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Tissue regowth after thyroidectomy and RAI
Hi all. I had a thyroidectomy and two rounds of RAI in 2002. All has been fine since. Yesterday I had my routine neck ultrasound and my endo was shocked- tissue has bilaterally grown back. My thyroglobulin level is fine ( less than .5 is what I think it always says on my bloodwork). My TSH is 0.3. My endo (who is also the…
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Has anyone else experienced family members denying your cancer diagnosis?
Hello everyone, I am new to this online support community. I was diagnosed with Thyroid Cancer stage 3 B in November of 2017 and have since been diagnosed with Graves' disease and hyperthyroidism. Aside from the personal issues I have encountered during my diagnosis, treatment, and recovery, I have been having an issue…
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Post-surgery and levothyroxin
Before my total thyroidectomy my symptoms were insomnia, profuse sweats, intolerance to heat, fatigue and weight loss. I had two surgeries to remove my thyroid. I am now taking levothyroxin to make up for the body not producing my own thyroid hormones. I am now two months post surgery and am experiencing the same symptoms…
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Can't Swallow A Tylenol, So How Can I Swallow The Iodine Pill?
So, I had a total thyroidectomy in June due to papillary thyroid cancer. Today, I'm going for my first thyrogen injection. On Wednesday, I am going for my RAI. I am not scared of getting the injections. I can handle that, although I hate needles. However, I have issues with acid reflux, and it has gotten worse over the…
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Cost of Thyrogen
I have to get Thyrogen in July for my whole body scan marking ONE YEAR! Man, time flies! Anyways, my insurance said I am maxed out and they won't cover it. Surprise, surprise. I don't want to resort to the other option of going off Synthroid. Did anyone else face this issue? Are there any options out there for financial…
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Post Thyroid Removal Problems
Hello:. My name is Julie. After spending the whole of 2017 fighting a soft tissue Sarcoma in my right ankle. (9 surguries in 12 months), I had a pet scan in November that showed Thyroid cancer. It was papillary. In February, I had the whole Thyroid removed. I have felt like utter crap ever since. I am taking Synthroid.…
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Thyroid Cancer and enlarged lymph nodes
Hi, I was diagnosed with Papillary Carcinoma in September 2000 and had my thyroid removed. The doctors found that the cancer had spread to about 5 lymph nodes in my neck. I had the initial radioactive iodine uptake and have had one scan since then. This past year I developed an enlarged lymph node right under my jaw. I am…
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Recurrent thyroid cancer
I was diagnosed with differentiated pappilary thyroid cancer in June 2010, had a total thyroidectomy and subsequent I131 treatments. After a PET scan in Feb 2011 my oncologist gave me the "all clear". At a routine visit to my endocrinologist in September 2011 we discovered a new growth of 22mmx11mm in the thyroid bed and…
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Thryglobulin test result
Just had a yearly blood test for follow up to papilary thyroid cancer I had three years ago. Had my entire thyroid removed June 2003 and went through one radiation treatment and scan. I have yearly blood test to assess the thyroid levels. The last two years, my levels have been low but this year, my test result came back…
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low calcium levels after thyroidectomy
I had surgery one week ago for a nodule on right thyroid, turned out to be papillary thyroid cancer. Parathyroids were preserved, however I have had low levels of calcium, magnesium and potassium...calcium still is problem. I have been to ER twice because of twitching and spasms, and now they have me on…
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Radiation in 1951 on Thyroid as a Baby
Has anyone heard of babies being radiated in the 1950s for enlargedd thymus glands. I recieved a letter years ago from the hospital where I was born about having radiation treatent as a baby and told to follow up with my doctor. My family doctor was not concerned, neiher was the endocrinologist. Now some years later my…
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Is coffee mate powdered "creamer" okay on a low iodine diet ?
http://www.medhelp.org/posts/Thyroid-Disorders/Low-Iodine-Diet/show/573082 http://www.thyroidboards.com/showthread.php?t=2088
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nerve pain after modified radical neck dissection
I believe I am having nerve pain after having a modified radical neck dissection for recurrent thyroid cancer. I was told I would have areas in my neck and upper chest that would have numbness. I do have some numbness, but also have areas where my skin feels like it is on fire. I can't stand to have clothes touching my…
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New Enlarged Neck Lymph Nodes Post Thyroid Cancer
Hello! I was diagnosed with papillary thyroid cancer in April or 2017. I had a total thyroidectomy as well as 6 lymph nodes removed for metastasis disease, followed by a dose of I-131 in May. Over the last 6 weeks I have developed some enlarged lymph nodes in the side of my neck, as well as in my collarbone area, these…
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Help with tall cell Thyca
Wel after 8 months of thinking I had pure pap Thyca I had my slides sent to MSK. I had a unifocal 8mm tumor just pap Thyca no extrathyroidal extension or vascular invasion however I had 38 LN removed. 7 positive and two had TCV in the lymph nodes. All I've read are bad things. Right after TT in sept 2011 my tg was.36 and…
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Damage to vocal cord from Thyroidectomy
I had a thyroidectomy in September of 2008. My voice was very quiet at first and now is still not normal. I have seen an ENT several times times now. I also have breathing problems at times. Surgery is not an option now because the Dr. is concerned about me having even less space to breathe. Anyone know if the Surgeon is…
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Papillary thyroid carcinoma in the lungs with uptake in chest bones and ribs
I am female 75 years old. Had TT in 1988. February 2018 accidentally found via xray a 10mm nodule on right lung. Doctor ordered Petscan that showed the nodule and uptake in some bones on chest and ribs. Biopsy confirmed the nodule is Papillary thyroid carcinoma with metastasis in the bones. Does anyone have this same…
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Medullary Cancer Rise in Calcitonin
HI: My Mom was diagnosed with Medullary Cancer in 2009 almost one year ago. She had a complete throidectomy and neck dissection as well as 35 external beam radition treatments. The medullary had only spread to two lymph nodes. She had been doing great until her calcitonin level came back and it was 104. 3 months ago it was…
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Caution after surgery
Please what is the next thing after thyroid surgery, just did the surgery and has anybody undergo these and able to talk again because after the surgery I couldn't talk again. Thanks
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Inference of BIOPSY REPORT & it's recourse
Hi Ya'll, I write on behalf of my ailing mother . She had been unwell for long periods owing to Sinus related issues. However recently in the past 6-10 months there has been increased swelling in neck accompanied by headaches and fatigue. In a general environment where cancer outbreaks has afflicted with & Kin we were…
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Medullary Thyroid Cancer - Any advice?
Hi everyone, Just wanting to shre my experience, so far, with MTC. Maybe somebody out there has had similar experiences. 2010 - first had pain and swelling in neck and down left arm. GP said it was a pulled muscle. After 4 more months of discomfort went to another GP. after noticing my trachea was pushed to the right she…
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Re: help on the iodine diet please!!
hello, just wondering, if anybody has any suggestions on the low iodine diet? Is there anybody that has not followed it exactly right? also I am using the salt that says no iodide is it the right one . thank you!!
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High Energy and No Thyroid or Hormone Replacement?
Hi Folks, I'm the new kid in town. Got an odd one for you. I had total Thyroidectomy on 24 Jan and it ended up being 2 types of cancer, papillary carcinoma and the folicular (I think). I was anticipating a serious drop in my energy after the surgery, as happened when the right lobe was removed in 1992. However, my energy…
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Help on my Ultrasound results
Hi all! I just need to talk to people who have the same experiences I'm going through. I am so nervous, going out of my mind and freaking out!!! I am waiting to be scheduled for an FNA biopsy and I've been waiting for almost 2 weeks now. Like majority of people, I've been on the internet, researching what the results of my…
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Need advice
I recently took radiation pill after doing low iodine diet it's been three days since I took the pill I been in my home those three days is my 5 year safe to come home I want to be sure its safe. can I prepare his foods yet?
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Mediastinal lymph node metastases
Quick summary: total thyroidectomy, 3 neck dissections, RAI negative. Lung metastases since 2002 that grow slowly and don't respond to radioactive iodine. Thyroglobulin 350. Until now the plan was always "watch and wait". I haven't tried any experimental treatments yet. I recently found out that I have 10 - 15 mediastinal…
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I was suffering from throat cancer.
My husband had suffered from throat cancer. He has written something courageous topic to cancer patient. “My message for someone facing this is: be positive, try not to let it take over your life (it does though), meet everything head on, keep your appointments and just go with it.” I first noticed in November 2010 that I…
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Thyreoglobulin level rises from 3.2 to 6.8 in 4 months
Hi everyone, I am new to this site. Have PTC and MTC, BRAF positive. Have Garve’s and TED. I am intolerant to RAI. Had TT last April, since then monitored, CEA is 0.5 (for Medullary carcinoma it looks good), byt S-Tgyl is on the rise from 3.2 to 6.8 in 4 moths. Is this mets or can it be becouse of Biotin pills I take for…
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Testosterone level after Thyroidectomy
Had Thyroidectomy 4 years ago. Cant recall ever seeing my Testosterone level getting checked during any of my regular blood tests. Question: Can a Thyroidectomy affect my T level and should I get it checked?
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Partial thyroidectomy
I was just recently diagnosed with papillary thyroid cancer. The cancer is still small, and located only in my right side. Originally my doctor informed me the best thing to do is to take out the whole thyroid. I met with my endocrinologist and she said I actually have the option of keeping the left side and only removing…