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Letrozole and side effects
Does anyone know if the side effects of Letrozole are permanent? I’d rather take my chances than continue to be in pain for the next five to ten years. I have the joint pain, the chronic cough, the hot flashes and sweats. I already have osteopenia so what damage does this pill actually do besides lower estrogen? Curious
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How long can chemo continue?
Hi everyone, I am new here but been dealing with stage 4 rectal cancer that metastasized to my liver pretty bad with a few nodules in my lungs. I am fairly young at 29 and this has been my first real experience with healthcare. I have been in treatment for 9 months and have had good results so far with liver lesions…
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Terrified and can’t decide what to do. Precancerous, doctor tells I need full removal of everything
Hi everyone! my biopsy came back with borderline adenocarcinoma, and suddenly I was offered atomic bomb version - full removal of uterus, ovaries, cervix - all of it. Sounds a bit too excessive to me, and I am not sure what to do? They say it has 25% chance of developing cancer. I am 52, thin, fit, eating healthy and never…
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just diagnosed with endometroid adenocarcinoma stage 1
I was just diagnosed with stage 1 utereine cancer and have an appointment with a gyn/onc next week. I am so nervous about all this. .I am on HRT and they told me to just stop it.. I dont want to stop it cold turkey and I am hoping I can take it after surgery.. I wont be able to function without it. . has anyone else had…
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Pregnancy?
Hi everyone. I know I am a real anomaly here, as I’m only 39 and female and was diagnosed with bladder cancer in 2021 when I was 37. It was Ta, removed with TURBT, and follow up cystoscopies were performed every three months. I am now 39 and have had two small reoccurrences the past few months I also just found out I am…
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PSA Rising Fast after RP
PSA Rising I was first diagnosed with PC at the age of 53. My RP surgery was on 12/20/2020. A week and a half later, I was experiencing a lot of discomfort and morning erections from the catheter, so the doctor removed the catheter. The day after that (12/31/2020), my testicle grew 3x to its regular size, so my daughter…
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Update - Possible NED - Thoughts?
Hey all, It’s been some time but wanted to provide an update and get some perspective! My mother (61) completed chemotherapy (cisplatin) and radiation (70Gy) on 14 February. She had one full dose of chemo and then a 3/4th dose because she was pretty ill (hospitalized with peg tube placed) in later weeks of treatment. Three…
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Arimidex and Insomnia
Has anyone else experienced insomnia while on arimidex? If so, what, if anything, did you do to counteract it? I've only been on it for one week, but within two days of taking my first dose I started not sleeping? I'm just wondering if insomnia is a fast-acting side effect or just coincidental? I normally have no problems…
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xeloda, hand and foot syndrome, tips?
I am taking Xeloda pills (14 days on, 7 days off) as my chemo for recurrent breast cancer. One of the side effects is hand and foot syndrome. My feet become very red and tend to blister by the end of the 14 days. It becomes painful to walk the last day or two. My feet are starting to itch. Yeah, i do put on lotion every…
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On opting out of further hormone treatment
I'm 70 years old and was recently diagnosed with PC, Stage 4, Gleason 9. I've been on hormone therapy (Zytiga) for 6 months, with good results (PSA 0.08) but debilitating side-effects. Probably another 3 months, then radiography treatment. After this, I'm considering opting out of further hormone treatment. It's a quality…
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When am I considered a survivor?
I think I didn't look into these boards before because my treatment has not officially begun. I was diagnosed with invasive ductal carcinoma March 22nd and plunged into countless appointments/consultations for a few weeks and now I am waiting for my bilateral mastectomy May 11th. I lost my sister to ovarian cancer and my…
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I feel alone…
Hi, so I wanted to tell my story and maybe just get some advice. I was diagnosed with Endometrial Cancer at 22 years old. My doctor says I’m one in a million for this diagnosis.. I feel guilty for being diagnosed on my moms birthday, I feel like now she just connects her birthday with the day her little girls whole world…
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Leiomyosarcoma chat
I am searching for survivors of leiomyosarcoma and would like to chat about treatments. Sandra from Alaska
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Verzenio/Abemaciclib
Hi everyone- My oncologist wants me to take Verzenio in addition to hormone therapy and ovarian suppression. I’m not convinced I would benefit and have read about the potential adverse side effects. Was wondering who is on it, what your experience has been, and what your cancer staging/lymph node involvement/Oncotype etc…
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Any single female survivors?
I know that this is not a dating website. However, I have a tough time relating to nonsurvivors in a dating situation. The best relationship I ever had was with a fellow cancer patient. Sadly, she lost her battle and is no longer with us. I am 30, from GA, and looking for the love of my life.
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Life Struggles
No actual question here :) I'm 36. This disease is a taker. It takes and takes and takes, and doesn't give a single **** about how it makes you feel. My circle of friends is getting smaller and smaller. I used to compete/collaborate for work promotions tightly with my friends/colleagues but some of them don't even call me…
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VIN 3 dysplasia recurrence
I had the ultrasound ablation surgery last July to remove some VIN 3 lesions. I healed up nicely, but felt itching in January. A follow up showed I have VIN 1 now, and they say no treatment needed. It has gotten worse in the past 2 months and I had to argue to be seen again before my July follow up. In 2 months, I have…
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aldara cream
Has anyone ever experienced systemic side effects from aldara
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Just wanted to check in and say hi
Well I don’t get on here much but I’ve been Ned 3and a half years now. One more six month scan then doctor said he’s going to move them to yearly I sure do miss talking to everyone I hope you all are doing great just got back from being in England for a month don’t think about my cancer much anymore which is a good thing
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Cancer returned
I was looking in the messages here for people I knew back when I first got my diagnosis back in 2012. I don't see a lot of familiar names. Not sure if that is a good sign or a bad sign. In 2012 I had my left kidney removed because of a massive tumor. At the time of of removal they told me that I was stage 3A. It was clear…
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Extreme Thirst on Tamoxifen
Hi. I was diagnosed with Stage 1 breast cancer at the end of February. I had genetic testing and I have no mutations for breast cancer. I had a lumpectomy with regular lymph nodes removed due to their thick appearance on a breast MRI, and I had 20 rounds of radiation. I did not not need chemo due to my low oncotype score.…
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Cancer Forced Me to Learn to Be Sick-Overview From A Cancer Patient
I am posting this because when we read some of these other people's stories we can say yes I know what you are going through or I know what you went through because I faced similar circumstances. The cancer may be different or in a different but many times the treatment is the same. The day we were told, "It is cancer".…
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ADT plus chemo
I have watched some videos with Dr. Schulz and he seems to recommend to go after the cancer recurrences strong and hard ADT and Chemo for recurrence plus radiation if needed. I went to Sloan and they did not recommend chemo for my disease burden. What says this community?
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Osteoradionecrosis of the Jaw and Medication Related Osteonecrosis of the jaw
Here is a video I came across and it shows the 2 ways we can have jaw problems. And there is an alternative treatment to HBOT which is good to have but no guarantee it will give you the healing you need. They are now utilizing pentroxiflline and tocopherol. This video in on the medical technical side so my understanding of…
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Yearly check up
Hi Everyone and especially my summer 2016 cohort, I had my annual trip to see my surgeon/oncologist/urologist (I love my 3-in-1 doc), annual physical, derm, etc and all is well with my kidney. Always a relief. I know there has been discussion here about creatinine and eGFR - mine came out this time at 1.23 and 46. Pretty…
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Hair loss and chemo question among other things.
Around the first of the year I was diagnosed with non Hodgkin’s lymphoma. In a few days I will start my 5th treatment. Each treatment is 21 days and I’m scheduled for one more If all goes well. Anyways, around my second treatment I noticed if I even touched my beard or hair that I would see hair coming out. It got so bad…
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Thought it was behind me
Stage 3 tongue cancer (spread to one examined/removed lymph node). Tumor removal, neck dissection and radiation. First, for anyone reading this who is currently going thru treatment I want to give you encouragement...you will make it thru! It is NOT easy, but it will end. That being said, I need advice as I'm…
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Looking for information on/experiences with conservative treatment (Mirena/levonorgestrel)
Recently diagnosed with endometrioid adenocarcinoma FIGO grade 1 and had a Mirena IUD placed due to being at high risk for complications from hysterectomy. Does anyone have experience with this? Approximately how long did it take for relief of symptoms (bleeding, discharge) with this treatment ? What side effects were…
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multiple myeloma
I've just recently been diagnosed with several types of cancer&"possible" cancers. Multiple myeloma--thyroid--jugular vein--large bowel--skin cancer. Can someone out there give me some info on any of them? I can't go through-chemo-radiation or bone marrow transplant.thanks. sonitikki@earthlink.net
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4.5 yrs out, 2 brief bouts peritoneal irritation, and Ca125 up
Hello to all. Since I completed surgery, chemo, and radiation for uterine serous/clear cell, 1a but isolated tumor cells found out in one sentinel node (surgeon only took one sentinel node on each side), I have only come on annually, to report that I've had no recurrence of the uterine serous. (I do also have an indolent B…