The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Update and question (BRAF mutation)

Emmanuel89
Emmanuel89 CSN Member Posts: 16 Member
edited April 2023 in Colorectal Cancer #1

Hello!

My son (stage 4, liver Mets, BRAF) had a meeting with oncologist today. I mainly wanted to ask about a possible liver resection. He basically said it will never happen because he has many (small) tumors on both lobes of the liver and because his mutation (BRAF) which is very aggressive, makes surgery not only dangerous since he wouldn't be able to get chemo while recovering but also because of the BRAF that would grow cluster of cancer somewhere else. These were devasting news to hear even though we were expecting them. My son is only 34 years old. The doctor gave us a referral to the surgeon anyway, I'm guessing he wants us to hear it from him.

Has anybody had any experience with BRAF? Besides the small clusters of tumors throughout his liver, the mutation seems to be the biggest issue.

Like Care

Discussion Boards