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VIN 3
Hi, I'm new and from the UK but unfortunately there is not much in the way of support for this specific condition in the UK. I was diagnosed with VIN 3 in December and am currently being treated with Aldara cream. Sometimes it really gets me down and I feel like I'll never be normal again! Just hoped that someone who is…
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Private dr or big institutions
like to talk about choosing doctors I always hear find yourself a doctor that’s done 2500 or 3000 prostate surgery I mean let’s face it most of us should have urologist they don’t do the surgeries or maybe they do and if you’re lucky enough to maybe been with your urologist for 10 1520 years and you trust him that’s great…
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Mediport
I am having chemo on Monday and I still have steristrips on my port. How do I put on the numbing cream?
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New Need Info
My son, who is now 49 was diagnosed with Stage 4 Renal Cell Carcinoma, in July 2020. It had already spread in his body, and had one kidney removed. He has suffered thru the treatments, and meds, pain, weight loss, etc. Afraid, now he is going on the last Med that generally last only 4 months. Any info for Clinical trials,…
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TRT on Active Surveillance?
Is there anyone out there that have a gleason 6 or 7 on Active Surveillance that are still on TRT?
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Waiting for Diagnosis
Hello, I had a neck CT for a follow up to parathyroid surgery I had in the summer, and the report came back showing "3 x 2 cm pathologically enlarged left supraclavicular lymph node. Pathologically enlarged bilateral level 1B lymph nodes, up to 15 mm in long axis diameter. Several greater in number than size lymph nodes in…
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cc RCC and MITF mutation
Hello everyone! I am a female diagnosed at 32 with 3cm cc RCC on left kidney, lower pole. I had open partial nephrectomy. I am going to be 6 years remission on 1/20/2024. I had genetic testing done and I came up positive for mutation MITF. It causes cutaneous malignant melanoma. This mutation also causes cc RCC, but…
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Pathology report post nephrectomy
I’m 34 years old and was in a car wreck 1/4/24, where I was rear ended on a major highway. I followed up at the ER for neck and hip pain only to discover I had a complex cystic mass growing on lower pole of my left kidney via CT results. MRI 2 weeks later confirmed that it was over 8cm. I never had any symptoms whatsoever.…
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bisphosphonate (Zometa)
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Tight neck after neck dissection followed by chemo and radiation..
I had my 2nd neck dissection in March 2023 followed by chemo and radiation. I have considerable tightness in my neck after completing PT. Hoping someone else has some tips to help relief the discomfort. Thanks in advance
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My Moms CT Results, help understanding???
Sorry in advance for the long post. First I have summarized the last 2 day’s events anmd start with mom’s CT Results (toward the middle of post) from yesterday. Afterward, I summerize her history after, there is substantial history. My question to those out there who may understand these findings, is does anyone think the…
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Stage 3 Point B (nsc)
Greetings, brave fighters! Recently, I received distressing news that my father, who is 63 years old, has been diagnosed with stage 3 point B non-small cell cancer. After a quick search on the internet, I found myself overwhelmed and filled with helplessness as the prognosis does not appear to be very promising. It is…
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Anemic diabetic female diagnosed with stage two, spread to stage three. What to expect?
hello i am asking this from the perspective of a person who knows somebody who has received this diagnosis. Chemotherapy treatment is also looking like a likely requirement. I just wanted to know honestly if there are any increased risks of complications or survival due to diabetes and anemia. The person in question is a…
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Incidental kidney cyst
Hi, my GI doctor ordered a CT scan with barium and iodine contrast because I was constipated. There was nothing abnormal except they found a possible 1.3cm lesion on my right kidney. It said it was "subtle" and possibly solid. It sounds like the imagery wasn't great for some reason. The radiologist report recommended an…
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Can’t move forward
My husband was diagnosed with Stage 3B colon cancer in May. He’s 47 years old and father of two kids under 5. It had spread to two lymphnodes. He had successful surgery and three months of chemo (Capox). In September once chemo ended, first scans were clear. We just had second round of three month scans and they were also…
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Where Do I Start?
I'm trying to support the most important person in my life and for the first time I'm feeling helpless. I'm so afraid for her and I have spent my whole life trying to be the best big brother that I can be. I have always wanted to protect her and keep her safe but now I am feeling like a failure. I am trying so hard to be…
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Mental breakdown and constant nightmares
In November I went to the ER for a gallbladder attack and they found a 4.4 cm lesion on my left kidney. I had blood in my urine for a year or so that my GP blamed on kidney stones, because I do have those as well. I am seeing a urologist in a couple of weeks for my first consult and I am assuming it will be cancer as it…
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Help with building a watchful waiting gameplan
I am 3 weeks post-op for a right hemi-colectomy, with a Stage II, Grade 2 diagnosis. No spread to nearby organs visualized, and no involvement in 41 LNs resected, but there was LVSI seen in small vessel(s) but no large ones. So, T3N0. There was a single tumor, and it formed MSI-high (dMMR) and BRAF mutations, which,…
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Er + , tamoxifen and hysterectomy anyone?
Has anyone Er+ had a hysterectomy to supress estrogen? My insurance company is approving ovaries being removed but not the total hysterectomy- it seems like more studies are showing tamoxifen causing uterine cancer thus my goal for total hysterectomy- suggestions welcome!
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Anastrozole Question
Anyone on Anastrozole have their cholesterol numbers go up? Been on anastrozole for a year and a half and the last checkup my cholesterol was up without any difference in exercise of diet.
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Hard lump on lower jaw
Hello I am new here, not diagnosed with anything but I discovered a hard lump on the corner of my lower jaw on my right - it feels like bone and can’t be moved at all it feels like attached to the bone and it’s easiest to feel when I lift my head up, you can’t see it visibly and feels an odd shape i saw a doctor who looked…
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Anger
Hello, Just looking for some place to connect with others caring for a dying spouse who is angry, hateful and actually cruel with his words. Been married 45 years, he was a functioning alcoholic and I was the enabler. I am a 10 year Lung cancer survivor who by all means should not be here except by the grace of GOD. He is…
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14 year post double mastectomy onset of pain
I had a double mastectomy almost 14 years ago. Just recently I began having left breast discomfort/pain mostly near the outer/upper quadrant near my armpit and slightly above my breast implant on the chest wall area. The pain seems to be spreading/radiating to my left back shoulder blade area. It should be noted I have…
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Freshly diagnosed, need advice
Any help will be appreciated, very new to the topic. About month ago, I had prebiopsy PSA around 45, and later got following biopsy results: Agregate Gleason score 7 in about 70% of the volume. The primary Gleason image consists of small and medium-sized glands in groups within Gleason image 3 and are represented in about…
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Nasopharyngeal cancer
Hey folks, I was searching for forums and support groups as I got diagnosed recently with nasopharyngeal cancer (squamous cell carcinomA). They say it's advanced local and I'm not entire sure what that means in terms of prognosis but it has spread to both sides of the lymph nodes on my neck. No distance metastasis. Will be…
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Cancer on voicebox
I'm 54 years old my first diagnosis of cancer was in February 2023,I went through 35 treatments of radiation. Had a PET Scan done in December 2023,it showed uptake to lymph node 2A..In January 2024 I found I also had cancer on the surface of voice box as well.Doctor says my only option is total voice box removal and the…
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Peg tube post radiation
My husband completed radiation in April 2023 for SCC stage 3 of the mouth. He is still using a feeding tube. 10 months later) He will not eat anything because of texture, dryness and taste. Anyone else have a feeding tube this long?
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Hip pain after radical nephrectomy
Hi, just wondered if anyone suffered hip pain after radical nephrectomy?? I seem to be feeling this in both hips but more so in right! im scared it’s a new tumour x
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Head and Neck Cancer Dr Wiggins-Video-University of Utah School of Medicine
This is a very good video of Dr. Wiggins presenting on head and neck structure, treatment, staging, and many other aspects of treating head and neck cancer with a Q&A at the end. I think you will like it I know I did and it gives you a doctor's perspective of head and neck treatment. Head and Neck Cancer Dr Wiggins Dr.…
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Joining the mucus discussion!
Hello we're new. My husband had HPV tonsil cancer and completed his 7 week radiation over 2 years ago. His biggest struggle(apart from not swallowing) is the copious amounts of mucus. I was interested in everyone's suggestion regarding the baking soda/ salt rinse which we just started after reading the posts. Also curious…