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Still losing weight from Esophageal Cancer.
My husband age 74 was diagnosed with Adenocarcinoma Cancer in May, 2022 after choking on food while on vacation. His treatment was 23 sets of radiation, 5 chemotherapy followed by a 13 hour Esophagectomy with Thoracic Esophagogastrostomy Creation. He was told after the surgery that the radiation/chemotherapy had removed…
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Recurrence of uterus cancer in vaginal cuff
I have asked questions before and everyone was so helpful. i was recently diagnosed with recurrence of my uterus cancer in the vaginal cuff. The standard care seems to be external radiation and brachytherapy? I went to Stanford and the Mayo Clinic and was basically given the same options? Has anyone out there had…
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HPV+ tonsil cancer
I was diagnosed with HPV+ tonsil cancer, which also involved two lymph nodes, in October. I finished chemo (Cisplatin) and radiation treatments in January. I had Pet scan in April which showed NED. Having cancer made me feel so alone, and isolated from everyone else around me. I came here to find other people who have been…
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High Resolution Anoscopy
I have a history with repianal HPV lasered in the past (the called it AIN 3 despite that my anal canal is clear) and yesterday i had an anoscopy. The doctor said everything was clear this time. Nevetheless this time i am very sore when i tried to go to th e toilet and i saw mucus coming out with the stoll. Is this…
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Funny story - port surgery
So I hadn't slept in a few weeks since cancer diagnosis, as many of you know is quite common after diagnosis. So the doctor comes up to me before my port surgery and seems very stressed. He states that I am on two medications that will interfere with twilight medicine and I'll be 100% fully awake during the procedure. He…
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Lymphedema
In the thread entitled "How many lymph nodes? (Includes Recap of Lost Posts)" ncg007 commented that she had developed lymphedema about 2.5 years. I've also developed lymphedema at about the same time post-surgery. After a deep vein thrombosis ultrasound to ensure that I didn't have any clots, I met with the occupational…
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Confused with Mother's treatment plan
Would like some help in managing my mother's treatment plan: My mother is 86 and has been diagnosed with Metastatic stage 4 endometrial cancer (uterus being the primary source). She had about 7 cycles of chemotherapy consisting of Carboplatin and Taxol from Aug 2022 to Feb 2023. The PET scan in Jan 2023 showed her 80% free…
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God I miss Paul Harvey
There was just something hearing, "And now you know the rest of the story", or "Good day." I grew up on a ranch and as a young boy (beginning at 6 years old) every morning about 0600 I would listen to Paul Harvey on the radio. I'd be sitting in my parent's truck with the heater on full getting ready to step out into an…
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How did I get here???
Hello all! I am a 53 yr old mother of 3 recently diagnosed with stage 2A SCC of the anal canal. My days since have been full of phone calls to insurance copanies and cancer treatment centers, doctor's visits, diagnostic testing, and an occasional breakdown. How I got from I think I broke a hemorrhoid to I have a tumor aka…
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Guardant Reveal
Has anyone had any experience with Guardant Reveal? For those not familiar, its a blood test after your done with treatment that will tell you if your cancer is likely to return. I finished chemo at the end of March (Folfox). I went to my post chemo appointment a couple weeks ago and my oncologist wanted to try the blood…
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Recovery from fatigue after radiation therapy
I completed radiation therapy for a skull cancer--the "mask business" with a Tomograph machine. I had NO chemo. Therapy lasted 7 weeks, 5 days a week. I got the max dose. I was told that the aftermath would be extreme fatigue. Yes, indeed. It was extreme. Also in the mix were hand cramps, coordination and thinking…
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Chemotherapy/ Immunotherapy Question
What to expect? This will be my first day. Any pointers on getting through it? I heard it makes you sick.
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Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…
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My kidney cancer
In my profile I put my first scan as Apr 7th, but it was Mar 30th. I can't edit it for some reason. I was lucky, while I had soreness on the right side, I just thought it was due to stones. I went to the urologist because I hadn't been to one in a long time and I had a couple of things I wanted to get addressed. The NP…
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Best way to cure colonal cancer
My father is waiting for biopsy results, this is a first encounter of me and my family with such a disease. I am exploring different treatments online, also consulting to different doctors. Allopathy which includes chemo, radiation and other methods, There is immunotherapy, which includes Dostarlimab drug. There is…
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Dendritic cells therapy
How efficient this therapy is in case of colon cancer ?
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Going into the unknown with father
Hi everyone, Back in Nov my father started to have abdominal pain. After a few days he could not go to the bathroom at all. Went to the ER was admitted and rushed into surgery. Ended up discovering a stage 3 cancer tumor on his colon. Took out the tumor, part of his colon and his spleen. Now equipped with a colostomy bag.…
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Single Mom - how much help will i need?
Hi, I'm in my mid-30s and have an 8 year old and a 2 year old. I've been diagnosed with anal cancer and will be getting 28-30 radiation treatments. i'll do 2 IV treatments of mitomycin (Day 1 and Day 28/30) and will take capecitabine chemo pills everyday during radiation. I'm trying to plan out support for my kids (and cat…
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Hospitalized again, colorectal cancer IV met bones ( sacro and femur)
I am a caregiver looking for guidance, Adenocarcinoma was diagnosed late January this year, my husband was in extreme pain and found out about cancer when he got some hemorrhoids removed. Since then, it has been struggle after struggle, he got some chemo sessions and then stopped because he got covid and while at the…
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5 down, 5 to go
I had my 5-year follow-up on Monday and I am as unremarkable as ever. Quite boring, actually. Nothing to report other than I will now visit once a year for he next 5 years. Ongoing side effects are pretty much limited to a little dry mouth/throat, and some neuropathy in the hands and feet. Both of which are easily…
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Anyone With Velcade (bortezomib) Experience
I'm 41 and just diagnosed in stage III with Multiple Myeloma. My doctor is starting me in a clinical trial with Velcade next week. I'll be going twice a week for IV treatment, two weeks on and one week off for 12 weeks. Has anyone had any experience with this treatment which they could share? What dosage level did you…
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Burning Feet from Multiple Myloma
Hi everyone. I had a tumor removed from my spine and ever since my legs are very impaired. Walking is very difficult even w a walker. My feet lately have been tingling and on fire. Any suggestions? Thank you
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OVERWHELMED BUT DRIVEN
Hello everyone! I’m Jason [Content removed by CSN Support Team] nice to share my story with you. So I’ve been reaching out more as a means to hopefully be over this episode that has drastically changed most of my life. I’m 48, never or rarely sick, never even been to a hospital until this. Perfect health most my life until…
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Article on Brachytherapy
I hope this link works an interesting article. https://www.medscape.com/viewarticle/991987?ecd=WNL_mdpls_230530_mscpedit_nurs_etid5478199&uac=389007SR&spon=24&impID=5478199
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hospitalized for COVID with stage 3 colorectal cancer
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
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Most common side effects of Erbitux and Radiation Therapy - NEWLY Diagnosed -
Hello I have recently been diagnosed with squamous cell cancer of base of tongue HPV positive stage 4 b. I'll be seeing my oncologist for the 2nd time on Monday. He has told me he'll treat me with Erbitux and 30 sessions of radiation therapy (6 continuous weeks, Mon thru Fri). I read about side effects of erbitux and…
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Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
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‘Just never give up’: message from a cancer survivor "(NEGU) Never Ever Give Up"
Hello, everyone. The following video shows the reason we always say on here-------- "(NEGU) Never Ever Give Up" I would like to share with you a short video of an amazing story of this woman who conquered cancer and beating the odds even though she was given only a 5 percent chance of living 5 years. This is why she says…
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ROLL CALL 2022 - First Posting January 1, 2022
CivilMatt note to members: Now that I have 2 weeks+ under my belt in dealing with the bringing together the New Roll Call and the new CSN format. I would have to say, “the appearance of the Roll Call after uploading for the members, caught me off guard.” The format I saw on my document, at home was worlds apart from what I…
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23 Yr Old Vet with Papillary Thyroid Carcinoma
I returned from a deployment overseas Dec. 2021. October 2022, I started feeling very tired and unwell. My physical medicine and rehab doctor (from injuries obtained while deployed) finally convinced my PCP to take a look at my thyroid after my PCP kept saying it was my mental state and i was just anxious. They found a…