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Need Advice/Guidance
Hello everybody. I’ve finally gotten so desperate that I’m reaching out to anybody who can help me. I am the daughter of a cancer patient. My mom was diagnosed with stage 3 colon cancer in Feb of this year. She went through the surgery and recovery and started chemo in the beginning of April. First treatment went…
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Guardant Reveal
Has anyone had any experience with Guardant Reveal? For those not familiar, its a blood test after your done with treatment that will tell you if your cancer is likely to return. I finished chemo at the end of March (Folfox). I went to my post chemo appointment a couple weeks ago and my oncologist wanted to try the blood…
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Best way to cure colonal cancer
My father is waiting for biopsy results, this is a first encounter of me and my family with such a disease. I am exploring different treatments online, also consulting to different doctors. Allopathy which includes chemo, radiation and other methods, There is immunotherapy, which includes Dostarlimab drug. There is…
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Dendritic cells therapy
How efficient this therapy is in case of colon cancer ?
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Hospitalized again, colorectal cancer IV met bones ( sacro and femur)
I am a caregiver looking for guidance, Adenocarcinoma was diagnosed late January this year, my husband was in extreme pain and found out about cancer when he got some hemorrhoids removed. Since then, it has been struggle after struggle, he got some chemo sessions and then stopped because he got covid and while at the…
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hospitalized for COVID with stage 3 colorectal cancer
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
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(CAPEOX) capecitabine-pill vs. 5FU IV
Looking for anyone that has input on treatment with CAPEOX in pill form vs. 5FU over two day period via a take home pump. The Med Star Georgetown University Hospital treats with the CAPEOX pill due to the studies that have shown it to be more effective that 5FU and they only treat 3 months vs. 6. My husband would much…
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CEA explained, please!
Can someone please give me a very simplistic explanation of CEA levels. My husband had an emergency colonectomy in January and was diagnosed with Stage IV colon cancer. CEA was 6.7. He started Xelox (1 3-week cycle and not tolerated), and it was 6.6. Then switched to Folfox. After 1 round, CEA was 5.8. Now, just before his…
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Rectal cancer on sacrum
Hi! I am a new poster here. My father was diagnosed in May 2021 with rectal cancer stage 3 with involvement on the sacrum. Radiation didn’t do much and he has been stable on panitumumab and folfiri for the past two years. It has been frustrating as we are based in Ontario, Canada and no surgeon is willing to consider…
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Two months in
Hi all! 30 yo female with current diagnosis of stage 4 rectal with metastasis on liver as well as bone. Just finished round 3 of 12. I’ve done 5 rounds of radiation on Mets on my hips. Currently on irinotecan, fluorouacil, and oxaliplatin for my chemotherapy. How do you guys cope with everything? I feel like time is moving…
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UPDATE
My surgery is scheduled for this coming Monday. There was a cancellation so I am able to get it done sooner. A big thanks to all of you for the encouragement. Will update from the hospital.
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Recently diagnosed
Hello all. Hope everyone is staying healthy and taking care of them selves. I’m a 48 year old male. Had my first colonoscopy on 04/17. During the procedure a 2x2cm polyp was discovered in my Sigmoid colon. Biopsy and CEA blood work completed. CEA results were a 2.65. Biopsy returned as a well differentiated invasive…
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First CT results mid-chemo--what to make of this?
My husband got his first CT scans since starting chemo--he has Stage IV with peritoneal mets. Everything is clear--he originally had lymph involvement and some suspicious lung spots, and he had an emergency colon resection for a primary tumor in January--except the following: "Some nodularity within the omentum and…
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Just saying hi. Terrible format, can't navigate like before
Hi all my 10 year just came and went. Just a reminder that YOU CAN DO THIS. Change your diet, exercise, talk to your body during treatments, fight for those trials, tell yourself theren is an end goal when you hit that why is this my life, I hate chemo wall. Whatever you have to do to help yourself. Tell yourself YOU CAN…
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Finger Neuropathy
Hello to everyone! I came across something that has helped me and I wanted to share. I have stage 4 colorectal cancer. I had my tumor removed and went though 12 rounds of FOLFOX. I was only able to do 6 rounds of the oxaliplatin due to the severity of my neuropathy. I have found my hands are healing from the neuropathy a…
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Vitamin D & Omega 3 in CRC
Here is a very small study that found Vitamin D and Omega 3 fatty acid (such as found in fish) supplementation can be helpful for those with colorectal cancer (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/31106659 [P]atients who received combined vitamin D3 and omega-3 fatty acids supplements compared with omega-3,…
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Psoas/Colon Abscess with JP drain
Hi everyone, new to the boards. Thanks for sharing your knowledge. My husband had an infection that on initial diagnosis, turned out to be either a psoas abscess or diverticulitis. They have placed a JP drain in his Lower left abdomen (and it is very uncomfortable) which he has had for 3 weeks. Drains ~20 ml every 12…
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Colostomy 6 years ago and cancer recurrence in neck and chest.
Hello, I am hoping for some advice from anyone who has been given less than a year to live. My brother-in-Law had a colostomy 6 years ago and the hospital have been too slow in my opinion to do scans and the proper investigations for a lump in his neck and a further one in his chest. The pain has become very strong and…
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New Diagnosis - Colon Cancer Stage IV
Hi, I'm 52 and received a stage IV colon cancer diagnosis at the beginning of April. I'm on a three month Oxaliplatin and Capecitabine combination regiment. This is all been a shock and learning curve to me. I'm be interested to hear from anyone in same situation or had experience.? Thanks
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where to buy Vitamin C IV drip / injections???
Hi. I need to buy for my grandfather some Vitamin C Intravenous drip or injections...his health is critical... The doctor prescribed him but it is so hard to find here in NY... the doctor will do the procedure... Does anyone know where to buy it online??? Thanks in advance! Carla
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Side effect year or two from surgery
Colorectal survival including surgery and chemo. What kind of day to day things should I expect with my body and mind? Cause I think every time I sneeze, I’m dying.
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When Was Your Port Removed?
My oncologist just advised yesterday that if my scans and bloodwork look fine next spring she will recommend that my port be removed. That would be about the four (4) year mark from my DX and surgery. When was your port removed - or how long have you had it if not removed? I am a Stage 3 colon cancer patient with lesions…
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Newly diagnosed and looking for support!
Hello everyone, I have been lurking for a few days and have finally decided to post. My name is Kirstin.. I am 47, diagnosed with stage 3b (T3N1M0) CRC on 1/19/23. The week prior, I had been experiencing sudden bloody diarrhea and unusual colicky pain (which was minimized by my PCP and GI for over a week until I insisted…
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colonoscopy
I have been cancer free for over 1 1/2 years from colorectal cancer I am due for my first colonoscopy since and I am looking for suggestions on how to stop the anxiety I am having for my upcoming test on May 24th. I just keep remembering the surgeon coming to me telling me I had rectal cancer. Thanks
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After coloctomy
My surgery is May 3rd and we are trying to figure out the after. We live on 3rd floor apt and have 40 lb pit puppy. I know I can't walk dog but will I be able to get up to our apt?my boyfriend thinks I should stay at my parents immediately after. I really don't want to but open to advice. Any other advice for immediately…
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Xeloda and nausea, please help!
My husband, recently diagnosed with Stage IV colon cancer, has been put on the Xelox regimen with 1 oxipalatin infusion every three weeks (he has only had 1 so far and it was well tolerated) and 2000mg of Xeloda AM/1500mg PM 5 days on/2 days off. He is only on his 3rd week of the Xeloda and he is having terrible stomach…
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Newly diagnosed - looking for help and support
I am a 52yo single female just diagnosed with probable stage 3 colon cancer (adenocarcinoma that started in appendix). I'm told it's rare and aggressive. I'm still in the process of testing to determine stage and scope (CT today and Colonoscopy Friday), but trying to line up resources because I know things will need to…
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Update on husband almost 6 years stage 4
It’s been a long time since I’ve posted. My husband was diagnosed in 2017 at 37 with stage 4. Many surgeries, an ostomy, too many chemos to count and radiation he is still here fighting and enjoying life! In between the 8 reoccurrence we’ve lived and enjoyed so much! Most recently he had 12 liver Mets removed, bile duct…
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Update and question (BRAF mutation)
Hello! My son (stage 4, liver Mets, BRAF) had a meeting with oncologist today. I mainly wanted to ask about a possible liver resection. He basically said it will never happen because he has many (small) tumors on both lobes of the liver and because his mutation (BRAF) which is very aggressive, makes surgery not only…
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Stage iv colorectal cancer
Hi, my husband was diagnosed with stage 4 cancer mets to the lungs and liver. He also has a peretonial carcenoma. He just finished 13 cycle of folfox. Everything has shrunk but they wont operate. They say the cancer will only travel more if we stop the chimio to operate. So continue chimio forever… should we get a second…