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Muscle Recovery after Neck Dissection
If you had a neck dissection, I'm interested in learning how you are dealing with the muscle recovery. I had TT and LND surgery 1.5 years ago and my neck is STILL not back to normal, and I spent the first year doing neck stretches and PT movements until I just couldn't keep up the regimen. How long did it take before the…
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Chyle leak- Complication
HI- i just wanted to post about my Thyroidectomy experience- Because it was rare and there was hardly any information out there for me. last April I had my thyroid removed do to a small cancerous tumor. I also had 80 lymph nodes removed- 8 were cancerous. At the age of 29 it was a pretty rough experience, especially…
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Omega-3 prescription ok with low Iodine diet?
Is my omega-3 prescription ok to take while on my 3 week low iodine diet? I started diet today and Dr is away.
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Papillary Thyroid Carcinoma - Stage 1
I had a total thyroidectomy in March 2019 followed by 1-131 ablation therapy in June 2019. I was started on Levothyroxine the day after my thyroidectomy. Since then I am constantly tired and have sleep problems, irritable, constant brain fog, day/night sweats/hot flashes (where I used to be cold all the time), sensitivity…
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Radiated as infant
Just discovered this site. My thymus was irradiated shortly after I was born in 1944 in western Pennsylvania. In the 60s or 70s my parents saw a 60 Minutes story on the incidence of thyroid cancer in people so treated in infancy and notified me. I immediately had a doctor check it (negative), but in 1978 when undergoing a…
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New
I'm 45, I'm from Ukraine, I brought my son to school in January. And I couldn't fly home in February. The war has begun. I've been very worried all these months, as I stayed with the child myself. The other day I was diagnosed with cancer, I'm preparing for surgery. I really need your support.
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Side effects of repeat RAI and SBRT
Hi, has anyone had a repeat RAI and SBRT for metastatic Follicular thyroid Ca. I was initially diagnosed in 2007 at age 26, had total thyroidectomy and RAI. I was doing ok till 2021 when lesions were noted in lungs , hip and spine. Had repeat RAI and SBRT to hip and spine lesions. 6 months later started having very severe…
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Need direction with Hurthle Cell carcinoma diagnosis
My wife (42 years old) was just diagnosed last week. She had a mass on her thyroid for a total of about 18 months. Her endocrinologist did 2 biopsies over that time and both were inconclusive. Each time we were told "We'll keep an eye on it". She finally went to an ENT who said the affected lobe should be removed. That…
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They don't know if it is Cancer... guessing because of PET SUV.. please read
Let me cut to the chase in this correspondence. Thyroid Ultrasound performed- indicate several spots -L/S 2.8cm – R/S 1.5cm. PET performed indicated activity midpole of the right thyroid lobe with SUV of 9.1 and inferior left thyroid lobe with SUV of 20.1 - FNA performed w/ several samples L/S results Benign NEG. R/S…
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RAI Treatment
Hi guys, Had a total thyroidectomy 3 weeks ago. Also founf a couple tiny lymph nodes that were removed. Tall cell. Having RAI treatment in a few weeks. Want to ask if anyone here has had it and if it was emotionally manageable being alone. I have bad anxiety disorder and I am so scared to be by myself. I figured if I got…
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pet/ct scan
I am 45 and I have had a few nodules that have been being watched the last 3 yrs, they are cold per nuc med scan. I had a FNA 3 yrs ago, biopsy results were the 1.4 cm showed specimen consists of sheets and clusters of uniform follicular cells, some with hurthle cell change, numerous hemosiderin laden macrophages and…
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I have a mom that is diagnosed with Anaplastic Thyroid Cancer.
Hi My mother was diagnosed with Anaplastic Thyroid Cancer last week and the doctors are not too optimistic. The doctors kind of seemed cold when they were giving her the diagnosis. I was in the room when she got diagnosed and honestly 10 seconds after hearing it, one of the doctors seriously expected to be rational and not…
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I have papilary thyroid carcinoma and my mass associate with blood vessels
I have PTC and my mass associates with blood vessels and surgeon ask surgery not possible but before surgery you will get radiation theraphy and radio iodine treatment for shrink a nodule. I that possible with radiation cancer nodule shrink? What I have to do please give me suggestion.
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1 year in with Thyroid Cancer Recovery
Hello everyone I am relatively new to this. I discovered I had cancer almost two years ago. I had my surgery and radiation last year. It cost a lot of money and part of me feels like I paid more I was supposed to, however, I was to exhausted to go over the bills and argue anything. This year I have Thyrogen medication and…
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Vocal cord problems after thyroidectomy
Hi I had a complete thyroidectomy on Dec. 10 2021. My voice is raspy and hoarse. My right vocal cord seems to be paralyzed or stuck. My surgeon said this happens in 40% of thyroidectomy surgeries. Just wondering if this has happened to anyone else and what your experiences have been? Thanks.
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This is so bizarre .. please read
This is so bizarre .. Had a PET Scan performed on my lungs and they turned out ok.. lucky b/c of so many years smoking. However, the doc said they were ok just a little junk nodule at lower lobe so we had a biopsy FNA done and it came back negative. Oh well and good.. right? .. NOT!. So the doc says my lungs are so so ok…
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Hurthle Cell Carcinoma
Is there anyone out there with Hurthle Cell thyroid cancer?
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tall cell papillary carcinoma
Hello, Thought I posted last night, but can't find my post. I know how this website can be as I am NED for a completely different cancer and am part of another discussion group. Okay, I have just been diagnosed with tall cell papillary carcinoma, a more aggressive variant of papillary carcinoma. I searched on this…
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Newly diagnosed
Hi I've been newly diagnosed with papillary thyroid cancer. I'm meeting soon with a surgeon to discuss treatment. Just looking for some thoughts about surgery abd aftercare. Thanks.
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oral chemo
Wondering if anyone out there with thyroid cancer has taken??
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Hurthle Cell Carcinoma
Hurthle Cell caarcinoma anyone?
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Thyroid Cancer Chat
Hi everyone! There is a thyroid cancer chat in Room 2 on Monday nights between 8-9 PM Eastern Standard Time. Any patient or caregiver or interested party is welcome to attend. We do not exclude other cancer survivors from this chat, we merely try to stay on thyroid cancer topics to assist those in dealing with this type of…
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Thyroid cancer recover
Hello looking resources: I was diagnosed with MTC cancer in July. I had a total thyroidectomy in August with a total left neck dissection removing 56 lymph nodes. I have been on synthroid since then with it being adjusted 3 times now. My levels have gone from .041 to now .014. I am having so many symptoms and I can tell…
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Thyroid cancer-Braf V600e mutation
Good morning, I had thyroseq molecular testing done as my initial biopsy was a follicular neoplasm. My results from Thyroseq shows that the test result is positive, the probability of cancer is ~99% and I also have the BRAF V600E mutation. I was hoping I can get some input from others, as I don't have a follow up with my…
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Radiated as infant to shrink thymus gland in 1957
Anyone here had this radiation treatment in the late 40s to late 50s in Detroit
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Elevated Tg levels with TgAB presence over 2 year safter total thyroidectomy
I was diagnosed with thyroid cancer one week prior to finding out that I was pregnant with my now 3 year old daughter. I waited until after giving birth to have the surgery and radiation. At first they said that it was local and then came to find ut that it had metastasized to 7 of 9 lymphnodes and 3 of 4 parathyroid…
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Closing in on a year after surgery and my chronic cough is starting to come back...
So I had a chronic cough for a fair amount of time. Back around the time the Pandemic started my cough got way worse to the point I was coughing up blood every few hours for 6 weeks straight. While they never did figure out what was causing the cough I was diagnosed with thyroid cancer and ended up having it removed late…
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rise in thyroglobulin/thyroglobulin antibody after cancer during pregnancy
hi everyone, Im 9 years in remission from tall cell thyroid cancer, and 4 months pregnant. My recent labs show a slight increase in thyroglobulin and thyroglobulin antibodies. Anyone have this experience during pregnancy? Im wondering if it means recurrence or could just be pregnancy
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36 year old male with papillary thyroid cancer spread to the lungs
Hey guys, thank you for being here. A few months ago, I found a large bump in my right side of my neck that ended up being a 10cm large mass and two smaller ones on the left side of my thyroid. Long story short it ended up being papillary thyroid cancer, had my full thyroid removed, right vocal nerve removed (losing…
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It's the Not Knowing That's the Hardest Part...
Hi, It's been just over a year since my thyroid removal. My PTH Intact & TSH values have been stable, until now. I just got my blood tests back and my PTH, Intact values have gone up from 2.3 in Sept., to 4.1 pmol/L. My TSH has also gone up from 0.34 in Sept., to 0.94 mlU/L. Does anyone know what this might mean? I'm okay…