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Thyroid Cancer

I chose Dr. Clayman. Here is my story.
In March 2015, I was diagnosed with papillary thyroid cancer. My first surgeon did a horrible job, and I went from being healthy and active to someone who was suffering from immense pain and severe limitations in my left shoulder. I am an occupational therapist (OT) and I teach yoga on the side. My left shoulder blade was…
Lenvima??
Hi everyone, does anyone have experience with Lenvima? I am interested in learning more about the side effects and how soon you might have started to see results on this med? This is for idione refractory metastatic thyroid cancer ... w lesions on the brain. Thank you.
Radiotherapy for thyroid
Hi !! i finished 30 day radiotherapy last week !! and i have a great difficulty of swallowing !! everytime i swallow it hurts terribly !!Anyone who went through the same experience please advise me for what to do?? i havnt had any sold food for 6 weeks now and um craving to eat !! i also feel thirsty all the time and…
Waiting on Genetic testing to come back NEW UGHHHHH
Diagnosed with Hashimoto's next day had a sonogram and was sent to an endo. Had 2 biopsy's come back first one Bethesada 3 follicular lesion indetermined. Second bethesada 4 Follicular neoplasma, indetermined. Was told yesterday of results of second FNA. now waiting for Genetic testing to come back. Should be next week…
Very high thyroglobulin, 7 yrs after RAI
I had a thyroidectomy in 2010. I had 100 millicuries RAI. Over the past 2 yrs, my thyroglobulin has risen to 715. Endo gave me ultrasounds and chest xrays. Finally changed endos and waiting for a whole body scan. Has anyone ever heard of such high levels of tg post thyroidectomy and RAI.
Feeling crummy post thyroidectomy/I131
Hey all, new to the group and somewhat new to this whole thyroid cancer thing. I am a 32 year old female, diagnosed with papillary thyroid carcinoma (nodule was incidental finding at annual exam, aspirate confirmed PTC), had total thyroidectomy April 27th (no obvious metastisis, no parathyroid complications post op,…
Solid Variant of Papillary Carcinoma of the Thyroid.....anyone have this? Doctor's say it's rare?
I was diagnosed with Solid Variant of Papillary Carcinoma. Doctors have asked if I ever have been to Chernobyl where most of these cases have been reported. Anyone else know about this variant of thyroid cancer? I am the first case at Cedar Sinai in Los Angeles they have treated. It's a bit freaky. I am 10 weeks post RAI…
Does this US of Thyroid mean what I think it means? Probable Biopsy
Hi everyone, History of Hoshimoto's Hypothyroidism and Pancreatic Cancer and Severe Rheumatoid Arthritis. Not new to cancer but looking at definitions of this Ultrasound of Thyroid has me a bit suspicious. Can anyone educate me on this? TECHNIQUE: Multiple longitudinal and transverse real-time sonographic images of the…
Extracapsular Extension in PTC
Hi everyone, I'm new here! I was just diagnosed with PTC and have surgery coming up on August 1st for a total thyroidectomy. My ultrasound showed that there was extracapsular extension into the strap muscles. Just wondering if anyone else has had this and how did it affect the surgery, recovery, etc. Did you have to have…
Could someone give me some advice please
for the last year i was undergoing test and monitoring to do with a swelling on my thyroid gland. I had fna test done which came back with abnormal cell growth and the nodule doubled in size in the space of a few weeks. the decision was made to have surgery. I had the growth removed and the ismis on my thyroid that was…
Thyroid Cancer Recurrence Symptoms?
Hello everyone. Forgive me for asking this but I moved in January, and havent seen an endo since November, and dont have insurance for another month. So here goes... I had a total thyroidectomy in 2014 for Papillary Thyroid Cancer. Took awhile for my TG to come down but 6 months later it become undetectable. I had 150 mci…
Single mum of 7
hi guys needing some advise so last fortnight had my right side out them get pathology and it's a 40 mm tumour now this week im going back to get left side out then a dose of iosine radiation im acared I've heard so mny people say the radiation is no good it causes second cancers I'm also scared about the thyroid mess they…
Radio active iodine
Hi! My thyroid was already removed last 2015 and i already took radio active iodine treatment. They have given me a 103 mci oral therapeutic dose of I-131 (dont know the meaning of this medical term but it was indiacated on my medical result). Aftr a year i took htg and anti-htg to monitor my condition and my doctor…
Alcohol Ablation for thyroid cancer
I would like to hear of experiences anyone might have had with alcohol ablation injection treatment for recurrent Papillary thyroid cancer nodules. My son is considering this treatment as he has had 2 surgeries with 1 radioisotope treatment and it looks like he may be RAI resistant at this point. His doctor says Mayo…
follicular thyroid cancer HELP!! Scared and alone
I have had no treatment since the thyroidectomy. Spent the last 6 months waiting because of a small town doctor worried about iodine radiation. At 37, married with a 2 year old I got worried and went to MD Anderson last week. Now more waiting why do I feel like the doctors just don't care. On the plus they changed my meds…
ATYPICAL FOLLICULAR HURTHLE METAPLASIA
Hello i am new to the board and i am also very worried. My mom lives out of state and was told that she needs to come back in to see the doctor after a biopsy that she had for her thyroid. The doctor has told her that she has ATYPICAL FOLLICULAR HURTHLE CELL METAPLASIA. But my concern is that she is 79 years old and she…
one big waiting game !!!
In relation to fine need aspiration tests done on thyroid nodules, does an abnormal cell result mean cancer? Some advice would be helpful as i'm confused by this result and i didnt think to ask questions at the time of the appointment and i dont know why i didnt just ask for more information on the result.! i was told to…
Medullary Thyroid Cancer There is HOPE!
I was diagnosed with MTC in 1976 at age 31. Now, at age 59, my children are in their 30's, and I even have a 20-month-old granddaughter. I just want to tell you that there is hope you'll be OK. It took me a very long time to believe my oncologist when he told me I had a 99.99% chance of being totally cured by my 2…
FNA on 2 nodules - what to expect? Any warnings?
i am currently in chemo for ovarian cancer. During my first CT the scan discovered 4 nodules on the thyroid. A subsequent ultrasound confirmed that 2 of the 4 nodules warrant FNA. I understand it is done in working with an ultrasound. Can someone tell me what to expect? Do you feel the needles? Do they hold down your head?…
Neck Dissection? Robotic guided?
Looking for a doctor that performs neck dissection with robotic assistace. Possibly even a doctor that will preform this sugery less invasive.
Total thyroidectomy 12 days ago and suffering a red rash on incision
I had a total thyroidectomy about a 1 1/2 weeks ago because of a diagnosis of papillary cancer . I felt as though everyone dismisses this type of cancer as "easy" and the "best cancer to have". Actually this is very traumatic experience And far from easy as I'm sure you all can agree with me. As I am trying to heal…
PET Scan imaging - false positives?
My Dad has recently had a total thyroidectomy for a 9cm x 4cm goiter -- Left side pathology revealed papillary cancer with follicular variant with vascular involvement. Cervical lymph nodes were negative. The tumor has also been labeled poorly differentiated. He had a PET scan done in Jan. that showed uptake in the lungs…
Medullary Thyroid Cancer total Neck Dissection Lymphectomy
Was wondering if anyone else who has had a neck dissection with lymphectomy is experiencing issues with extreme heat or cold? Seems that when I am outside working that I experience lymphedema. Is this normal? I am post op as of July 11, 2016. Being a Farmer my lively hood requires me to be outside. Not sure if I am going…
1 year post thyroidectomy for papillary cancer. sudden high TSH: 84. what could be the cause?
My 18 year old daughter had complete thyroidectomy after papillary Thyroid cancer. Her levels have been normal up until Nov. 2016. All of a sudden she is feeling terrible - cold, muscle pain, major fatigue, brain fog, depression. Brought in for blood tests. TSH now 84! What could be the cause? Has not missed doses of…
Emotional wreck
Why do I cry any time the word cancer is said? I am in remission and have been for 3 months! I hate being so emotional and need to know I am not crazy!!
Papillary thyroid cancer found after surgery
I'm 17 years old and 2 months ago I had a total thyroidectomy due to having 7 nodules, which all came back benign. However, a week after surgery my Endocrinologist called and said that the pathology report indicated that they found a small tumor in my thyroid that was Stage 1. I've had thyroid issues my whole life;…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Toxic multinodule goiter, 3.1 CM, Mayo appt
Well after (what seems like) I'm going bald, plus every symptom of hyperthyroidism. I was told I have a toxic multinodule goiter causing my hyperthyroidism. My levels are WAY off. I HAD three small nodules (5mm) that turned into five, all over 1CM, my largest 3.1. Even a physical exam gives me a rush so they won't biopsy…
Understanding bloodwork results
I am trying to understand bloodwork results. Dr typed this sentence: the thyroglobulin antibodies are present, so the thyroglobulin is not predictive of recurrence. What does this mean?
What is life like after a thyroidectomy?
I am 17 years old and am getting a thyroidectomy next month and I am very nervous. I've read and heard a lot of horror stories about life after a thyroidectomy and am wondering how it made anyone else feel? Also, I asked my surgeon about my voice and if it will be affected at all and he told me it will be raspy for a while…

Thyroid Cancer

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