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Thyroid Cancer

RAI Treatment
Hi guys, Had a total thyroidectomy 3 weeks ago. Also founf a couple tiny lymph nodes that were removed. Tall cell. Having RAI treatment in a few weeks. Want to ask if anyone here has had it and if it was emotionally manageable being alone. I have bad anxiety disorder and I am so scared to be by myself. I figured if I got…
pet/ct scan
I am 45 and I have had a few nodules that have been being watched the last 3 yrs, they are cold per nuc med scan. I had a FNA 3 yrs ago, biopsy results were the 1.4 cm showed specimen consists of sheets and clusters of uniform follicular cells, some with hurthle cell change, numerous hemosiderin laden macrophages and…
I have a mom that is diagnosed with Anaplastic Thyroid Cancer.
Hi My mother was diagnosed with Anaplastic Thyroid Cancer last week and the doctors are not too optimistic. The doctors kind of seemed cold when they were giving her the diagnosis. I was in the room when she got diagnosed and honestly 10 seconds after hearing it, one of the doctors seriously expected to be rational and not…
I have papilary thyroid carcinoma and my mass associate with blood vessels
I have PTC and my mass associates with blood vessels and surgeon ask surgery not possible but before surgery you will get radiation theraphy and radio iodine treatment for shrink a nodule. I that possible with radiation cancer nodule shrink? What I have to do please give me suggestion.
1 year in with Thyroid Cancer Recovery
Hello everyone I am relatively new to this. I discovered I had cancer almost two years ago. I had my surgery and radiation last year. It cost a lot of money and part of me feels like I paid more I was supposed to, however, I was to exhausted to go over the bills and argue anything. This year I have Thyrogen medication and…
Vocal cord problems after thyroidectomy
Hi I had a complete thyroidectomy on Dec. 10 2021. My voice is raspy and hoarse. My right vocal cord seems to be paralyzed or stuck. My surgeon said this happens in 40% of thyroidectomy surgeries. Just wondering if this has happened to anyone else and what your experiences have been? Thanks.
This is so bizarre .. please read
This is so bizarre .. Had a PET Scan performed on my lungs and they turned out ok.. lucky b/c of so many years smoking. However, the doc said they were ok just a little junk nodule at lower lobe so we had a biopsy FNA done and it came back negative. Oh well and good.. right? .. NOT!. So the doc says my lungs are so so ok…
Hurthle Cell Carcinoma
Is there anyone out there with Hurthle Cell thyroid cancer?
tall cell papillary carcinoma
Hello, Thought I posted last night, but can't find my post. I know how this website can be as I am NED for a completely different cancer and am part of another discussion group. Okay, I have just been diagnosed with tall cell papillary carcinoma, a more aggressive variant of papillary carcinoma. I searched on this…
Newly diagnosed
Hi I've been newly diagnosed with papillary thyroid cancer. I'm meeting soon with a surgeon to discuss treatment. Just looking for some thoughts about surgery abd aftercare. Thanks.
oral chemo
Wondering if anyone out there with thyroid cancer has taken??
Hurthle Cell Carcinoma
Hurthle Cell caarcinoma anyone?
Thyroid Cancer Chat
Hi everyone! There is a thyroid cancer chat in Room 2 on Monday nights between 8-9 PM Eastern Standard Time. Any patient or caregiver or interested party is welcome to attend. We do not exclude other cancer survivors from this chat, we merely try to stay on thyroid cancer topics to assist those in dealing with this type of…
Thyroid cancer recover
Hello looking resources: I was diagnosed with MTC cancer in July. I had a total thyroidectomy in August with a total left neck dissection removing 56 lymph nodes. I have been on synthroid since then with it being adjusted 3 times now. My levels have gone from .041 to now .014. I am having so many symptoms and I can tell…
Thyroid cancer-Braf V600e mutation
Good morning, I had thyroseq molecular testing done as my initial biopsy was a follicular neoplasm. My results from Thyroseq shows that the test result is positive, the probability of cancer is ~99% and I also have the BRAF V600E mutation. I was hoping I can get some input from others, as I don't have a follow up with my…
Radiated as infant to shrink thymus gland in 1957
Anyone here had this radiation treatment in the late 40s to late 50s in Detroit
Elevated Tg levels with TgAB presence over 2 year safter total thyroidectomy
I was diagnosed with thyroid cancer one week prior to finding out that I was pregnant with my now 3 year old daughter. I waited until after giving birth to have the surgery and radiation. At first they said that it was local and then came to find ut that it had metastasized to 7 of 9 lymphnodes and 3 of 4 parathyroid…
Closing in on a year after surgery and my chronic cough is starting to come back...
So I had a chronic cough for a fair amount of time. Back around the time the Pandemic started my cough got way worse to the point I was coughing up blood every few hours for 6 weeks straight. While they never did figure out what was causing the cough I was diagnosed with thyroid cancer and ended up having it removed late…
rise in thyroglobulin/thyroglobulin antibody after cancer during pregnancy
hi everyone, Im 9 years in remission from tall cell thyroid cancer, and 4 months pregnant. My recent labs show a slight increase in thyroglobulin and thyroglobulin antibodies. Anyone have this experience during pregnancy? Im wondering if it means recurrence or could just be pregnancy
36 year old male with papillary thyroid cancer spread to the lungs
Hey guys, thank you for being here. A few months ago, I found a large bump in my right side of my neck that ended up being a 10cm large mass and two smaller ones on the left side of my thyroid. Long story short it ended up being papillary thyroid cancer, had my full thyroid removed, right vocal nerve removed (losing…
It's the Not Knowing That's the Hardest Part...
Hi, It's been just over a year since my thyroid removal. My PTH Intact & TSH values have been stable, until now. I just got my blood tests back and my PTH, Intact values have gone up from 2.3 in Sept., to 4.1 pmol/L. My TSH has also gone up from 0.34 in Sept., to 0.94 mlU/L. Does anyone know what this might mean? I'm okay…
NASOPHARYNGEAL RADIATION TREATMENT & THYROID DISEASE
I too was radiated with Nasophyrngeal Radiation Treatments in 1963, US NAVY, Submarine Service. I was 17 years of age. I had Aerotitus Media, {blocked ears} from pressure.I was NOT told that they were performining a radiation treatment on me. In 1998, I developed Hyperthyroid Disease, Corroded artery of Neck, {requiring…
looking for other antiplastic thyroid cancer survivors
In my view if the doctors would not be so bleak , and always not very hopefull a lot more people would do better. I am on my 8 month when they gave me 3 maybe 6 feeling good, they really did not want to treat me, i told them to throw the kitchen sink at me. Told them i was going to prevail the first day and ifeel the same…
Braf in genes in cancer cells
i had a total thyroidectomy may 2020, with 50plus nodules removed, i complained to my endo that i feel something rough behind my throat when swallowing he just brished it iff and told me thats not thenproper way to swallow, had RA131 after 3 months from surgery in hope to dissolve 2 nodules, i was so confused as to why…
surgery mishap?
My son had a total thyroidectomy a year ago. Recently he had an x-ray that revealed three areas of metal in his neck. We contacted the surgeon and after four days he responded stating that he has titanium clamps and no harm will come to him. I am concerned as his operating report mentions nothing of this, nor were we…
Two failed Biopsies?
I've been sick 10 mo. With sore throat and irritared breathing. I'll spare you the long version and just say I get low grade fevers, night sweats, and have lost close to 30# (20 in 6 weeks then started eating a lot of high calorie to maintain). I have had every test under the sun it seems and seen many cites because they…
Overwhelmed with waiting
hi i had TT in December 2014. RAI March 2015. I found a new lump above my left collarbone in July and am now waiting for a biopsy in November. The waiting is killing me. Cant the medical profession figure out a different torcher? I’m kind of on my own. My husband is just not going to be here this go around. He has his own…
Follow Up Care - Papillary thyroid cancer
Papillary thyroid cancer. In 1999, I had my thyroid removed and most of the lymph nodes on the right side of my neck. I had 2 consecutive years of I 131 treatments. In 2001, the scan/uptake was negative. How often do you go back for the follow up scan/uptake since being "negative". I am dreading going back for those tests…
High Thyroglobulin Levels
I had a total thyroidecetomy in May 2020 followed by RAI in September 2020. At the time of my diagnosis by thyroglobulin level was at 47.2. In August my thyroblobulin level went down to 14.7. Four weeks after my RAI treatment my thyroglobulin level tested at 317.57. My surgeon told me that levels go up after treatment due…
1 year out: when to tell people you had cancer?
Hi All, I'm new here but I'm grateful for this space. A little over a year ago I was diagnosed with papillary thyrpoid cancer, had a total thyroidectomy and than RAI at a dose of 75millicuries. In January 2020 I was officially done with treatment (and then the pandemic happened, but we won't get into that...). I'm also 26…

Thyroid Cancer

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