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Caregivers

Helpless
I'm posting on behalf of my mother, but we are both at a loss as to what to do. In March my 71yr old father had his bladder and prostate removed due to bladder cancer. He recovered quickly from the surgery and adjusted to his new stoma. In July he started experiencing back pain, he went to a chiropractor, physical…
Feeling guilty
Hello, My 80-year-old father who has always been extremely difficult and angry recently was diagnosed with Lung cancer that has metastasized to his bones and brain. This is a 2nd primary cancer; he was originally diagnosed with Urethral cancer back in 2020. He had the largest of the 4 lesions in his brain removed a couple…
Overwhelmed
Hello to all. My husband of almost 30 years was recently diagnosed with stage IV colon cancer (met. lungs) Tumor is inoperable. He will be receiving immunotherapy treatments. This is the second time he has had cancer in 3 years. The first time was adrenal lymphoma, which went into remission. I am seeking advice on how to…
Caregiver breakdown
Husband has stage 4 small cell lung. Less than a month with no treatment. Maybe 9 months with treatment. So he has chemo/radiation. I am now sole breadwinner, his caregiver. I have to work full time to keep a roof over our heads. But I need to go with him to his appts. He wants/needs me to take care of…
What to do for big changes in my dads life?
Hi, I’m 27 and take care of my father diagnosed with grade 4 glioblastoma. He is out of work and now just stays at home most days doing things around the house. He has rejected support groups, which I have encouraged, and just stays with me all day. I feel like group activities, which he likes being with people, would help…
difficult patient
I am new to caregiving and don't like it much. My bf is the patient and he is very difficult to deal with. He is very needy, demanding, rude at times and disrespectful. He needs to have someone with him 24/7 and is very controlling of me mostly. I do have other people here that help with his care so that I can take care of…
Decision
As a cancer caregiver, fighting hard for the one you love is a roller coaster. For 16 months (May 2022- September 2023) Stage IV colon cancer with peritoneal Mets, ileo surgery, chemotherapy treatments resulting in chemo toxicity with altered mental state after 9 of 11 treatments, etc… Previously, I have stood by him…
Memory Problems
My husband has stage IV kidney cancer and has horrible memory problems. He's gone through the removal of his tumor and kidney, other biopsies, IL-2, an experimental drug, Sutent, and is now on Nexevar. I think it's definitely due to the chemo. Has anyone else had their loved one experience memory loss? Mostly short term…
Pace is peace
Yesterday was a great day with mom. She was in an upbeat mood. Interested in the things we were doing together. Tapping into that strong woman I have always know. It felt as though I had MOM back. I am blessed and so grateful for the minutes and seconds we had yesterday. I am focusing on allowing an emotion or an incident…
History of understanding cancer
I wish to learn about the history of understanding cancer. Anyone here expertises on this topic, please share your understanding. Thank you!
Guilt
My wife, who is just beginning treatment for Adenocarcinoma, and I were sitting together yesterday. I was looking at her and out of nowhere I felt a sense of guilt; guilt that she is suffering with this cancer and I am still healthy. It came on pretty stong and then tapered off. Now it just sits there, not saying anything…
angry patient=husband
Vent: I am so OVER being treated like dirt by my husband who has cancer. I do , and have done, everything in my power to make life as good as it can be for him, but it's never good enough. All he does is complain, yell, scream, curse etc. It's getting more and more ugly by the day to the point where I can hardly eat and…
Under the rug - Sweep it or keep it?
Most of my life my mother has always tucked away her emotions. She never really let anyone see her hurting, scared, or doubtful. She has always been the saver when any of us had troubles or pains. She has always been that person that you can count on 100% to be the one to make it all better. For me.... there is no one that…
Mom with Stage 4 NSCLC
Hello, My mom has been receiving treatment for NSCLC for about 6 months now and she has been so resilient but it has pushed her to her breaking point. She says she is traumitized and can't imagine going back to get another chemotherapy session, the tasteless food, vomiting, constipation, mouth/ throat sores and now skin…
Mom newly diagnosed
Good Afternoon Hello Everyone Hope all is well! Thank you in advance for your support. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading, researching and feeling overwhelmed. When the…
Small Lung Cancer
My mom was diagnosed in December with stage 4 small lung cancer. It is the type of lung cancer that is aggressive and is neoendocrine. I am really struggling because I do not live in the same state as her and my sister. My sister is on the front line. I also have PTSD, General Anxiety Disorder, and Depression. On top of…
Seeking advice and support (husband - colon/liver cancer)
Hello. My husband was diagnosed with Stage IV colon cancer this week, spread to the liver. He had a sigmoid colectomy and now has an ostomy. Once he heals from that, we will meet with the oncology team to find out what the plan for attacking the cancer is. We have 2 boys, 21 and 11, who don't know yet that he has cancer. I…
Support, advice
I am writing to get support and advice. I am in a relationship with a woman who lives in another country. I met her while on a mission there. She was treated for breast cancer in the past. She lives in Vietnam. Plans were to bring her to the U.S. next year and be married. I am 67 and she is 59 years old. We were both…
What do you do
Hello I’m a caregiver when allowed of a multiple myeloma patient. My wife has always been a rollercoaster emotions person but this has gotten out of control. I’m hoping someone can help me us if she cares anymore. Similar to most on the chat I try to be there for her if she allows. It was all good on July 2nd after that…
Sorry. Just had to vent
Hi fellow caregivers. Recently, I caught a thread in this, the Caregiver section of this site and simply had to offer my two cents. I realize these comments and the original poster shared their feelings a while back but sometimes reaching out into cyberspace here and there helps. If anyone is interested in catching a…
Looking for other spouses in same situation
My wife was diagnosed with stage four BC over a year ago . She has been on Ibrance, monthly hormone treatments and xgeva every three to four months . The treatments so for are working. Would like to have an online discussion with any spouses who are caregivers to their wives and how they are dealing with all issues…
In hospital patient support
Does anyone know if the ACS provides respite and patient support for hospitalized patients? Family stays overnight with incapacitated cancer patient family member, yet the family is extremely exhausted. Needs help. Thanks for any advice.
I am selfish?
Hi everyone. I'm new here and so grateful to know that this exists. My partner of more than 20 years was diagnosed with Glioblastoma during the height of COVID. I like to think that we are still very young people. He was diagnosed at age 36. We have had a pretty rough and toxic relationship over the years. I took care of…
Brain cancer - looking for caregivers
My husband has Oligodendroglioma grade III. just looking to connnect with other caregivers with this type of cancer
Head & Neck
I am a caregiver for a head and neck survivor Would love to meet others
Head and neck cancer
Hi, My husband has head and neck cancer with an unknown primary. He just had a feeding tube put in today. Tomorrow he goes for surgery to pull some teeth, because they are going to radiate his head and neck. Everything has taken so long to come about. In a couple of weeks he starts both radiation and chemotherapy. I am so…
Venting Caregiver
Hi first time poster. I’m THE support person for my husband. In 2018 he was diagnosed with HPV+ SSC of his right tonsil and 1 right lymph node in his neck. He had the TORS of his right tonsil along with right side neck dissection. Recovery time was about 7 weeks and no feeding tube. It was a success and doctors gave him…
Hospitalized with COVID stage 3 cancer pushing me away
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
No Chemo Side Effects
My husband has been on Nexavar for the past three months and has absolutely NO side effects. When he was on IL-2, a clinical trial, and Sutent the side effects were almost completely debilitating (fatigue, sores,etc). We are going to find out next week if the Nexavar has shrunk his tumors or at least stabilized them. I was…
You Might Be A Caregiver If.......
You feel like smacking the next person who says "Boy, you really look tired". You make life and death decisions with a snap of your fingers but you need 30 minutes to select an item from a dinner menu. You can rattle of the generic and brand names of medications and the family they belong to quicker than the nurse. Going…

Caregivers

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