just wanted to do…
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So confused
Well, my best friend / roommate was just officially diagnosed with metastasized lung cancer. She was coughing up blood clots on the 5th of July. Went to the emergency room who told her she had cancer. Just like that. They found it in her lungs and liver. Non cancerous lump in her breast. She has been working from home as…
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October Post
I went to visit my dad that night after he was moved to his own room. One of my uncles, my parents' close friend, drove me to see my dad along with my grandparents. It was decided that my mom would return home with us. Even though I knew everything had gone fine I was still very worried and wanted to see my dad in person.…
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A mom with breast cancer for the second time.
My momma was diagnosed with breast cancer for the second time after being rushed to hospital because she couldn’t breathe. She’s on a type of steroids that make her very emotional, and angry, and make her cry a lot and it’s really difficult to deal with sometimes because she gets so upset. The first time she had cancer was…
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struggling with my dad's cancer
Back in June we found out that my dad had prostate cancer (Gleason score 7, localized, genealogy testing is pointing towards reoccurrence in the future but we'll worry about that when the time comes). I'm 24 years old and live alone with my dad, he and my mom split back in 2016 and she lives in Arizona. I've been working…
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Cancer Story part 6
All of these events were happening at a very critical time for me. I was just going into my freshman year of high school and was not ready to adjust to a completely new environment seeing the situation at home. I had plenty of friends during middle school, some of which I am still friends with today, so I had a decent…