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Thyroid Cancer

36 year old male with papillary thyroid cancer spread to the lungs
Hey guys, thank you for being here. A few months ago, I found a large bump in my right side of my neck that ended up being a 10cm large mass and two smaller ones on the left side of my thyroid. Long story short it ended up being papillary thyroid cancer, had my full thyroid removed, right vocal nerve removed (losing…
It's the Not Knowing That's the Hardest Part...
Hi, It's been just over a year since my thyroid removal. My PTH Intact & TSH values have been stable, until now. I just got my blood tests back and my PTH, Intact values have gone up from 2.3 in Sept., to 4.1 pmol/L. My TSH has also gone up from 0.34 in Sept., to 0.94 mlU/L. Does anyone know what this might mean? I'm okay…
NASOPHARYNGEAL RADIATION TREATMENT & THYROID DISEASE
I too was radiated with Nasophyrngeal Radiation Treatments in 1963, US NAVY, Submarine Service. I was 17 years of age. I had Aerotitus Media, {blocked ears} from pressure.I was NOT told that they were performining a radiation treatment on me. In 1998, I developed Hyperthyroid Disease, Corroded artery of Neck, {requiring…
looking for other antiplastic thyroid cancer survivors
In my view if the doctors would not be so bleak , and always not very hopefull a lot more people would do better. I am on my 8 month when they gave me 3 maybe 6 feeling good, they really did not want to treat me, i told them to throw the kitchen sink at me. Told them i was going to prevail the first day and ifeel the same…
surgery mishap?
My son had a total thyroidectomy a year ago. Recently he had an x-ray that revealed three areas of metal in his neck. We contacted the surgeon and after four days he responded stating that he has titanium clamps and no harm will come to him. I am concerned as his operating report mentions nothing of this, nor were we…
Two failed Biopsies?
I've been sick 10 mo. With sore throat and irritared breathing. I'll spare you the long version and just say I get low grade fevers, night sweats, and have lost close to 30# (20 in 6 weeks then started eating a lot of high calorie to maintain). I have had every test under the sun it seems and seen many cites because they…
Overwhelmed with waiting
hi i had TT in December 2014. RAI March 2015. I found a new lump above my left collarbone in July and am now waiting for a biopsy in November. The waiting is killing me. Cant the medical profession figure out a different torcher? I’m kind of on my own. My husband is just not going to be here this go around. He has his own…
Follow Up Care - Papillary thyroid cancer
Papillary thyroid cancer. In 1999, I had my thyroid removed and most of the lymph nodes on the right side of my neck. I had 2 consecutive years of I 131 treatments. In 2001, the scan/uptake was negative. How often do you go back for the follow up scan/uptake since being "negative". I am dreading going back for those tests…
High Thyroglobulin Levels
I had a total thyroidecetomy in May 2020 followed by RAI in September 2020. At the time of my diagnosis by thyroglobulin level was at 47.2. In August my thyroblobulin level went down to 14.7. Four weeks after my RAI treatment my thyroglobulin level tested at 317.57. My surgeon told me that levels go up after treatment due…
1 year out: when to tell people you had cancer?
Hi All, I'm new here but I'm grateful for this space. A little over a year ago I was diagnosed with papillary thyrpoid cancer, had a total thyroidectomy and than RAI at a dose of 75millicuries. In January 2020 I was officially done with treatment (and then the pandemic happened, but we won't get into that...). I'm also 26…
Any Lenvima / Lenvatinib left over to share?
Hello, my mother is sick with Adrenocortical Carcinoma, which unfortunately basically has no FDA approved treatments. Her oncologists are trying to get her on Lenvima/Lenvatinib to try after some positive results in a recent study, but insurance will not cover it since it is not FDA approved yet, and the cost is an…
One Year post total Thyroidectomy I have Wheezing in my throat
A year ago I had a total thyroidectomy. After surgery they discovered that I had a small papillary cancer. Often I experience wheezing in my throat. Has anyone else experienced this? I had the initial RAI after surgery now I am debating if I want to have the one year follow up full body scan. I am female in my late…
608880 die US last year from cancer
10 trillion spent on virus in 6 weeks.I would say cancer should be labeled pandemic, just a opinion
surgery complications
Hello, this is my first post. I am a 33yo female and I am one week post total thyroidectomy. While my ultrasound and biopsy showed the papillary tumor to be quite small, and my surgeon told my family that the surgery went perfectly, I experienced nothing but complications once I woke up. At first I had significant…
RAI Scan Results...I could use advice
Hi, To give back story I was diagnosed with papillary thyroid cancer in October of 2019. I had a complete thyroidectomy in December of 2019 and it spread into my lymph nodes so I had to receive RAI, I just completed that. My doctor ordered a Chest CT scan that I need to get done because there is an "ill defined area" in my…
Papillary Carcinoma diagnosis after thryoid removal
I am new to the forum. I am new to thyroid issues as of 5 months ago. Both of my older sisters have hoshimotos, but I had never had any symptoms. 5 months ago I found a large nodule on my own and it was very noticable. I had lost 25 pounds through diet and exercise so I am guessing that helped me find it. I went to my…
Hello
I was diagnosed with papillary thyroid cancer. Two nodules. On Dec 4th I had surgery but instead of a total Thyroidectomy..the surgery was stopped because they were concerned for the nerve on my right side. I can speak and my voice is getting better and better. I had the exam to test the vocal cord and the doctor said that…
Anaplastic Thyroid Cancer - newly diagnosed
My husband has been diagnosed and hat a laryngectomy at the end of November. Radiation/Chemo will start in 2 weeks, all cancer was removed by the surgery. Is there anyone out there who is currently in the same position?
I Could Use Someone to Talk Too...
Hello All, If you don't mind, I'm going to cut right to the chase... I was diagnosed with thyroid cancer nine months ago, nine months to the day, in fact... I was told that I had one malignant tumour on the left side of my thyroid and two nodules on the right. Six months ago, to the day, I had surgery to remove my thyroid…
Why We're Here...
The only reason why we're here is because we need someone to talk too. Someone who understands. Someone who understands because they've been through it too. Someone who will support us through empathy, not sympathy. So maybe if we post something, we should respond to something. If we see a post with no comments, we change…
Thymus radiated in infancy
I just discovered this forum. I was radiated as an infant for an "enlarged" thymus as a newborn in 1953 in Morristown, N.J. I was diagnosed with malignant thyroid cancer and had a thyroidectomy in 1978. I'm 66 years old now and thought I was long "out of the woods" as far as problems related to that early radiation, but…
2 Questions
Hello I was diagnosed with pap. thyroid cancer and had my lymph nodes and thyroid removed in September 2018. I am planning to have radioactive iodine treatment in May. My first question is: should I do my annual physical health exam before or after my radioactive iodine; and if I should wait how long after the treatment…
How long should I wait to father a child
I will be having radioactive iodine soon but do not know the doage. How long should I wait to father a child and what millicurie or dosage level is considered high?
Sharp Pain where my tumor used to be
Hello everyone, I had a 4cm tumor on my left thyroid which long story short i had to get my thyroid removed, which was November of 2018. When they initially tested my tumor in the operating room, it came back non cancerous. However, after they sent it to labs -- they found a cancer in a small slice of the tumer. My doctor…
Thyroglobulin following hemithyroidectomy
Hi all - Can anyone tell me "how" concerning it is to have a long-quiescent thyroid suddenly show activity via thyroglobulin? I can scarcely remember how long ago it was I had a hemithyroidectomy for papillary thy ca -- I guess 25 years ago. But just now a thyroglobulin test perked up. It will be 6 weeks before I can be…
Anyone Please talk to me and HELP ! Thyroid Sonagram with TI-RAD5
Hi Everyone, I hope everyone is doin well! I always had normal Thyroid bloodwork, but I had these nodules checked by sonagram and FNA. The Mid Pole Right Thyroid gland nodule size is 1.8 x 1.6 x 1.5 cm solid, isoechoic, taller than wide, and punctuate echogenic foci scored at TI-RAD5 (highly suspicious) this was FNA on…
I could really use a friend
I could really use a friend that understands what I'm going through. I was diagnosed with papillary thyroid cancer in December 2017. The doctor felt a lump in my neck, sent me to an ultrasound and found a tumor but couldn't determine whether it was benign or malignant. So my left thyroid was taken out and I was diagnosed…
High levels of TSH 7 years after thyroidectomy
Hello everyone, My name is Lisa. I am 46 years old. I was diagnosed with Papillary Throid Carcinoma and had a total thyroidectomy. I have my full thyoid along with lymph nodes removed and it was all cancerous. That was 7 years ago. I opted out for RAI. Now out of the blue I am not feeling myself and I went to the Dr, they…
TT 2011 - Swollen lymph node on right under ear since 2013 [this is long]
I will try to make this as short as possible, I am currently waiting on the referral from my PCM to a new endo to go through because my last one skipped town out of nowhere. ANYONE WANT TO OFFER INSIGHT OR SIMILAR EXPERIENCE AND THEIR RESULT? TT in 2011, no lymph nodes removed. 2.5cm cancer on right thyroid, multiple nodes…
Thyroid Cancer that spread into lungs
I was diagnosed with papillary carcinoma(stage 4)in March,2009. It had mestastisized to lymph glands and my lungs. I had a thyroidectomy in April, and the lymph glands were removed as well. I was referred to an Endocrinologist that takes forever to get me scheduled for treatments. My first treatment wasn't until August. I…

Thyroid Cancer

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