Lenvima??

jasminsaba
jasminsaba Member Posts: 157 Member
edited March 13 in Thyroid Cancer #1

Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med?

This is for idione refractory metastatic thyroid cancer ... w lesions on the brain.

Thank you.

 

 

Comments

  • alapah
    alapah Member Posts: 287
    edited February 2017 #2
    my experience

    I was on Lenvima/Lenvatinib for several months (I think it was 7) from fall 2015 into spring 2016. It did great things in terms of shrinking tumors in my lungs but I had to stop taking it after experiencing hemoptysis (I don't think that is a common problem or due to the Lenvima itself -  but I have had hemotysis before so I was vulnerable to it). I recall being really fatigued at times while on Lenvima. I did have a few squamous cell skin cancer spots shaved off while on that particular drug - many kinase inhibitor drugs can cause squamous cell skin cancers so it's imporant to get skin checks at the dermatologist every three months or whenever something odd appears. They are easily treated.

    The biggest issue for most is that it has a propensity to cause high blood pressure - I actually received a BP cuff along with the first presription. I normally have very good BP readings but mine did increase (and it can happen immediately and dramatically) so I was put on a once a day dose of amlodipine. Make sure you discuss this with your doctor and take readings to track what's happening. It's controllable but you need to be aware of it.

    I wish I could have stayed on it - had to move on to another chemo. Lenvima can do some great things. I very much hope this is the case for you.

    eileen

  • jasminsaba
    jasminsaba Member Posts: 157 Member
    #3
    THANK YOU

    Thank you Eileen for sharing your personal experience - your feedback is very helpful. Hope things are going better for you on your new med.

  • promise1120
    promise1120 Member Posts: 1
    edited September 2017 #4
    Lenvima??

    I've been on Lenvima since Nov. The side effects can be hard to deal with at times but my Dr. has lessened the dosage and that has helped. The med itself has brought my thyroglobulin tumor marker down and in the normal range. Woohoo! So, yes, it is working for me. Good luck to you.

  • Susanms
    Susanms Member Posts: 5 Member
    #5

    Hello! I've been on Lenvima 18mg. since late Oct. 2023 for stage 4 renal cell. Took Cabo 3/23-Oct./23. Medicine is doing a good job but the side effects gave been rough. Tiredness/fatigue, hard dry cough, constant post nasal drip, mouth sores, loss of appetite, muscle and joint pain and stiffness. Dr. finally prescribed a round of prednisone which has helped tremendously with pain and stiffness. I'm 52 and felt like I was trapped in a 100 year old body, brutal. Looking for others to share any side effect experiences. I feel pretty alone dealing with this, Dr. doesn't say much when I talk to him about it.

    Thank you,

    Susan

  • rcole
    rcole Member Posts: 15 Member
    #6

    hi i have been on Lenvima since Oct along with everolimus for kidney cancer, like every one else fatigue is the biggest side effect ,joint pain and i found out on this site my feet pain is also from Lenvima and i dont like the blister pack that they come in good luck

  • Susanms
    Susanms Member Posts: 5 Member
    #7

    Oh my gosh! I can't stand the blister packs. There has got to be a better way. I had feet problems on Caabo with peeling. My feet would be so tender I couldn't walk. Fortunately, it's gone away on Lenvima. I feel like I've got plenty of side effects from the Lenvima though.

    Susan

  • rcole
    rcole Member Posts: 15 Member
    #8

    I actually cut myself with blister packs once, another side effect I have is my blood sugar is out wack I'm a diabetic so really bad

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