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Feeling Alone
I (43, female) am sole caregiver for my husband (70, male). We were married for 20 years and i moved out seven years ago because of many reasons but mostly the age difference and needing my own life. He has hd NHL for about 15 years but recently, tongue, neck and possible throat cancer. He never went to doctors. Just once…
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Runny nose
Does anyone have a constantly running nose all the time? I take clarinex (even though my oncology doctor suggested I don't) because if I don't the stuff runs down my throat and out my nose. I go through a box of Puffs in a week, I have to use the kind with lotion or my nose goes all red. I can't blow my nose because the…
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High tumor markers (CA) but clear scans.
Hello everyone, My first post. I have elevated Carcinoembryonic Antigen or CA levels of 150. However the PET and echo are clean. What does this mean? We are at a loss. I am currently doing chemo of Oxaliplatin. Many thanks for reading.
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Angiosarcoma
38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all…
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Sacral tumor and Neuro/onco specialist near Chicago
Hello , I have just discovered that I have destructive sacral tumor pressing on L5 nerve and caused cortical breakthrough . I am going in for PET scan and biopsy in the next week. I am trying to find specialist near Chicago west suburban. Anyone that could provide some informations to help me going through this journey…
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Good scan results followed by pains returning
Hello. Wondering if anyone has any experience of or insights.. My Dad has stage 4 Bowel and liver mets. Received good news last week at his first scan meeting since treatment started, oncologist said there is shrinkage of 30% or more (more so in the liver) however, for the last 3 weeks my Dad has had the usual pains back…
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Frustrated and Depressed
I was diagnosed with prostate Ca in 2020. I had a radical prostatectomy, radiation and hormone therapy. I have not been able to have relations with my wife since my surgery. Mechanical and chemical agents don't work very well. I am very frustrated and depressed at not being able to achieve an erection. I am considering…
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Transglutaminases in Medical Research
Transglutaminase (TGase) is an enzyme that catalyzes the acyl transfer reaction. It uses the C-carboxamide group of the glutamine residue in the peptide bond as the acyl donor, and the E-amino group of the lysyl residue in the polypeptide chain as the acyl acceptor, forming intramolecular and intermolecular…
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Checking out options
I had a prostate biopsy last Wednesday. My PSA levels had been going up, with my most recent one reading 5.59. Results came back yesterday, and I will speak to my urologist about 'where do we go from here?' on 3/13. Re: the biopsy, 5 samples were negative. 3 were positive, each with a Gleason score of 6, with less than 5%…
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This Chef's Cancer trip
Hello all! hope the very best for everyone dealing with this. ive had to go this road alone, being my own advocate, doing my own research and most recently treating myself because there are just no services or advocates, from what ive found. i get so terribly tired, following this crazy diet, pleading w state and gov…
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Dumping Syndrome
Hello. I was recently diagnosed with Adenocarcinoma in 2021 and underwent chemo, radiation and an Ivor Lewis surgery (resection) of the lower part of my esophagus and top portion of my stomach in February, 2022. I am recovering well and feel great, but I am having issues with Dumping Syndrome. Wondering if anyone has…
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Seroma
My doctor aspirated my seroma today but the fluid is already returning. Does anyone know what can help prevent seromas? I've been feeling so good since my surgery three weeks ago and have been doing too much. My doctor said I should take it easy for another week. Will that help keep the fluid from increasing? Miriam
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Power port
Had my power port put in about hour ago. Not bad of course still numbed up from local. Said it shouldn't b much discomfort though. Went to radiation and cancer Drs yesterday very helpful and compationate. The nurse practioner that works with oncologist seems awsome really connected think that helps going through this.…
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Tonsil Cancer
I have been diagnosed with Tonsil cancer and I was just wondering if there is anybody else out there that is dealing with the same type as I
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Chemo effects on knee replacemnts
Have any of you had to take chemo, after having knee replacements.? If so, did you have any problems with your knees hurting? That was one of the first questions I asked me my Oncologist while considering taking chemo , following my BC lumpectomy. He assured me that it would not have any effect on my artificial…
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1st time doing Rituxan Infusion tomorrow for Extranodal Marginal B Zone Cell Lymphoma
Hello, I am 31 years old and I was just diagnosed with extranodal marginal zone b cell lymphoma. Noduals were accidently found in my lungs and ended up being cancerous. I am going to start my treatment of rituxan since it is was caught at such an early slow growing stage and I will not have to get chemo. I will be getting…
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Adult Rhabdomyosarcoma
I have recently been diagnosed with Rhabdomyosarcoma. I am 22 years old and I have a nine month old son. I have had one surgery and am awaiting a second. Does anyone know of any hospital that specifically deals with Rhabdomyosarcoma? Im having trouble finding a Doctor who has seen it before. Also I would love to talk to…
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Winter Marie has passed away
Her son posted the following: Taken from Winter's son's wall. All friends and family I appreciate your kind words and support for my mother and her courageous battle against cancer. She passed away peacefully a few moments ago with my sister by her side. I know she had many people who loved and cared dearly for her and she…
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Essiac Tea
My husband has stage 4 inoperable colon cancer with mets to the liver. Our oncologist hasn't heard of Essiac Tea. We're trying to find out if it will negatively impact chemo treatments. Anyone have any information they can share?
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Tamoxifen Side Effects
Ok, I know about the weight gain, vaginal discharges, muscle cramps especially my calves and hot flashes, but now my finger joints are starting to swell. I had to remove my wedding ring because my fingers are swelling and the joints also. I also have stiffness and and overall achiness in the joints of my fingers. I can't…
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HER2 Herceptin treatment
I was diagnosed with invasive ductile carcinoma HER2+ in August. Had lumpectomy and started Taxol and Herceptin on 1 December. I will have my last Taxol infusion on 16 February but Herceptin will continue for a year! Radiation will start in March. Like most of you every infusion leave me more fatigued and it takes longer…
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anyone have a hoarse voice right after chemo
My voice always gets hoarse when I have an infusion for about 2-3 days after chemo. Anyone else experience this afterwards? Thanks, Patti
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At The Beginning
All this came up really fast, man. In late November I saw the doc because I had a sore shoulder. She suggested a quick blood test since I was there anyway for the shoulder -- she had been keeping an eye on my creatinine levels (but they had not been terribly out of bounds). Fast forward one week, and I'm looking at an…
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Coping with my dad’s decline
I’m not really sure why I’m posting this. I don’t know what I’m trying to get out of it, or what I want to hear. Or if there’s anything anyone can say to make me feel anything other than the immense grief that I already feel. My dad (53) has stage 4 Renal Cell Carcinoma. His diagnosis was sudden- he went into the doctor…
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Sbrt
Hello, I’m new to this site but glad to have found it. has anyone had experience receiving radiation(Sbrt most likely) to the sacrum? I had a prostatectomy, but then a very high post psa of 5. A scan subsequently lit up a lesion in the sacrum. Thanks and grateful for any help
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To work or not to work...any suggestion?
Greetings everyone! Real quick...stage IV and getting chemo for the third time in three years...cut two feet of colon, half my liver and the top of my lung... Several weeks ago the cancer clinic admistrator out of nowhere visits my chemo booth and says he thinks I should stay on some kind of chemo regiment for the rest of…
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Remission
Well, I had my PSA (Prostate Specific Antigen) the other day. The results: PSA, TOTAL <0.04 ng/Ml Looks like I am still in remission. This is my 5th year since RP. I am still continent. I am intimate with wife, but I have slowed down a good bit and cannot hardly catch her anymore. I have always said there is more to us…
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What treatment help
My father 74 age 3+4=7,grade 2,psa 8,8,biopsy 4 of 12 positiv all left and left centar 1 and 2 (6%-10%) 3 and 4 (11%-20%) Surgery or radiation
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Not yet what to do...
Good day, I am living as a permanent resident in the Philippines for now 15 years with ma family. I am 69 years old and been tested prostate cancer in last August. Had all the test made and in my possession. One Uro. (from CEBU city) did the biopsy (gleason 7) and first PSA 14 ,prescribed me with bicalutamide 50 mg for a…
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Radiation for recurring endometriol ovarian cancer
In Dec 2018 I had a complete hysterectomy for endometriol ovarian cancer, and 6 rounds of chemo in 2019. Happily I was in complete remission. Unfortunately in 2022, a small tumor was found in my groin in front of my colon. I just finished 6 rounds of chemo, doxil was really hard on my body. Surgery is not an option, and…