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Under the rug - Sweep it or keep it?
Most of my life my mother has always tucked away her emotions. She never really let anyone see her hurting, scared, or doubtful. She has always been the saver when any of us had troubles or pains. She has always been that person that you can count on 100% to be the one to make it all better. For me.... there is no one that…
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Mom with Stage 4 NSCLC
Hello, My mom has been receiving treatment for NSCLC for about 6 months now and she has been so resilient but it has pushed her to her breaking point. She says she is traumitized and can't imagine going back to get another chemotherapy session, the tasteless food, vomiting, constipation, mouth/ throat sores and now skin…
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Mom newly diagnosed
Good Afternoon Hello Everyone Hope all is well! Thank you in advance for your support. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading, researching and feeling overwhelmed. When the…
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Small Lung Cancer
My mom was diagnosed in December with stage 4 small lung cancer. It is the type of lung cancer that is aggressive and is neoendocrine. I am really struggling because I do not live in the same state as her and my sister. My sister is on the front line. I also have PTSD, General Anxiety Disorder, and Depression. On top of…
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Feeling lonely and isolated
My husband was recently diagnosed with non Hodgkin’s lymphoma. He is being treated at Gibbs Cancer Center in Pelham, SC. I am his caregiver. The prognosis is good. We lost our daughter to breast cancer 7 years ago. My husband does not want his diagnosis to be public; only a few close friends know. We are new to the area…
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Seeking advice and support (husband - colon/liver cancer)
Hello. My husband was diagnosed with Stage IV colon cancer this week, spread to the liver. He had a sigmoid colectomy and now has an ostomy. Once he heals from that, we will meet with the oncology team to find out what the plan for attacking the cancer is. We have 2 boys, 21 and 11, who don't know yet that he has cancer. I…
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Support, advice
I am writing to get support and advice. I am in a relationship with a woman who lives in another country. I met her while on a mission there. She was treated for breast cancer in the past. She lives in Vietnam. Plans were to bring her to the U.S. next year and be married. I am 67 and she is 59 years old. We were both…
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What do you do
Hello I’m a caregiver when allowed of a multiple myeloma patient. My wife has always been a rollercoaster emotions person but this has gotten out of control. I’m hoping someone can help me us if she cares anymore. Similar to most on the chat I try to be there for her if she allows. It was all good on July 2nd after that…
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Sorry. Just had to vent
Hi fellow caregivers. Recently, I caught a thread in this, the Caregiver section of this site and simply had to offer my two cents. I realize these comments and the original poster shared their feelings a while back but sometimes reaching out into cyberspace here and there helps. If anyone is interested in catching a…
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Looking for other spouses in same situation
My wife was diagnosed with stage four BC over a year ago . She has been on Ibrance, monthly hormone treatments and xgeva every three to four months . The treatments so for are working. Would like to have an online discussion with any spouses who are caregivers to their wives and how they are dealing with all issues…
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In hospital patient support
Does anyone know if the ACS provides respite and patient support for hospitalized patients? Family stays overnight with incapacitated cancer patient family member, yet the family is extremely exhausted. Needs help. Thanks for any advice.
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I am selfish?
Hi everyone. I'm new here and so grateful to know that this exists. My partner of more than 20 years was diagnosed with Glioblastoma during the height of COVID. I like to think that we are still very young people. He was diagnosed at age 36. We have had a pretty rough and toxic relationship over the years. I took care of…
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Brain cancer - looking for caregivers
My husband has Oligodendroglioma grade III. just looking to connnect with other caregivers with this type of cancer
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Head & Neck
I am a caregiver for a head and neck survivor Would love to meet others
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Head and neck cancer
Hi, My husband has head and neck cancer with an unknown primary. He just had a feeding tube put in today. Tomorrow he goes for surgery to pull some teeth, because they are going to radiate his head and neck. Everything has taken so long to come about. In a couple of weeks he starts both radiation and chemotherapy. I am so…
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Venting Caregiver
Hi first time poster. I’m THE support person for my husband. In 2018 he was diagnosed with HPV+ SSC of his right tonsil and 1 right lymph node in his neck. He had the TORS of his right tonsil along with right side neck dissection. Recovery time was about 7 weeks and no feeding tube. It was a success and doctors gave him…
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Uterine Carcinosarcoma
Are there any uterine carcinosarcoma survivors here?
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Hospitalized with COVID stage 3 cancer pushing me away
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
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No Chemo Side Effects
My husband has been on Nexavar for the past three months and has absolutely NO side effects. When he was on IL-2, a clinical trial, and Sutent the side effects were almost completely debilitating (fatigue, sores,etc). We are going to find out next week if the Nexavar has shrunk his tumors or at least stabilized them. I was…
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You Might Be A Caregiver If.......
You feel like smacking the next person who says "Boy, you really look tired". You make life and death decisions with a snap of your fingers but you need 30 minutes to select an item from a dinner menu. You can rattle of the generic and brand names of medications and the family they belong to quicker than the nurse. Going…
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Caregiver support-New Here
Good Afternoon Hope all is well! I am new here. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading researching and feel overwhelmed. When the doctors ask “do you have any questions” I feel…
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Socialising physically with someone with an astrocytoma
I am a Ghanaian who have had a brain tumour surgery in 2020. I would like to have a personal encounter with someone in similar condition where we can exchange ideas and see if we going through the same pains
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Feeling Alone
I (43, female) am sole caregiver for my husband (70, male). We were married for 20 years and i moved out seven years ago because of many reasons but mostly the age difference and needing my own life. He has hd NHL for about 15 years but recently, tongue, neck and possible throat cancer. He never went to doctors. Just once…
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Caregiver stress
I am a sister , aunt and nurse to my brother with recurrence of glioblastoma and his 28 year old daughter with neuro sarcoma with Mets. I tend to be pessimistic when they are so optimistic. I try so hard to remain positive for the future, but the nurse in me jumps to conclusions. Any help groups or suggestions are…
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Do you feel forgotten as a caregiver?
I feel so alone and forgotten in all of this. This is my 4th time as a cancer caregiver. I lost my fiancee 6 years ago this New Years Eve, and 10months later my mom had breast cancer and survived. Two months ago my present partner of 4 years was diagnosed with throat cancer. I suffer from PTSD from the horrid journey with…
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Caregiver Reprieve
Hello everyone, My father (74) had a brain tumor removed September 2022 and pathology determined he had Glioblastoma Multiforme Grade 4, started chemo and radiation treatment November thru December 2022. When he started the chemo/radiation, he was also fitted with an Optune device that he wears 90% of the time. He is now…
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Seeking caregiving advice
I am at the moment taking care of my 85 y.o mother diagnosed with Metastatic stage 4 Cancer (primary being Uterine cancer). It has been 6 months since she has started her chemotherapy. The oncologist started her on 7th cycle yesterday. After she was diagnosed, I got a room built downstairs and also a shower was added to…
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Ovarian Cancer Care Giver
I hate to complain. I don't have cancer. I will live way too long. My wife was diagnosed with Stage 4 ovarian cancer six years ago this month. 2022 was entirely about treating her third recurrence, started with an ablation of tumor on her liver, other tumor grew while arranging that surgery, got qualified for a promising…
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Workplace support
My wife is coming off of a year where she has had a number of surgeries, all but 1 of them related to her cancer, and is now having to deal with an employer that is concerned about her performance slipping and may be looking to terminate her. Does anyone know of any resources that we could contact that might be able to…
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I feel so lost....
This is fight two for my mother. The first was when I was 16 and we had no support system but what we could figure out on our own. She had Chemo and Radiation then. She ended up in the hospital once, besides the treatments and surgery. This time I am 42, we have a great support system but it seems worse this time. She is…