Thyroid Cancer
Discussion List
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Newly diagnosed
Hi everyone! I found out yesterday that I have papillary thyroid cancer. I have an appointment next week with my endo to discuss treatment, but I was wondering if anyone could share their experience? I've done alot of research about surgery, radioactive iodine treatment, etc. but wanted to know from people who have been…
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UCSF Thyroid Doctor
Hi All, I was wondering if anyone out there has heard of or worked with a Dr Kenneth Woeber at UCSF. I believe he is a dept head for thyroid cancer. I have heard good/positive and bad/negative things about him. Any insight would be most helpful. Thanks so much..
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Normal TG but abnormal lymph nodes
I had a near-total thyroidectomy half a year ago, went really well thank G-d. My hormone levels have been high, but TG has been steady. On my 6 month ultrasound there were lymph nodes that shouldn't have been there. My doctor wants me to do the US again somewhere else, but sounds really not sure about whether or not it…
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ATC
Good morning all, Today is my last day of six weeks of radiation for anaplastic thyroid carcinoma, last monday was last day of chemo. I feel pretty good except cant taste anything and hard to swallow. Now my neck is burnt from the radiation. But I will get through that as I have through surgery and all the treatments.…
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Thyroid Biopsy confusion! Please advise!
I am going to make this as short and to the point as possible in hopes of getting some advice or maybe clarity on my current thyroid issues, I can't get this off of my mind and am hoping for some encouragement and support to help get me through these next couple of weeks. I am a 25 year old female that was diagnosed with a…
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Incision still swollen from total thyroidectomy
I had total thyroidectomy June 3, and the incision site is still swollen - about the size of an egg. I still have trouble swallowing at times. Is this normal? If so, how long does swelling last? Should I be concerned?
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Thyroid carcinoma to the Lung, no surgery
Hi, My Uncle was just diagnosed with stage 4 cancer and the Dr. said no further surgeries will help. What can we expect now? I have never had cancer in my family. I will be one of his caregivers. We are waiting for a PET scan and then??? Thanks for any advice.
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Life after Thyroidectomy
Hi... I'm a recent thyroid cancer survivor. I had my surgery on 12/14/11, and my life hasn't been the same since. Though it was successful, it seems like everything else is in a tailspin now. On top on struggling with the stresses on an unhealthy relationship with my Mom, dealing with the fact the I just had my world…
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High T4 and TSH in blood results linked to cancer?
Hello Everybody. Let me first quickly introduce myself. My name is Marta and I am writing from Spain (Europe). The reason I am here is because my brother is now undergoing some test to find out if he has thyroid cancer. Even though we hace a pretty good medical system in my country, I am still worried as the tests are…
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Dietary changes which might fight PTC ?
I might have residual PTC. Don't want surgery again. There are many websites which assert that brocolli, tea, selenium, tumeric, etc. can fight thyroid cancer. Is anything true? Is there anything dietary which does work?
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Tissue regowth after thyroidectomy and RAI
Hi all. I had a thyroidectomy and two rounds of RAI in 2002. All has been fine since. Yesterday I had my routine neck ultrasound and my endo was shocked- tissue has bilaterally grown back. My thyroglobulin level is fine ( less than .5 is what I think it always says on my bloodwork). My TSH is 0.3. My endo (who is also the…
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Has anyone else experienced family members denying your cancer diagnosis?
Hello everyone, I am new to this online support community. I was diagnosed with Thyroid Cancer stage 3 B in November of 2017 and have since been diagnosed with Graves' disease and hyperthyroidism. Aside from the personal issues I have encountered during my diagnosis, treatment, and recovery, I have been having an issue…
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Post-surgery and levothyroxin
Before my total thyroidectomy my symptoms were insomnia, profuse sweats, intolerance to heat, fatigue and weight loss. I had two surgeries to remove my thyroid. I am now taking levothyroxin to make up for the body not producing my own thyroid hormones. I am now two months post surgery and am experiencing the same symptoms…
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Can't Swallow A Tylenol, So How Can I Swallow The Iodine Pill?
So, I had a total thyroidectomy in June due to papillary thyroid cancer. Today, I'm going for my first thyrogen injection. On Wednesday, I am going for my RAI. I am not scared of getting the injections. I can handle that, although I hate needles. However, I have issues with acid reflux, and it has gotten worse over the…
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Cost of Thyrogen
I have to get Thyrogen in July for my whole body scan marking ONE YEAR! Man, time flies! Anyways, my insurance said I am maxed out and they won't cover it. Surprise, surprise. I don't want to resort to the other option of going off Synthroid. Did anyone else face this issue? Are there any options out there for financial…
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Post Thyroid Removal Problems
Hello:. My name is Julie. After spending the whole of 2017 fighting a soft tissue Sarcoma in my right ankle. (9 surguries in 12 months), I had a pet scan in November that showed Thyroid cancer. It was papillary. In February, I had the whole Thyroid removed. I have felt like utter crap ever since. I am taking Synthroid.…
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Thyroid Cancer and enlarged lymph nodes
Hi, I was diagnosed with Papillary Carcinoma in September 2000 and had my thyroid removed. The doctors found that the cancer had spread to about 5 lymph nodes in my neck. I had the initial radioactive iodine uptake and have had one scan since then. This past year I developed an enlarged lymph node right under my jaw. I am…
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Recurrent thyroid cancer
I was diagnosed with differentiated pappilary thyroid cancer in June 2010, had a total thyroidectomy and subsequent I131 treatments. After a PET scan in Feb 2011 my oncologist gave me the "all clear". At a routine visit to my endocrinologist in September 2011 we discovered a new growth of 22mmx11mm in the thyroid bed and…
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Thryglobulin test result
Just had a yearly blood test for follow up to papilary thyroid cancer I had three years ago. Had my entire thyroid removed June 2003 and went through one radiation treatment and scan. I have yearly blood test to assess the thyroid levels. The last two years, my levels have been low but this year, my test result came back…
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low calcium levels after thyroidectomy
I had surgery one week ago for a nodule on right thyroid, turned out to be papillary thyroid cancer. Parathyroids were preserved, however I have had low levels of calcium, magnesium and potassium...calcium still is problem. I have been to ER twice because of twitching and spasms, and now they have me on…
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Radiation in 1951 on Thyroid as a Baby
Has anyone heard of babies being radiated in the 1950s for enlargedd thymus glands. I recieved a letter years ago from the hospital where I was born about having radiation treatent as a baby and told to follow up with my doctor. My family doctor was not concerned, neiher was the endocrinologist. Now some years later my…
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Is coffee mate powdered "creamer" okay on a low iodine diet ?
http://www.medhelp.org/posts/Thyroid-Disorders/Low-Iodine-Diet/show/573082 http://www.thyroidboards.com/showthread.php?t=2088
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nerve pain after modified radical neck dissection
I believe I am having nerve pain after having a modified radical neck dissection for recurrent thyroid cancer. I was told I would have areas in my neck and upper chest that would have numbness. I do have some numbness, but also have areas where my skin feels like it is on fire. I can't stand to have clothes touching my…
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New Enlarged Neck Lymph Nodes Post Thyroid Cancer
Hello! I was diagnosed with papillary thyroid cancer in April or 2017. I had a total thyroidectomy as well as 6 lymph nodes removed for metastasis disease, followed by a dose of I-131 in May. Over the last 6 weeks I have developed some enlarged lymph nodes in the side of my neck, as well as in my collarbone area, these…
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Help with tall cell Thyca
Wel after 8 months of thinking I had pure pap Thyca I had my slides sent to MSK. I had a unifocal 8mm tumor just pap Thyca no extrathyroidal extension or vascular invasion however I had 38 LN removed. 7 positive and two had TCV in the lymph nodes. All I've read are bad things. Right after TT in sept 2011 my tg was.36 and…
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Damage to vocal cord from Thyroidectomy
I had a thyroidectomy in September of 2008. My voice was very quiet at first and now is still not normal. I have seen an ENT several times times now. I also have breathing problems at times. Surgery is not an option now because the Dr. is concerned about me having even less space to breathe. Anyone know if the Surgeon is…
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Papillary thyroid carcinoma in the lungs with uptake in chest bones and ribs
I am female 75 years old. Had TT in 1988. February 2018 accidentally found via xray a 10mm nodule on right lung. Doctor ordered Petscan that showed the nodule and uptake in some bones on chest and ribs. Biopsy confirmed the nodule is Papillary thyroid carcinoma with metastasis in the bones. Does anyone have this same…
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Medullary Cancer Rise in Calcitonin
HI: My Mom was diagnosed with Medullary Cancer in 2009 almost one year ago. She had a complete throidectomy and neck dissection as well as 35 external beam radition treatments. The medullary had only spread to two lymph nodes. She had been doing great until her calcitonin level came back and it was 104. 3 months ago it was…
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Caution after surgery
Please what is the next thing after thyroid surgery, just did the surgery and has anybody undergo these and able to talk again because after the surgery I couldn't talk again. Thanks
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Inference of BIOPSY REPORT & it's recourse
Hi Ya'll, I write on behalf of my ailing mother . She had been unwell for long periods owing to Sinus related issues. However recently in the past 6-10 months there has been increased swelling in neck accompanied by headaches and fatigue. In a general environment where cancer outbreaks has afflicted with & Kin we were…
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