opinions and experience? time of day taking Relugolix (Orgovyx)

skl8r
skl8r CSN Member Posts: 11 Member
in Prostate Cancer #1

Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation.

and I'll start with ADT - Orgovyx for 6 weeks before radiation starts.

I was advised to take the pills any time of day I choose, but be consistent. I understand that! Also advised that patients' preferred times of day are all over the clock dial. The meds nurse suggested that some like to take it at bedtime to sleep through the hot flashes, but I have to wonder if I can do that… Of course that depends on my reaction to the pills.

I have just received the meds and ready to start, I'd love to hear experiences and opinions about when you take the Orgovyx. Pros and cons anyone?

Thanks

Stage 2a, Gleeson 4+4, PSA 4.2 (one core each 4+4, 4+3, 3+4), no genetics yet

Comments

  • swl1956
    swl1956 CSN Member Posts: 240 Member
    #2

    Sounds like you have a plan. I choose 40 sessions of IMRT and ADT after the Pca showed up in my lymph nodes. I've been taking 120mg Orgovyx and 1000 mg Zytiga and 5mg Prednisone daily for a few months now. The Zytiga needs to be taken on an empty stomach and you shouldn't eat for at least an hour after. My alarm goes off around 5:30am when I take the Zytiga. I go back to bed for at least an hour then get up and shower and have breakfast. Then around 10:30ish I take the Orgovyx and Prednisone. I was taking the Orgovyx for a while before the Zytiga. The Orgovyx didn't affect me much at all, but after taking the Zytiga for a while the side effects of fatigue, hot flashes, mental fog and nocturia are quite annoying. That said, the treatments are keeping my PSA at undetectable. 😀 I think you'll be fine taking the Orgovyx anytime as long as you're relatively consistent. Hot flashes at night can wake you up too. Between hot flashes and having to pee every 2 hours, I believe the sleep deprivation is the cause of my fatigue and mental fog. I'm curious how many sessions will you be having of the radiation. Are you having photon or did you mean Proton?

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