Stomach Cancer - Thoughts / Doctors / Etc

ad71747174
ad71747174 Member Posts: 1 Member
in Stomach Cancer #1

Hello, my mom was recently diagnosed with stomach cancer (adenocarcinoma) locally advanced. She just started FLOT and the plan is to do 4 treatments, surgery, and then do another 4 treatments. Starting to learn a bit more (HER2negative / MMR loss on MLH1 / PMS2 (testing for Lynch syndrome now which could change some things on the treatment)). We are in Michigan and have seen a couple doctors here and a surgeon, who have been so helpful, but just wondering if anyone has had similar cases here and what doctors / institutions may have been the most helpful. Trying to find a path to using immunotherapy… any information would be great.

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  • hope2024_
    hope2024_ Member Posts: 1 Member
    #2

    hi ad71747174. I hope you have some more information now especially the lynch syndrome testing. My mother was also diagnosed with stage 4 stomach cancer in November and it has been the most difficult time. Is your mom getting treatment at an NCI cancer center? Stomach cancer is rare and it’s important that she get care from an experienced team.

    I believe the top programs are MD Anderson, Mayo and City of Hope in LA, as well as many others but those three were frequently mentioned in my research and other forums.

    my mother was also recommended the 4 chemo treatments, surgery, 4 more chemo. However her oncologist recently recommended doing 6, surgery then 2, due to the nature of the surgery and the tough recovery. We’re hoping the cancer is responding to her chemo regimen and that she will be having the CRC + HIPEC this spring.

    I hope your mom is doing as well as she can and that the side effects of the intense chemo are minimal.

    Sending you best wishes,

    Jessica

  • Craig48
    Craig48 CSN Member Posts: 34
    #3

    You can read my story elsewhere but unless your medical team recommends alternative treatment i would avoid such as they can have unplanned results.

  • CZL
    CZL CSN Member Posts: 2
    #4

    hi I have recently diagnosed the same cancer with initial staging iii but during FLOT treatment, after 4 times, now I have possible metastasis to bone. I recently have changed to city of hope. Due to my condition which I have developed obstruction in stomach totally blocked and dilenduct , frequent vomiting sometimes with blood , I haven’t resumed my chemo at city of hope. My oncologist there wanted me to do 5th FLOT chemo and radiation just to control locally. I have no idea now.

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