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chemoradiation w/5fu/Xeloda
Hi Everyone, For those of you being treated with radiation w/5fu do you receive your 5fu with the pump or do you take Xeloda (5fu in pill form). Also for those who do receive it with the pump any helpful tips for showering. Do they make waterproof bags in medical stores for the pumps.
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Dad is almost 2 years NED
I believe I started counting NED status for my dad based off of his follow up visit after having finished chemo, so technically if we go from surgery its been longer but I prefer to underestimate. I suppose I am just putting this out there for the timelines sake and also to let people know its possible. While I am so…
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Brain surgery
Anybody had met to cerebellum removed by surgery? Wondering why some do radiation and why some surgery.
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Just Tuning In - Still Going ;)
Like a couple of others, I am not around here as much with the new format. I take a look now and again but not do sign in often. Anyway, still in drug trial and it is still working. No more major reductions in tumors, but basically they are all stable, with the tumors that are being monitored with slight reductions. Since…
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Cancer Scare
After NINE years NED, I had a Cancer scare. My tail bone has become prominent and painful, and my White Blood Count tanked. I thought for sure the Cancer had spread to the bone. I tried my best to ignore it for a few months, but it got so bad, I had to go and visit my Oncologist, who examined me and ordered an MRI and…
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CEA is rising
I was diagnosed 10 months ago with colon cancer. I had a colectomy and they removed a 6.5 centimeter tumor that had partially obstructed my colon. They removed some of my colon including the tumor and 32 lymph nodes (originally I thought the number was 21 but after reading the report I found it was more) All lymph nodes…
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How long can chemo continue?
Hi everyone, I am new here but been dealing with stage 4 rectal cancer that metastasized to my liver pretty bad with a few nodules in my lungs. I am fairly young at 29 and this has been my first real experience with healthcare. I have been in treatment for 9 months and have had good results so far with liver lesions…
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BRAVES FAN UPDATE
Hello everyone 1st of all. Thank you for all the words of encouragement. Met my new cancer doctor and learned a whole lot. Also met with my surgeon and I am going to be in GREAT HANDS! I have surgery scheduled July 11th. It's is in my upper descending colon (sigmoid??) Which is better Than rectal I have learned. I am…
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CT scan shows something on liver
Its been two years since my colectomy and completion of chemo for stage 2b CRC. This morning my 6 month CT scan showed a spot on my liver that the radiologist labeled "probable metastasis of previous cancer". Anyone else had this? Next step is PET scan next week. I'm trying to remain optomistic that this is something…
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Update or Progress?
Just got a call from the cancer dr.They want to see and meet me next Wednesday so this Friday I have 2 scans. . next Wednesday. I see the cancer doctor.. and then Thursday,I see the doctor that did My colonoscopy. Not sure of the process but here we go.. I'm only 1 week since diagnosis of colon cancer.
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Need Advice/Guidance
Hello everybody. I’ve finally gotten so desperate that I’m reaching out to anybody who can help me. I am the daughter of a cancer patient. My mom was diagnosed with stage 3 colon cancer in Feb of this year. She went through the surgery and recovery and started chemo in the beginning of April. First treatment went…
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Guardant Reveal
Has anyone had any experience with Guardant Reveal? For those not familiar, its a blood test after your done with treatment that will tell you if your cancer is likely to return. I finished chemo at the end of March (Folfox). I went to my post chemo appointment a couple weeks ago and my oncologist wanted to try the blood…
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Best way to cure colonal cancer
My father is waiting for biopsy results, this is a first encounter of me and my family with such a disease. I am exploring different treatments online, also consulting to different doctors. Allopathy which includes chemo, radiation and other methods, There is immunotherapy, which includes Dostarlimab drug. There is…
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Dendritic cells therapy
How efficient this therapy is in case of colon cancer ?
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Hospitalized again, colorectal cancer IV met bones ( sacro and femur)
I am a caregiver looking for guidance, Adenocarcinoma was diagnosed late January this year, my husband was in extreme pain and found out about cancer when he got some hemorrhoids removed. Since then, it has been struggle after struggle, he got some chemo sessions and then stopped because he got covid and while at the…
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hospitalized for COVID with stage 3 colorectal cancer
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
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(CAPEOX) capecitabine-pill vs. 5FU IV
Looking for anyone that has input on treatment with CAPEOX in pill form vs. 5FU over two day period via a take home pump. The Med Star Georgetown University Hospital treats with the CAPEOX pill due to the studies that have shown it to be more effective that 5FU and they only treat 3 months vs. 6. My husband would much…
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CEA explained, please!
Can someone please give me a very simplistic explanation of CEA levels. My husband had an emergency colonectomy in January and was diagnosed with Stage IV colon cancer. CEA was 6.7. He started Xelox (1 3-week cycle and not tolerated), and it was 6.6. Then switched to Folfox. After 1 round, CEA was 5.8. Now, just before his…
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Rectal cancer on sacrum
Hi! I am a new poster here. My father was diagnosed in May 2021 with rectal cancer stage 3 with involvement on the sacrum. Radiation didn’t do much and he has been stable on panitumumab and folfiri for the past two years. It has been frustrating as we are based in Ontario, Canada and no surgeon is willing to consider…
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Two months in
Hi all! 30 yo female with current diagnosis of stage 4 rectal with metastasis on liver as well as bone. Just finished round 3 of 12. I’ve done 5 rounds of radiation on Mets on my hips. Currently on irinotecan, fluorouacil, and oxaliplatin for my chemotherapy. How do you guys cope with everything? I feel like time is moving…
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UPDATE
My surgery is scheduled for this coming Monday. There was a cancellation so I am able to get it done sooner. A big thanks to all of you for the encouragement. Will update from the hospital.
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Recently diagnosed
Hello all. Hope everyone is staying healthy and taking care of them selves. I’m a 48 year old male. Had my first colonoscopy on 04/17. During the procedure a 2x2cm polyp was discovered in my Sigmoid colon. Biopsy and CEA blood work completed. CEA results were a 2.65. Biopsy returned as a well differentiated invasive…
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First CT results mid-chemo--what to make of this?
My husband got his first CT scans since starting chemo--he has Stage IV with peritoneal mets. Everything is clear--he originally had lymph involvement and some suspicious lung spots, and he had an emergency colon resection for a primary tumor in January--except the following: "Some nodularity within the omentum and…
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Just saying hi. Terrible format, can't navigate like before
Hi all my 10 year just came and went. Just a reminder that YOU CAN DO THIS. Change your diet, exercise, talk to your body during treatments, fight for those trials, tell yourself theren is an end goal when you hit that why is this my life, I hate chemo wall. Whatever you have to do to help yourself. Tell yourself YOU CAN…
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Finger Neuropathy
Hello to everyone! I came across something that has helped me and I wanted to share. I have stage 4 colorectal cancer. I had my tumor removed and went though 12 rounds of FOLFOX. I was only able to do 6 rounds of the oxaliplatin due to the severity of my neuropathy. I have found my hands are healing from the neuropathy a…
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Vitamin D & Omega 3 in CRC
Here is a very small study that found Vitamin D and Omega 3 fatty acid (such as found in fish) supplementation can be helpful for those with colorectal cancer (abstract only): https://www.ncbi.nlm.nih.gov/pubmed/31106659 [P]atients who received combined vitamin D3 and omega-3 fatty acids supplements compared with omega-3,…
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Psoas/Colon Abscess with JP drain
Hi everyone, new to the boards. Thanks for sharing your knowledge. My husband had an infection that on initial diagnosis, turned out to be either a psoas abscess or diverticulitis. They have placed a JP drain in his Lower left abdomen (and it is very uncomfortable) which he has had for 3 weeks. Drains ~20 ml every 12…
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Colostomy 6 years ago and cancer recurrence in neck and chest.
Hello, I am hoping for some advice from anyone who has been given less than a year to live. My brother-in-Law had a colostomy 6 years ago and the hospital have been too slow in my opinion to do scans and the proper investigations for a lump in his neck and a further one in his chest. The pain has become very strong and…
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New Diagnosis - Colon Cancer Stage IV
Hi, I'm 52 and received a stage IV colon cancer diagnosis at the beginning of April. I'm on a three month Oxaliplatin and Capecitabine combination regiment. This is all been a shock and learning curve to me. I'm be interested to hear from anyone in same situation or had experience.? Thanks
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where to buy Vitamin C IV drip / injections???
Hi. I need to buy for my grandfather some Vitamin C Intravenous drip or injections...his health is critical... The doctor prescribed him but it is so hard to find here in NY... the doctor will do the procedure... Does anyone know where to buy it online??? Thanks in advance! Carla